Post-Covid ME/CFS | Covid-19 Survivor Diaries Episode 12 [ NO MUSIC ]
Vložit
- čas přidán 18. 04. 2024
- FOLLOW US ON SOCIAL MEDIA
thesurvivordiaries.com
/ survivordiariesofficial
/ survivordiariesofficial
/ covidsurvivors
www.clubhouse.com/@morganawin...
I woke up Jan 1 with mononucleosis caused by Epstein Barr Virus at age 40. I was misdiagnosed and put on months of antibiotics and prednisone to no avail. It turned into ME/CFS… that was in 2010. I spent years looking for help but found none. I gave up on healthcare. I am now on disability which is a death sentence with the medicaid system. I also have POTS. The grieving process of the life change was difficult and long. I am sad it took the pandemic and long covid to finally get some research done for this devastating illness.
5,238 days
January 1, 2010 - May 5, 2024
I pray that answers will be found for all these participants and the rest of us. Thank you for making this video to raise awareness! ❤
Here, here. I hear you🫵🏼! I was initially upset too with all the attention given to LongCOVID.🤨 I've suffered decades without a proper diagnosis because it is all in my head, 😉. I too, gave up telling my story to the medical industry & started my own science experiment, me. I pray you are infused with joy unspeakable and your cup runs over with grace and mercy.💐
Keep hoping. So very upset for injured people. Keep on going. Hugs.
My fiancé is not quite as bad off as these ladies. I have to wonder if it is our plant-based vegan diet that limits the inflammation of his body. He was in perfect shape right before he got sick, bloodwork was that of someone 40 years younger.
He’s waited over six months for an appointment at Chicago Northwestern hospital long-Covid clinic. He’s paid out-of-pocket to see specialists in long Covid from California. The next thing we will probably try is a well-known fasting clinic that has had some success. Trouble is when you’ve had long Covid for numerous years and it gets so entrenched. The spike proteins are evil from this laboratory borne disease. Even my own family doesn’t quite believe he is as sick as he is because he’s good at hiding it.
The worst mistake was telling long-Covid people to get the vaccine when it came out. It ended up making quite a lot of them quite a bit worse. It made my partner terrifyingly sick for months.
I'm praying for you and your family. It sickens me how the truth is still being somewhat suppressed....❤
This video was so beautifully done. God bless you for making it, and may an intervention be found soon that can help to pull those with Long Covid out of this. Research parameters should be followed in the future, not given a nod and moved offshore. Thank you so much for your work.
Thank you for your kind words