Help make our home wheelchair accessible: www.youcaring.com/HomeForAnthony Donate to ALS research at www.ALS.net Link to original footage of my family's story: vimeo.com/88504479
To be honest...the cure for it would've probably been found by now...and it's heartbreaking. In 2012, they raised over 55 million for research...a little under 8% of that money actually went to research, so around 8-9 mill, I think. The rest of it, went to the people's salary. And it's horrible, that people would actually choose money over saving lives... And if no one believes me, look it up. On their site, their fine print, it says the percentage and such... I honestly hope we will find a cure for every sickness and disease out there.
You do realize that medical professionals and scientist have to be payed because they are doing a job? A job that may save lives but still something they need to make a living of. Those people have their own families they need to feed, their own place to live in, they need everything both you and I need. They, unlike you and me, spent their years learning and educating themselves so they could help people with their job, Other than that, I wen't to the ALS page, they used most of the money on professional and public education. That means educating doctors who have no specialization in this subject to know what to do and educating people who take care of those with ALS on ways how to take care of them and make their lives easier. Research is in second place, as it should be. Only 7% went to salaries and administration.
Yes, I understand that. BUT shouldn't finding a cure to change and save lives, be priceless? You can't put a price tag on saving humans. Let alone, any other living thing on this planet.
Michael Winters In a perfect world, yes, but then the state should provide for people who do that work and cut the budget for example military/church. However, depending where you live a lot of people would be angry if they did that. I personally have a condition that is not much researched, but people don't really care, or they care for other things more. Unfortunately, only something like this challenge can generate extra money, because there is always someone who needs to let go of it for someone else to have it, even the state/government. You don't simply create money, and you can't live on air and water. People need to be payed for their work. But the government decides how much a certain cause will get out of their budget, and any budget reassignment will anger someone else. The problem isn't in the doctors and scientists who work, it's in the people who don't support the research or are putting less priority on it.
I live in America. And I'm sorry to hear that you have something like that. It must really be hard, and I do pray for the best for you (yes, I'm Christian). But as for the "paying", that's all just a money scam for them to make money. A fifteen year old boy, not even considered an adult, found a more effective way of treating cancer, I believe by 98% or something like that. It is now used to help with cancer since 2012. It's not a cure, BUT it has definitely helped millions of people world wide fight cancer. Plus, it's wayyyy cheaper than the other treatments. Now, you're telling me, after ALL these years, money, donations, fundraisers, that EVERY SINGLE SCIENTIST couldn't find out what a fifteen year old boy did? Money isn't the issue. I'm sorry to say it like this, but my point is proven with that 15 year old boy, who lives in Maryland, I think. He didn't charge money for research. He did it on his own. With that being said, NO ONE SHOULD PUT A PRICE TAG ON SAVING LIVES. For using the material and resources, that's different. But for finding a cure, or atleast a more effective treatment, shouldn't be bought like that.
Man... this is touching. Prior to taking Neuroscience as a course in college, I had no idea about this disease. I ended up choosing ALS as a topic and doing research on it, and my mind was blown. You are worth it, Anthony Carbajal (and those with ALS). You are worth the research. You are worth the donation. You are worth the cure. Stay strong.
Consider donating to the cause if you haven't already! Prayers are good, but I'm sure he would much rather have a bunch of people donating money than a bunch of people praying.
***** sure, because prayer gave us all the vaccines that exist today that cure millions of people and prevent countless diseases Yes, I'm pretty sure millions of people suffering around the world,whether it be from disease, poverty, oppression, war, tyranny, and of the like would prefer prayer over money that can actually help them. Prayer does not provide clean water and food to starving nations in Africa, money does. Prayer is like a facebook like on a post about starving children. It feels good, and you have the best of intentions and support for the cause, but that facebook like will do absolutely nothing, just like your prayer. Prayer is appreciated, but do something that might actually make a difference and actually donate to a good cause.
***** Every prayer is useless, well it's helpful in boosting morale and hope, but other than that, useless.. I have some extremely religious friends, definitely more religious than me, and I can tell you they 100% believe what they pray will work. Good people, yet whatever they pray for doesn't get answered. A friend prayed for his cat to live after being attacked by a dog...it dies. Another prayed her baby would turn out fine after a sickness she had...that baby later died in the womb. The worst was a friend who told me everyday that he prayed for her mother to get better (several heart diseases) and she later passed away. So your telling me if I pray, it might, maybe make food and clean water magically appear for needy families in africa. No, that's never going to happen, only through real action by volunteering and donating to organizations that directly tackle these problems are things going to get better. If everyone simply prayed and "believed" in their prayers and did nothing else, the world would be chaos and nothing helpful would ever get done.
I know you mean the best but please don't make this a religious debate. We all want the best for each other and the future of our families. A house cannot stand if it is divided among itself.
Dear Anthony, My name is Sarah. I am 11 years old. Though I am young, I understand how bad this disease is. My aunt is currently suffering from ALS. I am crying as I write this letter to you. My aunt recently got pnemounia and is now in hospital. She cannot breath right, she cannot mobilize herself, and she had to get a feeding tube. She has an 8 month old and a 4 year old. And I thank god for you everyday. You have kept me happy and optimistic and have helped me feel noticed and understood. You can read her story here: www.gofundme.com/leahbardin I will not ask for a donation from you, because I know you need the money yourself. I truly thank you. I love you like a father Anthony, because you are my guardian angel in this time of trauma. Praying always, Sarah
Being completely honest I had never heard of ALS until the ice-bucket challenge, so inspired by your story and love how the power of social media can help spread your word and hopefully reduce the amount of future sufferers of ALS, well done for being so brave xx
Hey Anthony. My name is David Walpole from InformOverload and I really wanted to say how much your previous and this video has touched me. I cannot relate to your situation on a personal level but understand. I just wanted you to know that you're a very great person to coming out to talk about about your own personal issues, and bringing awareness to this horrible disease. Thank you for showing us the truth of it all. I hope that a cure is found some day. Thank you for your time.
I think this I've bucket challenge worked. If people would make a video saying to donate personally I wouldn't even care to research about this sickness. Since a lot of people are doing this I was interested in researching about ALS. It's annoying that people all of a sudden are talking about the water. Why aren't people complaining when they see kids playing with water in the park, people washing their car, or taking showers every single day?
I am speechless. I only can send love and wish you the best. I teared up, because I remembered my uncle, who died of ALS. He was a cool guy and always loved to be around him. I wish you and your family the best! Maybe I will post a video.
Keep your head up man. My uncle had ALS a few years back and passed. I am 100% donating to this cause and I will accept your challenge. Keep your head up high, and ny prayers are gone out to you and your mom.
I don't hate the ice bucket challenge, I hate most of the people doing it because 90% of the people just dump a bucket of water over their head and nominate other people to do the same WITHOUT ever mentioning they are doing this to raise awareness for ALS, they're just doing it because it's a popular thing to do and they wanna hop on the bandwagon to get people's attention. Don't get me wrong, some people are doing it right by either talking about ALS in the video or at least put a link to ALS research in the video description but there are way too many people just doing it cause it's just because 'everyone else is doing it'.
-----from PHILIPPINES---- Thanks for being brave man!!! Sooner or later i will do the same thing for my friend that is in the hospital as i write this comment. YOU ARE A BIG ENCOURAGEMENT TO ME!!!
Bullseye! Your right, the pharmaceutical companies do only what they know is profitable and nothing more. It is terrifying to think about, we go to the doctor to get medications that " help"us which isn't comforting seeing that money is the motivation. Thre government sais that we will have a vaccine for coronavirus in under a year, how can that be 100 percent guaranteed when there are so many illnesses out there that cannot be helped. If they came up with a cure for aids, Al's, cdifi and many others, I believe that they know the information or could come up with something, sadly if that were the case then they wouldn't be making the fortune they receive by families who are living a nightmare. The more sick you are, the more dollar signs they see. We are always saying and hoping that there will be cures in the future, in my opinion I do not believe that they ever intended for it through the years or the near future. God bless you for sharing your story, it couldn't of been easy and you have impacted many many lives including me!Thank You
***** Fucking insane idiots. Saying 'I will pray for you' doesn't help shit, DONATING does. It's no fucking different if I said 'I wish for money from Santa Claus to help you'. Neither helps at all, in fact it's quite rude to talk about fairytales regarding this issue. Do you think a person with ALS would really believe in god...? *sigh*
Seriously. the "praying to God, wishing presents from Santa Claus" bullshit thing should be so obvious. It's rude to tell someone that they shouldn't pray if the person wanted to(which no one did in this thread), but it's SOO MUCH more rude to say praying is gonna do jack squat.
