What is hypotonia and how can it affect your child?
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- čas přidán 2. 06. 2024
- Hypotonia, also called low muscle tone, is an obstacle many kids face. But what is hypotonia?
In this short video, we’ll give you the overview of what hypotonia is, how it relates to low muscle tone, and how it can affect your child.
00:00 - Introduction
00:17 - Low Muscle Tone Example
00:41 - Muscle Tone vs Strength
01:04 - How will this impact your child?
01:32 - What are treatment options?
02:16 - Outro
Want to dig deeper? Check out the Surestep blog - surestep.net/blog/low-muscle-...
Want to help your child feel more stable on his or her feet? Learn more about Surestep SMOs - surestep.net/blog/will-smo-or...
For all those worried for your kids with HT(short for hypotonia)don’t worry, I was diagnosed with HT at a young age and physical therapy and more helped me get through it! Now even tho I still have it and always will, my leg and more on my left side have gotten much more strengthened with the help I need❤
I was diagnosed with global hypotonia at 18 months and mild hypotonic cerebral palsy I had SMO braces from age 2-5
That was really helpful, I have been looking for this info re my 6 year old.
Thanks for all the time you guys spend to make it easier to understand...Im a Speech Therapist❤
My son has just been diagnosed with hypotonia. He’s two. He wears lace up ankle boots the NHS provided. He was unable to support his head until he was a little over six months. I thought it maybe was because I had him at 46. Thankfully it wasn’t. He will see a geneticist next week. He’s the best wee thing. I know he’ll be ok.
Now how is he? My son 10 month also not achieved any miles stones yet.
@@shaistakhan7680 He actually has his genetic test tomorrow at 9.15am
If your child hasn’t reached any milestones then it’s better to have them checked by your local physician. Try not to worry though as they all progress at different stages.
I’ve a sneaking suspicion that my son is also on the autistic spectrum, as his dad is.
I’ll post again!
Hi @Grey Line , I'm just following up on your story because my son has been diagnosed with hypotonia at age 4 months and 3 weeks because he has significant head lag but he is able to hold his head up in a sitting position, not fully stable but its much better than before, I saw a post where you said your son walked at 18 months,that gives me some hope because I'm worried sick and I am also happy that your son is progressing
@@drucellatemple7283 hey I wanted to let you know there is hope. As I know each individual case varies I wanted to share my story my son is two years old and 3months today he saw a pediatrician neurologist she said he has mild hypotonia first time I’ve ever heard of this he started walking around 18months. He’s progressing so I am hopeful. I hope this provides you with some as well. 😘
@@collectiveartdesigns good morning, I am very grateful for your reply as I was worried. Thank you very much and I'm happy your son is doing much better now and he will continue to do even better as he ages ❤ blessings on you and your family
Posted a while ago as my two year old son was diagnosed with hypotonia. I was to have a geneticist test carried out on him however he’s been referred to a larger hospital for that, so will still have another wait. The physician O.T and speech therapist spent two hours with him and he was also diagnosed with Global developmental delay. I’ve a sneaking suspicion he’ll also be diagnosed with autism in a year or so. It’s right through his dads side of the family. But his dad managed Ok in life so I’m sure our son will do just fine with the correct support. Where have all these labels come from?? My son just has a few extra special qualities! He’s wonderful.
How is ur son now how is his life
@@sarithabuddula9346 Hypotonia is low muscle tone throughout his body, ie poor balance and quite unsteady on his feet.
@@greyline1012 his walk or not
@@sarithabuddula9346 Yes, however very unsteady and bumps into things.
Have you found out the results yet? I have a 14 month old who displays the same symptoms and his dad has autism and MD in his family. Would you be willing to share or look at videos of my son to help me determine where seek help next? I'm trying to avoid a battery of testing on my baby and the enormous costs of neurologists, geneticists, etc.
I have hypotonia in my hands and possibly other areas and go to PT and OT and sometimes I just feel so weak, it just concerns me when it makes me feel weak then I move a little bit more and it just makes me feel not as much
You are great
I wish I saw these shoes when my son was little. He is 9 now, been diagnosed with ADHD/ autism level 2 and has low muscle tone. He still toe walks and W sits and hate sitting on the floor it hurts he says. Luckily the teacher let's him sit on a hokki stool to help but I wish I knew this sooner to give him a better head start. Thank you for sharing this! I'm learning lots and the good news is he due for new shoes so I'll try get shoes that are supportive for him ☺️
How is your child now, ? Please share the recovery from autism
They make SMOs for toe walking as well, but I don't know how large the sizes go.
