Getting up a step when you cannot walk up a step with limb girdle muscular dystrophy
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- čas přidán 22. 08. 2024
- July 20, 2023: 46 year old man, diagnosed with limb girdle muscular dystrophy in 1995 at the age of 17.
I had lost the ability to walk up stairs on my own roughly 10 years ago. In order for me to go up or down stairs I need to be “piggybacked”. I’ve used this method for 10 years+. However, in the past few years I’ve noticed it is causing a strain on my shoulders when I’m being carried up or down the stairs. This is the only way I can get up or down a flight of stairs.
Thanks for showing us👍We should also try this method on steps! Your Dad is amazing!!
Thank you Therese. He is but like I said in the video it’s getting harder on my shoulders.
It’s amazing how you and your Dad have developed your own technique to get up steps !
Thanks for sharing with us !
Best wishes Daniel !
It works but can cause discomfort on the shoulders after a few days of this. All the best to you Daniel!
Thank you John Ive been following your videos for years. In 2008 I diagnosed myself through your videos I live with lgmd and still cannot find any others with videos on our disease.take care
Thank you for sharing 😊
great advice
Thank you!
you are awesome man! Did you have to come with these methods on your own?
These methods come to me. It’ll come to you as well when you need it. Thank you for watching.
@john graybill
how do we get InTouch with you? i need to have a sit down with you so we can have a comparision, and some advice.
im 38
Hey john, i have lgmd2a as well, just curious did you in the earlier onset have problems with your knees jolting backwards on occasion on a step forwards causing you to lose balance? I keep having that happen near my tvs and im scared of falling into one soon! 😂
Diagnosed when i was 9 and having more difficulty recently with some things. Im 22 now
Hello Andrew. I never had any problems earlier with my knees jolting backwards. What started to be the problem was when I’d step down I’d lose my balance and lean forward. I only had one near fall and that’s when I decided to stop going down steps. I didn’t want to end up breaking something and then I’d be confined to a wheelchair forever, due to my progression now. The fear that you’re feeling is normal and your body’s way of protecting you from injuring yourself. I’ve had those feelings when getting up from the toilet. I hated those dreadful feelings and that made me more nervous. You’ll know when it’s time to stop walking down steps. Good luck to you.
👍🏻👍🏻👍🏻
Hey John, you're creative, do you use the same method when getting up
Thank you for watching. I’ll have a video coming out in a week on how I get up from a seated position. Keep an eye out for that.
I mean... the method is effective, but you rely on a strong person and that particular spot looks perfect for installing a handrail and a ramp so you can just walk or use a scooter or wheelchair.
True, however everyone is different and those items may not be available in every space encountered. This method is here to help others without those items.
You should try creatine I've heard it's great for people with MD, Blessed Be.
are you living with your parents currently?
No I don’t live with my parents.
@@JohnGraybill i see.