My Thyroid Cancer Story - The Trial Hasn't Worked - 24/12/2022
Vložit
- čas přidán 23. 12. 2022
- Well sh*t, here we are a video series I didn't think I would have to make, on 03/10/2016 I was diagnosed with thyroid cancer.
I will be vlogging my treatment, thoughts and recovery when I can. If you are watching this and have any questions please ask.
I hope someone finds these useful.
If you like you can subscribe to follow my story.
Instagram @meettheplaters
Twitter @asksenseiplater @meettheplaters
I wish this could be a positive message but as I have done from the start; here are the facts.
Ok, but can you pleeeease make and give us your Amazon wish list so we can wish you a Happy Solstice with a gift? No item is too ridiculous! Whatever will make you guys a bit more comfortable and happy this winter -- books, fancy hot chocolate mix, geeky gaming stuff, wool yarn for hats, video equipment, cat toys (there's a two-window tunnel that I *highly* recommend), cookware/bakeware/tools, lemon drops for chemo, whole foods delivery gift cards (not sure what the situation is in the UK), new pillows, a rainbow wig and fake mustache, nice socks, etc etc etc.
Yes?
🙏❤️Sending love and prayers and strength to you ❤️🙏
Great idea! P.O. Box would be great too.!
Would be best to boost your immune system... Defence seems down.
If you think this you don't understand the immune system. Go read a book.
Joe, Ive never posted before. Ive got stage 4 inoperable papillary thyroid cancer. You are a bit more advanced than I am. I appreciate your posts. I consider it a look into my future. Im sure these videos are hard to make, they're hard for me to watch but I really wanted to thank you! Happy Christmas enjoy your favorite things
❤❤
Sorry you are going thru this. My sis is stage 4 OC and Joe’s insight has educated me as my sis is quiet about her diagnosis. Thinking of both you and Joe. 💙
I'm so sorry to hear this! Wishing you the very possible best. Don't give up x
Sending my thoughts to you. I hope all the very best for you on your journey. ❤
He's dead, bro. Good luck.
Well, it's a privilege to see you, I don't take for granted any of your uploads and as frustrating as it is to hear the news, I'm very much glad you're surrounded by your family, I just named my new puppy kiwi incidentally..ha. You probably won't be reading these comments as I imagine you'll be enjoying your christmas but I'm sending you warm wishes and thinking of you
Oh Joe, saying I’m so sorry your test results weren’t better news is an understatement. We all wished for good news but I guess all wishes can’t come true. All I will say is I wish you are as comfortable as possible through the rest of your journey. You’ve been a kind trooper and we love you!
I am heartbroken about the trial. I remember finding out about my sister's lack of success on Christmas Eve all those years ago. It doesn't matter what day...I'm glad you gave us an update. Wishing you every blessing. We're with you.
I hope the chemotherapy slows the cancer down and that a new trial comes along.
You are a beautiful soul Joe and so brutally honest, a rare thing in this world
❤
Hi Joe, My wife and I am sorry that the trial did not work. Cancer is such a stinker. I recognize the need to enjoy oneself when dealing with such a stressful situation. Be comfortable and again thanks for sharing your journey. We wish you and your wife the best. You and her are an inspiration. Where would be without our spouse's support and care.
Dearest Joe , once again thank you for your honesty and laying bare the facts as they are. You are such a kind and gracious man in sharing your life to us in that it might and will help others going through the same shit. Enjoy tomorrow with your wife and the kitty's, I'm pretty much certain you will never ever be forgotten. Thank you Joe.🥰
So sorry that the trial treatment hasn't worked. Thank you for continuing to be honest with us, sending love to you and your family x
I'm so sorry Joe. I hope that the next treatment will be as bearable as possible.
Thank you for taking the time to do the update on a busy day like today. Sending lots of hugs and wishing you and your wife a Merry Christmas:)
You are so good at explaining everything to us. So sorry about the trial Joe. I really pray that you will have the chance of another trial. In the other hand you look great and I wish yourself and Kim a lovely Christmas xx
Merry Christmas Joe and Kim. Hoping you find a quick way to ease the pain. It’s good to see you .
