Sara's Experience with Filgrastim Injections and PBSC Donation
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- čas přidán 8. 09. 2024
- Sara, a recent college graduate, shares her experience with peripheral blood stem cell (PBSC) donation. From day one of her filgrastim injections through donation, Sara shares first-hand how she's feeling and what donation means to her.
*For 5 days leading up to donation, PBSC donors are given injections of a drug called filgrastim to increase the number of blood-forming cells in their bloodstream. The blood-forming cells are then collected through a process called apheresis.
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About NMDP:
NMDP, formerly known as Be The Match, helps patients with leukemia, lymphoma and other diseases who need a marrow, blood stem cell or umbilical cord blood transplant. People can join the NMDP Registry® - the world’s largest listing of potential marrow donors and donated cord blood units - contribute financially and volunteer. Patients and their families can also turn to NMDP for support and resources before, during and after transplant. NMDP, a nonprofit organization that matches patients with donors, educates health care professionals and conducts research so more lives can be saved.
Register to become a bone marrow or blood stem cell donor here: bethematch.org...
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You rock. I get to meet my donor Saturday 9-11 at duke hospital thank you for giving me another day with my family. God bless u all
I too am a PBSC donor. I completed the entire donation process on this past Thursday . This is a wonderful thing you are doing.
Hello, about to donate tomorrow, did you have any long term effects? Did it affect your fertility at all?
After 13 years on the donor registry, I got the call today. It's a daunting prospect. Thank you, Sara, for sharing your experience. It makes it easier for me to face.
I know this comment is from another lifetime… but if you see this I would love to know how it went! You’re a hero, sir.
I received the detailed screening, but at the end my donation was not accepted because of a condition of my health. I was disappointed that I couldn’t help my intended recipient, but I understand that the medical team didn’t want to risk harming the patient.
@@AaronSchuman thank you for sharing!!! Wishing you the best with your health.
I very much enjoyed this video. I was recently contacted about being a possible match for someone after joining the registry in 1991. I have lost 2 friends to leukemia and lymphoma. Both received bone marrow donations and did well but lost their fight in the end. I am praying every day that I get another call or email, because I would really like to donate to someone. Thanks for sharing your experience. Cross your fingers I get another call!!
I had a phone call saying I was a potential match here in UK. Im not great with needles, but helping someone live is an easy decision, I said yes to donating. Will get a donation date in a few weeks
Hey Sara I watched your video about 100 time's before I donated my bone marrow in November 16 2016 and now the person is 100% leukemia free July 2016
You have no idea how much I want to hug you Sara. You are so beautiful inside and out. Seeing you do this gives me so much courage. I signed up today and can't wait to get my swab kit. I sincerely hope they find me as a match for someone.
I thank God for people like you. People who don't care how painful it may be and who put others lives before their own. You and all the others who have registered for or have been fortunate enough to donate are a God send and I thank you from the bottom of my heart.
They are flying my boyfriend for his first physical to donate this weekend. I am so proud of him.
That's do awesome !!!!
That's so awesome, I meant
Sara, you’re my hero. I may be called upon to donate marrow for my mum. You’re the best, knowing that you did it for a person unknown to you. May god bless you.
Thank you Sara for your story. I am a donor for my brother. And I had some concerns, but your calmness and peace and courage, drives me to not be scared. Thank you.
Hello, about to donate tomorrow, did you have any long term effects? Did it affect your fertility at all?
I am so proud of you that you just donated and saved somebody’s life.😁👍🏻❤
My donation was in 2009. I had to have a central line and go to a local hospital. It wasn't painful but as previous posters said my bones ached really bad and I had the worst headache ever. I was having such a bad reaction to the filgrastin that I didn't get the last dose. I also lost 10lbs over the week which was a bonus! But that being said, once the donation was over, I was fine the next day. I also was not allowed to leave the house for the entire week. I have since matched two more people
I'll donate tomorrow. I'm from Germany and I have to give the shot myself twice a day. Lucky you. I have pretty bad Bone Pain and other Side effects. But as you said the Patient suffered much more. You did a great Job!
