Kim's Story: Recovery from Dysautonomia
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- čas přidán 1. 07. 2019
- Kim came to us from California, struggling with Dysautonomia. Her recovery has been wonderful to see.
Visit us at www.northwestfunctionalneurology.com to see how you can become your own success story. - Krátké a kreslené filmy
So many doctors are clueless about this. I had to do the research on my own and figure it out and then tell them that I thought that was what I had. They didn’t even know what I was talking about. It’s mind blowing. I’m just a regular lay person and I had to be the one to figure it out.
Same. My Dr had no clue.
You have to be your own advocate today
I recovered from dysautonomia when I found out the cause (the medical profession is clueless). My dysautonomia turned out to be caused by wireless electronics, also known as electromagnetic hypersensitivity. When I eliminated all wireless devices from my immediate environment. I recovered fully. No cell phone, no wifi, no laptops, no apple watches, no I pad, no smart utility meters, etc. These devices all run on high frequency electricity that travels at the speed of light through the air we breath. These high frequency electromagnetic fields are what transfers data between wireless devices. Unfortunately, EMF's can also disrupt the autonomic nervous system. I am a retired physician, previously a board certified general surgeon. I doubt my profession will ever figure this out. I have tried to tell them.
@@savedbygrace338 yes, me too. I’m extremely sensitive to the non-native EMFs. It’s part of the whole constellation of when the body gets dysregulated. Most people don’t have the luxury to completely disconnect from all those devices so there are products that can help fortify the body against them. I can say that they do work for me they don’t completely get rid of the problem, but they give my system a chance in being able to deal with them.
It’s really a shame that even when individuals in the medical community do figure some of the stuff out, they can’t really share it, or put it into action, because only the standard of care is acceptable. If something is not the standard of care, they cannot recommend it. What a messed up system. As many people are waking up to, it’s all designed to keep the money flowing. Sick people pay money to get well not healthy ones.
Yes, it's really sad and discouraging how so many patients feel like we're left to diagnosing ourselves.
I’m glad this worked for her, but I was kind of hoping this would be a video about how others could have recovery
This is basically an advertisement for a clinic.
Can you imagine what she paid for a week of intensive therapy with all those specialists
I recovered from dysautonomia when I found out the cause (the medical profession is clueless). My dysautonomia turned out to be caused by wireless electronics, also known as electromagnetic hypersensitivity. When I eliminated all wireless devices from my immediate environment. I recovered fully. No cell phone, no wifi, no laptops, no apple watches, no I pad, no smart utility meters, etc. These devices all run on high frequency electricity that travels at the speed of light through the air we breath. These high frequency electromagnetic fields are what transfers data between wireless devices. Unfortunately, EMF's can also disrupt the autonomic nervous system. I am a retired physician, previously a board certified general surgeon. I doubt my profession will ever figure this out. I have tried to tell them.
@savedbygrace338 so 'funny' that you say that. I noticed (in hindsight) that I started to feel unwell (and progressively getting worse over the years) ever since I got my first smart phone - and we moved into mutli-level flats (my partner & myself). I'm still sick 10 years later, and my partner died 😞
Did you change your diet at all?
@@143LoveConquersAll I am sorry to hear about your partner's death. My sympathy to you. I did change my diet at the advice of a physician that I saw at the Environmental Health Center in Dallas, TX. They specialize in treating EHS (Electromagnetic hypersensitivity-which all mainstream sources will swear on their mothers' grave that it doesn't exist, with no proof to back up their assertions, heaven forbid that we let any information leak out that could damage profits) and multiple chemical sensitivity. It was through them that I learned about autonomic nervous system effects of EMF's (electromagnetic fields). They had MANY recommendations and one was for a gluten free, caffeine free, dairy free, sugar free, all organic diet. It was too hard to stick to it since I couldn't go to the store (cell pones and Wi-Fi 😞) and my husband has to do all of the shopping. I now just do a very low sugar, low carb, gluten free diet. But really what has helped the most, keeps me symptom free, and decreases my sensitivity on exposure is AGGRESSIVE AVOIDANCE and SHIELDING. I was going down hill so fast (about 1 1/2 years ago) that we sold our home, moved into a metal shed, camped with no electricity, no running water or plumbing, while we built a low EMF living space in the shed. I now have my health back, no more autonomic dysfunction. You can look up EMF Protection on you tube. Other resources: Physicians for Safe Technology, Environmental Health trust, Magda Havas, WEEP initiative, this will get you started and give you an avalanche of information and web links. A great book to read as an introduction-Electronic Silent Spring by Katie Singer; Electronic Sickening of America by Cadawaller and You tube- Jeromy Johnson Best wishes for your recovery!
