You can get SSDI (Social Security Disability Insurance) immediately with immediate Medicare when you have ALS. Apply ASAP. The ALS foundation can help if needed.
Yes, I posted that once heâs on certain programs his wife and other caregivers can get paid through IHSS. Whatâs So ridiculous is how broke they have to be to do so. đ€Ż
@@QurVgn I agree. A good agent to do your paperwork can help you get through this process. I had to move money and assets around so it would happen. On paper you need to look broke
Apparently there are limits..I began receiving it around 2000.. and unlike SSI..my limited income was allowed. I received excellent care with Medicare..huge help. When I reached retirement age I was automatically shifted to standard Social Security income.
This disease is the literal worst. Like, I cannot stand it. My heart goes out to you, and anyone who is fighting so bravely, and for all the loved ones. I so wish there would be a cure in my lifetime.
I am so sorry. I am a nurse and in January of 2020 spent two weeks in the hospital with what turned out to be a Myasthenia Gravis crisis. I had to go on disability and I no longer have muscle strength for extended periods of time. I know how lucky I am that I was not diagnosed with ALS. My whole life changed but I still have my life.
My mother is also a public school teacher who was diagnosed a few months ago. She too had to say goodbye to the profession she loved this month. My heart goes out to you.
You now qualify for SSDI. It is automatic with an ALS diagnosis. It is also retroactive from when you were first diagnosed. My sister was given it retroactively from when she was diagnosed too. Hope this helps!!
I'm so sorry the disease is progressing so quickly. I hate hearing you say you feel guilty. When my mom had ALS she was constantly apologizing for things she couldn't do and felt like she was a burden. She wasn't and you're not. Everyone, your students included, wants you to do what's best for YOU. Take care of yourself and make some great memories. I hate the financial weight that comes with this disease. My mother chose not to get a tracheotomy and try to keep living in a body that no longer functioned, partly because she liked to be in control of everything đ but mostly because of the financial strain it would put on my brother and I. The three of us moved in together. He worked days while I worked nights and vice versa. We took care of her together and were together when she passed. I wish our country took better care of its citizens in their time of need.
So sorry! I have a similar condition called Primary Lateral Sclerosis. I too had to leave a job that I loved because I lost my voice. Keep your passion for education alive. Join book clubs, take online classes, learn to understand a new language, grow your CZcams channel, raise money for charitiesâŠ. Most importantly, come to know that your career doesnât define you and that you still have so much to offer the world. BTW, we have the same name, Darren (except you spell yours wrong, HaHa)
I am sorry . I am passing through the same process . I was diagnosed with ALS too and I am feeling the same pain . I have been in my house for 5 months. And I want to tank you for sharing the way you got the medicine and I am trying to get it too đ
Iâm glad that youâre positive and thinking about joy thatâs important. Iâm about three years into the same journey you were on buddy ALS remember you are not the disease. You are your warm and beautiful heart. Also I found that letting people help me is a gift to them people want to help so you donât have to feel guilty my friend. Iâm glad that you have a big community that you can reach out to and they support you. Not today ALS.
My heart is broken for you, dont dont give up. My husband was diagnosed 2017, symptoms started in 2013, he fought a courageous fight ending one month ago age 75.
Former teacher here. Am sorry for what you are going through. The blessing here is you have a great Principal , how she handled it is also a reflection of how valued you are because of who you are.
I know what you are facing ... my husband lost his job before he even had a diagnosis. He was diagnosed with ALS 4 days before he passed bc I could not move him anymore and had to call 911 for help. He never got a chance to see a neurologist before that even though he tried for 2 1/2 years ... nobody had time. In the hospital, they told me to immediately apply for disability for him. ALS and kidney failure apparently are the only two conditions where you do not have to wait for retirement age and still get the full amount. I know that is still not enough but a little lifeline. Also, I was told that the big ALS Org helps with free medical equipment. Maybe you know all that already ... but I thought I share that anyway. Also ably for disability ... do not wait for that. It takes time to get everything set up by the government. I lost my husband 2 1/2 months ago and my heart goes out to you and your family. This is a tough tough journey ... Love!!!!
I see you my friend. Iâm a fellow ALS warrior 3 years symptoms on set 2 years since diagnosis. Nothing is easy, we loose so much & itâs painful because we watch our identities slip away.
So awful. I am so sorry - this is so very disappointing. Sometimes in life it's hard to understand why things like this happen. Sending hugs and prayers â€â€â€đđđ
"you know who you are" .... so true Darin. You are "the one" we all hope for/remember ... & kudos to your principal. This journey is one thing to witness, and another to experience.
I am a former teacher and completely understand your pain with regard to your students. Iâm confident they will be 100% supportive of you in your absence, but I know it still hurts, both for you as well as your students. Your story has deeply touched me, having had a friend, who was like a brother to me, diagnosed with ALS. Stay strong and know you have more people than you could possibly imagine who love you and care about you. Thank you for continuing to take us with you on your journey. Godâs blessings to you and your family. I pray for you daily, Darin.
