My Medications for Schizoaffective Disorder
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- čas přidán 16. 12. 2022
- THIS IS NOT MEDICAL ADVICE DO NOT TAKE THIS LIST AND TRY TO REPLICATE IT. Psychiatric medication is different for everyone, so what works for me doesn’t necessarily work for someone else. This is merely a video meant to validate the many of us who take meds to keep our lives in order.
Ever wondered what medications people with serious psychiatric disorders take? Well, here is my ENTIRE medication regimen for my schizoaffective disorder.
Why I'm Doing This - • Why I'm Doing This | T...
What is Schizoaffective Disorder? - • Schizophrenia AND Bipo...
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Disclaimer: I am not a qualified mental health professional. This channel exists for educational purposes, and I do my best to provide accurate and up-to-date information. In order to create content, I combine scientific resources (peer reviewed studies and easy-to-understand articles) and my own personal experiences/advice. I seek to make complicated topics easy to understand, but I am no substitute for a doctor, therapist, or other qualified mental health professional.
#schizoaffectivedisorder #psychiatricmedications #mentalhealth
Dear Lord I am only on lorazepam, quetiapine, prozac and I feel a lot of side effects. You function extremely good considering how much meds you are on. By the way got addicted to your channel, we need more people with schizophrenia on youtube who are struggling and still live fulfilling life. It just motivates us to do our best and reminds us that we are not alone in this.
Yes there does need to be more people! The more the merrier honestly, and yeah, its nice to know we aren’t alone, that’s the best part about the SchizoKitzo project so far., is me learning that I’m not alone and other people learning that too :) Thanks so much!
Dear friends I took zoleptil zeldox risperdal socian abilify and I I'm on 20 mg Olanzapine but what makes me catatonic is Haldol it literally eats you alive inside and in real life it removes your ability to express yourself every time I'm with my doctor my thoughts are not in my head but the worst feeling is being eaten alive
Ik im late but there’s a channel called living well with schizophrenia and it’s an amazing channel! ❤
@nelsonteixeira1651 what do you mean that Haldol eats you alive inside? Can you tell me more?
If you ever think that you don't want to take your lorazapam anymore I'd be willing to take it for you
being schizo myseld and watching you talk is just insane. you talk just like me
casually says : unaliving myself
its nice to not feel alone 🖤 i start my meds tomorrow i was 302d last week
Hang in there!
Careful with the lithium...l have 3rd stage chronic kidney disorder...and never let them increase it. They increased mine, and a week later, was in icu in a coma. Both kidneys shut down, no symptoms, no warning. Try to find something to replace it, kiddo! ♥
I just started limotrogine. 5 days in and its been amazing.
thank u for these videos, i am struggling but these types of videos help me put words to how i am feeling, i very much appreciate that
I also have schizoaffective. You remind me very much of me. People always tell me that I'm "very intense," and I think I understand why. I act just like you. Very high energy.
I wish you the very best. You're very smart. I hope you do something creative, the world needs your brains and energy.
Creativity is what gets me out of bed in the morning, and I try to do something creative every day! Helps with my mental health so much. And emotional intensity can be good and bad, and because of that I love it and I hate it at the same time.
That is also how I feel about a lot of my mental illness journey, it’s… interesting and well, intense! But, anyways, you’re not alone for sure! Hang in there ^_^
Respect. We love your channel because you are authentic!
You have helped me to have hope .Thank you from the bottom of my heart.❤
Damn your candidness is pretty amazing
That was really educational. Myself and a person I care for both have schizotypal and BD1 with psychotic features.
I love that you’re normalizing that some people live with the more severe mental illness every day, even seemingly normal lives or at least not dangerous or violent.
You know it’s notable to me that you take zofran because I just feel like I’m getting “hooked” on otc Dramamine for nausea. I can get a script, I wonder which one is cheaper in the long term though insurance.
Okay person A:
Pristiq, Lamictal, Propranolol, Pregablin and Xanax, Spravato
Person B: Zyprexa, Wellbutrin, Riluzole, Hydroxizine
Thanks for sharing so many details of what and why. With person A (me) being a caretaker for person B we make a lot of trips to the psychiatrist and pharmacy.
Venlafaxine (Effexor) and Promazine...
PTSD and on top of that three incident's traumatic shock in 12-month's. It is good to listen to you... my head is totally battered at the moment. Just watched a few video's of yours. I'm listening...
effexcor made me feel like i wanted to un “ alive” myself. horrible
Lamictal, seroquel, lexapro, Wellbutrin, bursar, depkote, adderall, lorazepam, Ativan, Valium… (pretty sure that’s the lot) I take morning and night… I also have schizoaffective disorder, severe ocd, agoraphobia/ general anxiety, and ADHD (I also take 4 different supplements)… all my meds are super high doses (like 800mg of seroquel a night) to the point that I start to show intense symptoms if I miss just one dose. Nice to see someone else on a crazy cocktail that works for them…🍸 💊 cheers!