I was just diagnosed with dysautonomia and it's hell. I pass out 9 times out of 10 when I stand up. My body temp is all over the place as well as blood pressure and heart rate. I start going to a dysautonomia clinic soon.
So glad for you that they were so nice and helpful to you. You deserve the respect you received. Every patient with disautonomya derserves to be treated well. Life can be hell. Like stuck in a dark closet while the world outside seems to live their lives as if nothing happened. Even friends cannot understand that when they come over. They leave and you are still stuck.
HOW WONDERFUL for you to be healthy 🎶🕊🍀
Greetings from Bavaria
Sadly, it seems like that never is the case because all of these stories are testimonials to give the clinic more credit. I wish someone from these clinics told people what they did somewhere and actually helped everyone. I'm tired of this.
Just got diagnosed with POTS/MCAS been battling for 2 years. Good luck in everyone’s journey. We got this.
Good for you Kim. I have had Long Covid Dysautonomia for 3 years and am getting some online treatment. My hospital does not have a clinic. So many doctors miss this diagnosis because there is not yet a lab test for it. I had over 50 lab tests that were negative. I hope I can find a doctor who can treat this.
u"re brave n strong.thx 4 yr sharing.Good luck!
I started on carnivore diet in desperation. I was alright within 3 weeks
Can you give more details. What were your symptoms, were you diagnosed?
More details please!
Oooh...I have been looking into this! I think I will go at least paleo.
I’m very happy for you! And you seem so kind and genuine, thank you :)
I'm really not being sarcastic when I say this. It's coming from a place of trying not to become hopeless. Kim was fortunate. She has a sister who is a doctor, I'm assuming a husband, and other people who comprise a support system that helped facilitate her trip to the center for treatment. Is there any hope for someone who doesn't have any resources to facilitate a trip to the center? I don’t have access to private care physicians anymore. I'm just trying not to become hopeless about the possibility of at least being able to function on a daily basis and get back to working to sustain myself. I don’t have a support system, unfortunately.
I totally hear you Trisha!
Ask one of your neighbours kindly if they would accompany/take you? I find that most people don't mind helping somebody - if/when asked.
Putting it out to the universe that you get the help that you need. Sending love & hugs from Australia too! ❤🫂😘
Trisha, I am so sorry that you are at the point of trying not to become hopeless. I have been there, too and I know how that feels. What symptoms are you dealing with? I may have a few suggestions that could help you. I have experienced many of the symptoms of dysautonomia. High heart rate, dizziness, nausea, migraine headaches, nearly passing out, insomnia, night sweats, chest pain, brain fog, not being able to think or understand when people were talking to me, not able to focus or concentrate, anxiety/depression... the list goes on. I actually became disabled by it, lost my career, and now am just getting my health back. I have been able to find relief by eliminating the cause which for me was wireless technology. Just doing simple things like turning off your wireless devices (cell phone, Wi-Fi, lap top, iPad, apple watch, kindle, tablets, printer, fax, scanner, ect,,,) may give you some relief. It is worth a try!
@savedbygrace338 The debilitating symptoms are the heart racing, BP hike and palpitations. I haven't actually lost consciousness, but the fear of it, is just as debilitating. I'm trying not to lose hope, as this place I'm in, not even being able to work, bills piling up, is adding fuel to the fire. I've seen that in some cases, the symptoms do go away. I'm just hoping it's temporary or that at least I'll get answers to what's causing it. Sadly, as has been mentioned by others, doctors haven't been much help, and on top of that, I don't have access to the best medical care, since becoming unemployed. If I were just able to get back to working, I would not feel so hopeless.
