What does Chronic Fatigue Syndrome feel like?
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- čas přidán 3. 12. 2018
- What does Chronic Fatigue Syndrome feel like?
What does Myalgic Encephalomyelitis feel like?
"When I get really exhausted I can’t sleep! Which is ironic."
An award-winning documentary video by Alexandra Hohner exploring what it is like living with ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome). You can learn more about Alexandra at: alexandrahohner.weebly.com/
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#myalgicencephalomyelitis #systemicexertionintolerancedisease #SEID #MECFS #chronicfatiguesyndrome #ME
I've got CFS, I've also had cancer and major surgery, the cancer and surgery were a breeze compared to the misery of CF.
I'm so sorry to hear that. I am struggling with CFS currently. Are you better now?
I "hit the wall" when my body cannot take another step. Happens a lot when doing errands. My sofa is where I live. I also struggle with insomnia. My apartment is a disaster zone. If I drop something, I often don't have the will to pick it up. 😢 My debilitating fatigue is caused by my psoriatic arthritis, an inflammatory autoimmune disease, and my neurologist mentioned CFS/ME as possibilities as well. My rheumatologist only says that fatigue and post-exertional malaise are very common symptoms.
Oh my God! that is exactly how I feel, I have had depression for nearly 40 yrs, on and off medication, every day I am battling brain fog, I have to act normal, try to look normal, just act and act, internally I am screaming, I would happily embrace death. I am so fatigued all the time, its so so miserable, I even don't know what normal is?
I hope love finds you and finds a cure for you soon and you get the rest you deserve and have been craving for for so long
Oh, that sounds concerning 😟 maybe try to get some rest, sleep more, focus on your physical and mental health, and I really hope it gets better 💜
“Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.” Mathew 11:28
This is how I feel when I crash this is such an accurate description
This is the best description I've found so far. The end part about being wired and the 'switch'.
Thank you, I'm going to use this video to help friends/family understand what we're going through. Than kyou so much for this,
Thank you for this. It is great to hear from a real persons experience. I hope you are doing well
That cleared up a lot of doubts for me. Thank you.
Yup
CHRONIC LYME DISEASE!!!!!!!
Is it?
It's not Lyme disease you fucking retard. It's not anywhere near related to it.
You can detect Lyme disease in the blood, it's often one of the first things they test for. ME is diagnosed by ruling out things like lyme disease.