Thank you for making this video, Joe. Especially when the trial went sideways. Anyone can deliver good news. It takes character to deliver the difficult news as well. You have always given it to us straight, and all who care about you appreciate that, even though it’s difficult. Thank you for explaining the treatment is better than the pain. That perspective is good to know. Todays word, if you’ve made it this far, is Hope. I hope you go through the next treatments well, and I hope that there is an effective clinical trial right around the corner. Enjoy your holiday and your time with your family. Best wishes.❤
You are a rock star. It's so difficult to have to share this. However you were so awesome to try the trial as it helps scientists. I pray the new treatment 🙏🏻 helps with the pain. May you and your wife have a blessed Christmas and New Year.
Thanks for the update Joe, sorry to hear the test results. Sending virtual healing hugs from Canada.
I can't imagine how you feel. I enjoy hearing from you and your great outlook. Keep up the good work. Love you!❤️
“High thread count human being”
I honestly wasn’t expecting to smile watching you share your hard news but you managed it with this delightful turn of phrase. I wish you well and many more days spent with those you cherish.
I'm so sorry to hear that Joe! You just keep doing what's important to you. I hope you have a beautiful Christmas with your family.
Well shit. I’ve been watching your videos for a little while, wondered where you had gone off to. Never the less, it is good to see you, wish you a Merry Christmas, as hardly possible as that is. I do wish the best for you. I recognize a good guy when I see one, never nice to see a good man taken down. Your strength is admirable, it shows, probably how you look like you are doing so well. Have a nice weekend Joe, a nice day tomorrow. That’s what we all want, that’s what we are doing here, hanging in for you. Wishing you peace on the holiest of nights. Love from Canada. ❄️♥️❄️
Joe I'm so sorry! Thank you for taking us on your journey. I'm sure it is not easy! I do feel a slight bit of your pain...a Chiropractor broke several of my ribs on both sides his past summer and it was quite painful. Hang in there, as I know you will!
Its Christmas Day here in Western Australia and I'm watching your latest Vlog. Such bad news absolute bummer. Please keep us informed on your next treatment......I wish you the best over the festive period with your family. Love listening to you 💜
You are a fighter. It's so admirable. I am thinking of you and want to say thank you on behalf of someone with thryoid cancer also for taking part in trials that could provide help for those in the future. I hope the chemo doesn't give you too many side effects and I'm glad there is an action plan in place. Life is truly f'king tedious sometimes with it's challenges. I'm sorry about the hair loss as well, but you will look good, just different.
I'm sorry to hear that the current trial hasn't worked and I hope you are able to get onto a new trial soon. Wishing you and your wife the best.
Hi Joe. I think about you all the time. I’m sorry to hear about the trial. I hope that the chemo can do it’s job and slow the progression for you. I hope you’re able to make some precious memories with your visiting family. 💕
I dont know why but i found the kitty shenanigans while you were taping hilarious. Background photo is amazing. I hope you have a lovely time with family
Sorry about the trial but glad you and the doctors are not giving up. Hope you enjoy Christmas with your wife and eat all kinds of goodies! I enjoy your chats and wish only the best for you. BTW, your hair looks fabulous!! Your friends from northeast Florida
I admire your attitude so much. Many of us will face something like this - and when I do, I'll remember you. But... in the meantime, hope you have lots of quality time to go - and as you say, who knows what's in the pipeline, with cancer vaccines and such like. Merry Christmas - Happy Yuletide - enjoy the season!
Joe, I'll keep you close in thoughts. Staying positive that your next treatment will be successful. You're very interesting and I'm happy to hear your chats. I hope you can rest better. That's my biggest struggle. My illness is not curable and is very painful. I understand everything you're going through. 🥋 🏆🏅
Wishing you all the strength and love listening to your vlogs and total honesty. You inspire so many
From one cancer patient to another, you got this and you are amazing, never give up and sending positive thoughts to you and your wife.