🥂
I'm so happy that you have all these medications to help you in various ways! I also love how this video normalizes needing to take multiple meds, which can be a source of shame or embarrassment for a lot of people. So thank you for making it :)
It was interesting to hear about how some of the meds you take were to help with side effects of others, like Ambien to help with the sleep-related side effects of Lamotrigine, or Benztropine to help with the hand tremors from Zyprexa. It sounds like such a difficult balance to manage both your symptoms and the side effects from the meds you take to treat them, and it's great that you've found that. It was also really cool to learn that Zofran kills two birds with one stone by helping with both nausea and OCD... that works out super conveniently!
When you said you could pry Zyprexa and NAC out of your cold dead hands, I immediately thought "that's me with testosterone" LOL. I have that same kind of extreme gratitude for testosterone that you described for your meds, because it's done so much good for me mentally as well as physically. It really is amazing what the right meds can do to improve your life. Thanks again for making and sharing this video, I learned a lot!
Heck yeah for testosterone! I’m so glad you have a med that brings you so much joy!!! And as for the shame, there was a movement a while back by someone on the My Favorite Murder podcast who shared what meds they took for depression, and it started a whole movement where people took a pic of their meds (tagging it with #myfavoritemeds lol) and that got ME thinking, “what if I shared mine?” Even though I found out about the trend much later. I used to be ashamed of my own, I mean its a lot of pills, but part of me sharing them is helping ME accept that I too should not be ashamed!
This channel goes both ways, because people like you help me too
Very informative. You seem like a very vivacious and fascinating person. All the best to you.
Awww thanks! best to you too!
Thank you very much for sharing! I am excited to try Fish Oil and NAC. Love to you!! 🙏💖
I have schizoaffective depressive type, I'm currently only taking abilify(aripiprazole) and fluoxatine. Thanks for making this videos, such a relief knowing that I'm not alone
Never ever alone. I appreciate you taking the time to comment!
I am on abilify & fluoxetine
So have depressive type. Have both those meds plus more.
I was diagnosed 15 years ago. I didn't accept help (meds) until 5 years ago. I still struggle so much. There are fewer voices on meds, but my mood swings are still a huge issue. Can you please help me Guage where I'm at compared to my fellow schizos? 😉 How often do you hear voices? When you do hear them, how long does it last? Days? Weeks? Etc... I feel like maybe I need to take stronger meds. It scares me, though. If I'm not throwing a bipolar fit. I'm numb. The only things I feel are nothing or frustration, heartache, and anger. Damn sorry, I'm rambling on and on. I just need to know what your experience is. Thank you for taking the time to read this, and hopefully for taking the time to reply.
@@5150mre I might have a different type of schizo, instead of hearing voices, I experience thought insertions. It's hard to track since usually it's so seamless, but after a while I realize that it wasn't my thought at all. From what I read from your comment, you might want to track, anticipate and mitigate your symptoms. It helped me a lot, hope it helps you too!
Hi Kit! I also have schizoaffective disorder (bipolar type). I take Lamictal/Lamotragine and used to take Geodon/Ziprasidone but recently switched to Latuda/Lurasidone. You're right! It really did help me have a more functional life after finding the balance of medicine for me! Thank you for creating a channel about schizoaffective experience!
Awwww thanks for commenting! Glad you’ve got a regimen that works for you too!
Latuda is the best I’ve ever used!
It is so cool when your eyes light up, and your dimples shine(when talking about staying on your meds). I started Wellbutrin about 10 yrs ago, I must have cleaned that damn oven 3x the first week.😆🤣😆
Thank you for sharing we have a family member who just got diagnosed, we are learning about this sickness and again thank you for sharing.
I have schizoaffective disorder too,i take 400mg Amuslpride in the morning 400mg Amsulpride at night with 5mg olanzpine and fish olis and vitamin b and c.loving your video's great content.very informative video..❤❤❤🎉❤🎉🎉🎉Love ya Tasha.❤❤🎉🎉😅
Thankyou for the courage to speak about something sensitive, it takes a great deal of courage to share. Now, I'm taking some medicine too for schizo type related disorder and low emotion.
