Treatment for Sickle Cell Anemia
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- čas přidán 5. 01. 2023
- MEDICAL ANIMATION TRANSCRIPT: Sickle cell anemia is an inherited blood disease that affects your red blood cells. In this disease, an abnormal protein molecule called hemoglobin-S changes your disc-shaped flexible red blood cells into rigid sickle-shaped cells. Sickle cells can block blood flow and can cause pain and tissue damage. And sickle cells don't last as long as normal red blood cells. As a result, your blood has less red blood cells than normal. This condition is called anemia. Treatment options for sickle cell anemia may include medicines or procedures to help relieve symptoms, or in certain cases, a hematopoietic stem cell transplant to potentially cure the disease. Antibiotics and vaccine shots for diseases can help prevent infections. Your healthcare provider may advise you to take pain relievers for severe or chronic pain. One of the most common medicines for long-term treatment of sickle cell anemia is called Hydroxyurea. It helps reduce pain by preventing damage to your red blood cells. It also reduces the risk of long-term complications. Other prescribed medicines that help prevent complications and improve long-term outcomes include Crizanlizumab, Voxelotor, and L-Glutamine. If you have an episode of very severe pain, you may have a procedure called a blood transfusion. This replaces the sickle cells with healthy red blood cells. For young patients who have or are at risk for complications from sickle cell anemia, a hematopoietic stem cell transplant may be advised. It can cure some people who have this disease. Before the transplant, you may be given chemotherapy drugs, radiation therapy, or both. This will destroy the abnormal blood-forming stem cells in your bone marrow. Then you will receive healthy stem cells from either the bone marrow or blood of a donor. The donor is often a family member whose tissue type closely matches yours. The healthy blood-forming stem cells from the donor will travel through your blood to your bone marrow where they will make normal red blood cells instead of sickle cells. To find out more about treatments for sickle cell anemia, talk to your healthcare provider.
#SickleCellAnemia #BloodDiseases #anemia
ANH22256
For starters, healthcare workers need to believe our pain.
@shayff3430 that’s not good. I do understand what you mean. I have to advocate for my son about his pain. And it’s very frustrating when the doctors and nurses don’t believe your pain is very high. I have the trait my son has the disease. I do get the symptoms in my legs tho. Just keep explaining your situation until they understand. This pain is real. 😢
@@prettybrowneyes2329when did you realize that your son had the sickle cell disease. Like at what age and what meds was he introduced to?
@@KepoUG I found at 6 weeks old and was devastated. They only gave him penicillin. He didn’t start hydroxyurea until like age 12. Which worked really good until he had to have a blood transfusion from a hospital while on vacation. They gave him blood that did not match and he’s been having pain crises every day since then. This happened in 2021 and I’m still trying to look for new medicine for him to take.
Starting our daughter on Hydroxyurea has greatly improved her health! It's a game changer for sure, and I can't express how grateful I am for this treatment to be available and so effective.
Myelostat 500 mg right?
,❤️
Hello 🤗..
Wow! That's good news and I am also happy for you too..That was such a heart warming wordings from you basically showing gratitude to her good works for sure 🙂
Well, I'm wishing you a happy new year 🎊💐💞
Stay happy healthy and safe beautiful 😘
And how are you??
@Afzal Portugal She takes 500mg capsules of Hydroxyurea
@Harry Donald McCarty yes we are extremely grateful 🙏. Thank you for the kind words. Blessings to you 🙏
Health care workers really need to understand when we come in with chronic pain... Don't just treat a sickle patient like he's having a fever or sore throat or something... The pain @ that moment is indescribable to the extent you wish to die!!! So please nurses, doctors take this sh*t seeerrriouslyy plllleeeeeeaaassseee!!!
I know boi I do have these disorder.
Thank you for a lecture.
Awesome knowledge. Thank u ❤🌹
Magical video.
please clarify your presentation: a blood transfusion does not REPLACE the sickled cells, it merely dilutes the s level.
Awesome!!
Super explain thank you sir 🙏
Thank god! And, what took so long!
I always encounter patients with SCA. They are always in pain and having constant blood transfusions.
I was just studying about this topic . And then I got the notification of Nucleos Media and then I saw in the video and then I got to know about it. then i understood it better 👍❤️🙏
If anyone if reading this please. My homie that I was friends with since 12 years old and I’m 28 now, died in the hospital from having this episode.. 😢I don’t care if you all have to stand in front of hopsitals to get answers.. I can only imagine what he went through
So sorry for your loss
Sorry for your loss
Can you make a video about Hemoptysis?
