my experience with guillain barre syndrome (yes, i almost died)
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- čas přidán 15. 11. 2022
- This was and is still obviously a very tramatic event for me, and I am still in recovery physically, emotionally, and mentally. Please be kind :)
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Being trapped in your body sounds like an absolutely terrifying experience!! I can't imagine how hard that must have been for you! My heart literally warmed up hearing all the kind things the nurses did with you to keep you company! Those small gestures make a BIG difference in such a difficult time like that!
I truly couldn't have done it without my great nurses and therapists!
My youngest daughter was 28 when she was finally diagnosed with Postural Orthostatic Tachycardia Syndrome. (POTS), Ehlers Danlos and Mastosytosis. She had symptoms for 4 years before she was diagnosed. She went to college and trained as a 911 dispatcher. She had just begun her career and her symptoms advanced to the point she had to quit her job and was nearly bed ridden. Like you, she is a fighter and always has a smile on her face. She is now 36 and has a daughter who will be 8 in a few days. She has carved out a life for herself and her daughter despite the pain and other health issues she deals with every day. I am proud of you for handling all your health issues with courage. You are an ambassador.
I was diagnosed at 21 with the same things. I was a firefighter/EMT and had a bachelor’s degree. I spent 3 years struggling to get my life back and am now finishing school to become a physician assistant. Disability is hard but it’s also beautiful
Try Moringa powder. It’s a nutritional issue not medical. That’s why the Dr’s can’t fix it.
@@everlasting1154 for which one
@@lordfarquaad1701 Almost All that aren’t caused by infection.
czcams.com/video/GIxmRlqv3zQ/video.html
@@everlasting1154no it’s not?? It’s genetic. THATs why doctors can’t fix it. It’s in our genes 🧬
I’ve nursed patients in inpatient rehab with GB and it’s truly such a cruel disease. As if getting a first virus isn’t bad enough, but having it attack your nervous system is crazy!
And nerve pain is one of the worst kinds of pain you can experience, I don’t care what anyone says
EXACTLY! I had no idea nerve pain was so difficult to deal with :( Thank you so much for all you do!
As a medical student, im so so grateful that you could be able and had the will to share your story with everyone, cause this helps me to understand better what are pts going through, and how can I get better at diagnosing and treating my future patients. thank you so so much and im so glad you're going for a good recovery ✨✨✨
Please also learn about CIDP w/cranial nerve involvement which affects my speech, breathing and swallowing. It is considered progressive GBS for lay people. I started w/symptoms in 2008 and it slowly progressed through the years. My primary told me it was anxiety and the first neurologist agreed. After continuing to deteriorate and almost dying for the 2nd time they narrowed it down to CIDP vs Marie Chacot Tooth. They started me on IVIG and by God’s grace I had an excellent response. I now receive it every 3 weeks and am bordering on needing Prednisone. The best way you can be a doctor is to actually listen to your patients and continue to search for answers especially w/an out of the box patient. Don’t poo poo women and blame it on being a woman or anxiety, you’ll learn much more w/o that thought bias. Best of luck!
21 year old recovering currently from Guillian barre. Thank you for sharing this 🙏🏻♥️
I feel for you and hope this video could offer some encouragement! Sending love :)
Me tooo
Did you get this after taking any vaccines?
I had a few patients years ago have this after the flu shot.
It is def a road to recovery. Hope all is well
Try taking moringa powder. What you have is a nutritional deficiency problem. Not medical.
@@everlasting1154 shut the fuck up. You have no idea what you're talking about.
this video made me cry. i’m going to be an ICU nurse very soon, and it’s stories like this that inspire me. your strength and perseverance are beyond admirable. so glad you’re doing well !
Thank you in advance for all the hard work you do 🥹
I work in a MICU as a tech while I’m in nursing school. Stories from patients like you are a reminder that there are real people with feelings behind the patient that we are treating. Thank you so much for sharing your story! I look forward to watching your journey as you continue to recover.