I hope your meds help! Meds are great when they’re done right
I'm new to your channel and the timing is perfect,,, I do well with being schizo,,, I do refrain from telling my therapist and psychiatrist everything. That's why the timing is perfect for me. I feel like I'm gonna throw up. I appreciate your work, thank you❤
Was diagnosed as having major depression with GAD for, literally, 30 years. Three weeks ago, at the advice of my therapist who was so attentitve that she was picking up on what could be hypomanic episodes, I saw a new doc. His questions led me to consider entirely different things than I'm used to considering, and it really seemed much more clear: bipolar 2, C-PTSD, and some anxiety stuff. This has completely blown my mind at age 51. I thought I knew why all this happened, but I can so clearly see instances where I was driven, completely unknowing, by this disorder. So, yeah, the whole med treatment is different, and I hate taking handfuls of pills, but maybe if my new treatments work better, I can get more off the anti-depressants.
When my son gets out of the hospital I'm going to recommend him to your channel. He's fighting accepting his diagnoses. We need more people like you who are being very honest about your experiences. ❤
I hope the best for him, and that the channel helps. Thank you!
You're very knowledgeable, very nice to listen to.
Glad to hear it! Thank you!
Hi Kit! Nice video! I take quetiapine, zolpidem, fish oil, vitaminc and cocp’s. These are my medications for now.
Whoo! I’m glad it works for you!
You Rock great vid! Saying a prayer for your mental health.
Awww thank you! I appreciate it ^_^
@@SchizoKitzo I started Ativan recently. Really helps but I don't want to become addicted.
@@tylerogrady8194 the best way to avoid that is to only take it when you really really need it. For me it’s a last resort, and my doc doesn’t give me enough to take every day, so I couldn’t exactly… become addicted even if I wanted to. Hope this helps!
@@SchizoKitzo Got you, I usually take 2 1mg a day some days less. Like When I'm at work or at a party with my friends. However my anxiety triggers my psychosis and that is scary for me. So I may break 1 in half. Thank you again for the feedback!
My testimonity:i am a 15 yr old boy who lives in Romania who has been diagnostied with schizoaffective disorder 3 momths ago who was healed by the grace of Jesus Christ(sorry for my bad english).All glory to him🙏🙏🙏❤️❤️❤️
Amen praise the Lord
and pass the ammunition @@Nancy-ow9wy
Glory to God in the highest,may God healed me miraculously also in Jesus' Mighty Name !
I have schizophrenia and depression. I take a few meds like Invega Sustenna and prolixin. Works great for me too!! Thanks for sharing!
WHoo!
I have the same diagnosis as you. I only take 10 mg zyprexa, lexapro, and propranolol. Lately I've been very depressed and isolated. People admire my ability to live alone but I don't think that makes it a good thing.
Living situations are different for everyone, and life is a case by case basis ya know? Thanks for sharing!
I'm on Wellbutrin, Abilify, Vistaril and Haldol as my dailies. I also take a CBD gummy as a supplement, which I've discovered increases the anti-anxiety effect of the vistaril. I'm glad I'm not a walking pharmacy but I do have sympathy for those who are because it becomes more and more difficult to function as well as you do with each additional medicine that's added.
I opted out of taking medication about 13 years ago. I was Diagnosed with Schizophrenia, then at a later date schizoaffective disorder.
I started off with Abilify and a Benzo after about 6 month I stopped taking it.
Wow , you are on quite a lot of meds but if its working for you , then its great.I was also diagnosed with Schizoaffective disorder a few years ago and finding the right meds at the right dosage , was quite a tiresome journey for me.I currently take Fluoxetine and olanzapine.Have you also struggled with weight issues , caused by the meds you are taking?Thanks for being so open about your condition and in the process , spreading awareness about schizoaffective disorder.Most people , unfortunately only have a stereotypical idea of this particular condition.Looking forward to watching your next videos.Wishing you all the best for the future.
So, weight gain on antipsychotics is considered a side effect, which means, by definition, not everyone will get it. For me I am one of those people and I consider myself fortunate. I know Lauren from Living Well with Schizophrenia has several videos about weight gain on antipsychotics, so go check out her channel or do a quick search, and that should help you! Sorry I can’t do more, hang in there.
Hi there, I have bipolar II disorder. I take quetiapine and lamotrigine and I'm also one of those people who've been fortunate not to experience weight gain from my antipsychotic. As she suggested below, here are the links to videos by Lauren on her experience with weight gain and a conversation with a psychiatrist on the same
How I Manage Weight Gain on Antipsychotic Medication czcams.com/video/pBqzbEjkgyA/video.html
Why Do Antipsychotics Make You Gain Weight? www.youtube.com/@LivingWellwithSchizophrenia/search?query=weight%20gain
I hope that helps. I'm absolutely rooting for you.
I’ve taken every single one of those except ambien, meds are a struggle right now, because of both paranoia associated with medication and breast-feeding. I’m extremely sensitive to chemicals and currently I’m only on a little bit of Seroquel and a benzodiazepine occasionally. I was just officially diagnosed with schizoaffective, and I’m trying to figure it out. Glad to have all the diagnosis given over the years narrowed down to just that and PTSD. Of course, I turned to CZcams to learn more. 😂 i’ve been on about a total of 40 different medications and most of them haven’t worked for me. I’m always curious if mental illness is really mental illness which is probably my mental illness. Thanks for the video.
