CDLS The Rollercoaster Ride
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- čas přidán 10. 05. 2018
- This film takes you on a journey into the world of Cornelia de Lange Syndrome. Understanding the ups and downs for people affected by this rare genetic disorder is brought home by frank and open interviews with parents, carers , professionals - and people who themselves have CdLS.
The film also introduces the work of the CdLS Foundation UK & Ireland and shows how the organisation helps families get the latest information and keep in touch with others.
Very cute, sweet children.
Should connect with parent's in the U.S. with CDLS children
My cousin David had CDLS . He was born in 1958, and was non verbal, intellectually impaired, and physically aggressive. My Aunt took care of him at home until he passed.
God bless you all ❤
Loving and being loved is what's most important
Besides that, you will need a LOT of health insurance, something in the USA a lot of people DON'T have.
May God bless all families and children that are effected by this illness, l wish them lots of strength and courage and joy in their journey of life ❤
A minha filha até os 10 anos de idade, era muito doente comesou a falar com 6 anos, ainda é difícil mas a questão da saúde melhorou ficou mais forte, mais resistente, faz ainda tratamento para os brônquios, e toma medicamentos para comtrolar as convulsões, já está com 27 anos, é linda sempre criança, 😉😉😉😉😉😉😉😉😉Maria Irene Santos, esse é o canal dela, parabéns pelo belo trabalho, obrigado 👍😉
I know a boy named Thomas who has CDLS and he is very similar to the Thomas in this video. He has some hearing loss and loves music especially playing the piano
I saw a child with this illness and it was so sad to see the poor child. Terrible illness.
Oi posso postar esse vídeo no canal da minha filha que também é portadora da simdrome, Cornélia de lange, me responda por favor, obrigado 😉👍