Hypotonia is caused by many genetic conditions, my daughter was diagnosed with prader willi syndrome, hypotonia is a symptom of that and the geneticist said it’s the most common cause of hypotonia, however there is cases we’re there is no underlying conditions
I was only diagnosed with this in adulthood because I was brought up in a hick town, and now I find it's literally impossible to find any information on it in adults! Can't even hold a damn pen properly.
I agree with you that it is hard to find information on hypotonia in young adults and full grown adults, I still have hypotonia and I am 19 years old.
@@Giovaft Watch out for abnormalities in bone development, one thing I've had as I get older is as my bones continue to grow and fuse through late teens and early 20s, the constant incorrect load-bearing / biomechanics means my leg bones have slowly warped more curved (& some other aread affected like my rib cartilage and my jaw too, no underbite as a kid/teens, now underbite in my late 20s) and now walking uphill and downhill is excruciating because the centre of gravity on my leg bones now is down the outer surface of the bone instead of straight down the middle & they bend slightly where they're meant to be solid, a bit above the ankles... waiting to find out if I need leg braces. Really gradual thing. My gut problems got really bad in my early 20s due to weak peristalsis thanks to hypotonia too. It is also a symptom of some conditions that go underrecognised for years such as Ehlers Danlos and also Fragile X syndrome but it's very hard to get tested nowadays, NHS won't do it due to cuts, so idk precisely which condition the hypotonia is a symptom of for me still. Also worried about what my cardiovascular health must be like getting older, when I saw the physio she said my muscles are so soft it's as if I've never done a single day of effective exercise in my life.
where to get in india.
My son is 13 months old with down syndrom 21and still not crawling. I nerd help and tips.
Children with down syndrome are often delayed in milestones such as sitting, crawling, and pulling to stand. You may need to visit a pediatric doctor and/or physical therapist for an evaluation. Our bracing solutions can start to help only when a child starts to pull to stand-when he can put weight on his feet and legs.
Whr can I get those shoes
surestep.net/products/toddler-shoes/
My child was 16 months not yet sitting... Plz give any adivice.. He is having physio and occupational therapy from last 6 months..
That's good your child is in therapy. You can also go to an orthotist for an evaluation, finding out if a brace option could help.
Do you ship this in India ?
Hi! We do ship internationally. I would recommend emailing our customer service team at info@surestep.net, they'd be more than happy to assist you with your specific needs. Thanks!
My daughter also is floppy child,,she is 17 moths old but can't walk
My son didn’t walk until he was just over 18 months with this condition. I hope this gives you hope.
@@greyline1012 how is ur son now
@@sarithabuddula9346 Thank you for asking. A few weeks ago he’d a bran scan and it showed he has Pereventricuar Leukomalacia also known as PVL. What that means is he didn’t get enough oxygen whilst growing in the womb. So he’s hypotonia and PVL.
As parents we’re worried because we’re older and worry about him and whether he’ll be ok.
He’s a gorgeous sensitive little boy and we’re so proud of him.
Again thank you for asking.
@@greyline1012 god bless u ur child
How his age
My child also looking hypotonia
@@sarithabuddula9346 hlo sis unara reply ఇవ్వండి pls
My kid is suffering from this disease .how can I help her in stability ? She is 18 months bottom scooting . Yet not walking . Kindly help
The best solutions would be catered to your child’s individual needs, but in general, physical therapy and orthotics can be helpful options.
Both my kiddos have it. We've been down this road. 1st - I promise you it will be okay 2nd- Be honest and open and welcome OT, PT, and Speech! My Daughter had an IEP for her first two years of school, and now she is in the 4th grade and no IEP. She may have to have orthotics again, but she welcomes them. Tiredness is the main complaint. Otherwise your kiddo will be superb. Keep him/her active. Stamina is key! Feel free to msg me if you have any questions. Good luck flower :)
@@KandJFamily hi there my 19 months old has weak muscle tone and still not walking, what I can do to strengthen her legs ?
@@KandJFamily my 8 months old also have hypotonia. She is not able to hold her head.
@@ginishjaved818 Hi there, the best to do is follow physical therapy guidelines and spend a good amount of time each day increasing stamina, it will help muscle strength ( not cure it) and also increase ability to endure the exercise. There are many products I found helpful I purchased for my kiddos to help at home. Lots of encouragement and patience.
low muscle tone really sucks in my opinion..