I am on seroquel, zyprexa, doxepin, trileptal, buspar, effexor and clonazepam. This combination has helped me so much. It took years to find a combo that worked for me.
God I wish I had your doctor 😢
Great video! You look amazing! ❤❤
Awww thanks! Glad you liked it!
I’m on just Zyprexa, Depakote, Klonapine, and Paxil. We got lucky with my first batch of meds. Plus the Paxil helped with not only my anxiety but also some of my depressive symptoms. It improved my quality of life ❤
I’m glad to hear that someone else is grateful for their medication. I was so happy when I started on Zyprexa and the way it made me feel well. I wanted to send a big thank you card to the makers of it. Lamictal is a godsend also. Ambien was a scary drug for me. I would eat in the middle of the night and find the ice cream containers in the trash the next day. I would write emails to people during the night and not remember what I wrote. I was terrified if I wrote something embarrassing. Luckily I never did. My dad takes ambien and is fine with it. I will start taking the supplements you suggested. I’ve heard that they are good.
I also take Vitamin D everyday because I am chronically low on it.
Ambien sometimes has me doing funny things, but nothing too crazy! I wrote and odd poem once that I swear made sense when I wrote it 😂
And I’m glad I’m not the only one crazy grateful for zyprexa!
Oh God, I thought I was the only one who takes a bunch of psychiatric medication. I have bipolar and Adhd I take 3 for bipolar (trileptal, abilify, prozac) and 3 for adhd (adderall, strattera, guafacine). I'm glad your medication really helps you ❤️.
Right back at ya!
People need to be on 3 types of medication just for adhd?
Be careful with Adderall. My sone switched from rittalin to adderall when he was 18 and had a schizophrenic break and he's been f'd up ever since. 3 weeks...broke his brain forever.
Thank you for your channel!
^_^
I also have schizoaffective disorder. I also have medical problems that I take medicine for. For me, the only medicines that help with my psychosis are Zyprexa and Seroquil. I told a doctor that, and he said he wasn't surprised because both are chemically similar.
My diagnosis is bipolar I with elements of schizophrenia, and I also take zyprexa (olanzapine) but gained like 120 pounds in weight over 14 years that I'm on it. However, it completely eliminated paranoia, hallucinations, delusions, mania, depression so I chose to stick with it. I'm really glad it works for you without weight gain :) Best of luck
I hate that zyprexa is so helpful for so many people but causes so much weight gain. I’m glad you’ve found a way to make it work, but my heart breaks for all the people I’ve interacted with that deal with that side effect. Maybe one day there will be a better drug out there that doesnt cause such issues.
I’m not a doctor, but that sounds like the medication. I have read that it can have you gain weight even on an extremely reduced calorie diet. Have you tried any of the glp or similar medications with it? Idk if that would even work. Idk if there are contraindications, but if that medication helped you but was weight +, you have metabolic syndrome and actually need the medications similar to what type 2 diabetics take. So maybe ask 🤷🏻♀️
@@Shoppinghappens Thanks for the advice, I will do some research on that glp medication, never heard of it before to be honest with you. And yes, I definitely have metabolic syndrome unfortunately, probably early stage of diabetes too. But like you Americans say, you can't get something for nothing, that's how I look at my meds. I gain mental stability at the expense of some physical damage to my body, and I learned to live with it. And people around me thankfully accepted me as I am now, whereas when I was manic I definitely exhibited certain amount of anti-social behavior and I'd really prefer not having to go through that again, so yeah, for me it's swallow those 3 pills in the morning and night and simplify life. Thanks again and good luck :)
That entire class of a-typical antipsychotics cause me to gain huge amounts of weight, get high blood sugar or get involuntary movements. I can't take any of them.
See if you can switch to Geodon. It treats both scitzophernia and bipolar disorder so you won’t need a mood stabilizer. It is from phizer and very well known and trusted company. I gained 70 lbs on zyprexa, the worst thing ever. I unfortunately got sick and lost over 30 lbs but I am so happy with my weight loss. Food is a major killer and zyprexa slows down your metabolism and that’s why it causes weight gain.
Hi. I am diagnosed with schizoaffective bipolar type. I ve been on abilify Prozac and depakote for many years. I’m doing ok but not finding work atm. I feel I must ?? have language communication problems. I speak too slowly or too fast for people? Lack of insight into that. I’m impressed with the way you speak and your clarity. Good job!
Thank you!
