Do I have Gastroparesis?😟 1/31/2018
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- čas přidán 5. 09. 2024
- Been in the hospital for 7 days now. I’m ready to go! But I need my health to be perfect as it can be😅.
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Again thank you for joining our 👪family and our journey, we really appreciate all the love 💚and support !
If this is your first time tuning in Welcome ! If you have been with us before....... you know the drill
Oh thank God it’s not gastroperisis... You escaped getting pied! 😂 Hang in there, Janiece! Hugs from us!
Yessss
Claire Elizabeth Blake Gastroparesis sucks I have it myself
Stay strong beautiful!! You are one tough woman! I have been fighting ovarian cancer for the past 2 years. You and Jac keep me going! You have such a strong wonderful support system! Your hubby is wonderful! your mamma is wonderful also! And handsome brother!!!!!! Im praying for you and Jac!!!!!! Love, Jordan
Paul, you're very well spoken and you're doing great supplying info for Janeice. Thanks for everything you do for her and her supporters, and sharing her condition. Hope things clear up and you get more answers.
You both will be in my prayers
🙏🙏🙏🙏
I have Gastroparisis. I was positive for the gastric emptying study. I wish you the best of luck.
Praying that they find out what is wrong with you soon. I've had asthma for years and its now developed into COPD I'm told so I have to learn about that. I'm very glad to see that your hands are working better now with the therapy and everything your doing. Keep working at your health and asking questions. Your an amazing woman and your husband is an amazing man as well. So glad that you have a great partner and family who stand by you.
Thank you💚🤗
So very sorry to hear 👂 the details of your hearing loss. I absolutely had not realized you were suffering to such an extent. Nor had I understood that your hearing loss is progressive. Keep up the good fight 🥊 !!
Thank you for showing us your struggles with everything. I hope you get more support from your mom?? Sometimes it sucks feeling like no one believes what your saying about your health. Love you guys!
I'm so happy it helps. It's no much of my mom she's been the best though all of this and so supportive it's other family members haha.
You guys are so strong! Really hoping that you get some answers soon, but glad that they’re not just patching you up and then releasing you for you to get worse again x Thinking of you ❤️
Low vitamin levels can be horrible! My Mother had pernicious anemia. There were several times in her life when she went into the megoblastic mania. It was so difficult for her. She went many years not knowing her depression was a medical program. I am praying for you.
thank you for the prayers means so much to me
praying for you hope you make a speedy recovery
Im currently binge watching your vlogs ...Ive missed a month so that's a million videos. Im sadden that you are still going through all these issues with no answers....as of now i have more to watch. You have an awesome support system you and Paul are in my thoughts. Omg those brothers 👀
This is a dangerous issue, not a little low on vitamin B, which can be corrected with a shot. I wish they would just do the tests already. Who cares about in or out patient at this point? I hope they find some answer to help with the diarrhea and vitamin and mineral depletion. You are doing so well. We are cheering you on all the way. Sending lots of love and prayers to you.
Right I agree.
you guys are such troopers - sending love!
Thanks for the update,We all worry and care so much. Hugs
thanks means alot
One day at a time. You got this, girl!
thank you
I have a BAHA Bone Conduction Hearing Aid implant, and it has Bluetooth & my phone rings directly to my hearing aid - so I legit hear voices in my head. 🤪 I am profoundly deaf in my left ear (hearing aid is for that); and milder heating loss on the right.
That’s awesome
Thanks for the recap on your diagnosis. I didn't realize you had hearing loss. Your hands are back to normal. Yay!
Janeice u just take care of u. I know you and Paul are trying your best to get answers and get feeling better. U gotta be able to get nutrition to keep u going so u don't end up back in darn hospital. :)
Yes agreed
Prayers, and love you can do this fight it Janice!
Yesss fighter💪💪
Prayers as always ❤️
thank you
Thinking of you and root,root, rooting !👍
Awww thanks
I’m sorry I have to say this I’m really surprised that they didn’t check your thyroid or your parathyroid a lot sooner. That’s because I Presley have my own experience with the same type of cramping in my hands, that is due to low calcium in the system.
But I am glad to see it that gastroparesis is ruled out and I’m sorry that you are still stuck in the hospital but I can definitely relate.
I agree. I thought I had Narcolepsy for a long time in college and once my thyroid was in check. So I agree because thyroid meds can make the world of difference.
Ebony Marie Wow - that’s interesting. I was thinking the same thing. When I saw my endocrinologist, he even asked me how I was sleeping. If I was tired all of the time.
He said, let’s check your levels maybe your Meds need to be changed because thyroid issues can affect your sleep.
I’m glad I wasn’t the only one thinking the same thing. Or I even thought there might be an issue with her Parathyroid because that’s the (4 small) glass that help regulate your calcium. I wanted to
Level this comment when she was first admitted to the hospital but I felt bad. I was like “OMG her hands look exactly like mine”.