â€sending love from Canada, seeing my eldest brother going through this now, đą November 2022, he got diagnosed when our dad died, grieving hasn't stopped, hole in my heart will never heal. Coping with church support and good friends, glad you have, stay strong loving your spirit from afar
@@lauramorra Thank you for your kind words. Iâm so sorry to hear that your brother is going through this. I will be keeping you all in my thoughts and prayers. â€ïž
@@youtubingwithyou I very much appreciate this, đ â€ïž it's getting worse his symptoms, he is slurring, breaks my heart happening faster his decline, I can't focus đą, I live alone, it's very hard
@@lauramorra You are a very strong person and your brother is so blessed to have you in his life at this time. Itâs hard being alone, as I am too. Prayers are powerful đđ» Much love back at you. â€ïž
The joy of the Lord is our strength. But it doesn't mean it is easy. I am so, so sorry, Darin. You are so loved! And maybe this is your new platform to share your new life lessons and faith lessons you didn't intend to be a teacher of. But God always has a plan for those who love Him.
So sorry you have to go thru this. My Mom had ALS so I lived thru her journey. I have to say I was surprised you were planning on going back to teaching knowing how fast this disease progresses. Prayers to you and your family
†I know how much we love our kids (students). I know you have made a difference in their lives and they will make a difference in the lives of others around them. Your ripple will go on and on. You're right, find joy in all that you can. Praying for you!â€đ My teacher heart feels your pain.
You seem like the best teacher ever, Darin! Praying for your recovery! My dad had ALS so I sympathize with what you're going through! I'm so sorry! God Bless You!
Anyone can tell you are a gifted teacher. All of us following you are learning so much from you outside of the classroom. Just made a go fund me donation and will continue to keep you in my prayers.
So sorry you have had to make this decision and that you have had to make this life change. I am also very sorry that you have had this progression of disease too.
Sir in my district we have what they call a cafeteria plan were other certified teachers donate days to you. Check with your district if they have something like that. That way you donât have to pay out of pocket for the substitute.
My heart foes out to you DarinâŠ.I retired after covid with a golden handshake and althought I wanted to do it, I was pretty lost that first yearâŠ.Keep your chin up! God has this! I hope you saw my message about being able to access your STRS retirement in case of a diagnosis just like yours. I am so glad your gofundme page is up and moving. It is a testament to the impact you have had on the many friends and students you have†God bless and I am praying for you.
Hi Darin - my dad had ALS. You may have already done this but your local chapter of the ALS Association is a great resource. My dad received a grant for medication and equipment from the association that assisted him in his mobility issues. They were also a great source of emotional support for my family. I understand how difficult this disease is and you and your family are in my prayers.
Seeing this breaks my heart as older brother has a 50/50 chance of getting it, aa his birth dad passed away from it. Prayers for you and your family during this time.
Still a great teacher! You have a much bigger classroom, a more diverse set of students of all ages and an even more difficult subject. Thank you, Darin, for the important lessons you are sharing.â€. God bless.
I am so heartbroken for you. For all your dreams that will not come true. For your family and the ones that love you. For all of the students lives you have touched over the years is incredible. Never give up. You are loved,cherished and never alone.
Sending love and thoughts. My dad was diagnosed with motor neurone disease (ALS) in October 2023 and died 3 exactly months later, such a cruel disease, I hope you can enjoy the time you have. I am a teacher and can imagine what a disappointment it is that you are unable to do what you love any longer. Thank you for documenting this, I am sure it will help people, I wish you well x x x
đą thanks for sharing. Your vulnerability is so humbling. I hope your students see this. What you are doing is a better lesson than any student could get in a classroom. I love what you said about finding your joy. I canât even imagine how youâre staying so positive. Know that your legacy will keep on. I still remember all my teachers - the good and the bad. Sending strength and positivity your way. No one will ever forget you. I am so glad I found your channel. Thanks for sharing your story and reminding us all of what is important in life.
