Psychological Adjustment and Cavernoma

Psychological Adjustment and Cavernoma
by Dr Ronan Burke
Neuropsychologist
This presentation was given at CAUK'S Annual Forum 2018
Cavernoma Alliance UK (also known as CAUK) is a charity created for people affected by cavernoma - otherwise known as cerebral cavernous malformation (CCM); cavernous haemangioma; or cavernous angioma.
Our mission is to improve the quality of life for all those affected and create greater awareness of the condition.
We offer:
- up-to-date information about the condition
- free events nationally with talks by leading medical experts
- a supportive community network
- free membership
For more information, please visit our website at cavernoma.org.uk/ or our facebook page at / cavernoma.alliance.uk

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Thank you very much sir ! microMan

[@pauljohnson7770]

As a retired neuropsychologist who a first big bleed from a cavernoma in the the left cerebellum when 71 I’m on the personal medical side. Having a well organized approach and mindfulness are important. After that some at least mostly nonjudgmental friends and informal support can help. I also had never seen a cavnoma patient in decades of work with older adults as the majority are younger people. In that regard this is a most devastating diagnosis. Therapy therefore needs to be aware these patients are dealing with ongoing loses. Friends and family will be dealing with loss and may have to make hard decisions. Letting of all shoulds finding meaning can be done but meaning needs to be defined by the individual. Usually also means letting go of expectations. In future presentations may be helpful to better define what a cavernoma is I.e., small cluster of capillaries. You seem like a sensitive young professional. Keep up the good work