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77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD
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- čas přidán 14. 08. 2024
- It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use.
In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension. Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws. He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry.
YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions.
YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.
Explored in this episode:
· How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation
· Why people with EDS are at increased risk of craniocervical instability
· What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability
· Why he started performing surgery for Eagle’s Syndrome
· Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems
· Causes of elevated intracranial pressure
This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment. It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our CZcams channel or listening to this episode on your favorite podcast player. Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on CZcams beneficial.
This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms.
Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com.
YOUR bendy body is our highest priority!
Products, organizations, and services mentioned in this episode:
chiariedscente...
#Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor
Incredible content!! Deep gratitude for the important work you-all do!!
I went to NY to see Dr. B for the ICP/ICT procedure in the fall of 2022. He diagnosed my CCI, tethered cord etc. I am from Nebraska where we struggle to find a Dr. that really knows anything about EDS at all or even belives there is such a thing as EDS. I was grateful to be seen and "heard" by Dr. B. & the many other healthcare professionals that had a part in my care in NY.
How are you doing now?
Thank you. blessings. great Dr.
Thank you so much for sharing that! Anything you can elaborate on is very much appreciated!
I was so grateful for this information, and as someone who has CCI, AAI, and Chiari I’m trying to get a second opinion. Dr B seems to have very divided reviews. All I want is my best chance at returning to the best quality of life possible. People mention that he isn’t board certified? It looks like he’s done two residencies and a fellowship. I’m assuming you all stand by his expertise, correct?
Dr Bolognese did some of his training outside the US and I refer patients to him quite often. All of us physicians will have a wide range of reviews since we deal with a very complicated patient population. Unfortunately, very unhappy people are sometimes the most motivated to write reviews.
Dr. Bolognese and Milhorat saved my life!!! After they opened up my skull for the Chiari Decompression, it was noted that my dura? Was as thin as a potato chip! I had spinal fluid leaking out of little blebs. They helped me become 75% better!!! It's been 20 years since then, I'm going back to have a revised craniocervical fusion (if needed). He will always be one is my special angels here on earth!♥️
@@daliddleOne Wow! Thank you so much for sharing that experience. Those longer term results are crucially important so any more information you are willing to share is much appreciated!
Myles Koby in Maryland an expert radiogist talk to him. Dr B does the most difficult cases the world. He is the best.
@@bendybodiespodcastRight now I’m in the process of getting all new radiological tests done. Then I’ll send them to Dr B to analyze and decide where to go from here.
He’s told me before that my CCF is an older style and we’ll most likely change my old fusion for the newer better design.
My next test, the CT angiogram of head and neck are scheduled for next week! I’m looking forward to feeling better!
Dr. B is great! Thank you for having him on your program. Dr. Chopra and his hacks are the best.
Can you elaborate on your interaction with Dr Bolognese? I am so glad you like the hacks:)
AMAZING❣️👏🏼👏🏼👏🏼👏🏼
Aww. Thank you so much. What have you found most helpful?
listneing to rife freqencies makes me feel great as well as atlas orthgonol dc and regular adjsutments by frined and every 5 days real dc for thoracic and lumbar. only an atlas orthgonol for cervical. magnesium threonate for sleep or chamomile drops. magnsium gyonate great plus fish oil. olive oil evo. 800 mg ibufrofin .
Wow! Thank you for sharing that!
I can’t seem to get my neurologist and ortho to understand I have CCI. My DMX clearly proves I have significant movement and pinching on right side. TPI does nothing for my tight muscles trying to support my head.
Many physicians do not understand CCI. Have you listened to (or watched) the other CCI episodes?
Thank you! Great episode!
You are most welcome. Have you found any others helpful?
I have a question for dr bolo. What kind of surgery do you do when it comes to c2-c3 istabilty and it sliding 3mm..
Do you fuse the skull as well and down or do you work your way down like what do you do.
I would suggest contacting his office with that question.
@@bendybodiespodcast Yes.. I had ict May 10th, 2023. The Dr. takes the case no one wants. the most difficult. He is the best inthe world.
@@SharonSummerford thank you so much for sharing that. Have you had surgery?
Not yet. It wil make me worse. not at 4mm bones out of place inthe upper cervical. Just starting to have ligament laxity.
@@SharonSummerford do you have Ed’s?