Itâs been sad for me to see your channel.I took care of an ALS client named Rick he was your age. He wasnât married/ had no children. He was a pilot until ALS. He lived with his very sweet mom who took him to Germany for fake cure, etc. Took so many supplements he could barely swallow . She had money and was devoted to whatever he asked for.I want to be honest how it was from a caregivers perspective. I felt terrible for his mom her son was leaving before her. No mom wants this! I didnât like seeing him like a rag doll, honestly I felt guilty I was married and had kids. I was also extremely healthy and felt bad he had to look at me with my life how unfair is that? I always gave 100% to him no matter how mean he was. It was my honor to help him find peace because I donât wanna see anyone suffer. Your family will see you through. You are so fortunate to have them, but they arenât gonna like what they see. I ask in the name of Jesus your family would be strong for you and with you . And that the Lord would bring comfort to them also. Amen đđŒ
I know you mean well and people share because they feel connected but I just want to say...I don't have ALS but I have a serious autoimmune condition and comments are usually riddled with how horrible it is and oh I knew someone who died from it or suffered from it and I hate those comments. They are not helpful. I m sure he is aware completely or can imagine the challenges to come and they will take it day by day . Thats all we can do..moment by moment ..day by day. Mr. N needs our encouragement
The mind reset every day is another nuisance. Basically you make peace with your situation but the next morning your mind resets and you have to spend hours again to achieve that same state of mind from the day before
Iâm so sorry. I was worried about you going to work but I could tell it was so important to you. My mom lost her job when she couldnât talk anymore. She loved her job and it was a big part of her identity. Please tell me you have life insurance. In the meantime if you have to use credit , do it . Hugs and prayers
Hey Darin, just watched you video and Iâm so sad for you. I know from our couple of days together back in 2018 that teaching is your passion and gift. You were, and still are, inspiring. Iâve made a donation of what I can to your cause, and will uphold you in my prayers.
Iâm so sorry, I had to give up my nursing career because of rheumatoid arthritis when I was 51. I have been able to find joy in many new things since then and I hope and pray you have the same experience. Hugs snd prayers
đą Iâm so sorry that you had to make this decision. Sending lots of hugs and prayers as you continue to navigate the changes that come your way. †Go find some joy! đ
new subscriber. my daughter works with children, she loves them so much , so i feel your sadness. also, she lost her father at 17, and so i want to hug your beautiful daughters đđ». bless you all
You are such a hip, smart guy, I believe your students will certainly miss you. Now you are presented with a new challenge, and in a quiet moment some idea may come to you that leads you into your next phase of being useful to people. Maybe it is this vlog. You may provide comfort for someone else beginning their journey with ALS. Life can suck so much. I wish this did not happen to you, I bet you are such a cool teacher. We online are far away, but I offer you my support in anything you go through.
Steve Gleason Foundation!! Iâm in New Orleans and I have a freind with ALS! Gleason was a former football player here and his foundation has helped sooo many! Reach out and best of luck!!!
I worked for a neurologist, and was with the doctor when he had to tell a patient she had ALS. It broke my heart, and I held her hand and cried with her. Iâm sending prayers and positive energy your familyâs way. â€
It's really a tough one i can only imagine what you and your family going through... You are amazing person Your positive attitude for life is Something that a lot of people don't have even in this tough journey, i know you have a hurd moments , i pray for you to keep fighting,be positive your spirit - als won't still!!
I am truly sorry for the decision you had to make. Your story is similar to my late husband. When he was diagnosed with bone cancer, he wanted to continue to work. But, discovered that he simply could not. Look into SSDI!! The process takes time but you get retroactive based on when you started the paperwork. Any assistance is good. Continue prayer and a huge huge hug. ~diane
So tragic, must be the worst health diagnosis to get. Donât know how people cope. Iâm so sorry this has happened to you, totally devastating. Ver hard to stay strong â€
Iâm so sorry to hear this. It was so incredible to hear how your principal is dealing with your leave. I love hearing stories like this where we still have admin who truly care about their faculty and staff and what is best for them. She sounds like an amazing person! You are also amazing with how your attitude has remained positive and youâve continued to find joy through it all. You are an inspiration! Supporting and sending you and your family big hugs from one educator to another! â€
My man. Stay strong, I just donated and it looks like the gofundme is already going stong. You help many people with these videos, whether struggling with als or not. Thank you for everything, go find some joy!
I'm so glad you have a supportive administrator. Your students will continue to think of you and make you proud. They know you are always there for them whether you are in the classroom or not. Please take good care of yourself. Teachers supporting teachers is so important. We have made a donation to support you. Thinking of you and your family during this very difficult time.
Thank you for telling everyone to find their JOY in life! The best communication you could share! AND FOR YOUR HONEST words! It sucks and ALS is so misunderstood the researchers are not finding cures! God has you and He will meet all your financial needs through people who are compassionate and giving! I hope you discover the resources! And yes youâve paid SSI and itâs yours to file if thatâs the way you need to go! The ALS foundation can help you! Itâs a bit tough but I think youâll get through the paperwork if you file quickly so you can help your wife! I pray God heals ⊠and restores!â€
my prayerđđ go out too you. I was diagnosed whith lupusđ i take many med"s everyday. i am doing good keep fighting sending love I'll keep you in my prayersâ„â„.