Ofcourse you should donate. But whats WRONG with praying to God? If he wants to let him. Everybody should respect every others faith, why shouldn't we? It's NOT a disgrace to talk about "non exstisting things" whatever you want to call it, religion for you may be like a "dick" but they are proud of it and not afraid to show it. I can totally understand why they believe in God but heyy I actually read the bible. Still I don't care what he thinks or believes in thats his business. And if they bring it in to public why not? In his faith it is important to pray, so that only explains he wants to help. That's not a disgrace for me. You guys who says this shit should just not care and go on with your lives, but you stopped and had to comment its useless etc, but not looking at his prespective of it. Just lost a bit of faith in humanity, I thought we needed to respect each other whatever we are and believe in?
Doisne15 Look, only dazzled religious idiots don't realise how cruel that is to say, to someone who might not be religious. If I walked by a man dying on the street and said "yo, I pray for god to give you some CPR" instead of actually helping him myself, what a bad person would I fucking be ?!? Since you've read the bible, then please tell me which of these things is NOT in the bible: Leviathan ? Dragon ? Cherub ? Satyr ? Cockatrice ? Satan ? Giant ? Behemoth ? Dinosaur ? Demon ? Talking snake ? Angel ? 7 headed beast ? Witch ? Unicorn ?
What you think yeah :/ but it's still rude to tell someone it doesn't help its frustrating and annoying. It's really a matter of opinion though. But ofcourse you shouldn't only pray you need to take action aswell by donating. And kinjutsuu that really doesn't make any sense. I wasn't even telling that you shouldn't help. If someone needs cpr you DO need to help. That is what even God tells you to do. That is what is happening these days people have a prejudice about christians all the time. We really DO NOT pray only. And especially I'm not like these people that come to your door do you have time for God etc. I'm not gonna force any one into it. Thats why I wanted to keep this clean and not an opinion based on "God". And I'm still going to do that. But really not all christians are like that, that everyone can be saved by praying thats not true. Sorry what you said at the end of your message what does that even prove?
Hey man, saw your video, very moving. Thanks for putting things into a personal perspective on a first person narrative. You are good looking brave dude. Hang strong 8)
After watching countless ice bucket videos, this one inspired me to make an immediate donation. You're a brave man, I hope my donation will in some small part help you see improved treatment options.
I just really hope people actually understand what the disease is and what the ALS foundation does, because I'm really getting the vibe on Facebook and such that people just dump ice on their head for fun because they can make their friends do it by challenging them, and not really recognizing why they're doing it. Stay strong man.
Anthony Carbajal You are an amazing person. Thank you for this video. Just for the fact that for a lot of people, this is just a passing fad. But with this video, you have brought emotion, love, and conviction. I bow down to you. You are an amazing person, and I wish the best for you in your journey. To the point I'm going to redo my video, and donate more money. Just for the fact that I want more people like you with ALS to persevere. Much Love, Josh
You have so many people praying for you and your family! Please know that you are very loved and everything will be fine in the end. Stay strong! Much love!!
i still hate it because it is a stupid way of showing support, is just a way to stupidly throw away water, if you want to show support then donate, dont throw the most valuable resource we have
ALS is a disease which cause whoever has it to slowly losing control of their body for example: first, your arms will start to numb and it gets really hard for you to even do simple daily thing like tying your shoelace, putting on jeans,... and eventually, you can't use your arms anymore along the ice water gives you few seconds of what it feels like to have the disease eating away inside of those who have it
Flamex arrow you sir win "stupid person of the year award" 1.how much of the 70% are drinkable ? 2.how many places don't have drinkable water ? 3.if there is plenty of something why is it okay to throw it away ? 4.think about it...
This broke my heart... Anthony be strong. We all are with you, even if I just found your video and dont even know you, I'm with you. Things will get better. I didnt know about the ALS either before the ice bucket challenge and even if some haters say this is a waste of water I think is good, without it I would never know what it is so I'm really thankful with whoever started this challenge. This is for a good cause.
No es que se "quejen" del agua, sino que así como en el video muchas personas sufren terriblemente pero por falta de agua. Imagínate no ducharte por 4 días después de trabajar intensamente... El reto se puede realizar pero forzosamente con agua??
Para los que no entienden el reto es el siguiente!! Te reto a que dones $100 dolares o que te heches una cubeta de agua? O donas o te hechas agua no las dos!! Otro punto importante es aquellas personas que hacen las dos cosas pero al mismo tiempo hacen conciencia que es por una buena causa no por aparentar, imitar o ser payaso!
Luis Neri La idea de hacerlo con agua helada es para crear empatía, pues dicen que dicha enfermedad se siente como un cubetazo de agua helada. Y sé que suena cruel, pero el no tirar un bote de agua aquí no implica que vaya a haber más agua en donde escasea. Además, el echarse el bote de agua encima y grabarlo es lo que ha provocado que se vuelva tan viral y muchísimas personas más conozcan la enfermedad, pues llama la atención, lo que no hubiera pasado con sólo donar y pedirle a otras personas que donen.
Lo que se quiere decir es que gracias a un hecho tan "ridículo" (como enfáticamente lo mencionan algunas personas), que es el echarse la cubeta de agua con hielo, se ha logrado lo que no se había podido hacer en tantos años, que es llamar la atención de millones de personas hacia la enfermedad. Inclusive aquellas personas que lo hacen sólo por moda están apoyando sin darse cuenta a lo que esta organización está haciendo: dan a conocer a muchas personas más esta enfermedad y por consiguiente, han logrado recaudar mucho más de lo que han recaudado en muchos años para investigaciones sobre alguna cura o tratamiento de dicha enfermedad.
I wish I could give you a big hug. You deserve to be happy and enjoy yourself. This experience should have you living moments fully and it's great to know people will be watching your videos and supporting you every step of the way
Im so sorry to cant give some money now ,because you know im just 15 :/ . But i promess, when i will finnish my studies, i will create or participate to an association to help a maximum of persons who are in touble like you :). I'm so tired to heard some people says they have problem like you and cant do anything to help them. Good luck men ,I hope see you later after your cure ;).
Shared in Ireland Co. Donegal and with friends in Poland - hope you and your family and other people with ALS will get help and support that you deserve!!! all the best to you!! Your video is so emotional - heartbreaking
Its not a matter of hating, its a matter of having zero respect for people who don't even mention Lou Gehrig's disease and use it as social media self-promotion because many, many people are doing just that.
***** No, they are not contributing in any way, i've seen a lot of these idiots out there, how are they contributing if they aren't even mentioning the disease the challenge was made to help ?
"You can donate without doing the ice bucket challenge." I bet you wouldn't even fucking know what ALS is, without this challenge. The point was to make something viral for a good cause.
Anthony, I never comment on YT but you have motivated me to do so. I am so sorry you are going through this and I pray for you and your family. I don't know what else to say. Sending you all the positive energy I can.
This was the most heartfelt als video I've seen. I am so glad that so much awareness is being spread n donations r being made! Praying for u, your family, n the whole als community
That was 2012. In 2013 they donated ~27% to research. Believe or not, it costs money to run nonprofits. The Red Cross among other nonprofits have to do the same thing.
That was the 2012 numbers. If you look at their 2014 donation number about 27% went to research. The number keeps rising, and even donating you $7 makes a difference.
He is more than right, charities are businesses in reality. Of the money donated to a charity 90% is making the owners rich, while idk 10% or less is used for the real research.
Thank you for sharing your thoughts, Anthony. You've offered a glimpse into life with ALS to those of us who had no idea. All the best to you and your family. Sending hugs to your momma ... and to you.
