Stelara (Ustekinumab) Update- 1.5 YEARS ON! Kristy J
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- čas přidán 29. 08. 2024
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Thank you for this video. I have had Crohn’s for 50 years. Been on infliximab, and then on Humira. Starting Stelara tomorrow. I have never let my disease get me down. I taught swimming to 2 year olds for 46 years, and just retired last year. I can’t count the number of times I taught while I was dealing with an obstruction. I’ve had 3 surgeries over the years. The trick is to go on with your life without letting your Crohn’s limit your enjoyment of it. You seem to be handling it well. Keep it up!
I'm actually crying watching this, thank you so much for sharing your story. I was diagnosed with crohn's about 11 years ago and recently started stelara, I have my first at home injection next week. I can't even express just how reassuring and helpful it has been watching your videos. Thank you so, so much, and I hope your journey is going well ❤️❤️
Thank you! All the best for your first at home injection and fingers crossed Stelara works for you! Xx
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhom.simdif.com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
i have my first infusion for stelara tomorrow! i had a bad reaction to infliximab and failed humira so i’m very anxious. praying this is the medication that works for me :)
Humira gave me eczema on my elbow :( starting stelara soon.
Is stelara works for you?
How did you do? Just got my first dose of stelara, hoping this works
I had a bad reaction to infliximab and I also failed humira! Please tell me stelara has worked for you
I have been fighting Crohn's for about two years now. Just started Stelara today and you gave me some hope. You look amazing, all the best!
Thanks Omar! Really hope the Stelara helps u! It has definitely helped me a lot! Xx
Assalamu alaykum omar please tell me how was your experience with stelara ?
How did it go bro ?
@@bilal731 Been on it for almost 2 years and so far so good. Hoping to get in deep remission so that I can start reducing it.
@@Tobbzzy any side effects?
Been in remission for almost 4 years after 5 years of 5 surgeries and 2 bouts of sepsis. Stelara is way better than remicade when remicade was working for me.
I also have short bowel from all the surgeries so other meds are taken to manage that but I'm 100% good with my Crohn's.
I was on the same biologics that lead me to stelera! I have the same exact symptoms you expressed. I also struggle with body dysmorphia from being diagnosed with crohn's. I was infatuated with how skinny I was when I was on a liquid diet. I've since then gained 65 pounds and struggle whether or not I look "normal" you look fantastic! So happy this works for you. So far it has stopped my GI bleed, I have always dealt with getting adult acne on any biologic. I really hope it goes away with stelera - it drives me insane it never stops the only thing that works is UV therapy & creams. My knees still hurt but I only had my infusion on Friday! I guess it's working its way through. Thank you for sharing ❤️ I hope stelera never fails you.
Thank you so much for this video, it helps me so so much. Humira didn’t work for me, so I’m on Stelara now but I feel like it’s not really doing much more than the not-working Humira. I’m seeing my doctor in 2 days but this video just made me calm down and gave me hope. So thank you and all the best to you!
I have terrible chrons, just started Stelara after Humira stopped working so will see how it goes. Biggest thing I've done for myself though is juicing ! Celery juice in the morning then a green juice every other day - my tummy has gone from feeling like I have rats running around to nothing at all, no upset stomach etc - I recommend everyone try juicing, made the world of difference to my tummy symptoms
Hi I’m researching for my brother who may be starting Stelara soon. Could you share your celery juice recipe or any other recipe u think may help? Also have u experienced high heart rate due to chrons.
@@anthonydemaria look up high carb health
@@anthonydemaria is stelara worked for your brother?
@@sivay1818 hi he actually was going to but he ended up having a minor surgery to cut out the inflamed part of his intestine because he was so inflamed and had a sever case. He is fully recovered now and is trying to use the SCD diet as best as he can even though at times he doesn’t follow it 100% and he has been doing well.
If anyone is having the loading dose the best advice I had was to drinks a lot of water on the day and for days afterward. You are looking great Kristy, looking so well.