Hi Darin, this really sucks. Iâm really sorry you and your family is going through so much. I have watched Brooke Eby on CZcams and FB and she has ALS, I think in her early 30âs, if you want to check out her channels. I am praying for this cruel disease to slow so you can enjoy your family time. I believe you are going to a better place as Iâm a Christian, but this is very tough stuff. I am praying for you all. â€ïžđšđŠđ
You are such an amazing person, inside and out. Very difficult decision. Know that you are loved and cared about by those who interact with you every day and those who have never met you. Keeping you and your family, in my prayers. You are right, there is joy even in the little things that surround us every day. Even a gentle breeze can provide some comfort and a joyful feeling. That said, another good decision to agree to a gofundme. It takes a village, and Darin, you have a village!
So sorry. Your life, teaching, positivity, and joy have brought me joy. Through it all, you always end with, "Go find some joy!" You have used your little corner of this planet tonspread sunshine and joy. Thank you! My prayers are with you. May you feel God's presence everyday as you walk through this. I pray that the prayers of ao many around the world will strengthen and uphold you.
Hi Darin, I am glad you got through this video. We care about you and prayers going to the Father for respite care and daily encouragement. Your Principalâs reaction overwhelmed you. You have a community who care deeply for you. So I immediately thought of Maya Angelouâs quote: people may not remember what you said they may not remember what you did but they will always remember how you made them feel. God is with you and He is caring for you. Take care
I just came back from my long run preparing for a marathon. I often get asked why I do this and then I always say: because at this moment I can. But I don't know for how long that will last. Seeing your video is really humbling. You are a true inspiration and like others have said, students do not forget their teachers. Especially not teachers like you who love their profession and care about the students as much as you do. I also can't believe just how much of a financial burden your diagnosis is (I'm not from the US, so it always baffles me). I have donated and hope it helps, even if it's only a little bit.
All the love and amazing ways you teach, are coming back to you now. It's obvious to anyone watching these videos that you are one of THOSE teachers..unforgettable and life changers. Best wishes to you as you navigate your health. I can only imagine how difficult this is for you and I'm so sorry you can't be with your classroom kids. Keep finding that joy! You deserve all the best!
Do you have life insurance through school? I have life insurance through my employer and was able to collect 75% of it as a "pre death benefit" - check with your HR people
I am so sorry Darin. We all love you. You are a HUGE inspiration. You are a perfect example of what people should strive to be. Please go find some joy. â€
Also there's a national law called the right to die act I myself had terminal leukemia and had looked into this but miraculously I was able to get a bone marrow transplant. The right to die act is for people who are living with a terminal illness and is the chance to pass with dignity legally
Sending big big hugs đ€ I am sorry you are having to go thru that. You are a TEACHER in your â€. You & your family & friends are in my thoughts & prayers.
Sending strength and prayers your way. I donât have much money, but donated a small amount. If everyone here can even spare $5 and not have your coffee for one day and donate a small amount will go a long way. đđđâ€ïžâ€ïžâ€ïž
Nobody ever forgets their teachers. I'm 67 and U still talk about them.
You can get SSDI (Social Security Disability Insurance) immediately with immediate Medicare when you have ALS. Apply ASAP. The ALS foundation can help if needed.
Yes, I posted that once heâs on certain programs his wife and other caregivers can get paid through IHSS. Whatâs So ridiculous is how broke they have to be to do so. đ€Ż
The faster you apply the quicker you start to get your due money and insurance.
@@QurVgn I agree. A good agent to do your paperwork can help you get through this process. I had to move money and assets around so it would happen. On paper you need to look broke
No income requirements to receive SSDI..
Apparently there are limits..I began receiving it around 2000.. and unlike SSI..my limited income was allowed. I received excellent care with Medicare..huge help. When I reached retirement age I was automatically shifted to standard Social Security income.
This disease is the literal worst. Like, I cannot stand it. My heart goes out to you, and anyone who is fighting so bravely, and for all the loved ones. I so wish there would be a cure in my lifetime.
I am so sorry. I am a nurse and in January of 2020 spent two weeks in the hospital with what turned out to be a Myasthenia Gravis crisis. I had to go on disability and I no longer have muscle strength for extended periods of time. I know how lucky I am that I was not diagnosed with ALS. My whole life changed but I still have my life.
My mother is also a public school teacher who was diagnosed a few months ago. She too had to say goodbye to the profession she loved this month. My heart goes out to you.
Praying for you and your Mom đđŸ
Iâm so sorry. Youâre our teacher now. â€
You now qualify for SSDI. It is automatic with an ALS diagnosis. It is also retroactive from when you were first diagnosed. My sister was given it retroactively from when she was diagnosed too. Hope this helps!!
SSDI only goes back 1 year as that is what Social Security did to me when I became disabled.