It's a waste of water. Water that could of been sent to Africa or another part of the world where people are dying of thirst every single day. Sorry if I offend anyone.
Why Africa? No really, why Africa? Why dont we all fix our own states/countries first before we fly out resources to other places? Especially places that have caused nothing but death, destruction, and political unrest. This one world united crap is getting old, open you damn eyes
Sending water is one of the most stupid ideas. It's extremely expensive to ship or fly water in a region with need. It is way better to drill a hole and build a water well. The only reason water get's shipped is, when some kind of tsunami or storm happened and the water there is contamined
Jesse McEwen The buckets are equivalent to 1 minute of a shower if you think it is that much. If you take 10 minute showers, you can put that on perspective. Unlike the shower water which is filled with a shitton of chemicals, the ice bucket water does go to the soil clean and probably a good amount of it is recycled. I honestly hope you do not ever have ALS neither anyone in your family, but if it did, you'd probably be not thinking this is a waste of water.
My grandma died of ALS in 2010, and back then ALS research couldn't get more than $20 mill a year... now over $100 mill in weeks?! Mind blowing! It's people like you who are making a difference :) I wish you all the best. Thank you
liteoner Well there was this baseball player who had the first case named Lou Gerig He kept losing his balance at games and started to be numb, he was paralyzed then there was this scientist named Stephen hawking who has it and now people who have it cursed to live incarcerated in their own bodies, is that it or if not do some research.
Because people are self-congratulatory and narcissistic. They dont give a fuck about ALS, they only care about showing their facebook followers how awesome they are.
Hey man.... I have seen jason becker dealing with this disease, before i have seen that i never truley understood how cruel the world can truly be ... stay strong man, im in tears man. Please stay happy and positive brother.
I'm all for donating to a good cause, but seeing so many people waste water kinda disgusts me when there are people in certain parts of the world killing each other over small amounts of it just so they can survive.
I could pour 10000L of water and it wouldn't change much... Read something about water circulation... The only way to waste water is to spill water in regions seriously poor in water sources or if you're in a region that is rich in water then the only way to waste water is to freaking shoot it to outerspace... Besides average person in US and Europe uses about 130 liters of water EVERY FREAKING DAY. You're taking shower every day? You are wasting water. You are flushing the shit everytime? You are wasting water....
You're right Bao. While we waste our water pouring it on top of our head, you go ahead and grab a bucket of water and fly to those people in need of water.
Perhaps I should've worded myself better. I should've said people taking water for granted. And for those making snarky remarks, I don't. I've been without excessive water before, so I don't use it when it's not for bodily needs and such. Sorry if that makes you angry.
O my, I am so emotional because of your amazing video. I feel with you and your family, my grandmother had ALS and it is as you say devastated. I wish you all the best x
I'm not a hater i just don't undetstand... majority of people didn't know about ALS until this stupid challenge came and what gets me mad is if people really cared they will just donate to the ALS research program and don't tell me that it's fun cause their isn't fun about dumping a bucket of ice cold water on yourself...
If people hadn't done this, it wouldn't become viral, meaning people wouldn't be aware of the disease, meaning people wouldn't donate to the ALS research program. If they would do a video with them only saying "ALS is bad, donate please" many people wouldn't give a f*** because it's not fun to watch. This was a good way and I'm glad this is viral.
I don't know if you have ever solicited anyone for anything...but the door to door thing is horrible....slams and nos are what is often heard and can be very impacting especially if the one doing the soliciting is young (my daughter). I thought this is an interesting way to A) collect money without knocking on doors or cold calling people B) Intrigues some people about a disease that goes unnoticed unless it directly affects your life...C) "Tough" people call out their friends to do it and it becomes a bit competitive and I'm sure ALS is not worried about that as they have seen like 15 million dollars more so far than previous years D) people are doing something fun for a cause...like a walkathon, or 5k run...something attention grabbing...and by calling out 5 people each time you do it causes it to spread so quickly hundreds of thousands of new donors are giving to something that no one knew to care about.
Of course having a bucket of ice water dumped over yourself isn't fun. It's a challenge that will entertain people watching and is fun for the bystander. Therefore while they are entertained by your misfortune you are able to appeal to their senses and get a great impact accross to them. Therefore doing things that come across as painful or silly in order to raise awareness for a cause is a brilliant way to raise awareness and funds. If the ice bucket challenge hadn't happened, the astounding amount of money that has been given, would still be in the pockets of the millions of people who have donated thus far.
Well now you know what ALS is about if it takes ice water to enlighten people's awareness then it's an effective strategy. Drug companies should be the target to find the chemicals to stop the disease process. As citizens, we shouldn't have to raise awareness especially in a developed country. It's the responsibility of drug manufactures and the medical community to find the cures. We shouldn't allow Pfizer to have record profits and still have known diseases that are killing people everyday. That's the tragedy in all of this "awareness".
Thank you for uploading this. I didnt really know what als is. You didnt just tell us, you showed us. All that I can say is that im sorry you are going through this.
Had no clue that's what ALS does. I guess I was an ignorant ice bucket watching bystander, and now I'm enlightened. That's got to be an incredibly hard path to go down. You've made an impact on the world with this video. Thanks. By the way, for anyone reading this, you can help Anthony via his Youcaring.com site: www.youcaring.com/medical-fundraiser/for-anthony-with-love/133001
Anthony, I'm so sorry you and your family are suffering. Watching you help your mother, I tired to imagine what on earth must be running through your own head and your own diagnosis. Thank you for sharing your story with us. I will do more than be just merely sorry and pass on this video and donate to your cause. I wish this was a more just world and people didn't have to suffer from a cruelty of this kind. Your courage inspires many, thank you.
It's unbelievable how heartless some people can be. Everything's about money. What the hell's wrong with you all? I'm so so so sorry for anyone who has to go through this and there's not a word to express how useless I feel. I would jump off of the Titanic and into the freezing water to make you feel better. ='(
Gabriel Gaitán Talk is cheap. Sure, you could go take a jump off of the Titanic for all the good it will do. While you're at it, you could go for a swim in Lake Vostok (Antarctica). OR, you could make realistic goals, that would actually be of some kind of purpose, and then go ahead and DO them. I don't know if you're up to date with your history, but I don't think you'll be "jumping off the Titanic" any time soon
timmy scott Thanks for your input, it's so much useful than mine. Just to clear it up, I know I'm not gonna be able to jump off of the titanic (and history is not my thing, you see). I obviously have realistic goals, but they are mine and I don't to share them. This whole thing was a personal way to express how I feel about this terrible condition. Unfortunately, I can't do better. Thanks again.
Gabriel Gaitán hahahaa I'm just shitting with you. True, talk is cheap - but I guess it's the thought that counts. Maybe turn nice thoughts into reality and do something that truly matters? It all starts with a thought - an idea
I know that feeling, the horror of watching a loved one slowly deteriorate right before your eyes. I watched my uncle, the only real father I ever had, slowly change over my 25 years of living. He went from a strong man aspiring to be a teacher, because of his love for speaking to people, to a wheelchair(still teaching), to being bedridden 24 hours a day. It was around that time I became his pca, taking care of him on the day to day, from simply feeding him to re-doing bandages from sores, and unfortunate side effect of being in a bed all day.Then towards the end of his life I watched the very last thing he loved disappear, his ability to converse, to speak with the people he loved. I saw the horror in his eyes as he desperately tried to simply say hello, and my horror at knowing the last thing I could do with him was gone. My uncle passed in January 2012, from an infection due to complications with MS(Multiple Sclerosis), no one should have to suffer like he did..
Stay strong fellow neckbeard! Join Le reddit army and we shall dump hundreds of ice cold buckets in your honor. Edit: Thank you kind stranger the the gold!
U dont wanna mess with the reddit guys those guys, liveleakers, and sometimes the worldstar people can make things go viral waay before youtube alone, in fact i think those guys are what make most of things go viral on youtube.
An P dont forget about 4chan!! Why just this minute you and I have this conversation, there are entire groups of people set on bashing the creator of a FREE steam game with their misogynistic asses!