Thank you for this post. My sister was thought to be BiPolar but she actually have Schizoaffective Disorder. It has been so hard for her because she was diagnosed with stage 4 breast cancer and the combination between her medications cause her to fall sick all the time. She is constantly hospitalized for her mental illness but as a family where to find resources for her.
Lithium helped me a ton. I had intrusive thoughts, would spend all day thinking about one specific bad thing. When I first started taking it, it felt kinda like my emotions were wrapped in cotton balls. I don't notice it now, but the thoughts are still gone.
I'm on Seouquel, Fluxione, Busiprone and Abilify for Schzioaffective disorder-bi polar type. Thank you Kit for sharing.
Meagon
No prob!
❤thank you for sharing your history my diagnosis is what your been diagnosed with I have had experiences where I've felt like I've had LSD and it's lasted for a month I feel like when I'm well everything's good but then when things events ideas and imaginations theories occur in regards to those around me and actions beyond which is even considered a reality if happening or not.
My belief is that sin plays a huge part in my illness and that people cause events to take place to take advantage of my good nature and use my diagnosis against me laughing about it like I am stupid or foolish and I have to prove it so I'm in the situation where I'm thinking people lie and use what you say in conversation as a means to try to mess with your head
I'm surrounded by kleptos that take things at random and then either gift things back to me that they have stolen or are blatantly rubbing my nose in the stuff that they have taken by parading it in front me claiming it to be theirs.
Now that's fine I'm okay that they may have needed the items but to tell them that it's looking familiar and then to see their smirks is quiet absurd to even think persons closet to me have the Audasity to wait for my reaction which is usually shrugged off and then just makes me believe that I'm not imagining this as this is actually happening my God knows that I'm his and that people do things to hurt others for kicks and pranks
But to tell you the truth I have no problem it's them that the problem and if I just ignore it
Karma comes to them too
I'm on clipixol injection fortnightly and my health care providers are just as slanderous about my character and how I believe in God and that I hear the holy spirits impressions in my spirit and that I have a hard time dealing with addiction which is sin
I'm only sharing with you my issues I deal with which is Life and with medication I'm still going to keep the faith. I know jesus is real and he has my hand I'm expecting him
I take lamotrigine too and have found it amazing. I’m on both venlafaxine and duloxetine but coming off venlafaxine, I was just at the maximum dose so had to cross taper. Quietapine daily dose and I can take more as needed. Diazepam as needed.
Glad you have a regimen that works!
Hey. You're not alone!
Great vid!
Thank you!!!!
good video kitz!
Thanks so much! Your comments make me smile :)
First of
all, you're gorgeous ❤and i take olanzapine 10mg and trileptal diagnosed with bipolar disorder
May you always be protected. I'm sorry for your suffering. It's really sad. I hope one day you are free from all your suffering. And hopefully away from psychiatric medication.
Great video! I was diagnosed with similar issues and couldn't take Zyprexa and similar other anti psychotics because they give me unmanageable side effects.
I'm surprised how well people do with Ambien, it either does nothing or barely works for me. I've tried so many medications at this point, I'm hoping I find some that will make a difference now..
I have noticed that Ambien can be a hit or miss for some people. You’re not the only one I’ve heard of where it just doesn’t work very well. And I hope you find a combo that works, I’ve also been through the trial and error and it’s stressful. You got this!
My notifications are wonky so I didn't realize the reply but thank you, right back at cha! Looking forward to seeing more of your content. :D
Thank you for doing this. This was EXTREMELY helpful. Can you please drop a recommendation for you provider? We are struggling to find providers competent in this area. Also, have you tried any of the cognitive behavioral treatments from the Hearing Voices Network? I care for a relative with schizoaffective disorder. I've been doing it alone for a quite a while. We've gone from using most of the medications you listed to none at all, though I'm only partially in control of that since the relative is an adult. Yet they are functioning well (enough). I need a provider competent enough fall back if this drug free approach hist a rough spot. Thanks.
I have borderline personality disorder with hallucinations, panic disorder and stress induced seizures. I find my medication really helpful along with therapy. I take:
-Sertraline
-Aripiprazole
-Clonazapam
-Propranolol
-Diazepam
-Melatonin
-Buspirone
I wish anyone who’s reading a happy and healthy mindset. Thanks for reading 💖
Sick and sad. You people are brainwashed and poisoning yourselves.
Ask doctor to remove Aripiprazole, buspirone, diazepam and melatonin.
He need to add Duloxetine.
If he is not agree, change doctor.
I was going to check-in with some of you but thisis nescription abuse from somewhere. Perhaps Big Pharma is at work once again . Please read the information that comes with your bag of meds. Cheers!
Weren't you the guy complaining about forced medication and civil liberties?
@@AJCINEPLEX sorry, since when did you know me and where my doctor? Mind your own damn business.
