G'day mates If you use a ResMed AirSense 10 or 11 you can now register for a free www.sleephq.com account. It's super easy to upload, review and share your cpap therapy data. We're adding new CPAP machines to the platform every month so join our mailing list and we will let you know when your CPAP is compatible cpap.review/sleephq-newsletter
No one, including ResMed or Philips, should have access to anybody's medical data without written permission from the patient. If what the companies are doing, collecting your data without permission isn't illegal, it ought to be - in my opinion.
I just submitted a request for Resmed to leave you alone. They donât realize how much free advertising you provide them. Iâm in the USA. My sleep study was set up online. The results went to my MD. Now Iâm waiting on a phone call to see which machine is best for me. You are a treasure. You are the educator that I havenât had. Thank you so much for what you do.
Hi Shelley, wow, thank you so much for your amazing support! So here's the thing...If your MD is a good MD he won't actually tell you which machine is 'best' He will provide you with resources so you can make up your own mind :-). Or you can always ask me hahaha. Cheers. Nick
Hi Everyone, i just want to clarify something. I'm 100% okay with companies collecting / 'safely' storing / using / distributing you health data so long as they ask for your permission to do so or at the very least, give you a heads up that they are in fact doing it. Given the choice, most of you would probably be happy to help the likes of ResMed improve their products and services by providing your sleep health information but when companies just assume they have the right to YOUR PERSONAL HEALTH DATA and collect it without proper informed consent? I don't think it's ethically right. Cheers
Just to give you an update nick for your CPAP viewers I live in Massachusetts and Medicare just sent me an email that itâs The suppliers responsibility to replace or repair your machine if itâs less than five years old and if you have a machine thatâs five years older Medicare would pay for it
Itâs a two sided issue. Opt-in in regards to HIPAA in the USA for patient privacy, insurance companies are already removing benefits from non-compliant patients. Our insurance system is already irretrievably broken and inaccessible to so many people itâs a human rights violation. On the other hand, data analysis is the cornerstone of cpap therapy. More data means recognizing more previously undetected diseases processes and opens a door to treat those issues. Billions of nights of data is far more than any single sleep lab or doctor has seen in a routine care setting. That is a massive benefit of data collection. The other option is to buy a machine outright (which I did myself) because dealing with the insurance company and all their red tape is a nightmare. Being able to get one is a privilege most Americans cannot afford financially as we no longer have a middle class. Patients should not ever be forced to share their private health details with any corporate overlord, ever. If patients want to opt-in for the connectivity, DIY treatment, beta testing new algorithms, that is an incentive worth pursuing. But simply collecting data and never rolling out updates, new tech on existing machines in the field, or releasing a new machine with nothing more than a facelift puts ResMed kind of on my poo list now. Such a let down. Their app sucks too.
EXCELLENT video! This guy raises many important points, especially data breaches. There are only TWO TYPES of data: data that HAS been stolen, and data that WILL be stolen. There is NO privacy on the internet. (Be sure to 'like' the video!)
I sussed this out not long after I bought my airsense 10. Had a leaky mask and started getting emails from the manufacturer providing tips on how to fix it. Sounds really helpful but being in a technical occupation immediately I was concerned about privacy. Within a week I had pulled the machine apart, disconnected the modem and asked the manufacturer to delete the data. Unfortunately the big companies are getting bolder and bolder with this sort of thing.
Hi Russell, thanks for your great comment. I Agree that it's definitely helpful and it has to be said that it has really improved patient outcomes and compliance but i still don't think that justifies the automatic collection, storage and use of someones sleep health data without asking their permission. It's just ethically poor business practices in my opinion. They would probably find if they informed people in a nice and honest way that most people would probably opt into the service if they knew it was helping make the products better etc. Cheers
If my sleep data were to reveal that I require cpap therapy to function effectively, I would be more concerned about how that data could be used. My case is quite mild, though. On the other hand, any data - regardless of how weak it is - can be used as a justification for a denial of an insurance claim, and fighting that determination would add billable hours to a defence attorney's invoice. đ€
BTW, with Apple watches, the data that's sent to apple actually has to be turned on by the user. It comes off but the option is to let them have the data to improve the user experience. But, you have a choice in settings.
4.26.21 I just watched this video . I will re watch it, take notes and get back to you! NO, I don't like them knowing more than I agreed to. I will be back. BIG THANKYOU!
Hay!! From Texas. As a airline pilot I have been monitored for years ( 6:30 a night every night 365 or Uncle Sam says you can't work.) and have enjoyed the ease of use of the ResMed WiFi.. But that stops the day they make it cellular and store it in the cloud. But its not just the Cpap machine. Garage door openers tell the cloud when you came home. Your doorbell tells the cloud whos at your door and everything on all your computers and cellphones is stored in the cloud.
