Who I Love
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- čas přidán 7. 02. 2016
- Created with assistance from students at Boston University, this video profiles the stories of people impacted by FTD, and shares the response of people learning about the disease for the first time. Support AFTD's With Love campaign today: www.theaftd.org/get-involved/w...
Thank you to the students who created this video! It is very sad to see a loved one turn into a stranger. It's so important to share people's stories and experiences so we do not feel isolated by an FTD diagnosis. I appreciate the work you put into helping spread the news of AFTD's work, and hope you all continue creating!
This was a beautiful video message. I'd love to learn how it is different from all the other degenerative brain diseases--dementia, etc. Did my father live with this for years before he died? Not sure.
+Cameron Hsieh The more I understand the symptoms of this horrible disease, the more I am convinced my "late husband" struggled with the for 8 or more years. I was mad at him for being "vacant" distant, depressed, and unresponsive, doing inappropriate things that were not like him at all. Judgment and common sense things that got crazier and crazier. I thought he was on drugs and was mad at him for years. Living alone and not understanding, as I look back I wish I knew it was not his fault! He died after struggling alone with this for years. I think your father probably did too. I am so sorry for your loss. I know how difficult it is to see a man lose all his dignity with this devastating disease. God Bless You and yours. xoxoxo's
It's an interesting video but the description of the symptoms is rather negative and frightening. I'd prefer a video that shows how we can help someone with FTD to live as well as possible. My sister has Pick's disease. which is a form of FTD. She is still herself despite her symptoms.
+Alison Summers My husband has this and sadly, there is no way to communicate it. Before he broke mirrors and knocked down doors, he tried to kill his daughter and the story goes on and on. If you are lucky to have yours in that course, you are blessed it is moving slowly. My husband was 58, strong, healthy, active - an amazing man and father. We were not as lucky. So, I pray for you and hope that you can keep your sister in the moment. My world came tumbling down fast.
+Alison Summers As the disease progresses, it steals their personality. I pray your sister doesn't get as bad as my late husband did. There are different degrees of this disease I think. Some get violent and some get more emotional. I agree with you, it would be helpful to share how to deal with some of the behaviors. Like "not being confrontational" but "redirecting them with gentle love" God bless you and yours.