I take fluoxetine and olanzapine (zyprexa) every day and benzodiazepine when needed. I’m diagnosed with paranoid schizophrenia but I think I might have bipolar too because even on the zyprexa, I still experience like hypomania from time to time. But I’m satisfied with my meds, except for the weight gain thing. I also take CBD oil 5% few drops a day, it really helps me a lot with my anxiety especially and it sort of grounds me.
Thanks for sharing what works for you! I’ve tried CBD and found that it has helped, but I only do it as needed, and I’ve heard it works really well from others too. Kinda wild how helpful it can be.
I'm bipolar type 1 and I've tried a whole bunch of antipsychotics.
- Risperdal: no libido
- Abilify: libido but akathisia, which is the inability to stand still, was clearly the worst side effect ever, I couldn't stop walking.
- Amisulpride: no libido
- and now Zyprexa, and clearly the best for me. food seems so much better on this medication so I have to be careful not to gain too much weight. Also I have the same problem as you with hand tremors. For me it tend to get worse in stressful situations. Pretty annoying
Thanks for normalizing having to take a bunch of different meds. Treatment is as complex as the disorder(s). You do what you have to.
Exactly! Thanks so much!
@@SchizoKitzo Hey, Kit: I know it's not your mission to make a living off CZcams but is there some way your grateful fans can help you spread knowledge and fight stigma?
@@KevDiver just share the videos with whoever you think needs them :)
Remeron, Seroquel and a clonazepam (very PRN hardly ever take clonazepam). Anxiety / depression and ptsd and a sleep disorder. I take Methimazole for my Graves Disease
I take Zyprexa, Lamotrigine and Sipralexa. Temesta, only when I need it and Zolpidem as well, when I need it. But I haven't taken those last two in quite a while. I also have schizoaffective disorder bipolar type
I have schizoaffective depressive type. Lord knows I’ve been on everything over the last 35 years. Currently I take Invega ( paliperidone) for psychosis, cymbalta (duloxetine) for depression along with pamelor ( nortriptyline) and Wellbutrin ( bupropion) for depression also. For anxiety I take klonopin ( clonazepam) a benzodiazepine. And finally an anticholinergic called Artane (trihexylphenidine) to counter side effects of the antipsychotic Invega. I am not doing as well as you are Kit but I’m ok. I’m hoping for better meds in the future!! I was on ambien for 12 years but it actually stopped working so no longer on that one. Thanks for sharing what worked for you.
“Doing well” is relative and I’m sure you’re doing your best, and that’s all you can ask for! Thanks for sharing your meds, and I too hope for better meds, and maybe some that we actually can learn how they work… glad you have a cocktail that helps! Stay strong, you got this!
Hi Jeni, did you manage to find a medication to replace the Ambien? Keep up the great videos Kit!
@@IlikeTurtles316 I tried other things like lunesta and restoril but nothing was helping. I finally stopped taking all sleep meds and my body finally after a couple months of insomnia started getting used to sleeping naturally. Now I rarely have insomnia anymore
@@jeniroberts thank you for sharing. I'm glad you are able to sleep well without the sleep aids!
I take desvenlafaxine, trazodone, clomipramine, aripiprazole, clonazepam and alprazolam, but my doctor is still testing those meds on me. I was showing psychotic symptoms such as short delusions and both auditory and visual hallucinations, as well as having hypomanic episodes every other day.
I also have OCD, depression and Tourette's
You are diagnosed with schizoaffective disorder, right? I was diagnosed 15 years ago. I didn't accept help (meds) until 5 years ago. I still struggle so much. There are fewer voices on meds, but my mood swings are still a huge issue. Can you please help me Guage where I'm at compared to my fellow schizos? 😉 How often do you hear voices? When you do hear them, how long does it last? Days? Weeks? Etc... I feel like maybe I need to take stronger meds. It scares me, though. If I'm not throwing a bipolar fit. I'm numb. The only things I feel are nothing or frustration, heartache, and anger. Damn sorry, I'm rambling on and on. I just need to know what your experience is. Thank you for taking the time to read this, and hopefully for taking the time to reply.
I was diagnosed with bipolar 1 disorder which changed to schizo affective bipolar type diagnosis , i take depakote an injection everymonth of invega sustenna lurasidone fluoxetine propanolol prozosin metformin atorvastatin hydrochlorothiazide thank you for your video , its good to know im not alone
@ems288889 do you develop diabetes from psych meds?
I just got diagnosed with this a few days ago was originally misdiagnosed for bipolar & borderline personality disorders suffered a very bad episode last month ended up in hospital psychward outpatients getting treatment I'm on zyprexa & epilim sodium valproate hopefully they'll work since the dosage has been changed
olanzapine and zolpidem - these help a lot , but I still hear a girl screaming in my head sometimes. Living in the UK its really hard to see a psychiatrist (NHS) on a frequent cycle. SO probably need something else to stop the screaming.
