2 years ago my husband died of catastrophic antiphospholipid syndrome. We had a good Hospital in our small area. They did everything they could for him. Nothing worked. He was sent to one of the bigger hospitals in Columbus Ohio. They couldn't help him either. He suffered horribly for about 5 months before he died. He lost 80 lbs and blood clots went through all of his major organs. The diagnosis was very slow because the disease was so rare. I felt he received the best care he could in that situation. This was 2018. It is very encouraging to know that people such as Doctor Hughes are working on this terrible disease. May God bless him and all the researchers.
Carol Dixon so sorry for your loss. Thank you for sharing your personal experience. One hopes that it becomes known widely ; nowadays covid-19 may be associated with production of antiphospholioid antibodies and may be responsible for the hypercoagulable state.
I am so incredibly grateful for all Prof. Hughes does, thanks to him (and my gynecologist who KNEW about APS) after a miscarriage I was able to give birth to my twin boys. The loss of pregnancy was devastating however thanks to these findings my boys were able to be born. Not to mention the life of people with APS are most likely saved, in so many cases. I started to share my story with the women around me, I found that so many dont even know about this and how easily it can be detected. So many babies can born today because of finding this disease. That is something for a doctor, what a purposeful life, such a gift. God bless him!
If you are interested, LUpus Patients Understanding & Support (LUPUS) has an important section on Hughes Syndrome www.lupus-support.org Please join the LuPUS Message Board (free) in order to read all the articles and contribute to discussions and questions.
Thank you for this insight i have been trying to get help for 34 months , i am sitting here taking notes and saving all this for my multiple doctors. Thank you!!!
I've had APS for almost twelve years and I have given up on getting anything more than I get now and in my opinion we have covid 19 for that.. Been to so many specialists and even moved 500 miles to a research hospital... Absolutely nothing but knowledge was gained
I have this syndrome and I have yet to find a doctor that can help me! They keep sending me to the next... nobody knows what to do with me! 😢 Thank you for this video, all the way from California
Melissa Darling sorry to hear. please have a look at the other videos on APS and lupus which good provide some further insights that you can take to doctors. There are APS foundations around the world that may be able to guide you re doctors that work with these conditions. Rheumatologists and haematologists are usually familiar with them.
2 years ago my husband died of catastrophic antiphospholipid syndrome. We had a good Hospital in our small area. They did everything they could for him. Nothing worked. He was sent to one of the bigger hospitals in Columbus Ohio. They couldn't help him either. He suffered horribly for about 5 months before he died. He lost 80 lbs and blood clots went through all of his major organs. The diagnosis was very slow because the disease was so rare. I felt he received the best care he could in that situation. This was 2018. It is very encouraging to know that people such as Doctor Hughes are working on this terrible disease. May God bless him and all the researchers.
Carol Dixon so sorry for your loss. Thank you for sharing your personal experience. One hopes that it becomes known widely ; nowadays covid-19 may be associated with production of antiphospholioid antibodies and may be responsible for the hypercoagulable state.
I am so incredibly grateful for all Prof. Hughes does, thanks to him (and my gynecologist who KNEW about APS) after a miscarriage I was able to give birth to my twin boys. The loss of pregnancy was devastating however thanks to these findings my boys were able to be born. Not to mention the life of people with APS are most likely saved, in so many cases. I started to share my story with the women around me, I found that so many dont even know about this and how easily it can be detected. So many babies can born today because of finding this disease. That is something for a doctor, what a purposeful life, such a gift. God bless him!
this disorder is not fun !!! thank you for all you do Professor Hughes!!!
If you are interested, LUpus Patients Understanding & Support (LUPUS) has an important section on Hughes Syndrome
www.lupus-support.org
Please join the LuPUS Message Board (free) in order to read all the articles and contribute to discussions and questions.
Thank you for this insight i have been trying to get help for 34 months , i am sitting here taking notes and saving all this for my multiple doctors. Thank you!!!
It is the reason psych scene exists. Glad you found it useful.
The playlist here : czcams.com/video/YN0Qm7GO0BE/video.html
@@PsychiatrySimplified i
I've had APS for almost twelve years and I have given up on getting anything more than I get now and in my opinion we have covid 19 for that.. Been to so many specialists and even moved 500 miles to a research hospital... Absolutely nothing but knowledge was gained
excellent.thanks
The sound quality of the video is quite 👍
I have this syndrome and I have yet to find a doctor that can help me! They keep sending me to the next... nobody knows what to do with me! 😢
Thank you for this video, all the way from California
Melissa Darling sorry to hear. please have a look at the other videos on APS and lupus which good provide some further insights that you can take to doctors. There are APS foundations around the world that may be able to guide you re doctors that work with these conditions. Rheumatologists and haematologists are usually familiar with them.
I'm twelve years looking and I've seen literally dozens but the answer has always been two more weeks... Let's give it two more weeks?????