Rez i forgot about 4chan my bad i haven't been in that website in years or reddit, liveleak has some cool funny fails and i like how they show the real news that go around the world with no censorship at all although sometimes it can be waay too much, i don't really watch the news but when i do is on liveleak and the comments can be very clever with their avatars, and worldstar it was fun for the comments i could care less for the fights, until people ran out of ideas and just starting saying stupid racist things they aren't fun anymore but i recognize the power of those websites.
Anthony, Your video touched me in so many ways. I was diagnosed with multiple sclerosis 2 years ago, and even though our life expectancy is longer, we share so many of the same symptoms. In your video, you mentioned your hands are atrophying. Since my diagnosis of MS, my right hand is already atrophied and my right leg is pretty much paralyzed. I use an electrical stimulation device on my leg to lift my foot. Multiple sclerosis is slowly taking away my ability. I can hardly walk. I hate these two diseases so much! We need a cure. Even though those with multiple sclerosis have treatment options , it only delays the progression, but the disease is not stopped. WE NEED A CURE!!! Hang in there. Fight! Rely on your faith. We are going through this because we are strong enough to handle it. I'm all for stem cell therapy. Those who oppose are not in the situations we or our loved ones are in. Call me selfish, but I want to live!
A few months ago in New Zealand we were doing this, not sure if it was specifically for ALS but we still donated money weather or not we did the ice challenge, to a cancer charity (maybe it was any charity.) So I give you full props for being able to get a camera and show everyone know how serious ALS really is.
You are such an AMAZING person! Please keep on inspiring others and raising awareness about this terrible disease. Best wishes to you and your family, you will be in our thoughts & prayers xo
This video made me cry soooo hard , we're with you guys , no matter what , no matter how far , nothing matters , just seeing this is so heartbreaking to me. LOT OF LOVE YOU GUYS
You are one of the strongest guys I have ever seen in my life. I can't imagine to have such a cruel disease and to live with the knowledge that I will die in a few years, so I have to live my life to the fulliest. I'm glad to see your video and I'm glad that you show me a part of your entire life. I'm so thankful and I will pray for you!
I am so sorry for anything and everything you have been through. I know that I don't have anyone in my family that has had ALS but I know what it feels like to be in your position. my family has donated $500 to the ALS foundation in honor of all of you people out there that have ALS. again, I am so deeply sorry. stay awesome🌊
You and your family are in my thoughts. Since a lot of us don't see what this crippling disease does to humans first hand, I surely hope you will continue to share your story and journey with us all. Stay strong Anthony.
Im very glad that there is atention for ALS. Very strong from you for making this video. I have respect for you for taking care of your mother. I wish you the best.
I feel so sorry for you, this really saddens me to see, i wish that in the future this will be taken more serious. And i wish you a great life, stay mentally strong Anthony!
Thank for your courage to share to share yours, and your family's, stories. As a mom to a medically complex child, and a nurse,, I understand that sometimes people get caught up in the celebrity and act of dumping ice water, but don't really know the reason it is being done. You have placed a human face on the heartbreak of ALS...Thank you for that!
You got my attention and all my respect, you are really courageous, I hope you keep strong. All this hype surrounding the challenge (and the funds raised) certainly will help researches to improve the lives of those who suffer this disease. My best wishes to you and your mom.
Thank you for sharing your story, and for reminding people about the importance of visibility. My heart goes out to you and your family, and I really hope this wave of attention on ALS will lead to improvements in the near future.
Thank you for sharing your story. Although some comments say negative things and criticize some aspects of the challenge, it is obviously that your movie and your courage attracted a lot of people all around the world. I had been tought that many guys too much enjoying doing that, but it also works for the challenge.
Thank you for being the voice to speak on this. As I did my challenge tonight I spoke about why raising awareness was so important. You say it so much better. Thank you for being open, honest and real.
Sir, I am praying for you as well as donating. All of the leaders at our church are participating in the challenge. We were challenged by our pastors so a bunch of us said yes, but agreed to hurry up before it gets too cool outside. Again, I'm keeping you in my prayers.
My great grandfather died of ALS and I had to see him suffer. It was the worst year of my entire life. Please donate. Please at least do the challenge to show that you care. Thanks for the video!
That really got me.. The idea that cures aren't being developed by large companies because it isn't profitable is just horrific.. Everything has to be about money these days.
WE LOVE YOU!! I hope that all goes well and we find a cure! you have inspired us so much!! you deserve the best and you are very strong. Thank you so much for sharing this with the world… they really need to know
Anthony, from the bottom of my very soul I wish I could do something more I could do for you besides getting myself cold and wet. Im used to it as an Alaskan. My thoughts are with you and I hope there is a benefit that will come from this to help future generations. All our love is with you.
I wanted to say a bit more. Thank you for your courage, your heart and your strength. I had a stroke at 26. Another stroke scares the ever loving hell out of me. Watching you speak on you dealing with this - and how it's coming at you...that was an impressive thing. Don't apologize for your tears or your rant.
You, sir, deserve all the respect in the Universe. All my blessings and best wishes to you and your family. Thanks for sharing this touching story with us and lets hope that even though you are "not profitable", a cure is found soon.
Que triste que tu madre sufra esta enfermedad, lo mas hermoso y admirable de ti es que puedes seguir sonriendo y haciendo feliz a los demás, le deseo lo mejor a tu madre y a esta hermosa causa.
Beautiful video, Anthony. What some people don't get is that the ice bucket challenge has been such a great method to create awareness for this awful disease. They think it's not helping but it's actually a way of marketing. Don't spend too much energy on them. Stay strong and I hope you will still enjoy life for as long as possible and be this same inspiring person.
To be honest...the cure for it would've probably been found by now...and it's heartbreaking. In 2012, they raised over 55 million for research...a little under 8% of that money actually went to research, so around 8-9 mill, I think. The rest of it, went to the people's salary. And it's horrible, that people would actually choose money over saving lives... And if no one believes me, look it up. On their site, their fine print, it says the percentage and such... I honestly hope we will find a cure for every sickness and disease out there.
You do realize that medical professionals and scientist have to be payed because they are doing a job? A job that may save lives but still something they need to make a living of. Those people have their own families they need to feed, their own place to live in, they need everything both you and I need. They, unlike you and me, spent their years learning and educating themselves so they could help people with their job,
Other than that, I wen't to the ALS page, they used most of the money on professional and public education. That means educating doctors who have no specialization in this subject to know what to do and educating people who take care of those with ALS on ways how to take care of them and make their lives easier. Research is in second place, as it should be. Only 7% went to salaries and administration.
Yes, I understand that. BUT shouldn't finding a cure to change and save lives, be priceless? You can't put a price tag on saving humans. Let alone, any other living thing on this planet.
Michael Winters In a perfect world, yes, but then the state should provide for people who do that work and cut the budget for example military/church. However, depending where you live a lot of people would be angry if they did that. I personally have a condition that is not much researched, but people don't really care, or they care for other things more. Unfortunately, only something like this challenge can generate extra money, because there is always someone who needs to let go of it for someone else to have it, even the state/government. You don't simply create money, and you can't live on air and water. People need to be payed for their work. But the government decides how much a certain cause will get out of their budget, and any budget reassignment will anger someone else. The problem isn't in the doctors and scientists who work, it's in the people who don't support the research or are putting less priority on it.
I live in America. And I'm sorry to hear that you have something like that. It must really be hard, and I do pray for the best for you (yes, I'm Christian). But as for the "paying", that's all just a money scam for them to make money. A fifteen year old boy, not even considered an adult, found a more effective way of treating cancer, I believe by 98% or something like that. It is now used to help with cancer since 2012. It's not a cure, BUT it has definitely helped millions of people world wide fight cancer. Plus, it's wayyyy cheaper than the other treatments. Now, you're telling me, after ALL these years, money, donations, fundraisers, that EVERY SINGLE SCIENTIST couldn't find out what a fifteen year old boy did? Money isn't the issue. I'm sorry to say it like this, but my point is proven with that 15 year old boy, who lives in Maryland, I think. He didn't charge money for research. He did it on his own. With that being said, NO ONE SHOULD PUT A PRICE TAG ON SAVING LIVES. For using the material and resources, that's different. But for finding a cure, or atleast a more effective treatment, shouldn't be bought like that.