Thanks for the wonderful video, Sara. I found out last week that I am a match for someone and am so excited to be able to help. Your video eased any apprehension I felt over the filgrastim side effects.
How was your experience?
Thank you for being such a positive force. You are saving a life.....and inspiring others (including myself) to do the same. Bless you!
Seriously, you are too wonderful. Thank you for raising awareness in a positive way.
Thanks so much for sharing your story. I donated PBSC for the first time in December 2011. For me,I had 2 somewhat long shots in my arm(near my bicep) for each day of the filgrastim instead of a shot in the abdomen,it was like 2 long flu shots. I am a man, 6'3" 230 lbs, maybe size makes a difference there. I agree it is a special and rewarding experience. He was 65 with leukemia. I got good recovery reports in Jan and Jul of '12, but then sadly learned he passed away between July '12 and Jan '13
I signed up to join the registry but was a bit hesitant. I watched your video which was absolutely inspiring and empowering. I then just did my swabs and sent them in. I had worked in the health care field for many years with that passion of wanting to make the difference and it never was quite enough for me. this opportunity even to have the possibility to impact someone's life, to help someone in need, to make a real difference in someone's life and have it change yours as well is truthfully the best feeling of making a difference in the world and saving a life. i thank you from the bottom of my heart for this video it reassured and answered so many thoughts. I hope I am able to someday be a match as well.
We thank you for your support Chelsea. Your passion to make an impact on someone's life for sure means a lot to us!
I signed up 2 blood donations ago and I am chomping at the bit to donate! I only hope that one day I get to help someone as you did. You are a brave young woman with an amazing attitude, thank you for everything you did and keep up the great work! Cross your fingers for me!
Sara, you are awesome!! Thank you so much for donating and for sharing your journey with the world! I was also a PBSC donor last fall and scrapbooked my entire journey. Your video was encouragement to me as I wait to meet my recipient hopefully later this year. Thank you for all that you went through and for selflessly giving to those who cannot pay you back. You are a hero and may you be blessed in your life to come! :)
You are so inspiring! Thank you for your kindness 🙏🏼🙌🏼
My brother is in the wait list for a bone marrow transplant. I am not a match but I still want to donate for someone else who I can be match for. 💕
Thank you so much for your support Anadelia! If you’re ready to take the next steps you can join the registry online at: ms.spr.ly/6056ZAfqn!
Simply fill out the online form and a swab kit will be mailed to you. Just so you know, for a blood stem cell or bone marrow transplant, you must match via your HLA and tissue type, not blood type. We hope to see YOU on the registry! 💙💚 -Liv
I know this comment is old but I am praying for you and your brother 💖
Sara, you are my hero. We were Moved to tears by your loving heart and candid video . Someone very soon will be getting the Same call that will give US HOPE!!! . We were so heart sick when we learned of my husband's leukemia . He is a loving father and a talented dentist. Thank you for doing this video and for your gift !
My daughter, Kim, received the same type donor match PBSC at Moffitt yesterday and you cannot imagine the joy we felt and the excitement when the phone rang in her room and they said the plane was on the ground, then a call...it's in the hospital...it's being checked in...another call ...it's on our floor. Thank you for being so wonderful. Our details are the opposite...Kim is American and the donor-match was international...also 21 years old. Have you met the person you helped save?
My uncle got to donate to my other uncle using this process and I am happy to say his doctor just told him he no longer has leukemia! So blessed to see this in someones life I am close to. I do not like needles at all but if I ever get the call I will be honored to be a match and take part in this process. :)
I just completed a PBSC donation this past December and it was a wonderful experience thanks to the great staff at Be The Match and at the donation center. I recently learned my recipient ingrafted and is doing well! I encourage everyone to get registered! The process is simple and safe for donors and urgent for those in need.
Hi Sara! I loved the video you made and THANK YOU for donating your cells!!! I received stem cells from some 20-yr-old guy in Europe about a year and a half ago, and i just celebrated 500 days post transplant. Every day is such a gift...every moment of every day, really! And it is all possible because of selfless people like you and my "europe guy" as I call him who gave me the gift of life!!! I am now back to teaching and running my kiddos around! Thank you, Sara!!!