They are checking it now
Good! Keep advocating for yourself about all the testing. Push for answers. Even if it is IBS, there are new medications to help. Sometimes anxiety can play into IBS and many gastro illnesses. At least for me. Also, Are they getting you out of bed to prevent blood clots? Sorry I worked in healthcare.
I will keep you and your family in my prays. Hope today was a better day with more helpful answers.
From your Texas Fan
Ooh my goodness I really hope they figure this out soon you are fading away I’m so worried! But maybe you will get to be in a textbook or something you never know! Take care guys xxx
Oxoxo
Omg!!! I was off to the Mayo this morning!!! I had to waited till tonight to check for a update. I hope they find out soon!!! Yes kidney stones suck!!! You don't want to have that also!!! You got this girl, you can kick this in the butt!!!I know it's not where you want to be.But just think when you do get out you should be feeling better and you will know how to keep getting better!! So glad to you have family and friends with you!!! Hope you feel better soon!!! You are in our prayers!!!
Even though I’m not one to pray at all, I’m sending all of the positive thoughts your way, to both of you. You got this. 💚💚 hope your doctors find out what’s wrong so you can get out of the hospital.
My 12 yr old has severe ulcerative colitis and rheumatoid arthritis. She's had it for 3 yrs. Her symptoms are alot like hers. My little is on the highest dose of Remicade and several pills plus methotrexate injections weekly.
Hang in there you can do this!
Your Right
I'm continuing to pray for answers for you girl!!
So glad you don't have gastroparesis! It's funny that Paul mentioned testing the thyroid because I thought earlier about asking if you had been tested for hypoparathyroidism. It can cause the really low calcium levels and lead to spasms/tetany in the extremities. In some people, it can lead to parasthesia - tingling of the face. It could also be causing your lung issues because low calcium can cause bronchospasms. I wouldn't be surprised if you had hypoparathyroidism as well as Crohn's disease because diarrhea typically does not lower calcium levels - the loss of fluid usually makes the levels rise so you are an atypical presentation. Hope you get answers soon!
I’m a new subscriber, I would see you on Jaquie’s channel but I didn’t know you did vlogs too! I’m a fellow chronic illness warrior and I’m LOVING your vlogs!! You’re so positive and you inspire me to advocate for myself just as you do ☺️
You guys are so cute w/ each other even through all this stress! :) Eat what you can lady, you can't let Jacquie win!
Although the gastropersis comparisons with you and Jaquie woulda probably been hilarious.. so happy you don't have it. Actually your cough sounds a lot better, and today your getting a lot of words out :) Unfortunately, my dad has a hearing aid and a lot of the time it won't work that great.
Keep fighting Janice
💪💪💪💪💪💪
Hang in there sis! You got this!
Ebony Marie I recognize you from one of my FB groups! I haven't seen anything from you in a while and was wondering about you 😊
Good to see you here!
Been having a lot of health issues :) Balancing taking care of me and being a head admin for a pen pal group.
Ebony Marie I hear ya! Same here with health stuff. Sending you well wishes.
Be blessed and stay well :)
Thanks we got this
I hope these testing that ur doing will give u the answer ASAP. I'm glad that Paul is helping u out and staying with u. I feel like crying bc ur going thru this and all I could do is just pray and pray and pray. I hope ur hands are getting better.
Thank you and don't cry WE GOT THIS!!
The Raw Life hoping our a lot of prayers work!!! U don't deserve to be in this pain. Sending lots of prayers to u!!
Nice to have good news about the gastropareisis xxxxxx
I'm happy you don't have gastroparesis, now it's time for the guessing game of Crohn's or something else. That's not good your levels aren't rising with the addition of vitamins in the infusion. Many hugs and prayers, you're going to figure it out 💕
Random food for thought in case you get hearing aids. My mom wears 2 hearing aids and recently got new ones. She was very excited about how small they were until she realized that when the hearing aids were visible, people could see she's hearing impaired. That can help in some situations, especially if she's at a store, etc and she doesn't answer someone. If they see her hearing aids, they can understand why. Anyway, just thought I would throw that out there :)
I really feel for you. I spent over 11 hours in emergency yesterday waiting to be pumped full of migraine medicine and I was taken off work till next week and sent home. They said I was going to get a scan but changed their mind last minute and I walked down a mountainside in a snow storm to the nearest meter and passed out at home with my cats and dogs.
Hi paul its good to see that they are testing her, i,m getting tested for diverticulitis and crones myself get better soon.☺
Handsome brother !