I'm so sorry the disease is progressing so quickly. I hate hearing you say you feel guilty. When my mom had ALS she was constantly apologizing for things she couldn't do and felt like she was a burden. She wasn't and you're not. Everyone, your students included, wants you to do what's best for YOU. Take care of yourself and make some great memories. I hate the financial weight that comes with this disease. My mother chose not to get a tracheotomy and try to keep living in a body that no longer functioned, partly because she liked to be in control of everything đ but mostly because of the financial strain it would put on my brother and I. The three of us moved in together. He worked days while I worked nights and vice versa. We took care of her together and were together when she passed. I wish our country took better care of its citizens in their time of need.
So sorry! I have a similar condition called Primary Lateral Sclerosis. I too had to leave a job that I loved because I lost my voice. Keep your passion for education alive. Join book clubs, take online classes, learn to understand a new language, grow your CZcams channel, raise money for charitiesâŠ. Most importantly, come to know that your career doesnât define you and that you still have so much to offer the world. BTW, we have the same name, Darren (except you spell yours wrong, HaHa)
Have you contacted The ALS Association? They have been a great help to me as I go through my ALS journey. You are in my prayers.
Please Google Deanna's protocol
â@@annjames1837đ€š
This is so devastating đą I pray for your strength during this terrible time.
I am sorry . I am passing through the same process . I was diagnosed with ALS too and I am feeling the same pain . I have been in my house for 5 months. And I want to tank you for sharing the way you got the medicine and I am trying to get it too đ
Iâm glad that youâre positive and thinking about joy thatâs important. Iâm about three years into the same journey you were on buddy ALS remember you are not the disease. You are your warm and beautiful heart. Also I found that letting people help me is a gift to them people want to help so you donât have to feel guilty my friend. Iâm glad that you have a big community that you can reach out to and they support you. Not today ALS.
I am so sorry. I am praying for God's strength for you. This is a very hard thing. May God keep you in His care.
My heart is broken for you, dont dont give up. My husband was diagnosed 2017, symptoms started in 2013, he fought a courageous fight ending one month ago age 75.
i can tell that you are a kind and selfless person. its totally ok to focus on yourself while you go through this.
You are still teaching with this brave, honest and intelligent channel.
Former teacher here. Am sorry for what you are going through. The blessing here is you have a great Principal , how she handled it is also a reflection of how valued you are because of who you are.
I know what you are facing ... my husband lost his job before he even had a diagnosis. He was diagnosed with ALS 4 days before he passed bc I could not move him anymore and had to call 911 for help. He never got a chance to see a neurologist before that even though he tried for 2 1/2 years ... nobody had time. In the hospital, they told me to immediately apply for disability for him. ALS and kidney failure apparently are the only two conditions where you do not have to wait for retirement age and still get the full amount. I know that is still not enough but a little lifeline. Also, I was told that the big ALS Org helps with free medical equipment. Maybe you know all that already ... but I thought I share that anyway. Also ably for disability ... do not wait for that. It takes time to get everything set up by the government. I lost my husband 2 1/2 months ago and my heart goes out to you and your family. This is a tough tough journey ... Love!!!!
I see you my friend. Iâm a fellow ALS warrior 3 years symptoms on set 2 years since diagnosis.
Nothing is easy, we loose so much & itâs painful because we watch our identities slip away.
Please look into Deanna's protocol!!
So awful. I am so sorry - this is so very disappointing. Sometimes in life it's hard to understand why things like this happen. Sending hugs and prayers â€â€â€đđđ
"you know who you are" .... so true Darin. You are "the one" we all hope for/remember ... & kudos to your principal. This journey is one thing to witness, and another to experience.
I am a former teacher and completely understand your pain with regard to your students. Iâm confident they will be 100% supportive of you in your absence, but I know it still hurts, both for you as well as your students.
Your story has deeply touched me, having had a friend, who was like a brother to me, diagnosed with ALS.
Stay strong and know you have more people than you could possibly imagine who love you and care about you.
Thank you for continuing to take us with you on your journey.
Godâs blessings to you and your family. I pray for you daily, Darin.
â€sending love from Canada, seeing my eldest brother going through this now, đą November 2022, he got diagnosed when our dad died, grieving hasn't stopped, hole in my heart will never heal. Coping with church support and good friends, glad you have, stay strong loving your spirit from afar
@@lauramorra Thank you for your kind words. Iâm so sorry to hear that your brother is going through this. I will be keeping you all in my thoughts and prayers. â€ïž
@@youtubingwithyou I very much appreciate this, đ â€ïž it's getting worse his symptoms, he is slurring, breaks my heart happening faster his decline, I can't focus đą, I live alone, it's very hard
@@lauramorra You are a very strong person and your brother is so blessed to have you in his life at this time. Itâs hard being alone, as I am too. Prayers are powerful đđ» Much love back at you. â€ïž
@youtubingwithyou thank you, I go to church helps, and lots of walking. Thanks for reaching out
The joy of the Lord is our strength. But it doesn't mean it is easy. I am so, so sorry, Darin. You are so loved! And maybe this is your new platform to share your new life lessons and faith lessons you didn't intend to be a teacher of. But God always has a plan for those who love Him.