Take care and thanks for sharing
My heart absolutely goes out to you but well done for making the video, getting through it and sharing this. I hope that at least has helped you get it off your chest, as you say. I wish I could say something that could actually help although that's pretty ambitious of me given your news. It completely sucks. I'm glad you're with your family and I really hope tomorrow you can still find a little happiness and some fun. Definitely eat loads!!! 😅😅 I'm so sorry about the trial. It must feel very lonely at the moment. It great that they're offering you something else and as you say, it gives you time for other potential solutions. More time is always a good thing! Enjoy Elf and take care of yourself. Sending best wishes.T.
Hi Joe, I am so sorry to hear about the trials. So wish it was better news. Thank you for updating us. Praying the chemo will help you.
Uck, that sucks! I’m sorry cancer exists generally, and affecting you and your family specifically. Hope you find glimpses of joy regardless, and that new treatment translates to new hope and good days. Best of luck going forward!
Hi Joe. I hope so much your upcoming course of chemo and radiotherapy can slow the progression of your cancer. I am a palliative care nurse and have witnessed the pain you have so articulately described. l hope this next course of treatment can buy you a lot more time and the chance of a suitable trial
Enjoy that Christmas food. Elf is the perfect Christmas film, imo.
Tfs.
I’m so sorry to hear of all you’re going through, Joe. I’ll be thinking of you and hoping the chemotherapy helps you. As for sneezing (I have 30+ sneezing spasms and have broken ribs before) try holding a cushion against your chest firmly. Have as Happy Christmas as you can with your family ❤.
Always watch your vlogs and never comment. Fair play you are positive in the face of adversity and I sincerely hope that the chemotherapy slows things down for you and as you said fingers crossed something new comes along to boost your fight with this awful disease. Take care and stay strong.
I’m sorry that this trial didn’t do what was hoped for. I hope another trial comes up soon. And I hope your Yuletide was everything you wanted it to be. Hugs from Brooklyn.
His explanation near the end of the video about the pain from the cancer itself being worse than the chemotherapy and other treatments finally made sense to me about why people continue to get treatment for an inoperable cancer. I never understood this before. I hope he enjoys Yule with his loved ones and that it is a good one for him.
That is incredibly helpful because I was wondering the same thing. Why so many uncomfortable procedures that are not curative. I see now it's for symptom management
Hi Joe, I watched this again and you are right. Do everything you can to maintain a quality of life that reduces pain for as long as it takes. I can tell you I live in chronic pain, every day, and I've done it for 30 years. I live my life fully because I believe and can assure you I'm not going to live like I'm already dead. I refuse to live that way. I appreciate life way too much. And I wanted you to know I have many family members in martial arts. I enjoy watching them. If you ever feel inclined I'd love to see you doing what you've trained for. I certainly enjoy your cats, I love animals and have had many. I hope you have a wonderful Christmas day. 🎄
Thanks for the update, Joe. My thoughts are with you and your family. If you would like a x-massy escape for a few hrs, I would recommend About a Boy if you haven't watched it yet. Enjoy your x-mas as much as possible.
Wishing you and your family a good Christmas, Joe. All the best.
First off Merry Christmas Joe and family 🎄🎄🎄 never ever give up! Fight to the end. You looking good for having terminal cancer. 😌 I’m sorry for the pain and anxiety your having but there are miracles happening all the time in cancer cures. Enjoy your family ,that’s what’s important! 🙏🏼
Thank you for your honesty ,Enjoy tomorrow with your wife and cats . Sending you both love and strength .You are a trouperxxxxxxx
Sending you positive and healing thoughts Joe. I hope you enjoy your Christmas and eat yourself silly. ❤️
Hi Joe, there are no words that I can say but sending my best wishes to you.❤
Just wanted to tell you how good you look despite what has been happening to you. BTW… my cancer is back, which makes watching what you are dealing with really hard… take care and hope the next video has some positive news 😔💕
I sincerely hope and pray that you overcome and get through this.
So upsetting for you.