I am so thankfull limotrogine doesnt make me sleepy. Risperidone knocks me out though. I take that one at night time.
As also someone with Schizoeffective disorder, I'm on Paliperidone (9mg), Duloxetine (60mg), and Mirtazapine (30mg).
I was just diagnosed with schizoaffective bipolar (depressive). I was in the ER for a week and then a psych ward for another week. I’ve been experiencing delusions and hallucinations for four years now. They put me on Latuda and it seems to be helping the bipolar side of things. But I still have some delusions (quieter, but still there). I’m worried I may need something more and this video helped. So thank you.
Glad I could help, best of luck on your journey, diagnosis is not the end. And you’re not alone
NAC is great for your liver too. Helps in making glutathione.
Yeah! That’s another nice benefit!
I'm on Lamictal, Wellbutrin, Geodon, and Remeron.
I'm diagnosed with OCD and GAD and I take fluoxetine (prozac) and lorazepam as needed. Prozac also helped me stop binge eating. I agree that lorazepam is extremely helpful with severe anxiety attacks. I take prozac but can I take NAC with prozac?
I was on respiradol consta the shot, depakote, lithium 15 years ago. Now i take respiradol. Quite a bit less meds because ive grown up over the past 15 years!
I have schizoaffective disorder too. Bipolar type. I’m on Cyamemazine, Quetiapine, and Paroxetine
My sister & her group friends only talked about their prescriptions. Nothing else. She was so drugged, she barely functioned. I hope better Treatments come along soon.
I am truly impressed at how many medications you take every day. Do you have a pill organizer or do you just do what my husband does for his diabetes and just take them out of each bottle every day?
I know the number of pills, so I get them all out of their bottles and go “ah yeah, there’s nine here” and then I take them! I have done pill organizers but it takes too much time 😂 so I just take them out of the bottle every day, yes. Also, I dont take ALL of them every day, but most of them, yes.
I take olanzapine, lamictal and hydroxyzine. The lamictal treats the bipolar side of the schizoaffective bipolar type. Olanzapine helps keep the visuals and auditory hallucinations down (schizo side) and hydroxyzine is an antihistamine that treats my anxiety
yes for olanzapine and lamictal!!! I made this video a while ago but that is still the combo that works the best for me!!! I tried vistaril once but it didn’t do much (they gave it to me when I was in a psych ward since I couldn’t have my Ativan) but I’m so glad it works for you! Thanks for sharing :)
How do you get to sleep? I usually cannot sleep if I take a mood stabalizer or not. Lithium makes my mood swings worse, and not taking Lithium makes it also worse. It is as if my brain works around the medications for mood
You are great
Hi Kit!! Thank you for sharing this info! My LO tried respiradon, abilify and zyprexa before clozapine. Out of the first 3, Zyprexa was the best and got him some relief but it didn't take him out of psychosis even at 24mg. He also got dysphagia. With clozapine, he responded at a low dosage and he handles a constipation as a side effect. He takes docusate sodium in the am (stool softener). Clozapine is highly sedating too but it got better when the dosage is splitted 3x a day, instead of 2x. He got many pounds extra.
The doctor pondered clozapine is protective against catatonia and that weights down in her decision.
This all happened 9mos ago, he's only 16yo, diagnosed with schizophrenia.
Supplements: fish oil 2 capsules, focus (mineral supplement for the brain) 2 capsules.
PRN: ATivan
There have been bad and good days...but grateful is the best word, we relate with you, we are SO grateful! in Jan, he will work on slowly coming back to a school, and after a short visit, we've been noticing him more symptomatic. Did you experience this as well? How was your transition back to your academic life?
So for me in terms of academia, I never took time off from school. I had professors who postponed tests and assignments for me (I once re scheduled an exam THREE TIMES), but I never took a break even though I should have. But because school was stressful (I was pre-med and wanting to do medical school, so it was a lot of hard science classes) I was always in somewhat of a bipolar mood episode. I found that I would have a cycle in the middle and end of every semester, and it was very difficult. I’m not sure how I graduated college, honestly.
But after college when i had my psychotic break in NYC, I realized that I was never going to go back to school until I was really really stable and in remission because school was so stressful for me. I renewed my EMT certification this last year and that tipped off a mini mood episode.
So navigating studies with a condition that is largely triggered by stress (I know in my case) is delicate. However, with the right meds and the right therapy and the right support system, it is possible. Accommodations might be needed, but I think you’d be surprised at how much teachers are willing to help. I know I mentioned a lot about college, but it was in college where things got really bad. In high school I had nearly straight As, but SZA took that away from me real quick in college.