So sorry you have to go thru this. My Mom had ALS so I lived thru her journey. I have to say I was surprised you were planning on going back to teaching knowing how fast this disease progresses. Prayers to you and your family
I am so sorry that you had to leave your teaching job. You are still teaching us courage as you navigate your life with ALS. God bless you Darin.đ
So sorry. This is a tough tough life change. â€
†I know how much we love our kids (students). I know you have made a difference in their lives and they will make a difference in the lives of others around them. Your ripple will go on and on. You're right, find joy in all that you can. Praying for you!â€đ My teacher heart feels your pain.
You seem like the best teacher ever, Darin! Praying for your recovery! My dad had ALS so I sympathize with what you're going through! I'm so sorry! God Bless You!
I truly appreciate your prayers and empathy. Itâs comforting to know that I have such a supportive community behind me.
Anyone can tell you are a gifted teacher. All of us following you are learning so much from you outside of the classroom. Just made a go fund me donation and will continue to keep you in my prayers.
So sorry you have had to make this decision and that you have had to make this life change. I am also very sorry that you have had this progression of disease too.
Iâm so sorry. I was hoping you would be able to make it thru the year. You had such high hopes. Sending prayers your way
Sir in my district we have what they call a cafeteria plan were other certified teachers donate days to you. Check with your district if they have something like that. That way you donât have to pay out of pocket for the substitute.
My heart foes out to you DarinâŠ.I retired after covid with a golden handshake and althought I wanted to do it, I was pretty lost that first yearâŠ.Keep your chin up! God has this! I hope you saw my message about being able to access your STRS retirement in case of a diagnosis just like yours. I am so glad your gofundme page is up and moving. It is a testament to the impact you have had on the many friends and students you have†God bless and I am praying for you.
Hi Darin - my dad had ALS. You may have already done this but your local chapter of the ALS Association is a great resource. My dad received a grant for medication and equipment from the association that assisted him in his mobility issues. They were also a great source of emotional support for my family. I understand how difficult this disease is and you and your family are in my prayers.
Seeing this breaks my heart as older brother has a 50/50 chance of getting it, aa his birth dad passed away from it. Prayers for you and your family during this time.
Still a great teacher! You have a much bigger classroom, a more diverse set of students of all ages and an even more difficult subject. Thank you, Darin, for the important lessons you are sharing.â€. God bless.
Very well said
I am so heartbroken for you. For all your dreams that will not come true. For your family and the ones that love you. For all of the students lives you have touched over the years is incredible. Never give up. You are loved,cherished and never alone.
Sorry to hear this, will keep you in my thoughts and prayers!
This is difficultâŠ. Sending you prayers of strength, comfort and love.
Thanks a ton! Your vibes are much appreciated - they really help me get through this!
Sending love and thoughts. My dad was diagnosed with motor neurone disease (ALS) in October 2023 and died 3 exactly months later, such a cruel disease, I hope you can enjoy the time you have. I am a teacher and can imagine what a disappointment it is that you are unable to do what you love any longer. Thank you for documenting this, I am sure it will help people, I wish you well x x x
Thatâs so sad â€
đą thanks for sharing. Your vulnerability is so humbling. I hope your students see this. What you are doing is a better lesson than any student could get in a classroom. I love what you said about finding your joy. I canât even imagine how youâre staying so positive. Know that your legacy will keep on. I still remember all my teachers - the good and the bad. Sending strength and positivity your way. No one will ever forget you. I am so glad I found your channel. Thanks for sharing your story and reminding us all of what is important in life.
Itâs been sad for me to see your channel.I took care of an ALS client named Rick he was your age. He wasnât married/ had no children. He was a pilot until ALS. He lived with his very sweet mom who took him to Germany for fake cure, etc. Took so many supplements he could barely swallow . She had money and was devoted to whatever he asked for.I want to be honest how it was from a caregivers perspective. I felt terrible for his mom her son was leaving before her. No mom wants this! I didnât like seeing him like a rag doll, honestly I felt guilty I was married and had kids. I was also extremely healthy and felt bad he had to look at me with my life how unfair is that? I always gave 100% to him no matter how mean he was. It was my honor to help him find peace because I donât wanna see anyone suffer. Your family will see you through. You are so fortunate to have them, but they arenât gonna like what they see. I ask in the name of Jesus your family would be strong for you and with you . And that the Lord would bring comfort to them also. Amen đđŒ
I know you mean well and people share because they feel connected but I just want to say...I don't have ALS but I have a serious autoimmune condition and comments are usually riddled with how horrible it is and oh I knew someone who died from it or suffered from it and I hate those comments. They are not helpful. I m sure he is aware completely or can imagine the challenges to come and they will take it day by day . Thats all we can do..moment by moment ..day by day. Mr. N needs our encouragement
Praying for you bro đđœđđœ
The mind reset every day is another nuisance. Basically you make peace with your situation but the next morning your mind resets and you have to spend hours again to achieve that same state of mind from the day before
Iâm so sorry. I was worried about you going to work but I could tell it was so important to you. My mom lost her job when she couldnât talk anymore. She loved her job and it was a big part of her identity. Please tell me you have life insurance. In the meantime if you have to use credit , do it . Hugs and prayers
First....thank you for sharing your difficult journey...My heart hurts for you....