Fxklp
Question- for the siblings that receive a HLA match and bone marrow will they no longer have SS if transfer is successful since their blood becomes the donors blood?
Real quick
I don't know but it seems Hydroxyurea doesn't work for me so am now trying all sorts of medicine
Hello Esther,have you tried Plant extract stem cells
@@sarahbir no
@@sarahbir where can one get it?
Oxybryta is an medication that’s solely for people with sickle cell. Unlike hydroxeurea is for patients with the “c” word. My daughter suffers from sickle cell disease ss. Do your research on OXBRYTA than mention it to your doctor . Let me know how it goes for you. Hope this helped some. Stay blessed. For the divine will continue to bless us
Sir make a video on haemophilia. Please we need it..
Burdock root and milk thrissle will clear the liver and restore it .
What about CRISPR?
It's on developing stage and cost around 2.2 million per person. Not a affordable solution for everyone.
I'm a parent to sickle cell patients please try plant stem cells you Will thank God
Please we’re is that done in Nigeria
I also have sickle cell since 7 now I’m 21
Hello .wats the plant stem cells my dear .. I have a patient with sickle cell.. .
Name of the plant stem cells please
@@muhammedyusuff2951 Have you found the plant stem cells already?
@@salmahshak6837 Have you found the plant cells already?
Can sickle cell anemia permanently treated by medication and blood transfusion, or the patient have to take treatment life time?
Yea,, lifetime
Treatments are lifelong
As an individual with HbgSS, it is a lifetime care with pain medication and blood transfusions/exchanges... new treatments are coming but highly expensive like CRISPR that does stem cell transplant which have proven to cure Sickle Cell.
@@garycharles4878 Hello dear,have u thought of using natural ingredients oral plant stem cell treatment therapy (AG Cera) from AG Nutrition
its a genetic disorder hence its a lifelong condition. The good news is that Bluebird Bio is soon "hopefully and GOD willingly" going to provide a cure for SCD which is a gene therapy called Lovo-cell. This gene therapy is not yet approved by the FDA.
First comment 🇧🇩from Bangladesh
👋
Can anyone suggest me a medication for s c a.
Where are you from?
@@sanjaydath4227 Mumbai India
You should consult a well trained medical professional.
@@afzalportugal692 there is no medication I think, blood transfusion is the only way. But please consult Dr first.
💓💓💓💓💓👏👏
👍👍👍
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If there is o- blood group how the blood cells can increase
Ras House Music 🎶 Laborie Beach ⛱️ St Lucia
Myelostat 500 mg i think it will work.
no🧐
Please where can I find this medicines
try hospitals?
@@jasminfebiani8068 ok thank you
Where are you from?
@@sanjaydath4227 am from tamale northern region
@@mohammedissah9169 you're not Indian?
Please is AS sickle cell anamia
No... Just a healthy carrier
Our son is stable with Jena and follon
Is he SS or AS
and how much is the medicine
Ss, shs 22,000 Uganda
@@jennethjenneth3294 pls it a natural medicine?
What is that? Where do you get it?
If a male is minor sickle cell anemic and female is normal. Should they marry each other or not??
There’s a difference between having the disease and being a carrier of the trait. By minor, do you mean that he’s a recessive carrier and does not suffer from the disease himself? If so, yes, they can marry each other. For a child to be born with sickle cell anemia, both parents must be a carrier of the gene. Even if the father himself suffers from the disease, but the mother is normal, his children with carry the sickle cell gene, but it will remain recessive and they won’t have sickle cell anemia. However, they have to make sure not to have kids with anyone who might carry the sickle cell gene or their children will be born with SCA.
@@beachplease_what are you on ?
8 th comments
Meh, would rather we focus on a cure for something worth the effort. Like ingrown toenails or itchy crack.
Your ignorant statement speaks volumes 😒
@@garycharles4878 your name is Gary mate, think you got bigger problems than this comment.
Σε ώμο χρ σε σε
Definitely. Scientists are working on it, but it’s harder than you think. Even if someone comes up with a cure, they have to test it and make sure the side effects aren’t too major. It takes at least 10-15 years on average for a drug to be tested and approved.
@@beachplease_ Bruh
I'm scared to try any other treatments. Adakveo almost killed me
May I ask how so?…I’m 45 and I’ve been on hydroxyurea since I was 19, so I’m researching the other drugs available now.
What on Earth is adakveo?
@@monacartez5600 please how much is it
@@matildaaboagye9495 I’m not sure exactly the cost of the medication. It’s prescribed by my Hematologist and covered by my insurance.
@@monacartez5600 can my 11 year old sickle cell daughter use it