Omg😂😂😂 ewwww
The Raw Life 😝
It does make sense. It's those intestines. If you look into it, it's starts with the liver & pancreas. They have to work right in order for the intestines to work right in breaking down food particles & having your intestines absorb nutrients. Maybe have GI check your pancreas & liver? Like I mentioned, "GINGER" stimulates and aides the pancreas & liver. Ginger cleanses these organs to aide in the digestion process thus helping your gut to work right. Barb
the prometheus testing is not 100% accurate. It said that i did not have IBD but I actually have Crohn's Colitis. just letting you know. hope she gets better soon!
Have they tested you for upper GI for that cough? My daughter had a cough and they kept saying asthma which she does have. To make a long story short she had a horrific cough for 2 years and began losing her voice. Out of frustration I went to an ENT who visually looked at her vocal cords and they were literally being eaten away from acid from the stomach i.e. GERD. She had no signs of heartburn. If that cough is not responding to asthma while you are in that hospital, I would ask for a scope to look at your stomach and verify you don't have GERD. The emptying test and upper GI were all normal. Good luck and I hope u find some answers soon.
That's the best I've heard you say POTS!
All the best sweetheart!!
I have the same problem. I have three chronic illnesses and it’s like an endless loop. I get sick, they give me antibiotics and then the antibiotics make me more sick, then I get better, then I get sick again and then the cycle starts all over. The problem with chronic illnesses is most doctors don’t know how to help us so they just give us meds in hopes that it makes the pain goes away but the side effects outweigh the meds. Uggghh. I know how you feel.
I hope you’ll feel better soon🌺!
So sad to see you struggling so much😢
I have EDS, clusterheadaches, bladder failure, migraines and more and I’m being tested for narcolepsy!
I was wondering if they’ve already tested you for Leaky Gut Syndrome since you have so much problems getting your vitamin levels up! In leaky gut your gut doesn’t absorb vitamins and stuff like that properly.
I hope you’ll find out what is wrong soon😘
I understand the eating thing I was told I have gastroparesis (but they still doing stuff on it ) I haven't ate in 3weeks I drink sips everyday , it's so painful to eat so I refused . Im just done I waiting to see my GI to got to the er .I also have orthostatic Hypotension and possible pots, and TBI (none stop headaches) and asthma (They are in the hospital anyway) but the pain. I really hope u get better . I been watching for a whils.
Hope you feel better soon
im honestly in the same situation right now my heart goes out to you
Each day i watch the video in hopes that you are doing much better. So sorry they haven’t been able to figure out what’s going on exactly and that your body isn’t cooperating with you. I have this thought with every video....have they tested you for parasites? Maybe I’ve watched too many episodes of that “Monsters Inside Me” show but I’d want them to rule it out if it was me. Did you read that story of the man who was a sushi lover and pulled out a 5 ft tapeworm while he was using the restroom? Stuff nightmares are made of. Anywho, I’m always thinking of you (and Paul and Orion) and hope things are going well for you. 😘
I would keep it as a pet😂😂😂
The Raw Life lol-somehow this doesn’t surprise me! If that happened to me, id totally have to inspect it. I’m love the gross and weird stuff 😜
I have to ask you this because my vitamins and electrolytes were so out of balance that I had lactic acidosis. If they have not given you a blood gas either arterial or venus I would ask about it with the hospitalist. It makes you want to poop, diarrhea, you can't breathe (in my case), and most of all my dehydration caused the acidosis. Something to check if you haven't already. Please Janiece, try some light foods like toast, bananas, rice. However, I'm not trying to be your doctor so I don't want to seem that way at all. I hear a FOD MAP diet for bowel irritability and stomach aches really helps. OK, I will leave you alone with the suggestions. Im good intentioned, I promise.
Vitamin deficiency is life threatening 😳😳😳😳😳😳😳 yes you need to be ok before you can leave. I know people don't think it's serious but it is. Blessings to you 👍👍👍🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀💕💕💕🌷🌷🌷😳🌷😳🎀🎀🎀🎀🎀🎀
Oh wow I just heard you talk about your heart rate. I missed some of it dealing with things going on here. But I was born with a fast heart rate and in the past 2 years or so it has been alot worse and I have had extremely high blood pressure for many years now. And I have been having issues keeping my potassium and magnesium levels on track. I get what feels like charlie horses in my body and lately in my stomach has been the worse. But anyway again feel better.
I hope you have everything figured out
The Raw Life
No they are supposed to send me to another specialist asap cuz I was in the hospital again and just got out tbe 1st part of the week. But thank you.
Has she been tested for Mast Cell Activation Syndrome? It's often comorbid with dysautonomia and can cause alternating diarrhea/constipation/stomach pain and respiratory issues.
You're an amazing warrior
Have you ever thought of it being Bell's palsy, cuz that's what my husband has and it makes his face droop on one side when he pinches the nerve in his jaw but it can cause stroke-like symptoms.
i had my gastric emptying test today
Hope it went well
She says it looked good so I'm hoping there are some results. I want answers too because with the runs I am losing a lot of electrolytes.