As a nurse, I appreciate your appreciation! ❤️❤️🇨🇦
My mom had this:( she went in from feeling sick, at first the doctors didn’t think anything and tried to send her home but she felt off, she went to the hospital and 10 hours later her lung’s collapsed and was on a vent. so glad people are bringing awareness to this. Her feet stayed paralyzed and her hands. She felt numbness 24/7 and was on so many meds. She still managed to have 3 kids and push through for YEARS! She has now passed (from a cold) she had barley any immune system left from this. Hope you’re doing well ❤️❤️❤️ thankful for you
I am so sorry for your loss. YES! GBS needs to be talked about more so that people can recognize possible symptoms and advocate for themselves.
Hello April, I am an OT, and am currently assisting a patient w/ GB syndrome. It is a very emotional experience and sometimes it looks as if we’re not making progress but they have come a long way, and this video has given me hope, I’m so glad that you have recovered and wish you all the best 🙏🏾
OTs are absolute angels! Thank you!
@@aprilminhee 💜💜💜💜
Your job is very valued and patients and their loved ones see you as little gods. Have this in mind and keep doing the good work you are doing with patience and perseverance!
What a beautiful person and so inspiring! I am sorry for all that you endured with this because it sounds very scary .
Your ability to find the best in it , and share your experience I know will help many! ❤
You described your experience so eloquently. Thank you for sharing your story. Not only does it help get the word out on symptoms to watch for , but it also shows determination and hope can help pull you back to a full recovery. You are such an inspiration and I hope that the last bits of recovery go quickly and smoothly. HUGS!
Thank you so much for having the strength to share!! You are very well spoken, as others have mentioned. I appreciate your outlook - your positivity, fighting sprit, not placing blame on others. I hope you have a speedy rest of your recovery!!!
aww girl i’m so proud of u! i’m glad ur doing sm better now! 💓💓
Thank you for your video ❤️ what a huge accomplishment it is for you to have gone through so much and to come out of it with positivity and gratefulness. I wish you well and full recovery ❤
Your so strong, keep going! Your fighting spirit and personality Will get you a far way
Hey hun. Sending you lots of love. Thank you for being so vulnerable and sharing your story. You are incredibly brave and I am so so inspired by you.
Your positive attitude is so so beautiful given all the pain and trauma you've experienced. Huge congratulations for all your recent accomplishments and I hope for only the absolute best in your future ❤❤
Thank you minhee for sharing your dark moments and journey to recovery. I pray for your continuing recovery and for stronger body, mind and spirit. I thank God for His grace and mercy for your journey. Amen!!
Hi April, thank you so much for sharing. You're remarkable, as are the support staff who helped you through this. Happy that you're with us.
You are so strong, thank you for sharing your story with the world. Your optimism and strength throughout your unbelievably hard experience is remarkable and awe-inspiring. I hope and pray you will continue to heal fully and not live in pain. So sorry you had to go through such hard moments. Hugs!💕
This is very inspiring and I can't even begin to imagine how much courage and strength it took to get through this. Your determination to get through this has really changed my perspective about some things that have happened in my life. You are a trooper 100% and thank you so much for sharing such a tribulating time in your life. You are an awesome person and may I bless you with peaceful recovery. 💖💖💕
You are so strong! My dad was diagnosed with Guillain barre when i was only 7 days old and he survived too! It makes me so happy to see that you are spreading awareness and you are doing so awesome!
I was recommended this video, and glad to see you recovered from the horrible parts; while dealing with this life long syndrome. I’m glad you you’re still alive.
What a horrifying experience. You've mentioned a lot of my worst fears. Thank you for sharing your experience; as a healthcare professional this helps give perspective to a condition that we spent very little time on in school, so I hope I can diagnose it quickly if I ever cross paths with it. You are extremely articulate and I'm so glad to see you so far along on the path to recovery! Wishing you strength and luck on your journey, and happy holidays.
The fact that you went through this so recently and have made such an incredible recovery!!!!!