That’s my story. Hang in there. Life is a case by case basis, and it might take patience and a lot of work, but recovery and a wonderful, beautiful life, is possible. Schizophrenia isn’t a death sentence. Hang in there
Zyprexa was amazing for me too but I got the tremors too I got bullied real bad in highschool for it so I stopped taking it. One of my biggest regrets smh 😔
Zyprexa works so good! I’ve tried to get off it and I absolutely can’t. It’s my miracle sleeping drug I take 5mg/night. I’m also on abilify maintena injection 400mg/4 weeks IM. Deadly combination for my sza but I can’t lose the initial weight that I put on for olanzepeen. How do you stay so skinny?
I take zyprexa, gabapentin, tegretol, Clonazepam, Belsomra ,and cogenten and trazodone
Very interesting about the fish oil. Could you share the dosage please? Wish you good luck 🙂
If youre interested, talk to your doctor :)
I used to take 14 different meds a day, I tried prozac but I ended up smashing the house up! I have had amitrypteline and beta blockers that I can't remember the name of.. anyway, now take sertraline which is an antidepressant, quetiapine that's an antipsychotic, levothyroxine for an underactive thyroid gland Valproic Acid which is a mood stabiliser. I also take meds for Gastroparesis/haitus hernia and strong pain medication 💊 which is prescription only for scoliosis, sciatica, and I now also have osteoporosis; I have pain all over my body, several old fractures in my spine, awful 😖 😱 headaches, I walk with a wheeled walker as I am unsteady on my feet, have a partly adapted ground floor flat and I am only 55! Still, I know that there are a lot of people out there that are worse off than me. xx
I was diagnosed with bipolar affective disorder when I was 37 and now also have mixed personality disorder, ocd, social anxiety disorder..; but my meds keep me almost on an even keel.
Thank you so much for sharing everything here. You existence and life experience matters.
I take capylta and it’s been working good for me only problem I have is I have trouble talking to people and having fun I have the depressive type of pschitzoaffective. I wish there was a cure but I’m doing good now
I have treatment resistant depression. I am on paxil. I was thinking of adding lamictal
I take Risperdal, wellbutrin, clomipramine,
Effexor, Lamictal, Propranolol, Atarax, Trazadone.
I'm one of those that tried every ssri and nothing worked, atavan, trying pristiq out rn, other than that lamictal and going to tms next week! Woo
I hope the TMS works!!! I’ve heard good things about it! And I hope the pristiq helps too
I have schizoaffective bipolar type, it started when I was a 14 year old. I take abilify, divalproex, sertraline, buspirone, and xanax. My side effects only affect my weight, so I need to take good care of my body. But I don't live so normal because I still have little mood swings; still, it doesn't compare to how I was years ago. I tried Zyprexa and the effects didn't last, I tried Risperdal didn't work either. I tried zyprasidon, and I got an allergic reaction. I tried lithium, and it worked only for a while. But I still have social anxiety. My medication works, but I need adjustments, I guess...
I'm like you , I take soo many medications .
Im very interested what you take for energy my son take lithium 900 at night and bentropine 1 mg twice a day and fluphenazine twice a day but the fatigue and the tired is killing also his movement are so slow is the any you can help to get
I also take Olanzapine 5mg once every 24 hours. Although it has really helped me with my previous depression and schizophrenia, I think it's not enough because I'm recently finding myself more depressed
Adderall x2 daily, Geodon x2 daily, Wellbutrin x2 daily, Lexapro x1 daily, Abilify x1 daily, topiramate x2 daily, quetiapine x1 daily, Ativan as needed. Then I am on 6 other meds for other illnesses not related to mental health. I'm surprised the drug interactions haven't killed me yet.
Yah i took zyyprexa 15 years ago too and lithium
I hated talking zyprexa, I mean yeah it works but at the cost of living through a thick fog like as if I was asleep
Edit: was taking caplyta and mf gave me both TD and NMS and i didn't even know I almost died, I'm on invega now and it works 8/10 and doesn't make me pass out instantly
Ambien had me Turnt up in the psych ward 🕺🏽 🪩
Thanks for the video Kit! Do you take Ambien every night? Be careful since long term use has been linked to possible dementia (same with anti cholinergic). Thanks! ❤
My meds have changed a lot since I made this video, but one thing I will say is that if I live long enough to have side effects that increase risk of dementia, then that’s a problem I’m okay having.
I totally understand. I'm curious how long you've been on Ambien because I've been on it for almost 10 years. I wish I could stop but I can't. I do have great sleep with it.
I went off it a few months ago and I was on it for close to that. It’s harder to sleep now but I do still get sleep. It’s a combo of my zyprexa making me sleepy and zinc to regulate sleep once I’m unconscious. Some days I miss ambien but I’m better off without it. But it was there for me when I needed it for sure