I agree with you about the 8% going to research, and I've been trying to find a credible source for this. Can you post one?
Man... this is touching. Prior to taking Neuroscience as a course in college, I had no idea about this disease. I ended up choosing ALS as a topic and doing research on it, and my mind was blown. You are worth it, Anthony Carbajal (and those with ALS). You are worth the research. You are worth the donation. You are worth the cure. Stay strong.
Lots of prayers for you and your family....hopefully this viral movement will get the ball rolling on a cure!
Consider donating to the cause if you haven't already! Prayers are good, but I'm sure he would much rather have a bunch of people donating money than a bunch of people praying.
***** sure, because prayer gave us all the vaccines that exist today that cure millions of people and prevent countless diseases
Yes, I'm pretty sure millions of people suffering around the world,whether it be from disease, poverty, oppression, war, tyranny, and of the like would prefer prayer over money that can actually help them. Prayer does not provide clean water and food to starving nations in Africa, money does.
Prayer is like a facebook like on a post about starving children. It feels good, and you have the best of intentions and support for the cause, but that facebook like will do absolutely nothing, just like your prayer.
Prayer is appreciated, but do something that might actually make a difference and actually donate to a good cause.
***** Every prayer is useless, well it's helpful in boosting morale and hope, but other than that, useless.. I have some extremely religious friends, definitely more religious than me, and I can tell you they 100% believe what they pray will work. Good people, yet whatever they pray for doesn't get answered.
A friend prayed for his cat to live after being attacked by a dog...it dies.
Another prayed her baby would turn out fine after a sickness she had...that baby later died in the womb.
The worst was a friend who told me everyday that he prayed for her mother to get better (several heart diseases) and she later passed away.
So your telling me if I pray, it might, maybe make food and clean water magically appear for needy families in africa.
No, that's never going to happen, only through real action by volunteering and donating to organizations that directly tackle these problems are things going to get better. If everyone simply prayed and "believed" in their prayers and did nothing else, the world would be chaos and nothing helpful would ever get done.
I know you mean the best but please don't make this a religious debate. We all want the best for each other and the future of our families. A house cannot stand if it is divided among itself.
***** if that were the case we would ALL have ALS, show me proof that what you say is true.
Dear Anthony,
My name is Sarah. I am 11 years old. Though I am young, I understand how bad this disease is. My aunt is currently suffering from ALS. I am crying as I write this letter to you. My aunt recently got pnemounia and is now in hospital. She cannot breath right, she cannot mobilize herself, and she had to get a feeding tube. She has an 8 month old and a 4 year old. And I thank god for you everyday. You have kept me happy and optimistic and have helped me feel noticed and understood. You can read her story here: www.gofundme.com/leahbardin I will not ask for a donation from you, because I know you need the money yourself. I truly thank you. I love you like a father Anthony, because you are my guardian angel in this time of trauma.
Praying always,
Sarah
Upset AJ
Thank you so much!!
Being completely honest I had never heard of ALS until the ice-bucket challenge, so inspired by your story and love how the power of social media can help spread your word and hopefully reduce the amount of future sufferers of ALS, well done for being so brave xx
Who would ever dislike this?!
Hey Anthony. My name is David Walpole from InformOverload and I really wanted to say how much your previous and this video has touched me. I cannot relate to your situation on a personal level but understand. I just wanted you to know that you're a very great person to coming out to talk about about your own personal issues, and bringing awareness to this horrible disease. Thank you for showing us the truth of it all. I hope that a cure is found some day. Thank you for your time.
It's the waffle!!
This guy is why why I donated! Thank you for making this video.
I think this I've bucket challenge worked. If people would make a video saying to donate personally I wouldn't even care to research about this sickness. Since a lot of people are doing this I was interested in researching about ALS. It's annoying that people all of a sudden are talking about the water. Why aren't people complaining when they see kids playing with water in the park, people washing their car, or taking showers every single day?
Good luck man, stay strong
I am speechless. I only can send love and wish you the best. I teared up, because I remembered my uncle, who died of ALS. He was a cool guy and always loved to be around him. I wish you and your family the best! Maybe I will post a video.
You fucking liar
TheLastLycan Liar? Why?
Keep your head up man. My uncle had ALS a few years back and passed. I am 100% donating to this cause and I will accept your challenge. Keep your head up high, and ny prayers are gone out to you and your mom.
I don't hate the ice bucket challenge, I hate most of the people doing it because 90% of the people just dump a bucket of water over their head and nominate other people to do the same WITHOUT ever mentioning they are doing this to raise awareness for ALS, they're just doing it because it's a popular thing to do and they wanna hop on the bandwagon to get people's attention. Don't get me wrong, some people are doing it right by either talking about ALS in the video or at least put a link to ALS research in the video description but there are way too many people just doing it cause it's just because 'everyone else is doing it'.
ikr
Anthony, Im really glad you posted this video. We are sending you tons of love and support from Mexico.
-----from PHILIPPINES----
Thanks for being brave man!!!
Sooner or later i will do the same thing for my friend that is in the hospital as i write this comment.
YOU ARE A BIG ENCOURAGEMENT TO ME!!!
Right, and your name is not from Ph. :P
Gamers Gone Wild Ph You do know that Philippines used to be ruled by the Portuguese right?
Bullseye! Your right, the pharmaceutical companies do only what they know is profitable and nothing more. It is terrifying to think about, we go to the doctor to get medications that " help"us which isn't comforting seeing that money is the motivation. Thre government sais that we will have a vaccine for coronavirus in under a year, how can that be 100 percent guaranteed when there are so many illnesses out there that cannot be helped. If they came up with a cure for aids, Al's, cdifi and many others, I believe that they know the information or could come up with something, sadly if that were the case then they wouldn't be making the fortune they receive by families who are living a nightmare. The more sick you are, the more dollar signs they see. We are always saying and hoping that there will be cures in the future, in my opinion I do not believe that they ever intended for it through the years or the near future. God bless you for sharing your story, it couldn't of been easy and you have impacted many many lives including me!Thank You
Looking back 6 years ago... People should keep supporting ALS patients. i feel for you... Stay strong
Ill be sure to pray for your family at church
*****
Fucking insane idiots. Saying 'I will pray for you' doesn't help shit, DONATING does. It's no fucking different if I said 'I wish for money from Santa Claus to help you'. Neither helps at all, in fact it's quite rude to talk about fairytales regarding this issue.
Do you think a person with ALS would really believe in god...? *sigh*
Seriously. the "praying to God, wishing presents from Santa Claus" bullshit thing should be so obvious. It's rude to tell someone that they shouldn't pray if the person wanted to(which no one did in this thread), but it's SOO MUCH more rude to say praying is gonna do jack squat.
Ofcourse you should donate. But whats WRONG with praying to God? If he wants to let him. Everybody should respect every others faith, why shouldn't we? It's NOT a disgrace to talk about "non exstisting things" whatever you want to call it, religion for you may be like a "dick" but they are proud of it and not afraid to show it. I can totally understand why they believe in God but heyy I actually read the bible. Still I don't care what he thinks or believes in thats his business. And if they bring it in to public why not? In his faith it is important to pray, so that only explains he wants to help. That's not a disgrace for me. You guys who says this shit should just not care and go on with your lives, but you stopped and had to comment its useless etc, but not looking at his prespective of it. Just lost a bit of faith in humanity, I thought we needed to respect each other whatever we are and believe in?
Doisne15 Look, only dazzled religious idiots don't realise how cruel that is to say, to someone who might not be religious.
If I walked by a man dying on the street and said "yo, I pray for god to give you some CPR" instead of actually helping him myself, what a bad person would I fucking be ?!?
Since you've read the bible, then please tell me which of these things is NOT in the bible:
Leviathan ?
Dragon ?
Cherub ?
Satyr ?
Cockatrice ?
Satan ?
Giant ?
Behemoth ?
Dinosaur ?
Demon ?