Sending you my love and prayers. ❤️💙❤️🩵❤️🙏🙏🙏🙏
Joe, I am watching your video on Christmas Day because I want to think of others. I cannot begin to imagine, and hope I never imagine, what you have had to go through. I wish you to get some positive change on events. You have dealt with this so well. Please take care to switch off even for a day or two. Xx
Joe, a massive Merry Christmas, enjoy!
I appreciate you. x
I wish you and your family a merry Christmas and hope your new Cemo will do some great damage do that horrible cancer!
Hi Joe. Big fan here. Sad to hear it. Wishing u the best! Love the gaming streams too
Hi Joe! Sorry to hear the shit*y news. I hope you had a lovely Christmas Day and got to eat all the food that caught your eye! Thinking of you as your life journey takes this new path. Take care
Find your love and joy wherever you can. Make your choices and do whatever you need to do. Wishing you the best christmas possible. x
Merry Christmas Joe, enjoy your day and be happy! ❤️
I’m so sorry, I’m sending prayers your way🙏🏿
I really wish you the best going forward, I truly do
Sad to hear this news! I hope the chemo will slow things down for new therapies! Merry Christmas and happy holidays to you and your family from mine❤
Thank you so much for sharing your story… you are so inspiring x
Keep on fighting Joe..just watched Home Alone 😍 bloody love that film. Merry Christmas xx
I've genuinely thought about you every day between your last two videos, my gut instinct told me all wasn't well. You are so honest and to the point, your dry humour is a gift and I always say shit happens to the best people. Sending love. X
Hope you had a great Christmas and boxing day despite the news mate. Here's hoping things slow down from the chemo enough to find another trial.
Aw I'm so so disappointed Joe, I'm so sorry, I'm praying 🙏 for you, take care huni 💙
I feel devastated for you,it's a job to know what to say,you'll be in my prayers,I'm sure you mustn't give up,the other lesion has shrunk.Its odd because you look great xxx
Merry Christmas 🎅, sorry about the News, but glad you have a plan in place X
Thank you Joe for this remark 16:34 , that’s also very important to know. All the best!
Joe I'm so sorry the trials didn't work but keep fighting, take the chemo and fingers crossed another trial will be available when that's done 🤞
Just hang on young man. A very sweet and merry christmas to you and your family
You are an amazing man. Thank you for sharing so generously. Best christmas wishes from Sweden 🌲🌺
Merry Christmas Joe. Although I don't believe in wishes (as in magic), if I had only one, it would be that you have good news in the upcoming year. Thank you for sharing your journey.
Joe,
I’m thinking of you today and wanted to send along a little message to say you have many thinking of you and wishing you a turn around in your recovery. Praying for a new and successful trial that will help you maintain better health and more time to do the things you plan to do. It’s New Years Day and everything is possible with a New Year. Might they do gamma knife at some point
Hope you have had a lovely Xmas! Sending love and thoughts to you, keep fighting
All the best Joe . Happy Yule .
Hi Joe, thank you for sharing your journey. Your wife is precious to knit you some hats. Thinking of you. Cheers Trish NZ
That the trial isn't working breaks my heart. So much of your quality of life has already been ruined by treatments and now you are willing to have more. You are much braver and stronger than I am. I would quit, go to a state that will allow me to choose my time of dying. Maybe I say this because I've watched so many of my family and friends die suffering. Bless your heart.
Wishing you a restful holiday . Eat whatever u want !!! U deserve it and enjoy it . ❤
Keep fighting Joe hope you can have the best xmas you can with your family all the best
Sending love to you all and strength ♥️♥️♥️ I admire you so much a true fighter to the core so brave and candid x
This news sucks. I’m truly sorry. HOWEVER, I’m glad you’re going back on chemo, and one that shouldn’t be as bad. Also, maybe this one can really buy you a lot more time! And, like you said, maybe a new trial will come along that will actually help! My point is, let’s not lose all hope. I see potential for extending your life significantly longer than what you might expect. I’ve know people who went on to live quite a long time in stage 4. As long as you can control and maintain the growth… who knows! I’m thinking positively for you and really hope you can, too! You’ve got this! ❤
So so sorry about the news. That sucks. My thoughts are always with you and your family. I have trouble with that as well and it's gotten worse since my sister passed. I seem to stay angry even over the dumbest crap. Love the background it is beautiful. I'll be the first to tell everyone that it doesn't matter what you freaking do or eat. My dad was a 10th degree blackbelt, ate healthy, never ate sugar, nothing but working out and martial arts never drank kor smoke and dies brain brain cancer so I can't stand hearing that shit either. You and yiur amazing wife is in my thoughts as always.
