PLS Patient Christine Moretti Explains Why She Thought She Had ALS
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- čas přidán 30. 07. 2017
- Primary Lateral Sclerosis patient Christine Moretti tells Rare Disease Report about the difficult road she had toward her diagnosis, why she thought she had ALS, and what the everyday management of her condition looks like.
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About 2 yrs ago they told us that my husband has ALS. Now in July they have changed it to PLS. He continues to lose some of his strength and his voice is slowly getting softer as his throat hurts him. I am not sure where we will be by that end of the year but I pray he doesn’t lose anymore of his voice
My brother died in June 2004 after 2 years with ALS. Never heard of PLS til now.
You are an amazing person. Thank you for sharing your story. Sending you lots of light.
Wow I learned more from this lady than my own neurologist. I was told I have als but later my Doctor thinks I have PLS. I have the same symptoms. Thank you .
Hi, from a fellow PLSer diagnosed in 2012 at age 56. I'm 6 1/2 yrs into my illness, currently I still walk with a rollator and I'm am a part -time power wheelchair user for clinic in Philadelphia and long distances . For exercise I use therapy bands, a Exercise Peddler(Amazon), a Rodeo Excerciser (QVC) and do stretching. My symptoms so far are slowed speech,(use text to speech app), minor Dysphoria (swallowing), the usual stiffness ( absolutely no pain), and I have the Baclofen pump (3/17/14). I no longer take other medications for the PLS. I've even gone as far as asking my Neurologist was she sure I definitely had PLS more than once since my diagnosis.
Really liked your video! You are such a beautiful person and I can tell you are just as beautiful on the inside! 💛 Thank you!
My Mom is 73 and was just diagnosed with PLS. She is very worried and not sure of her future.
She has started her medication and will obviously have more visits with her Neurologist.
As her Son, I will be there for her and want to help more. If there is any more advice? I could sure use more on the subject?
This video was very helpful.
I thank you in advance for your kindness. 🙂
God Bless all who are suffering and doing their very best at living with this or anything else for that matter.
I've reversed my drop foot and I can run , walk play , I have just little muscles twitching and neck pain I feel better every day
How did you reverse it?
How did u do it
That's great news!!! I'm so happy for you!
Thank you. I'm confused bout the two. One side atrophied
My husband has been diagnosed with ALS also, one side atrophy only.
Hello what's the difference between ALS and Progressive lateral sclerosis.any treatment which can get the patients in good shape atleast can talk and do the daily activities also what is best treatment for this which gives patients somewhat relief from the pain.
PLS stands for "Primary Lateral Sclerosis". You can Google how this differs from ALS.
Dr. Glass in Atlanta? Going to see him soon
You're very kind doc Jude Robert. You have given me reasons to live again. Thanks for reversing my als disease with your her bs. #drjuderobert