Talking snake ?
Angel ?
7 headed beast ?
Witch ?
Unicorn ?
What you think yeah :/ but it's still rude to tell someone it doesn't help its frustrating and annoying. It's really a matter of opinion though. But ofcourse you shouldn't only pray you need to take action aswell by donating.
And kinjutsuu that really doesn't make any sense. I wasn't even telling that you shouldn't help. If someone needs cpr you DO need to help. That is what even God tells you to do. That is what is happening these days people have a prejudice about christians all the time. We really DO NOT pray only. And especially I'm not like these people that come to your door do you have time for God etc. I'm not gonna force any one into it. Thats why I wanted to keep this clean and not an opinion based on "God". And I'm still going to do that. But really not all christians are like that, that everyone can be saved by praying thats not true. Sorry what you said at the end of your message what does that even prove?
This got me to tears. Stay strong sweet boy! God is watching over you and your family. I will keep you and your family in my prayers!
Hey man, saw your video, very moving. Thanks for putting things into a personal perspective on a first person narrative. You are good looking brave dude. Hang strong 8)
After watching countless ice bucket videos, this one inspired me to make an immediate donation. You're a brave man, I hope my donation will in some small part help you see improved treatment options.
I just really hope people actually understand what the disease is and what the ALS foundation does, because I'm really getting the vibe on Facebook and such that people just dump ice on their head for fun because they can make their friends do it by challenging them, and not really recognizing why they're doing it.
Stay strong man.
This guy is incredibly brave to talk about his story. My aunt passed away from ALS, so I truly know how difficult it is.. Stay strong Anthony!
Anthony Carbajal
You are an amazing person. Thank you for this video. Just for the fact that for a lot of people, this is just a passing fad. But with this video, you have brought emotion, love, and conviction. I bow down to you. You are an amazing person, and I wish the best for you in your journey. To the point I'm going to redo my video, and donate more money. Just for the fact that I want more people like you with ALS to persevere.
Much Love,
Josh
You're so brave to speak out about this the way you did! It made me cry! God bless you and your family Anthony!
This was heartbreaking man. Stay strong
You have so many people praying for you and your family! Please know that you are very loved and everything will be fine in the end. Stay strong! Much love!!
i still hate it because it is a stupid way of showing support, is just a way to stupidly throw away water, if you want to show support then donate, dont throw the most valuable resource we have
ALS is a disease which cause whoever has it to slowly losing control of their body
for example: first, your arms will start to numb and it gets really hard for you to even do simple daily thing like tying your shoelace, putting on jeans,... and eventually, you can't use your arms anymore along
the ice water gives you few seconds of what it feels like to have the disease eating away inside of those who have it
Codex i know but how about, it sounds crazy i know but what if we stop wasting water and start using it wisely
where do you live??
Flamex arrow
you sir win "stupid person of the year award"
1.how much of the 70% are drinkable ?
2.how many places don't have drinkable water ?
3.if there is plenty of something why is it okay to throw it away ?
4.think about it...
You never heard of the water cycle? Search for it on google. It's really not wasting water, it gets back into the system again :)
This broke my heart... Anthony be strong. We all are with you, even if I just found your video and dont even know you, I'm with you. Things will get better. I didnt know about the ALS either before the ice bucket challenge and even if some haters say this is a waste of water I think is good, without it I would never know what it is so I'm really thankful with whoever started this challenge. This is for a good cause.
vídeo de los que se quejan por la cubeta de agua,,, y no logran ver que es por una gran causa...
No es que se "quejen" del agua, sino que así como en el video muchas personas sufren terriblemente pero por falta de agua. Imagínate no ducharte por 4 días después de trabajar intensamente... El reto se puede realizar pero forzosamente con agua??
Para los que no entienden el reto es el siguiente!!
Te reto a que dones $100 dolares o que te heches una cubeta de agua?
O donas o te hechas agua no las dos!! Otro punto importante es aquellas personas que hacen las dos cosas pero al mismo tiempo hacen conciencia que es por una buena causa no por aparentar, imitar o ser payaso!
Luis Neri La idea de hacerlo con agua helada es para crear empatía, pues dicen que dicha enfermedad se siente como un cubetazo de agua helada. Y sé que suena cruel, pero el no tirar un bote de agua aquí no implica que vaya a haber más agua en donde escasea. Además, el echarse el bote de agua encima y grabarlo es lo que ha provocado que se vuelva tan viral y muchísimas personas más conozcan la enfermedad, pues llama la atención, lo que no hubiera pasado con sólo donar y pedirle a otras personas que donen.
Me da verguenza escuchar esto, quieren decir que no se puede dar caridad sin mostrarse en youtube echándose una cubeta de agua con hielos?
Lo que se quiere decir es que gracias a un hecho tan "ridículo" (como enfáticamente lo mencionan algunas personas), que es el echarse la cubeta de agua con hielo, se ha logrado lo que no se había podido hacer en tantos años, que es llamar la atención de millones de personas hacia la enfermedad. Inclusive aquellas personas que lo hacen sólo por moda están apoyando sin darse cuenta a lo que esta organización está haciendo: dan a conocer a muchas personas más esta enfermedad y por consiguiente, han logrado recaudar mucho más de lo que han recaudado en muchos años para investigaciones sobre alguna cura o tratamiento de dicha enfermedad.
I wish I could give you a big hug. You deserve to be happy and enjoy yourself. This experience should have you living moments fully and it's great to know people will be watching your videos and supporting you every step of the way
Im so sorry to cant give some money now ,because you know im just 15 :/ . But i promess, when i will finnish my studies, i will create or participate to an association to help a maximum of persons who are in touble like you :). I'm so tired to heard some people says they have problem like you and cant do anything to help them. Good luck men ,I hope see you later after your cure ;).
What a lovely comment :D
Shared in Ireland Co. Donegal and with friends in Poland - hope you and your family and other people with ALS will get help and support that you deserve!!! all the best to you!! Your video is so emotional - heartbreaking
Its not a matter of hating, its a matter of having zero respect for people who don't even mention Lou Gehrig's disease and use it as social media self-promotion because many, many people are doing just that.
***** No, they are not contributing in any way, i've seen a lot of these idiots out there, how are they contributing if they aren't even mentioning the disease the challenge was made to help ?
May The Lord blessing you family and you also. Keep going we still have more to go...
"You can donate without doing the ice bucket challenge."
I bet you wouldn't even fucking know what ALS is, without this challenge. The point was to make something viral for a good cause.
Anthony, I never comment on YT but you have motivated me to do so. I am so sorry you are going through this and I pray for you and your family. I don't know what else to say. Sending you all the positive energy I can.
Well now I feel like a real a-hole for my feelings regarding these videos. Thanks for changing my mind.
This was the most heartfelt als video I've seen. I am so glad that so much awareness is being spread n donations r being made! Praying for u, your family, n the whole als community
You're only going to see around 7% of the money donated to charity, everyone has got their fingers in it.
That was 2012. In 2013 they donated ~27% to research. Believe or not, it costs money to run nonprofits. The Red Cross among other nonprofits have to do the same thing.
That varies heavily from one charity to another. Many give far more than 7%.
That was the 2012 numbers. If you look at their 2014 donation number about 27% went to research. The number keeps rising, and even donating you $7 makes a difference.
Who cares if they only donate 3% as long as they help.
He is more than right, charities are businesses in reality. Of the money donated to a charity 90% is making the owners rich, while idk 10% or less is used for the real research.
Thank you for sharing your thoughts, Anthony. You've offered a glimpse into life with ALS to those of us who had no idea. All the best to you and your family. Sending hugs to your momma ... and to you.
It's a waste of water. Water that could of been sent to Africa or another part of the world where people are dying of thirst every single day. Sorry if I offend anyone.
Why Africa? No really, why Africa? Why dont we all fix our own states/countries first before we fly out resources to other places? Especially places that have caused nothing but death, destruction, and political unrest. This one world united crap is getting old, open you damn eyes
Get your bucket of water and head over to Africa then!
You can't really transport water can you..