Way to go Sara, thanks for sharing in multiple ways! I've been on the list for a few years and you are an inspiration.
So glad you were able to be a match for someone in need! Thank you for sharing your experience. I'm excitedly awaiting my initial swab kit to come in the mail. Like you I'm hoping to make a difference to someone out there and their loved ones. While my mother's side would put me in the common Northern European category, my father is full blood Alaskan Native which is very low percentage of the donor registry. What I have in me is theirs to share if needed!
Thanks for sharing your experience. It's amazing to me that more people do not give blood or platelets and do not consider donating stem cells; it's a wonderful way to give and cheers to you for being a wonderful part of your donor's life. I hope you do find a career that allows you the satisfaction you're looking for in helping others. Best of luck.
Hello Sara, you're an angel from heaven !!! Keep it up, please. Thank you so much for sharing.
Something to think about also is, not all recipients make it. It was like having a death in the family. I was depressed for a long time about it. I was told it was nothing I did and I would donate again in a heart beat. The wonderful thing is that you are giving your recipient a chance at life.
Great video diary of your experience Sara! Thanks for sharing. I was fortunate to be matched in late 2010. I donated on 6 December 2010. My experience was similar to yours except that my bones were pretty achy a couple hours after each injection. On christmas day of 2011 I received an email from my recipient and couldn't have imagined a better christmas present! We have kept in contact via email and phone calls. It is incredibly humbling and rewarding experience!
I’ve never been so grateful to be overweight than when I had my first three shots on day one! Donating tomorrow for my son. Never thought I would say those words.
Wow! So incredible to hear this! Thank you for sharing and best of luck to your son! - Jaclyn
Thank you Sara. I've been on the list for several years now and have heard many donor horror stories about how painful the PBSC process is, which has left me skeptical about the whole thing. I feel much better now seeing your video and understanding the process. You're an angel in more ways than one.
Just joined Be the Match! and I'm so excited that I have the possibility of changing someones life. It empowers me to know that I can help someone and to know that there are other people that are willing to help. I so hope that I can be a match one day too!!
Beautiful inside and out. People like you Sara do make a difference. I've been listed for several years already. I hope to get the phone call one day to be a match.
Hi Sara,
Thank you so much for becoming a donor ! I was diagnosed with leukemia 8 years ago this coming 2/6/13 and have been blessed to be in remission for 7 years. I've had numerous ups and downs with medications, injections (in my abdomen) to increase my RBC also...every 2 weeks for several years so I understand the stinging sensation you are speaking about... :) I am lucky enough to remain in remission with a daily chemo drug... Paula
God Bless you, Sara. For all who are or may in the future be on the registry, realize there is another means of donating bone marrow. The filgastrim method is often presented as the preferred means of bone marrow acquisition. The other method requires general anesthesia while the marrow is removed through your hip bones. When you are called, make sure both methods are explained clearly to you so you can make an informed decision.
Sara-Wow! Your video brought me to tears! Bravo!! You were very honest, yet very brave. I am such a firm believer in this and hope to one day be called. Yes, I would weep too! My best wishes in your job search. Hugs and love!
Hiii Sara... U did a wonderful job. God Bless you for that..
Thank you for your courage and generosity in donating and sharing your experience to encourage others!
You are a wonderful human being. I wish you success in everything you do, Sara.
Sara,
Thank you so much for your detailed description of your donation. I only wish they showed the actual donation of your stem cells - to dispel the mystery behind it. I'm sure you helped other potential donors to consider doing what you did. Perhaps in a year you will meet the recipient of your donation. I'd love to see that on video!
Your video is priceless! I'm the recipient of a wonderful donor on Oct 17, 2012.
God bless you you are an angel saving someone's life!!!
I got my first shots yesterday, feeling a little strange around the knees and hip area, but overall doing good! Thank you for sharing your experience!!!