So happy for you to have a support system!!! The internet supports you too!!!! YOU GO GIRL
Thank you so so much for sharing! It’s so hard to believe for me, someone just sitting on the couch watching tv, I got suggested your video and I’m very interested in health issues. I know you’ve been through a hard time and I don’t know you at all but I’m so proud of you! You did it, and thank you for raising awareness and telling us all what you went through. Sending love ❤
Yes, be very proud of yourself! I am a registered nurse and understand your journey. You are an inspiration and courageous to share your experience. Blessings.
You are absolutely amazing!! Love to hear your story as it is so inspiring! As a nurse, it warms my heart to hear your experience! Thank you so much for sharing!!!
You are an inspiration for everyone!! You are so strong!! I am in awe hearing you describe this horrible ordeal you went through. But it didn't change your spirit!! God bless you and I hope the recovery process from this point will get better every day!! Your amazing!!
Thank you for sharing your story and raising awareness. I hope you continue to recover and heal. ❤
Your strength and willingness to recover is amazing. I’m glad you got the chance to do the things you want by the end of your recovery and after 💪🏼 ❤
I am so glad you are better! This is one hell of a challenge to go thru!
I am so sorry for your horrible experience. So glad you are still here and in recovery. God is good to you. All the very best 😊.
This was genuinely so informative and inspiring. I’m so glad you’re here!
I have chronic pain and mobility issues due to hypermobility and nerve problems so it was nice and also a bit relatable watching your video. The disability and chronic illness community has really helped me feel less alone and less of a burden etc, so I’m glad you came on here to tell your story to show others they’re not alone in their pain
I really appreciated your story. You are definitely are a strong young woman. So Happy You are a True Survivor !!!!!
Wow this video made me bawl mt eyes out. You are so incredibly well spoken and your story is so touching. Im so so glad you made such an amazing recovery!
I’m glad that everything got better for you! I know must’ve been a hard time but you made it through! You got this!
so sorry you had to go through that. best of luck with your treatment! 😊😊😊
That sounded all so terrifying. It’s wonderful that you have made such a recovery and that you had great medical support behind you.
I’m glad you’re doing so much better. Nurses are truly the best!
Wow. I cried through this whole thing. That was horrible to listen to and I cannot even begin to imagine the pain and terror you experienced. I am so sorry but so glad you’re getting better every day! I wish nothing but the best for you.
I was also hospitalized with Covid while in my third trimester of pregnancy so I understand how isolating that part is, but your experience is horrifying.
you are so inspiring for making the best of the illness, congratulations for getting through and rising up 👏👏
Incredible recovery. Thank you for sharing your story.
Your story is both scary and heartwarming so glad you are on the mend 💕💜 the kindest of wishes to you.
You are such a strong woman! I’m a nurse and we were always trained that patients, even if in a coma can often hear everything you say. I don’t know how you did it. But you should be proud of how hard you worked to get here. I don’t know how you held it together to tell your story. I was in tears hearing it. Thank you for sharing it.
That is a horrible experience but it's amazing to see you get through it! Thank you for sharing :)
You are a warrior and an inspiration! You are being catapulted to greatness from this life changing experience I can just see it! God bless you! Thank you for sharing! Keep the videos coming!
Hi 👋 how are you doing?
Thank you for sharing and giving a voice to all of us who have dealt with a health crisis. You are an inspiration to never give up.
Hello 👋how are you doing?
You are such a strong woman and you articulate perfectly. I am so proud of what you have accomplished and what you will accomplish. You can do anything that you put your mind to, if you can think it, you can do it.
Hello 👋how’re you doing?
I’m so glad to hear about your recovery, Minhee ❤ Sending you so much love and care
Hi 👋how are you doing?
You were eloquent, thank you for sharing. Rooting for your success! ❤
I'm so glad you are able to do the things you can do once again. You are a strong person! Many prayers to you for your continued recovery...
You are such a brave girl and thank you for sharing this experience😭😭 it must be so difficult to speak through this, much love!! Take it easy and leave yourself time to heal ❤
Wishing for continued recovery! ❤🩹
My grandma unfortunately passed away from guillain barre syndrome because her immune system just wasn’t strong enough to fight it so I appreciate this video because it’s very rare and not many people know about it and it’s nice for you to talk about it and your experience so people can get knowledge about it.
