Emgality Update
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- čas přidán 4. 09. 2024
- January (2022) will be my 5th dose of Emgality for Chronic Migraine. I have gotten a lot of questions on how it is going, so I thought I would give a little update here today!
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Iv had my starter dose. Taking my second dose in a few days. Iv noticed a tremendous difference in the frequency of my attacks
From one every other night to one a week. Finally after 15 years of triptans Iv found relief.
That is so great!!!
Thanks for sharing, I’m thinking of trying this. I was on Amtripyline it gave me rebound headache. It not working, I told my doctor to get a new prescription a month ago. She hasn’t done it, I just want my life back migraine free again.
Thanks for your review! After having migraines since I was born, once or twice a week, often in clusters of 2 or three days, it feels weird not to have migraines for over three weeks now, after my first dose of Emgality. I feel the migraine is regularly trying to start, but it is like stopped after half an hour, before the real attack is coming. I wonder how it’s gonna be for instance next year, will it still be effective, but for the moment, great, it’s like another life.
Lol at since you were born. But I feel you.. it feels like a long time
Hi, I take Emgality for my Cluster Headaches, and it's really helping me to get the Cluster attacks under control. Yes, it hurts more than other subcotan shots. But that's nothing compared to a cluster headache attack. So I won't complain. What it also seems to do, it seems to pull me down in a way where I feel much less energetic, less awake, and on the edge. I have really low endurance, get out of breath fast, and I feel exhausted quickly during elevated activities. What I also noticed is that it seems to elevate the state of depression and thus affects the state of mind. I take two 120mg per month. Without it, I would be in much worse shape. So I'm thankful for it and put up with the side effects. I never linked losing more hair with the drug, but now, after listening to you, you may have a point, and there may be a correlation, which I never realized. Retrospective I have noticed a higher level of hair loss. My hair is not as thick as it used to be, and it really accelerated in the past year, which is also the year that I have been taking Emgality. I really may not have much of any options either way. I either take the shots, and I can live or stop and just call it quits and have it done with.
It is a hard choice to pick the right meds and it can take a while ... I went off this and am on Qulipta now. This has helped keep my pain at a lower level more consistently and I don't get a big dip like before waiting to be able to take my next shot. Definitely discuss all of this and how you are feeling with your doctor! They need to know and they may have other options for you
Do u have to take two a month?
@@alexismendez2918Yes, I take two shots once a month. I shoot myself both in direct succession one after the other 2x120mg Galcanecumab Emgality.
@@beautyandthemigrainebeast6287
Thanks for your reply. Quilipta is new for me. Never heard of it before. I’ll try and find some info on it. On top off the Emgality I now in 2024 needed to take Verapamil 480 to 600mg a day. Off label therapy. Clusterheadache patients can take up to 900-1000mg of verapamil if needed under EKG controlled medical surveillance. My situation has become worse and chronic.
I’ve been on Emgality for years and it definitely helps lower the pain but I feel like I still get migraines. Botox for my migraines has given me my life back. Highly recommend if you don’t already get botox. Migraines suck the life out of you.
Hope your miagraines get better!
Have you had hair loss
As side effects : I had some hair loss and constipation . But the migraines decreased and it has been working
(M/47) Just took my 3rd dose today. I feel like things have been great, maybe 50% - 75% fewer migraines, and less intense. I'd like to think it's the medication, but I do just have some months that are better than others, so more time will tell. Only side effect has been puffy/itchy injection for 1-2 days after taking. Pretty mild, barely worth mentioning.
I was Emgality for 7+ months. My neurologist took me off of it because it was not working for me. When I stopped it, I also had hair loss. But my neurologist gave me the heads up on hair loss or other side effects. Hope you find a solution. 💜.
Did you hair grow back??
Did you hair grow back??
I saw your video and wanted to share my experience with emgality. It was amazing while I was on it, but it was surreal when I quit taking it because my insurance wouldn’t cover it. I had two seizures (which I’d never had before) and possibly a mild stroke!!! Honestly I’m afraid of this drug and will probably never use it again
I am so sorry to hear that! What a scary experience. I hope you can figure out something else to get some relief.
Did they determine that the seizures and stroke were from this med?
When are they going to take the medication away?
Hi. I use it for 3 months, the first one was 2 injection the same day, every thing went well, and I had two times headaches and lower than befor, the second month . I had a rash in the injection place, but the third month every thing turn very bad, I had a Sever skin reacción I had even to take antibiotics. My blood pressure goes creasy, from 198/133 to 70/50 en minutes , taquicardia. Arritmia. Insomnia. Constipation, hair lose. Weight gane… I realize that I started having heart issue in the second month but it wasn’t that Sever. The doctor told me to stop using emgality. Even she reported my case to the company. She think that maybe because I have fibromyalgia my body has an immune reacción to the components of the injection
Can someone please tell me why you need loading dose. I was never told to do this and have only take one. I have now become concerned of the hair loss comments. When did you guys start to notice hair loss?
My body does the same thing, I can feel when the medicine begins to wane.
Came across your video. I am on month 2 on Emgality. I tried Amovig a few yrs ago when it came out and I stopped after 2-3 months because I started losing my hair. When I told my neurologist yes they look at you like you have 2 heads and lost your mind lol. I didn’t feel the relief was worth the hair loss. My migraines have gotten much worse every year so I am hoping this doesn’t cause hair loss. Regarding dosing, my dr said that if I needed a higher dose he can try to get a higher monthly doses approved. Since this vid is a year old, how are you doing?
Hi I apologize for my bad English because I write from Germany. I wanted to know if it works? I took it from my Doctor.
It has helped keep my pain at a lower level... I never have zero pain/symptoms, but it has helped overall.
@@beautyandthemigrainebeast6287 okay thank you.
Do you know how long Emgality can be stored in the fridge?
Can’t seem to find this answer anywhere out there
Sorry, I am not sure! Definitely something you can ask your doctor.
@@beautyandthemigrainebeast6287 thanks no worries - I realized that the expiration is marked right on it
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