I wish I could reach threw the screen and give you a big hug †you are a warrior my friend.
Peace/lite/strength. Many prayers and hugs sent â€
Thank you so much for your kind words! Your support means the world to me. Sending you virtual hugs right back!
@@DarinNakakihara â€ïž thank you đ
My †just aches for you, Darin. I know how much you love the students and teaching. Praying for you and your family. đâ€ïž
I had too retired medically I was a Sped Teacher.
Sending love and light your way,
Hey Darin, just watched you video and Iâm so sad for you. I know from our couple of days together back in 2018 that teaching is your passion and gift. You were, and still are, inspiring. Iâve made a donation of what I can to your cause, and will uphold you in my prayers.
Iâm so sorry, I had to give up my nursing career because of rheumatoid arthritis when I was 51. I have been able to find joy in many new things since then and I hope and pray you have the same experience. Hugs snd prayers
Darin, my heart aches for you. Thank you for being so vulnerable and sharing your journey with us. You have touched so many lives. đđ
đą Iâm so sorry that you had to make this decision. Sending lots of hugs and prayers as you continue to navigate the changes that come your way. †Go find some joy! đ
new subscriber. my daughter works with children, she loves them so much , so i feel your sadness. also, she lost her father at 17, and so i want to hug your beautiful daughters đđ». bless you all
This is heartbreaking. I will be praying for u and I hope you reach your goal on go fund me!!!
I'm sending you hugs and prayersđ I can sense you are a great teacher and your kids will never forget you!!!
You are such a hip, smart guy, I believe your students will certainly miss you. Now you are presented with a new challenge, and in a quiet moment some idea may come to you that leads you into your next phase of being useful to people. Maybe it is this vlog. You may provide comfort for someone else beginning their journey with ALS. Life can suck so much. I wish this did not happen to you, I bet you are such a cool teacher. We online are far away, but I offer you my support in anything you go through.
Steve Gleason Foundation!! Iâm in New Orleans and I have a freind with ALS! Gleason was a former football player here and his foundation has helped sooo many! Reach out and best of luck!!!
I worked for a neurologist, and was with the doctor when he had to tell a patient she had ALS. It broke my heart, and I held her hand and cried with her. Iâm sending prayers and positive energy your familyâs way. â€
It's really a tough one
i can only imagine what you and your family going through...
You are amazing person
Your positive attitude for life is
Something that a lot of people don't have even in this tough journey, i know you have a hurd moments , i pray for you to keep fighting,be positive
your spirit - als won't still!!
Sending you so much love, strength, peace and comfort always xxxâ€đ
I am truly sorry for the decision you had to make. Your story is similar to my late husband. When he was diagnosed with bone cancer, he wanted to continue to work. But, discovered that he simply could not. Look into SSDI!! The process takes time but you get retroactive based on when you started the paperwork. Any assistance is good. Continue prayer and a huge huge hug.
~diane
Gosh I want to hug you đđ», you are in my prayers always đđ
Apply definitely for SS Disability!! đđ»
So tragic, must be the worst health diagnosis to get. Donât know how people cope. Iâm so sorry this has happened to you, totally devastating. Ver hard to stay strong â€
I am a struggling senior so I can't afford to donate but I did "like" your video and subscribed to your channel.
Iâm so sorry to hear this. It was so incredible to hear how your principal is dealing with your leave. I love hearing stories like this where we still have admin who truly care about their faculty and staff and what is best for them. She sounds like an amazing person! You are also amazing with how your attitude has remained positive and youâve continued to find joy through it all. You are an inspiration! Supporting and sending you and your family big hugs from one educator to another! â€
My man. Stay strong, I just donated and it looks like the gofundme is already going stong. You help many people with these videos, whether struggling with als or not. Thank you for everything, go find some joy!
I'm so glad you have a supportive administrator. Your students will continue to think of you and make you proud. They know you are always there for them whether you are in the classroom or not. Please take good care of yourself. Teachers supporting teachers is so important. We have made a donation to support you. Thinking of you and your family during this very difficult time.
Thank you for telling everyone to find their JOY in life! The best communication you could share!
AND FOR YOUR HONEST words! It sucks and ALS is so misunderstood the researchers are not finding cures!
God has you and He will meet all your financial needs through people who are compassionate and giving!