Sending water is one of the most stupid ideas. It's extremely expensive to ship or fly water in a region with need. It is way better to drill a hole and build a water well. The only reason water get's shipped is, when some kind of tsunami or storm happened and the water there is contamined
Jesse McEwen The buckets are equivalent to 1 minute of a shower if you think it is that much. If you take 10 minute showers, you can put that on perspective. Unlike the shower water which is filled with a shitton of chemicals, the ice bucket water does go to the soil clean and probably a good amount of it is recycled.
I honestly hope you do not ever have ALS neither anyone in your family, but if it did, you'd probably be not thinking this is a waste of water.
My grandma died of ALS in 2010, and back then ALS research couldn't get more than $20 mill a year... now over $100 mill in weeks?! Mind blowing! It's people like you who are making a difference :) I wish you all the best. Thank you
I still dont understand why you cant just donate
How would you know that these diseases exist? I've never even heard about ALS before.
liteoner Fucking douche
FreezaMusicNC Thanks. But why exactly?
liteoner Well there was this baseball player who had the first case named Lou Gerig He kept losing his balance at games and started to be numb, he was paralyzed then there was this scientist named Stephen hawking who has it and now people who have it cursed to live incarcerated in their own bodies, is that it or if not do some research.
Because people are self-congratulatory and narcissistic. They dont give a fuck about ALS, they only care about showing their facebook followers how awesome they are.
Hey man.... I have seen jason becker dealing with this disease, before i have seen that i never truley understood how cruel the world can truly be ... stay strong man, im in tears man. Please stay happy and positive brother.
I'm all for donating to a good cause, but seeing so many people waste water kinda disgusts me when there are people in certain parts of the world killing each other over small amounts of it just so they can survive.
I could pour 10000L of water and it wouldn't change much... Read something about water circulation... The only way to waste water is to spill water in regions seriously poor in water sources or if you're in a region that is rich in water then the only way to waste water is to freaking shoot it to outerspace... Besides average person in US and Europe uses about 130 liters of water EVERY FREAKING DAY. You're taking shower every day? You are wasting water. You are flushing the shit everytime? You are wasting water....
You're right Bao. While we waste our water pouring it on top of our head, you go ahead and grab a bucket of water and fly to those people in need of water.
Dayum u must hate car washes and people who have water hoses.
Perhaps I should've worded myself better. I should've said people taking water for granted. And for those making snarky remarks, I don't. I've been without excessive water before, so I don't use it when it's not for bodily needs and such. Sorry if that makes you angry.
If your pissed off about it wasting water, you'd better be pissing into your mouth and taking a crap while you shower every night.
O my, I am so emotional because of your amazing video. I feel with you and your family, my grandmother had ALS and it is as you say devastated. I wish you all the best x
I'm not a hater i just don't undetstand...
majority of people didn't know about ALS until this stupid challenge came and what gets me mad is if people really cared they will just donate to the ALS research program and don't tell me that it's fun cause their isn't fun about dumping a bucket of ice cold water on yourself...
"majority of people didn't know about ALS until this stupid challenge came" That's the point. That's what it means to raise awareness.
If people hadn't done this, it wouldn't become viral, meaning people wouldn't be aware of the disease, meaning people wouldn't donate to the ALS research program. If they would do a video with them only saying "ALS is bad, donate please" many people wouldn't give a f*** because it's not fun to watch. This was a good way and I'm glad this is viral.
I don't know if you have ever solicited anyone for anything...but the door to door thing is horrible....slams and nos are what is often heard and can be very impacting especially if the one doing the soliciting is young (my daughter). I thought this is an interesting way to A) collect money without knocking on doors or cold calling people B) Intrigues some people about a disease that goes unnoticed unless it directly affects your life...C) "Tough" people call out their friends to do it and it becomes a bit competitive and I'm sure ALS is not worried about that as they have seen like 15 million dollars more so far than previous years D) people are doing something fun for a cause...like a walkathon, or 5k run...something attention grabbing...and by calling out 5 people each time you do it causes it to spread so quickly hundreds of thousands of new donors are giving to something that no one knew to care about.
Of course having a bucket of ice water dumped over yourself isn't fun. It's a challenge that will entertain people watching and is fun for the bystander. Therefore while they are entertained by your misfortune you are able to appeal to their senses and get a great impact accross to them. Therefore doing things that come across as painful or silly in order to raise awareness for a cause is a brilliant way to raise awareness and funds. If the ice bucket challenge hadn't happened, the astounding amount of money that has been given, would still be in the pockets of the millions of people who have donated thus far.
Well now you know what ALS is about if it takes ice water to enlighten people's awareness then it's an effective strategy. Drug companies should be the target to find the chemicals to stop the disease process. As citizens, we shouldn't have to raise awareness especially in a developed country. It's the responsibility of drug manufactures and the medical community to find the cures. We shouldn't allow Pfizer to have record profits and still have known diseases that are killing people everyday. That's the tragedy in all of this "awareness".
Thank you for uploading this. I didnt really know what als is. You didnt just tell us, you showed us. All that I can say is that im sorry you are going through this.
🌸If you are reading this, you are beautiful and I hope you have a good day :)🌸
+cinnamon 222 that's a lot of negative self talk! ..Dito to my comment!
Antony stay strong! Lots of love from Argentina ♥
A friend of my family struggled with the same disease, stay strong and keep smiling
Had no clue that's what ALS does. I guess I was an ignorant ice bucket watching bystander, and now I'm enlightened. That's got to be an incredibly hard path to go down. You've made an impact on the world with this video. Thanks.
By the way, for anyone reading this, you can help Anthony via his Youcaring.com site: www.youcaring.com/medical-fundraiser/for-anthony-with-love/133001
Anthony, I'm so sorry you and your family are suffering. Watching you help your mother, I tired to imagine what on earth must be running through your own head and your own diagnosis. Thank you for sharing your story with us. I will do more than be just merely sorry and pass on this video and donate to your cause. I wish this was a more just world and people didn't have to suffer from a cruelty of this kind. Your courage inspires many, thank you.
How do i donate?
He's got link in the description
This touched me in a way that i can not explain. I suffer with health issues everyday & i will pray for you & your mother. Bless you!
It's unbelievable how heartless some people can be. Everything's about money. What the hell's wrong with you all?
I'm so so so sorry for anyone who has to go through this and there's not a word to express how useless I feel. I would jump off of the Titanic and into the freezing water to make you feel better. ='(
I agree 100% Im glad there are still people in this world like you.
Gabriel Gaitán Talk is cheap. Sure, you could go take a jump off of the Titanic for all the good it will do. While you're at it, you could go for a swim in Lake Vostok (Antarctica). OR, you could make realistic goals, that would actually be of some kind of purpose, and then go ahead and DO them. I don't know if you're up to date with your history, but I don't think you'll be "jumping off the Titanic" any time soon
timmy scott Thanks for your input, it's so much useful than mine. Just to clear it up, I know I'm not gonna be able to jump off of the titanic (and history is not my thing, you see). I obviously have realistic goals, but they are mine and I don't to share them. This whole thing was a personal way to express how I feel about this terrible condition. Unfortunately, I can't do better. Thanks again.
Gabriel Gaitán hahahaa I'm just shitting with you. True, talk is cheap - but I guess it's the thought that counts. Maybe turn nice thoughts into reality and do something that truly matters? It all starts with a thought - an idea
Gabriel Gaitán It wouldn't be necessary to jump off the Titanic you could just wait a few more days.
I know that feeling, the horror of watching a loved one slowly deteriorate right before your eyes. I watched my uncle, the only real father I ever had, slowly change over my 25 years of living. He went from a strong man aspiring to be a teacher, because of his love for speaking to people, to a wheelchair(still teaching), to being bedridden 24 hours a day. It was around that time I became his pca, taking care of him on the day to day, from simply feeding him to re-doing bandages from sores, and unfortunate side effect of being in a bed all day.Then towards the end of his life I watched the very last thing he loved disappear, his ability to converse, to speak with the people he loved. I saw the horror in his eyes as he desperately tried to simply say hello, and my horror at knowing the last thing I could do with him was gone. My uncle passed in January 2012, from an infection due to complications with MS(Multiple Sclerosis), no one should have to suffer like he did..