I am so sorry for your loss.
@@aprilminhee thank you 😊
i'm so freakin proud of you!! I'm seriously so sorry that you had to experience this. I can't imagine what you personally went through, the emotions you endured, the pain, and the mental torture. Thank you for sharing your story with us. Keep going you are awesome!!
You are immensely strong. Happy that you are better and can follow your dreams! Best wishes :)
Thank you very much for sharing this. I am a prospective neurosurgeon and I covered Guillain-Barré for my research project in my neurobiology course. This really helps bring a human perspective that unfortunately we don't have the time to cover in our coursework but is the most important aspect of medicine. You talking about hitting milestones on things like taking a sip of water reminded me of all the times I was told in my neuro class that "You don't realize how bad it is to lose some of these little functions, how much you'd miss them, and how grateful you'd be to have them back". I have a vast amount of respect for you fighting through this, and I hope your story will stick with me for a very long time. All the best and I wish you the greatest deal of strength in your recovery.
I’m so glad you’re okay now , it’s terrifying to think about what you’ve gone through 😢
April, what a story! You have a strong spirit and determination. Wishing you the strongest health. wishes from Kazakhstan!
Thank you for sharing! I had GBS in 2008 at the age of 29. It definitely is a life changing experience. So glad your in your doing well with your recovery.
Thank you for sharing your story. GBS isn’t well know amongst the medical community, hopefully your video can bring more awareness. Praying for your recovery, sending love and best wishes your way. ❤
It’s know to us
I’m so incredibly proud of you ❤❤
Hi April, I happen to stumble across your video and this brought me to tears. I started as an ER nurse, now working as an nurse practitioner in the hospital as a hospitalist and hearing your story was very inspiring.. I’m sorry this happened to you but I’m glad you’ve overcame it snd is on the other side of it. You’re a beautiful soul and human being and you deserve nothing but the best. May you continue to recover and heal from this and again Thankyou for sharing your story. It’s humbling ❤️🙏
Individuals like you are the reason I am still here!! Thank you :)
I am sending positive vibes and prayer's for your speedy recovery.🙏🙏
Thank you for sharing this, this is very motivational (if that makes sense) and you positive-ness was really nice too see too! Im so glad this vid got recommended to me and once againthank you for sharing this. I cant imagine how hard u have worked and struggled through all of this but to see you from being unable to communicate to now fully being able to talk on cmera and getting your drivers license back is truly so amazing. i dont have any other words rn but ur so cool!
From a stranger to a stranger, I am honestly so proud of you! Wishing you all the best 🙏
Thank you for sharing you’re so strong and very inspiring to others that are also struggling
I’m glad you survived! The whole thing sounds terrifying!
Thank you so much for sharing your story. I felt like I learned a lot and I wish more people knew about GBS too.
That's a great recovery! Thankfully you were young and they found out on time!
You are incredible and so so strong. So much to learn from you. I am a med student and this definitely shows me things that can be improved upon amongst doctors. Thank you for sharing❤
Thank you for sharing your experience! I hope you continue to do well ❤️❤️❤️
You are so incredibly well-spoken; I've never seen anyone like you. Respect for sharing your story and fighting so hard for yourself
This brought tears to my eyes.. thank you!
I'm so great to hear about your recovery but very sorry about what you went through. I know what's is like I have Polymitiss and was like you for months and had to learn all again that was 4 years ago still have trouble with my Blance thank for telling your story
So proud of u Minhee!!
forever proud of you.❤️
Beautiful story, watched the entire thing and you explained it all perfectly. It really sucks that you had to go through all of that pain, especially during surgery. But your strength and seeing your current state (being able to fully talk, be more mobile and loving your job) is very inspiring. The is the first time I've heard of guillain barre syndrome and I have not experienced something like this, yet it helps me to appreciate and be grateful for the little things even more, like you said. :) queen behavior.
OMG, what an amazing story April ❤️ sending you all of my love, you are strong girl.