I hope you discover the resources! And yes youâve paid SSI and itâs yours to file if thatâs the way you need to go! The ALS foundation can help you! Itâs a bit tough but I think youâll get through the paperwork if you file quickly so you can help your wife!
I pray God heals ⊠and restores!â€
my prayerđđ go out too you. I was diagnosed whith lupusđ i take many med"s everyday. i am doing good keep fighting sending love I'll keep you in my prayersâ„â„.
Hi Darin, this really sucks. Iâm really sorry you and your family is going through so much. I have watched Brooke Eby on CZcams and FB and she has ALS, I think in her early 30âs, if you want to check out her channels. I am praying for this cruel disease to slow so you can enjoy your family time. I believe you are going to a better place as Iâm a Christian, but this is very tough stuff. I am praying for you all. â€ïžđšđŠđ
You are such an amazing person, inside and out. Very difficult decision. Know that you are loved and cared about by those who interact with you every day and those who have never met you. Keeping you and your family, in my prayers. You are right, there is joy even in the little things that surround us every day. Even a gentle breeze can provide some comfort and a joyful feeling. That said, another good decision to agree to a gofundme. It takes a village, and Darin, you have a village!
So sorry. Your life, teaching, positivity, and joy have brought me joy. Through it all, you always end with, "Go find some joy!" You have used your little corner of this planet tonspread sunshine and joy. Thank you! My prayers are with you. May you feel God's presence everyday as you walk through this. I pray that the prayers of ao many around the world will strengthen and uphold you.
Hi Darin, I am glad you got through this video. We care about you and prayers going to the Father for respite care and daily encouragement.
Your Principalâs reaction overwhelmed you. You have a community who care deeply for you.
So I immediately thought of Maya Angelouâs quote: people may not remember what you said they may not remember what you did but they will always remember how you made them feel. God is with you and He is caring for you. Take care
Praying â€ïž as you are on this journey
My husband passed away from ALS. I was also pregnant with twins when he got diagnosed. I am so sorry. đ
I just came back from my long run preparing for a marathon. I often get asked why I do this and then I always say: because at this moment I can. But I don't know for how long that will last. Seeing your video is really humbling. You are a true inspiration and like others have said, students do not forget their teachers. Especially not teachers like you who love their profession and care about the students as much as you do. I also can't believe just how much of a financial burden your diagnosis is (I'm not from the US, so it always baffles me). I have donated and hope it helps, even if it's only a little bit.
You are amazing, and I can not begin to imagine how you felt. My heart is with you sweetheart đđ©·đđ©·đđ©·đđ©·
My ⥠is broken for you and your students. đđ»đđ»
All the love and amazing ways you teach, are coming back to you now. It's obvious to anyone watching these videos that you are one of THOSE teachers..unforgettable and life changers. Best wishes to you as you navigate your health. I can only imagine how difficult this is for you and I'm so sorry you can't be with your classroom kids. Keep finding that joy! You deserve all the best!
Do you have life insurance through school? I have life insurance through my employer and was able to collect 75% of it as a "pre death benefit" - check with your HR people
Also you need to go on short term and long disability if you have them. If not apply for SSDI and medicare. Are you a vet?
Sending you hugs and prayers, God be with you đđ
Darin, sry and sad to hear this update. My prayers go out to you and your family. May God keep you close thru this. đđđ
We need to find a cure quickly.
How is your breathing!!!!!! Your wife is an angel!!!!
My prayers are with you.
I am so sorry Darin. We all love you. You are a HUGE inspiration. You are a perfect example of what people should strive to be. Please go find some joy. â€
You are in my heart and prayers, Darin! Thank you for all the love you gave those kids. I am a retired teacher myself.
Also there's a national law called the right to die act I myself had terminal leukemia and had looked into this but miraculously I was able to get a bone marrow transplant. The right to die act is for people who are living with a terminal illness and is the chance to pass with dignity legally
Iâm so sad for you!!! Big hugs to you!!!!
I'm so sorry you have to go thru this. Life can be so hard and unfair. Prayers for you.
I am a Christian, and I believe in the power of prayer and healing. I will pray for you. Donât give up. Jesus Christ can heal!
Iâm sorry, this is so hard. Take care of yourself â€
Sending big big hugs đ€ I am sorry you are having to go thru that. You are a TEACHER in your â€. You & your family & friends are in my thoughts & prayers.
You are in my prayers. I hate that you have had to give up teaching that you so love!!đą
Sending strength and prayers your way. I donât have much money, but donated a small amount. If everyone here can even spare $5 and not have your coffee for one day and donate a small amount will
go a long way. đđđâ€ïžâ€ïžâ€ïž
Darin, as a fellow colleague, you were an inspiration during our PD's and you continue to be an inspiration.
Praying for you and asking for a miracle. I love teaching. Feeling that.
Praying for supernatural JOY and Strength. Also praying for provision for you and your family.