As someone who sees sleep apnea patients regularly, imagine what would happen regularly if people with sleep apnea are not using their devices on the roads. Not too long ago there was a severe accident that involved a celebrity where several people died because the truck driver supposedly had sleep apnea and was not using his cpap machine causing him to fall asleep behind the wheel. Look at the number of trucks on the road and if even half of them have sleep apnea and not using their cpap machine, how safe do you think the roads would be then. Or if even a third of airline pilots were flying planes and unable to stay awake while flying
Resmed Airsense 10; just use âairplaneâ mode. My options, airplane mode, on. Or move to a very rural area like mine where there is no AT&T cell towers. I have Verizon towers nearby but it doesnât like them and wonât transmit on mine. Ticks off my sleep doctor. Oh well. They always ask me to take my machine to the big city and plug it in long enough for them to get the data. I keep forgettingâŠ.probably brain fog from sleep apnea. My last one accepted screen shots of what I wanted her to see from OSCAR. I would never allow a doctor to fool with my pressures online. Thatâs crazy talk.
Iâve been an RT for 13 years and Iâve always asked permission for the modem to be on their machine. Itâs just been standard protocol all of the places Iâve worked.
I have also been using CPAP for many yrs, on and off. I have had 4 or 5 therapy companies I have worked with, and NEVER have I been asked if it was ok to share my data with them, ResMed, or anybody else. If this supposed to be âstandard protocolâ where you live, may or ask what country you are in? Apparently there is nothing to protect the patient in the United States.
Hello from Texas!! I'm Ashley and not only do i have sleep apnea for years UNTREATED. đ but i also work for a major sleep supply Company and i watch all your videos and wanted to say thank you for everything you do. You've given me so much info to do my job and i heard you give the shout out to Texas and wanted to say hello đ đ
I have a CPAP because I am a train driver and my employer forced me to use it. I must admit though that I hadn't thought about having to tell Service NSW for my car license. There's a lot to take away from this vid. Thanks.
Very easy to respond. I removed the WiFi chip. Now if my Dr. want's to know what is going on, she can simply ask me. I also removed the Resmed app on my cell phone
I LOVE your response to Kelly Levesque âŁïžđđ» perfect , youâre right on đđ». I canât stand ppl like that . I donât want to give them all my info đ€·đŒââïž
My dreamstation has a modem too. I was told itâs for the supplier to see if Iâm using the machine the number of hours my medical Insurance requires for them to cover the therapy.
I do also and pulled the modem out. Provider said I could give needed info over the phone. Not only are breaches possible but it would give hackers or provider access to your network and connected devices.
Here in Massachusetts USA my resmed 11 didn't cost me one penny so as long as it's anonymous I couldn't care less. Love ur channel been on cpap for about 1 week and except for some irritation around my nose I LOVE IT! I'm sleeping amazingly
Its an invasion of my privacy. Yes, I want to disconnect my modem. Tell me how. My sleep date will show that I need to refill the tiny water tank in the middle of every night because RedMed refuses to make a larger tank that will get me thru the night. 12 oz of water is not enough and they must know that. Their Air Curve 10 is designed not to work properly. I don't know why
Hi Clay, Instead of taking the modem out you can just switch the device to 'flight mode' which will deactivate the cellular connectivity :-). If you want to completely remove it, here's the vid - czcams.com/video/dpI0AVoCG3M/video.html. It's pretty simple
ResMed is emulating Apple in involuntary data gathering. I take exception at having no say or offered the option to allow permission in used and storage data. Being a medical worker myself I probably would allow collection of my data for use in improving product and software development. Also I resent the notion that I may be somehow penalised for making self determinations on instrument clinical settings.
I see your comment was 1 yr ago...hope you get this... I never thought about me making personal changes on the clinical settings could be an issue! I have changed a few things on the clinical setting, but not my air pressure. How and where do you see that I would be penalized for doing so?
@@jammiewha5942 Thanks, I am still around. A bit of context might be required for you to understand my assertions regarding penalisation for self management of air pressures. In some jurisdictions this is strictly the prerogative of a clinician and any self management is prohibited and can result in loss of insurance or in cases such as pilots, truck drivers, train drivers etc the loss of employment.
Wowza- EXCELLENT vid, thanks Nick! Youâve made a compelling case for actively safeguarding a critical aspect of our health data. âDown the rabbit holeâ, is spot on, well said! I look forward to your Modem âsurgeryâ tutorial - in the meantime, Iâm off to opt out with ResMed. Thanks again - youâre the best, Mate!!
Hi Susan, thanks for the kind words. I'm certainly not trying to alarm anyone but the least they can do is ask you - 'can we have your sleep health data' . It frustrates me that companies just think it belongs to them because they made a fancy airpump. This goes for any company! Just ask, it's not hard. People have the right to make up their own minds. Cheers
P.S - I'm a little embarrassed i didn't think of this for the video but you can just turn on FLIGHT MODE on your device and it will stop communication with ResMed servers / cloud. According to their website anyway - How does Airplane Mode affect data transmission? A. Airplane Mode disables the AirSense 10, AirCurve 10 and Lumis machineâs wireless connectivity* and makes data transmission to AirViewâą temporarily unavailable. It will also prevent transmission of data to your myAirâą program. You will need to let your ResMed Authorised Dealer or your physician know you are going overseas, because the data will stop streaming to their AirView account while youâre away.