ITs amazing how far you have recovered! My father had GBS, and I was by his side often in the hospital and recovery. It is no joke such a serious, life altering illness. I loved hearing your story, and I thank you for sharing. No one will ever know how hard you have worked to get to where you are.......It's so amazing! My father has passed away from cancer, but I enjoyed hearing your experience because he was a man of few words, and didn't express all his emotions. I am sure he felt emotionally similar to you. May you continue to spread information about GBS, and help others! I pray that you will continue to be out of pain, as I know that can take time to manage.
I am so so sorry to hear that! Although he didn’t express much, I’m sure he loved having you by his side during recovery. I can vouch that the feeling of support by loved ones is truly indescribable. Thank you so much for your kind words!
My heart goes out to you. I cannot imagine how horrible that must have been, to be unable to move or communicate. I am so glad that your nurses helped keep you company and push through. I aspire to work in the medical field and thank you so much for sharing your story. Wishing for your full recovery!
Thank you so much for sharing your story I learnt so much from this video! You and your family have done so amazing getting through this, I'm sending the biggest of hugs
You poor baby! That must have been beyond scary. Looks like you came through it in spectacular fashion. Hugs to you!
I went back to watch the PT clips after hearing the story and it made me tear up. You are incredibly strong❤️
Thank you for sharing your story, you come across as a very mature young lady, I bet your parents are so proud of you, much love from the UK ❤
Thank you, that means so much!
You’re incredible! sending lots of love from Australia! ❤
Im so happy how far you have come and your recovery ❤❤❤❤
Omg, that was a lot, you went through so much, glad your back on the mend
thank you for sharing your experience with us and helping bring awareness to GBS. my mom had GBS 10 years ago and tbh recovery was not easy and took quite a while (she had to relearn everything), but she's back and much stronger compared to how she was before. prayers for your full recovery, and to everyone in the comments too 🤍
You are very brave and very strong.
Most people don't understand that nerve pain is extremely difficult to deal with. No other meds work on the nerves. Only specific meds work yet it causes being able to balance difficulty. The meds help, at very high doses help greatly for the excruciating pain.
I know because I have nerve damage in my right lumbar and down my right leg. Without surgical procedures and meds I cannot walk.
I can emphasize with some of the pain you went through. Glad you are doing better.
I hope this video is able to offer some kind of encouragement, and I am so sorry that you are also going through nerve pain.. It is definitely so difficult to explain and deal with!
Gratulations, April, on how far you've come!!! You're incredible! Your video was wonderful. It reveals how bright you are. Your thoughts are beautifully organized and expressed. I would never know you had once had neurological deficits from watching and listening to your video, and that is amazing given the assault your neurological system experienced. I believe you when you say that there are a number of things you aren't doing as well as you did them pre-GB although I suspect that wouldn't be obvious to someone watching you do them. Please be patient with yourself. Also, perhaps you can begin to take inventory of the NEW strengths you've developed as outcomes of this extremely traumatic experience. I wish you the very best!
Thank you SO SO much for your kind words- they mean so much to me. I am definitely trying to focus on the things I have earned, more than the things I've lost!
I’m so happy ou are removing and wanted to share that I can see your aura and it is glowing white with lilac color all around you. YOu are blessed and stronger than strong!
So good to see your fast recovery.. 🙌🙏🥰
It’s good they figured out you had it and your nurse and mom knew your pain actio. Keep up the good work you are doing with therapy.
my queen! So strong!
You are extremely mature young lady for your age, I'm sure your battle with Guillain - barré syndrome did help in that as well. I admire your strength and your will to pull through this hard and surely dark times. I'm so happy for you to see how far you came and that you recovered successfully! I'm sure it was scary as heck in the beginning when you didn't know what is going on and loosing the ability to move must have been terrible. I wish you the best for the future and I wish only for the best health down the road!
God Bless you honey. I am so very sorry you went through all of this. You are a beautiful person and I can tell you have a beautiful sole. 💗💗💗💗💗🙏🙏🙏🙏🙏
wow im so sorry this happeend to u but ur resilience is amazing and ty for sharing this story :)
Thank you so much for sharing your story. Your an inspiration.