AMAZING! ~Sid
God bless you babe. Thank you for donating! Thank you for sharing this story . I love you. I don't know you, but I love you!! 🙏 ❤ ♥️ ❤
May God bless your soul! I wish we could have more people like you. I wish I could do this myself but unfortunately I cant, Im going through an illness myself.
Great Job!!!!! I am a new Be The Match member and I know if I get the call, I will be just as excited and honored!
Thank you, Sara.
Good job Sarah!! Well done 👍🏻
Thank you for sharing your experience. I am awaiting results from my medical to see if I can donate, I just hope I can as my match fell through 1.5 years ago. If everything goes well, donation day for me will be August 11/12 (2021).
Dauda - Magnificent! You’re a (potential) lifesaver! 💚💙-Abby
I matched with my brother. Get my first shot tomorrow.
Wow!!! Amazing to hear! - Jaclyn
Hi there, how did it go?
@@ash-bb4gu He is doing great. He got out of the hospital last Thursday and is doing good.
Awesome, I'm so happy 😊
Thank you for your sincere support! 💙💚-Sydney
no I was fine afterwards, they did a good job. I sent you a longer reply
I donated PBSC on July 17, 2012 and I had "the most difficult process we've seen". haha. They tried taking the stem cells from my arms first, but my veins collapsed. They then did a central line through my jugular vein and a couple hours later I was good to go! Would do it again in a heartbeat :)
Oh my. Thank you for being a warrior !!!!
I'm in the process now.
Amazing!!!! 💙💚 - Alexa
Sara, you are AWESOME!!!
Thank you!
Thank you
Brava, Sara!
personally,I had a big needle in my left arm (with a small board on the arm) and a small needle in the back of my right hand.I only had pain when they put the needles in and took them out, similar to the brief initial pain when I donate whole blood. (the board is there because you are not allowed to bend the arm that has the big needle in it) with my right hand, I could mouse enough to switch to another netflix or youtube video on my laptop, but couldn't type. I was hooked up 6 hours
You are a Beautiful Lady Inside and Out!
I signed up in 1991 and didn't get called til 2009 but have been called 2 other times since then.
Thanks so much for this video. Helps me to understand what this whole process entails. Just curious if you met your donor in the end.
i dont know you but i truly love you!!!
great job done sara s ,even I am registry with datri (pbsc) in india, I am proud to be donor
Hi, wondering how you are doing now? Have you had any long term effects from the injections?
Did you have a needle in both of your arms or did you have a central line put in? I would have liked to know how you felt directly after the procedure because the last two hours of my donation were not a pleasant experience. I donated two years ago and next month I am meeting the young woman I donated to for the first time in person I am very excited. I have no regrets about doing it and would donate again in a heartbeat but I want to know if the donation process was painful for anyone else.
Ummmm are those injections as painful as she made it look
?
So they didn't tell you about that and to let them know how you were doing? I assume you tried the over the counter stuff and possibly even tried bumping the Advil up to 800mg per dose?
What was their response to your request? Also, would you have been able to get ahold of your contact? I would hope that if you had a problem Friday evening they wouldn't expect you to wait until Monday morning to contact someone about it.
I have a question
Did the injection of the figastin hurt or sting
I assume you tried not to take much if anything for the pain but just endure it without "wimping out", right? Because I have heard sometimes if you tell them they break out the prescription painkillers which many people don't like.
So the person giving you the injections didn't ask you about it or were you self injecting?
And they didn't ask you about it or let you know to tell them? Were you self injecting for most of those days? From what I hear they are usually pretty good about checking with you to see how you are doing.
Did the muscles in your arm hurt after the procedure was over I had a hard time moving my arm after they took the needle out. Also i kind of threatened to pull the needle out myself because the technician was taking to long. My brother went with me to do the donation and he had to calm me down because I was getting kind of melodramatic. lol but I still would do it again in a heartbeat if I was called up again. Because I know how important it is to the person receiving the marrow.
👏🏼
SARA HOW ARE YOU NOW? WHAT ARE YOU DOING?
Hy Doctor how are you
You the best honey to me you hero