Wow 7 days in the hospital, I was thinking maybe 5 days the time flies by.... I hope the doctors can figure out what is wrong before you go home... I have a question is you going deaf heredity (family illness) ? I'm only asking cause it is in my moms side of the family, my mom uses hearing aids (sometimes) she drives us crazy when she doesn't use them,hehe I have never had full hearing in my ears, had tubs in my ears when I was a child and should probably have hearing aids by now, normal size headphones do not fit well into my ears!
Just tell her get better soon
💚💚💚 In getting better everyday
Your red bracelet says Morphine, and I know usually red usually means allergies. Are you allergic to morphine?
It’s not good for my narcolepsy
Irina Fanchon ai
Did they run hormonal tests on you, like ACTH level, cortizol level? One of my family members went through a similar situation...I think these tests might help with the diagnose.
What kind of pain does she have and has she been diagnosed with anything ? I have a lot of problems and haven't been diagnosed with any yet ... all foods make me sick st this point
Hey love you guys❤️❤️❤️❤️❤️
prayers :-) keep your head up the docs will hopefully figure you out soon :-)
I wounded why they don't put u on tpn or tube feeds with the vitamins mixed in. I saw that they put vitamins in tpn in a video. I hope you get better and stronger soon
Emily Self they won't do tpn till the last measure because your body starts relying on it very quickly.
I'm still able to eat lol I'm not that bad just yet hahaha
Well just to help you out with vitamins and stuff but hopefully doctors can start getting to the problem quickly. You already look a lot stronger in your hands.
I am on TPN, 12hours a day for the last 2 1/2 months. One more test then a J tube.
Curiois question your red wrist band says morphine does that mean you have morphine or have an allergy? I ask because Im allergic to morphine.
it effects my narcolepsy that is why
Why hasn't Jaquie visited you yet? I thought you were hospital buddies.
Probably because Jaquie just got out of the hospital herself for feeding tube surgery, and now she's having IVIG which takes a hard toll on her body...But I bet if Janice hasn't gotten out soon Jaquie will probably visit :)
Did u see her vlog the other day? Jaquies vlog is about jaquie. Janiece is about all about her!! They don't share each other vlog on each other.
Janice addressed this a vlog or two ago. Jaquie just had major abdominal surgery for a J-tube and was in the hospital for nearly two weeks. I'm sure if she could, she would visit Janiece.
Have they tested you for giardia? I foster kittens and kittens with your symptoms almost always test positive for giardia. I know it is not the same but humans can get giardia and it causes foul smelling liquid diarrhea, abdominal pain, weakness, bloating, weight loss and left untreated, malnutrition.
😹😹😹😹
💚💚💚💚
OMG, I'm so sorry for your condition - but is your poop still watery?, not a doctor but I do know this, if it is, you're losing vital nutrients through it - if it's not, sounds like something within your body is either absorbing or draining you of it, ask the doctor what they think it could be. Glad that they wanna be thorough this time, so to me like a good thing but I know you would like to go home. Why aren't they giving you the narcolepsy meds?,.i mean if it's gonna help you, maybe just maybe it's acting on all the other conditions causing you to go out of balance?, IDK just suggesting something, and hey if you're home-sick, why not bring something from home which will make you comfortable.
Well all the best, and take care and be blessed
Alright...I just have to ask...have they ruled out pancreatitis? Severe abdominal pain, increased pain when eating, malabsorption of nutrients, nausea, vomiting, and diarrhea. I imagine they have already looked into this but, I had to post a comment just because so many of your symptoms potentially fall into pancreatitis descriptions. Well and I had to give props to my disease...lol, just kidding.
Hey just a quick question I don't know much about narcolepsy but is there a reason the drs at the hospital won't give her the meds for narcolepsy? Just curious cuz I know I have several medical issues and I am in and out of the hospital quite a bit sadly. But they always give me all my meds I am on at home while I am in the hospital. Sometimes I have to argue and call my own physicians clinics to get all of them but I eventually do get them. Hope she gets better soon and gets some answers. I pray she doesn't have Crohn's disease. I have it and have other issues that seem to make it worse at times. Take care.
Dee Cates the meds she is on while in the hospital probably has bad adverse reactions to the narcolepsy meds.
Dee Cates narcolepsy meds don't go well with pain relievers like morphine. So she won't be allowed to take them
Reny Putman
Ok thank you. I didn't mean that to sound rude. Like I said I don't know much about narcolepsy. But that makes sense.
Whit Rachel
Thank you for explaining. I really didn't mean anything by asking. I hope she gets answers soon to what is going on tho. Prayers up.
Each hospital is different and have their own protocols.
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