@@trishastargirl I would suggest a fast from all wireless technology. Maybe 3 days or so to see how you feel. About 1 1/2 years ago when I was disabled by my symptoms, I spent a weekend at an off grid cabin with no cell phone, no electronics whatsoever and actually cried when I woke up one morning after a very restful night's sleep (hadn't slept that well in years) absolutely symptom free. My heart rate was in the 60's and I felt so calm and happy. I hadn't felt that good in years. When I got home and started using my cell phone, I felt my heart rate going back up and pressure in my head. I turned off the cell phone and the symptoms started resolving. I finally put two and two together. That launched me on a journey to recovery. I now live wireless technology free and have regained my health.
@@143LoveConquersAll Thank you. I've become such a loner. I don't know my neighbors. Thank you for caring.
I wish Kim would respond to some of the questions here. I really hope her testimonial is true.
she won't be seeing any notifications as it isn't her channel.
What type of dysautonomia u had and how u cured it ?
what treatments?
Doctors (scientists) are amazing. How do you even learn to diagnose this?
I’m my non medically trained person’s opinion…
Their ears are the most important part of diagnosis. I asked my doctor about it maybe 5 years ago. He dismissed it, after a lot of blackouts and injuring myself badly a doctor in the a & e listened to me and when I mentioned pots he said he was just about to say it & he’d scribbled it on a piece of paper in his hand. He even knew what hyper mobility was…I could have hugged him if I’d been able to lift my wrists off the cushion they were resting on & if I hadn’t grazed one side of my face. Since then I’ve had a tilt table test and about a 3 minute conversation about it confirmed it was pots. Then back end of 2019 I got another cardiology appointment…then 3 more all cancelled. I’m at the point of being sick of it. I’m sick of feeling terrible, sick of pain from Ed’s, sick of allergies from MCAD and the rest of the chaos dysautonomia does to our bodies. I’m also sick of my mobility being rubbish because of Ed’s, not being able to do what I want, from how far do I need to walk, where can I stop if I need to, is the ground ok so my bendy feels, ankles etc won’t make me lose my balance and fall, or will my body decide to make me blackout? What can I hurt myself on if I do? If whoever I’m with wants to eat out will there be anything I’m not allergic to, how will my stomach/gi play nice, or will it reject anything I swallow, will it give me horrible acid reflux? What if I’m accidentally given say gluten and will I have food poisoning symptoms for the next 3 + days. Will I have energy to wake up, what else will hurt, no doubt feet bones, ankles, knees…. What do I have to get done the few days after while my body recovers? 🤷🏼♀️
Sorry for the moaning, no sleep last night again x
@@lilacscentedfushias1852 No, this was really very good explanation about chronic illness. Very good. I am living the same. Maybe we have been too quiet about our reality not to sound too complainin and we get ignored by doctors 🤔
@@lilacscentedfushias1852 sounds like we have really similar gi symptoms, I'm wondering how U worked out what U can and can't eat, was it all trial and error or are there any allergy/histamine response tests you can do? I'm trying so hard to work it out but the response is usually delayed and then I don't know what made me sick. I don't currently have any safe foods, everything triggers violent reflux and excessive acid, I've lost 26kg I feel like I'm starving to death 😬
@@skyerobinson4148see a naturopath or a functional medicine doctor hon. Praying for you! ❤🫂😘
Do you have experience with Sjogren’s and dysautonomia?
What specific treatments did they give you?
Right I’m a whole mess right now
Allrise
Sorry to hear. I have been ill for 3 years now and tried chiropractors that do muscle testing and it helped for a week. I was doing fare for a while until I saw wrong doctor who put me on wrong med and crashed me. I am hopeful I finally am in good hands with two docs I am currently seeing. I have a cardiologist and a medical/functional docs who are knowledgeable and have numerous dysautonomia patients. We are trying to find cause . They have much confidence in their knowledge which gives me confidence. Let me know if you would like to keep in touch. Blessings to you for healing!
Amy Leonard yes that sounds good I’d like to keep in touch. My email is arallrise@gmail.com
What are symptoms of dysautonomia?
@@Myworldmymind908
Too many to list. You can google dysautonomia international and get info there.
So do you still pass out?
This is a just a story. No relevant information. Waste of time
I really didn’t get much out of this video.
I got from Covid
Useless if you don't tell us what you did to help this woman 😞