How I Learned I had a Rare, Blood Cancer - Kristin | Myelofibrosis | The Patient Story
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- čas přidán 25. 07. 2024
- Kristin was diagnosed with myelofibrosis, a rare blood cancer, after having only minor symptoms like bruising and itchy skin. In this cancer vlog, she shares how her diagnosis came as a shock.
In this video, she shares her journey with diagnosis, weighing treatment options like stem cell transplant, and eventually undergoing one. She also shares the complicated emotions of having this diagnosis alongside her daughter's cancer treatments.
Full story & transcript → thepatientstory.com/patient-s...
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I have multiple myeloma and had a Stem Cell Transplant in August 2023. I live in Maryland and went to University of Maryland and was in the Bone Marrow Transplant unit as well. I loved the care I received, I'm in remission now and appreciate your story. I pray your daughter and you continue to be blessed.😊🤗
BMT oct 19 in india. Greetings from mauritius.
I have Myelofibrosis too. I had 3. Stamcell Transplants. They all failled. My sickness is progressing .
I am happy for you and your beautiful daughter. ❤ Life is so precious.
Don't lose hope! Every day we are closer and closer to finding cures for cancers, and you never know when one is found for Myelofibrosis! Much love from Cali!
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I still believe in Amazing Grace
That there's power in the blood
That he walks with me and talks to me. That because he lives, I can face tomorrow. All because of the Old Rugged Cross.
Beautifully said.
Sounds like what went on with you might have saved your daughter’s life. Glad you and your daughter are doing well and have a wonderful support system.
Amazing and inspirational story, thank you for sharing!
I'm very sorry you and your daughter are going through each of your health issues, but isn't it a blessing (if you can call it that) that your daughters cancer was found & can be treated!
Sending up prayers for you and your daughter's continued journey! 🕊️🙏❤️🕯️
This is an amazing story as you literally saved your daughters life if not for your diagnosis she may have not known about that tumor till it got really bad!!! I am a refractory lymphoma B cell patient stage four. I have such respect for the positive attitude and strength u have going thru stem cell. I just did car -T. And I am exhausted!!! Not sure if it worked yet too soon. But you are amazing fit strong and handling this with grace!!! Sending up prayers for u. And gratitude to god as you saved a life Just happened to be the one u brought into this world Crazy. Miracles are real♥️♥️♥️god. Bless u
Thank you for mentioning lymphoma. I wondered if her daughter had some form of lymphoma rather than lung cancer, but the narrator never said this.
Thats amazing! Basically you only found out your daughter was ill because you were and needed help. If that hadnt of happened your daughter may not have found out about her own illness till it was too late treat. It's pretty neat how sometimes things work out in such an amazing way.
I'm sorry you and your family has to go through this. I'm so very proud of you for your courage and perseverance.
I happy she survived and had support. Some people don't but they get through it anyway.
What an inspiration you are! I appreciate your attitude. I hope both you and your daughter are doing well. I was recently diagnosed with post-ET myelofibrosis.
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Great video. Thanks for sharing your thoughts on this.
She’s beautiful and so are you 😍
Finally somebody mentioned the 10 day thing. I thought after watching too many tubes that 2nd and 3rd day were bad ones. Thank you for telling us a nurse told you around day 10 is worse. I fell and got hurt durinf 2nd and 3rd Chemo around day 9-10. I could have been more careful.
The day/s you're most affected usually depends on what type/s of chemo you get.
Yes this is called crs ( cytokone release syndrome ) which usually happens around day 8-12 ish
Vaxxed and boosted!
My husband also had a stemcell transplant. It saved his live
My blood was outta whack too and I fasted for ten days and bloodwork was normal!! Fasting makes your own stem cells!!?? Something to think about.
Can you tell us how you fasted for 10 days please?
I bruise real easy too. I hope I don’t come down with that disease. 😥
So if your daughter hadn't volunteered to be your donor her tumor could have gone undetected for a lot longer ? It sounded like a wild ride but I'm glad you're both doing okay !
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Did. you get the jab?
Gerson Therapy would help you. It’s working for me!! I’m itching and waiting for diagnosis.
❤❤❤🙏🙏🙏
I have low platelets and itchy skin and I do see an oncologist but nothing else appears wrong.
I beg to differ about increasing platelets these people don't know all they think they know honestly they're just experimenting my WBC is low most times on 7/12/23 my WBC was 2.7 platelets were 144; on 10/7/23 I started making and using 4 tablespoons of homemade sea moss gell in my morning smoothie, that's a good amount of moss, and by 11/18/23 my WBC was 2.9 and platelets went up to 169 I am going to have repeat labs next month so these folks can see whatever the hell they're trying to see.
This all happened around the time that the 💉 was rolled out. Now we're hearing about these stories globally. Stage 4 cancer overnight. It's an unstoppable wreckage that is coming, and they know it. Very sorry to hear your story.
To anyone who finds my comment that is suffering from cancer: eliminate, pork, sugar, redmeat, candy, sweets, processed food and fried foods from your diet and juice every hour on the hour, Blessed Be.
First of all, you did not have ‘lobotomies’. You would have had ‘phlebotomies’. The first is the removal of the front of your brain. The second is blood removal.
Maybe show some kindness and not police her words. You knew what she meant
Did you get vaxxed?
Did you take the covid vaccines?
Why would you ask that?
Stop spreading misinformation. 🤮
I did and now similarly to this person, I've suddenly developed Hematology issues. Just had a bone marrow biopsy and awaiting dr's diagnosis.
@@srkusa I am reaĺly sorry.
Valid question.
I’m asking this question from a medical perspective not a political one. Did you get the Covid vaccine? It seems that a lot of the videos I’m watching that have rare and unusual cancers manifesting are in patients who took the vaccine. Based on what we know about the technology behind the vaccine. I find this very concerning!
This is proof God doesn't exist!
Miracles are real❣️. Praise the Lord❣️🙏🏻🔥
It’s actually proof he exists. Cancer is from our society. They spray us with poison all day. God warned us the medical community deceives us. Many can’t handle the truth so we will continue to be poisoned. Maybe if you read the book you would understand it’s the devil doing this by deception.
@@irishgal353 your lord gave her incurable cancer with no donor matches and also gave her daughter stage3 cancer at age 23... uhm yeah sounds realllll miraculous lmao 🤣
Why so mean and hateful?
@@velmamoorman7099 What do you mean by mean and hateful? I said miracles do happen and praise the Lord? Have a nice day😊