This is really shitty news and I'm really sorry about that. Was wondering on one of the last few days how you are doing. Only found your channel some months ago and really appreciate it.
I am sorry to hear the trial din't work for you, Wishing you all the best Joe.
Joe I wish it would work and see you happy again. Unfortunatly... the trail did not work like you said. But you are alive I know you must feel lost and very alone at the moment, remember you are alive NOW you havd been trough so so many worry times. Now I just wish you peace in mind and love and hope you can enjoy your christmass with your loveones! Merry Christmass Joe in my mind I am with you brother
Merry Christmas Joe and family 🎄from Australia 🇦🇺
Enjoy the grub and have a cool Yule. Hoping there will be further trials in the New Year that will work.
I'm so sorry to hear that the trial hasn't worked... I do admire your fighting spirit though.... can't imagine what it's like getting "kicked in the butt" time and time again with bad news....
All the love to you and your family Joe ((((big hugs))))
you are strong, please stay strong. Thank you, thank you.
😢😢...I'm feel so sad to watch this about anyone let alone someone so young 💕
Hope you and your family have a lovely Christmas day Joe, another Q and A would be amazing - you are so interesting! My question would be have you had any go to album(s) you've been listening to lately? :) Take care and hope your eating everything!
Sorry to hear your news.. Keep fighting. Even though it's hard.❤
Oh Joe been here for years don't comment often. Merry ChristmasI'm so sorry about this news. Your in my thoughts!
Hope you have an amazing Christmas Joe
bless your positive attitude, to living...... thank you for helping others too
Thanks for the update Joe. As always, your explanation is super clear and I’m sure will be extremely helpful for others in a similar situation.
I think you’ve mentioned it briefly once before and said you weren’t interested but I just wanted to bring up CBD oil. The reason being not so much the curative effects, but rather for its pain and nausea relieving abilities. I can speak from experience having nursed my mum through ethmoid cancer using it as well has having a good number of friends who have used it for the same. On top of this, I personally find it helps with my own chronic pain condition too (I have EDS, a knackered back and chronic migraine). It also helps me (an insomniac) with sleep👌
Something for further down the line: Another thing my mum also relied on in the latter stages was a pump driver which ensured she didn’t have any dips in pain relief. It just attaches like a drip (no surgery for a port) which connects to a small portable box that you just carry with you. We then had nurses come in to top up meds as needed. One thing the specialist was extremely keen to push was that there should be minimal pain for someone dealing with cancer nowadays so hearing you talk as you did just sounds like your pain is not being managed for one reason or another. I hope this helps and doesn’t wind you up. I don’t mean to cause you any frustration with my comment and just wanted to share my experience having been my mum’s sole carer. Much love❤
There is a definitely a bit of nuance around CBD that I don't normally mention, it's proven to be effective for; inflammation, pain, nausea etc. it's just cancer cure peddling I can't handle as its unproven, the only thing people normally mention is how it magically cures cancer.
My pain is difficult to manage because it is caused directly by the broken rib at the moment, this means that there is no pain and *sneeze* intense pain then its gone, so upping my current morphine just for this would be detrimental to everyday life, so it's tricky, I have to pretty much make do at the moment as this can't be medicated conventionally without making me so tired I couldn't do anything.
Sorry to hear, Joe.
Bless you & be well. Prayers.
Very sorry to hear that the trial didn't work x
Happy Christmas Joe from Canada.
Very sorry to hear this. Praying for chemo to work.
wishing you the best