Stay strong fellow neckbeard! Join Le reddit army and we shall dump hundreds of ice cold buckets in your honor.
Edit: Thank you kind stranger the the gold!
fuck off...
U dont wanna mess with the reddit guys those guys, liveleakers, and sometimes the worldstar people can make things go viral waay before youtube alone, in fact i think those guys are what make most of things go viral on youtube.
An P dont forget about 4chan!! Why just this minute you and I have this conversation, there are entire groups of people set on bashing the creator of a FREE steam game with their misogynistic asses!
Rez i forgot about 4chan my bad i haven't been in that website in years or reddit, liveleak has some cool funny fails and i like how they show the real news that go around the world with no censorship at all although sometimes it can be waay too much, i don't really watch the news but when i do is on liveleak and the comments can be very clever with their avatars, and worldstar it was fun for the comments i could care less for the fights, until people ran out of ideas and just starting saying stupid racist things they aren't fun anymore but i recognize the power of those websites.
Scary indeed. But strong you are. It's wonderful to see how you care. And you'll be cared for as well. Stay strong Anthony.
God bless you and your family. You all are in our thoughts and prayers.
Anthony, Your video touched me in so many ways. I was diagnosed with multiple sclerosis 2 years ago, and even though our life expectancy is longer, we share so many of the same symptoms. In your video, you mentioned your hands are atrophying. Since my diagnosis of MS, my right hand is already atrophied and my right leg is pretty much paralyzed. I use an electrical stimulation device on my leg to lift my foot. Multiple sclerosis is slowly taking away my ability. I can hardly walk. I hate these two diseases so much! We need a cure. Even though those with multiple sclerosis have treatment options , it only delays the progression, but the disease is not stopped. WE NEED A CURE!!! Hang in there. Fight! Rely on your faith. We are going through this because we are strong enough to handle it. I'm all for stem cell therapy. Those who oppose are not in the situations we or our loved ones are in. Call me selfish, but I want to live!
A few months ago in New Zealand we were doing this, not sure if it was specifically for ALS but we still donated money weather or not we did the ice challenge, to a cancer charity (maybe it was any charity.) So I give you full props for being able to get a camera and show everyone know how serious ALS really is.
This hit me right in the feels. I really want to donate now. God bless you and all ALS patients
I'm so sorry to hear that!
Lots of love to your family and I hope one day you and your family will feel better
My husband, daughter and myself took the challenge for you! This video was very eye opening and we are praying for you!
Just want to hug you, bro. It's heartbreaking a person has to go through this ordeal.
You are such an AMAZING person! Please keep on inspiring others and raising awareness about this terrible disease. Best wishes to you and your family, you will be in our thoughts & prayers xo
Congrats on reaching and passing your 200k donation goal! I'll be with you all the way!
This video made me cry soooo hard , we're with you guys , no matter what , no matter how far , nothing matters , just seeing this is so heartbreaking to me. LOT OF LOVE YOU GUYS
This is incredibly brave of you Anthony, I hope this video and the #ALSicebucket challenge can raise awareness and make a difference.
You are one of the strongest guys I have ever seen in my life. I can't imagine to have such a cruel disease and to live with the knowledge that I will die in a few years, so I have to live my life to the fulliest. I'm glad to see your video and I'm glad that you show me a part of your entire life. I'm so thankful and I will pray for you!
I am so sorry for anything and everything you have been through. I know that I don't have anyone in my family that has had ALS but I know what it feels like to be in your position. my family has donated $500 to the ALS foundation in honor of all of you people out there that have ALS. again, I am so deeply sorry. stay awesome🌊
People who consider their personal annoyance more important than literally everything else need to rethink their lives.
Thank you for sharing your beautiful story with us. You are so courageous and brave.
You and your family are in my thoughts. Since a lot of us don't see what this crippling disease does to humans first hand, I surely hope you will continue to share your story and journey with us all. Stay strong Anthony.
Im very glad that there is atention for ALS. Very strong from you for making this video. I have respect for you for taking care of your mother. I wish you the best.
I feel so sorry for you, this really saddens me to see, i wish that in the future this will be taken more serious.
And i wish you a great life, stay mentally strong Anthony!
Stay strong! I luv u. I'm so gonna keep u and every single ALS patient in my prayers
My heart and prayers go out to you, your family, and the ALS community. Good bless you! 😢💪💜✌👍😇
That made me cry! I probably won't be dumping any buckets of any thing on my head any time soon, but I'm sure going to donate to the cause.
Donating to your family along with the $10 donation necessary. Thank you for posting this and begin real about it all. I will be spreading this!!
God bless you and your mom... I'll keep you and your family in my prayers. Continue to have faith and be strong!!!!!
Thank for your courage to share to share yours, and your family's, stories. As a mom to a medically complex child, and a nurse,, I understand that sometimes people get caught up in the celebrity and act of dumping ice water, but don't really know the reason it is being done. You have placed a human face on the heartbreak of ALS...Thank you for that!
Hey Anthony, I don't know you, but I wish I could give you a hug. I hope you have good people in your life that are pulling for you.
You got my attention and all my respect, you are really courageous, I hope you keep strong. All this hype surrounding the challenge (and the funds raised) certainly will help researches to improve the lives of those who suffer this disease. My best wishes to you and your mom.
Thank you for sharing your story, and for reminding people about the importance of visibility. My heart goes out to you and your family, and I really hope this wave of attention on ALS will lead to improvements in the near future.
Thank you for sharing your story. Although some comments say negative things and criticize some aspects of the challenge, it is obviously that your movie and your courage attracted a lot of people all around the world.
I had been tought that many guys too much enjoying doing that, but it also works for the challenge.
Thank you for being the voice to speak on this. As I did my challenge tonight I spoke about why raising awareness was so important. You say it so much better. Thank you for being open, honest and real.
Sir, I am praying for you as well as donating. All of the leaders at our church are participating in the challenge. We were challenged by our pastors so a bunch of us said yes, but agreed to hurry up before it gets too cool outside. Again, I'm keeping you in my prayers.
My great grandfather died of ALS and I had to see him suffer. It was the worst year of my entire life. Please donate. Please at least do the challenge to show that you care. Thanks for the video!
That really got me.. The idea that cures aren't being developed by large companies because it isn't profitable is just horrific.. Everything has to be about money these days.
Stay strong Anthony! Your video was a real eye opener. Thank you for having the bravery to share your story
Dude.you are a strong Man...Keep your Head up and dont forget to live.Dont fear, the fear...I feel with you and i wish you all the best! Greetings
WE LOVE YOU!! I hope that all goes well and we find a cure! you have inspired us so much!! you deserve the best and you are very strong. Thank you so much for sharing this with the world… they really need to know
This was like watching my grandfather die from alzheimer's and parkinson's. It is so heartbreaking to watch- and you're amazing for sharing this.
*Hugs* stay strong. I wish you and your mother the best of luck.
Anthony, from the bottom of my very soul I wish I could do something more I could do for you besides getting myself cold and wet. Im used to it as an Alaskan. My thoughts are with you and I hope there is a benefit that will come from this to help future generations. All our love is with you.
I wanted to say a bit more. Thank you for your courage, your heart and your strength. I had a stroke at 26. Another stroke scares the ever loving hell out of me. Watching you speak on you dealing with this - and how it's coming at you...that was an impressive thing. Don't apologize for your tears or your rant.
You, sir, deserve all the respect in the Universe. All my blessings and best wishes to you and your family. Thanks for sharing this touching story with us and lets hope that even though you are "not profitable", a cure is found soon.
Que triste que tu madre sufra esta enfermedad, lo mas hermoso y admirable de ti es que puedes seguir sonriendo y haciendo feliz a los demás, le deseo lo mejor a tu madre y a esta hermosa causa.
Beautiful video, Anthony. What some people don't get is that the ice bucket challenge has been such a great method to create awareness for this awful disease. They think it's not helping but it's actually a way of marketing. Don't spend too much energy on them.
Stay strong and I hope you will still enjoy life for as long as possible and be this same inspiring person.