You look gorgeous! You’re so amazing and strong! Such an inspiration to so many 💕
Thank you Ellie ❤❤ I appreciate your kind words!! Xx
Thanks for your video, it was very interesting. I also tried Humira, it worked really quick and I felt like superman, amazing! But I developed an all over rash, so had to stop. Since then I've been on Stelara and I'd almost be inclined to say that it wasn't working at all. But your video was very reassuring and I will try to be more patient with it. I've only had the infusion and my first sub-cutaneous maintenance jab so far, so it's still early days. With my first maintenance dose, I felt quite dizzy for about 2 weeks, and then it seemed to resolve. I'm interested to see if this happens again for my next injection. Thanks again for your great video. Oh, BTW, for me dairy and gluten a real problems, so I was surprised you could eat Carbonara, which has heaps of both.
So inspiring! Thank you for sharing your story, I hope my recovery is as good as yours
Thanks Tom! Good luck on your journey and hope you get into remission soon! Xx
The weight gain is perfect, and you look awesome.....nice tan.
Thank you! Gotta love a wee bit of tan, fake of course! Xx
I must say I find the experience of other crohn's patients very interesting. I have crohn's and have never had pain in my intestines, I have never lost weight unless I put myself on a diet, I actually have problems losing weight, I put weight on too easily. This all strikes me as a bit odd. I was on infliximab for a year and it did nothing, I developed very high levels of antibodies though. Will be interesting to see what this drug does.
You look beautiful. Come to Italy and I will treat you to Carbonara from Rome! 💚 I am glad you're getting better. 🌹
Thank you Elisa! I'm sure the carbonara in Italy is awesome compared to the carbonara here 😁😁 thanks for your support xxxx
Thanks 4 your help with stalar
Thank you for info so far i havw treatment stelara first time still not change often pain i have colitis i hope second one will help bit anxiety sometime about this sickness how is you n other people here is it same like me?
So glad for you. How are you now?
I've been on Stelara for a year now after a year on Remicade. I have Ulcerative colitis and Stelara seems to be working
Mine is self taking shot every 4 weeks
Thanks Kristy for your video. Here I am in 2022 now, facing a decision to start either Stelara, Entyvio, or, a new one, Zeposia, for my UC. This video was helpful. I am curious however, are you still taking Stelara since you published this video in 2018 or are you on something else? Any experience with these other two meds that my doctor recommended? thanks again and God Bless!
I have had crohns diease nearly 4 years now I've tried everything but get horrible side effects all the time my last medication was vedolixamab infusions it worked but gave me high blood pressure so I had to stop it, I'm currently on nothing waiting for medication again I haven't had any for 33 weeks because I had to wait for my blood pressure to go to normal. It has and I've been recommended this drug just scared to do self injections how did you feel about it when you first did it please?
Other than that they said that I should go back on vedolixamab and see if my blood pressure changes again and if it does then to take blood pressure tablets I feel that's not a solution, it's just taking something else for a side effect, so I thank you for these videos because knowone understands unless there going though it xx
Dear What foods are prohibited for a Crohn's patient, and what are the benefits and permissions during the treatment period?
Hi Kristy, Thank you for sharing your story. How are you doing? Would you mind sharing your skin issues?
I am a 14 year old girl suffering from severe psoriasis and in less them 2 months I start stelara after taking methotrexate for almost a year, could you give me any tips for this?
Do you advise me to take stelara ?
I have psoriasis
So strong 💪
Have you had any side effects while on Stelara? I’m actually starting it this Thursday for Crohn’s and was curious as to someone else’s experience
How have you got on with Stelara?
I started it around 18 weeks ago and still have an itchy rash from it.
I just get tired just like with all similar biologics. Get tired after the injection for the next 24 hours. I get a lot of rest after my shot. Just took it now!
I’ve been on Stelara for a little over a year now. No side effects that I can tell which is nice
@@stephenkarl1440 are you still on stelara?
@@sivay1818 yes I am
HELPFUL, BLESS YOU!!!!
Yay I'm so happy for u
Just started today for crohns. Been mercaptopurine for 15 yrs and its gradually stopped working so picked this over Humira after doing some research. Is this still working for you:)!? Great video btw
All the best! the Stelara is still working for me so hopefully it works for you too!
Did you try Entyvio? What do you think of Entyvio vs Stelara? Thanks!
Hi kirsty.
Hope you are well. I just wanted to know if you are still on this medication please? Just as I have crohns disease too and have tried inflectra, vedolizumab and now they want me to start steltra. I'm a little unsure about it, as I always end up with side effects or they stop working less than a year.
I just wanted to know if you are still OK on this medication if you are still on it. Plus have you suffered any side effects.
Thank you. ❤️
Hi Chellie! Yes I'm still on Stelara and it has been working to date! I still have flare ups every now and then but they are manageable and the Stelara stops me going into full blown flares. It works far better for me than Humira, which I used to be on. I had side effects at the start (some skin irritations) but no side effects have stayed after taking it for so long. Hope you get sorted with the right meds. Let me know if you have any other questions! X
@@KristyJ
Thank you kirsty.😊
You've made me feel alot better about it. I think I'll give it ago, your videos have really helped me. It's hard when you don't know anyone else with this diease.
Hopefully this one will work for me.
I appreciate your message.
Thank you.
Chellie ❤️
@@chellie7887 Good luck and hope it works for you! ❤ take care x
Thank you.
Take care ❤️
Does anyone have an itchy rash from Stelara? I started anti-histamines with it but I seem to have developed a tolerance to them and the rash is coming back.
bruh.. it hurts more than when i started
(the injections, the actual shots)
are you still using stelara? no side effects? i hate chrons
Are you in any form of diet with your stelara injections?
Have you gain massive weight on it?
Hola! Has hecho dieta y ayuno? Eso me ayudo muuucho!
Did you have any side effects from the Stelara, today is my first injection and I enjoyed your videos
Hi Brittany. Looking back, I remember having some skin issues at the start, like eczema type rashes on my face but I switched some of my skin products and just use products for sensitive skin now. I was also tired for the first few weeks but that definitely got better. I don't remember any other side effects so if there were any others they must have been mild! Hope it all goes well and Stelara keeps you in good health! Xx
@@KristyJ Did you gain any weight with stelara?
@@tigerwilliam9142 Hi, I gained weight but I think it was more because the Stelara improved my Crohn's rather than the actual medication making me put on weight!
Hi Britanny, how did you feel now after taking? Did you use for chrons or ulcerative colities?
How did you feel now after taking stelara,, are you using for chronhs or ulcerative colities?
Stelara
Wish I could put on some weight
How do you feel overall. Do you have to get colonoscopys? I’m 15 I’ve been on remicade, Humira, and I’m on entivio and methotrexate right now along with 60 mg of prednisone. We’re kinda at a standstill with what to do right now. Either continue with the entivyo every 4 weeks and methotrexate weekly right now and wean prednisone. Or switch to stelara. I’ve had crohns for 7 ish years and it sucks
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhom.simdif.com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
I’m beyond scared to take these drugs I should be on I have psoriasis all over my body
I just started stelara for psoriasis, but I'm nervous about side effects, already having some ,nausea and upset stomach and some feeling of lightheaded, but hopefully it will pass, a little update it's been two months, still feeling a little lightheaded sometimes, very depressed, and I'm only seeing slight improvements, but I'm going to wait until the next treatment, I will give it time,I've had this condition too long to not treat it,will keep posted
i am on infixamab
Hope it is going well for u! X
@@KristyJ it is going well
These videos only show the obvious, health is for those who can pay for it, ustekinumab is very expensive, it is difficult for me to get mesalazine, I cannot afford ustekunumab, nor adalimubab or vedolizumab, they are very expensive medicines, mesalazine costs me 100 dollars per month and that is a lot of money, obviously I will die from colonic complications since mesalazine is not enough, I cannot access expensive medicines, laboratories care about money, not about really helping people.
it;s fucking poison................
This video and it's comment section confirm humanity is a failure. All of these issues with fairly young people that throw around these pharmaceutical drug names as if the companies behind them give a **** about any of you. All these "issues" develop in the mind and manifest themselves. I wish the content creator and all people the best in life. This comment is genuine. Your gut is the most important aspect of overall health. Garbage in, garbage out. If your gut is telling you something, it is almost always correct. It is very possible this video had some money behind it from Big Pharma. That entire industry is made up of people that are clueless to whom they work for...Scumbags, profiteers, and worst of all documented criminals. They must have rolled out this most recent event knowing young people would line up for the poison. Why?
This is the most American take lmao, big pharma problems don’t happen outside of the USA. You’re coming across as a bit brainwashed saying that she might be being paid for this video LOL
Take a sip of water your mouth is making sounds