It's a good point although i think every company would claim that the data is used to make 'better equipment' but i think that's probably the tip of the iceberg.
Thanks Nicko for your brilliant channel, I really appreciate all the help and info you give. This data stuff is really out there and goodness knows what itâs leading to. From a childhood of relative simplicity and calm, in the last 60 yrs people have started running around like blue arsed flies and the mind has boxed up everything just about and especially us, we are just little data boxes to them. But, we are all human beings and thatâs what we as the human race have to find again, I guess itâs up to us ultimately if we want to stay on this beautiful planet. Oh oh, now Iâm rambling, youâre not a Gemini are you ? đđ€đ
I have no problem with my data being saved, shared and stored AS LONG AS the data is used in an anonymous and aggregated fashion - ie personally identifiable information linking the data to me as an individual is removed. At that point the data is just numbers that may well be useful for research (or to better tailor my treatment) but cannot be used against me.
Hi Reuben, such a great comment. I don't believe that's the case unfortunately but like you i would have no problem with that too. I've actually not got a problem with identifiable data also as long as permission has been granted from the person who the data belongs too. I don't like the premise that these companies feel like it's their right to have access to it. It's my property, it's my information and it should be my right to say No to the collection of it. Have a great day. Nick
On one hand I am ok if they kept it internally and made better cpap machines or better machine algorithms. However not giving me the choice to opt out is crap, sharing it with the government or insurance companies is crap. I removed the modem out of mine because F them and I dont want a constant radio signal right next to my head all night either.
Actually, I remember that, on my first appointment with my doctor, he asked me if I was OK that my data will be sent to Resmed ; I did'not care and said yes đ€„ Next time, I will ask him to delete ; Only him should be the recipient, not even the technician who takes care of my machine. The problem is that it is the technician who collects my data to work them out and send the result to the doctor, so that the doctor can have the view on me to conduct and improve the treatment.
Hi Nick. Great video. In Portugal, we have laws about personal data and companies have to comply with it. So, whenever you buy or engage with companies you would have to allow (in written form) them to have access and manage your data. Nevertheless, my question is: I have the Resmed Airsense 10 and I have the option of "flightmode" - doesn't this prevent data to be sent to the cloud?
Hi Bruno, nice to see the videos are reaching far and wide in this great world of ours. Hello from Melbourne . Yes if you switch the machine to flight mode it will prevent wireless data transmission. I imagine ResMed will promt you to switch it off frequently which can become annoying. They should really provide a menu option to disable the cellular connection. Best wishes. Nick
@@CPAPReviews Yes... I just got off the phone with a medical equipment company since I'm researching which brand to use and you can put the unit into Airplane mode to stop it from sending your data "at will", though the moment you take your SD card to your doctor and he/she enters the data into the "system", it all gets sent to the private company!!! This should be illegal!!! I'm in the US by the way. I hope to find a model that does NOT do this, but stores it locally and keeps it local and private between my doctor and me like it SHOULD be!
Hi Kelly. That's great to know and i'm sure many people would probably feel the same way. There are some people who are not fine with it and that's also 100% okay. It's not really about who's okay with it and who's not though, it's that you don't even get a choice to decide and you should have that choice as it's your health data at the end of the day. Cheers
A car owner did have a law suit against a car maker, saying the air in the car made the car owner fall asleep. The car owner drove off a corner, hit a motorcyclist and killed him. The last I knew the car driver was not charged for killing the motorcyclist.
@@CPAPReviews In my part of Sweden we rent the machine from the public healthcare for a symbolic sum, this is good if it will brake down you will get a new one. I don't think they will appreciate if you took it apart so the Air plane mode sounds much better. But do we know it's not sending any data in that mode?
@@hellaslundblad It may not be sending data but it could be receiving. They hacked into my machine (which was on Airplane mode) and woke me up until I disconnected the modem.
Thanks for the 'heads up," I had no idea. But yes, 'pulling the plug' on the Modem board is easy peasy, if one has a torx10 driver, and is gentle with the front face.
My daughter's father inlaw Flys a commercial air plane and he had to get on cpap therapy I can see how that could help in an accident, but for me I don't really care if it can improve other things! Thanks for this!â€
Thanks, in our litigious world this is indeed food for thought - I'm going to research more as well as listen to video again . It'd be nice to have a mac8ne that prints it out or s3nds it to you but you still might have same problem of privacy. The data does help to know if you need to change parameters.
Hi there, appreciate that. Yes data is of course very important and i agree that you should have the capabilities of downloading and printing your own data. You can purchase the software they use to do the reports and it's not that expensive. It's called ResScan for ResMed and Encore for Philips Respironics. Retails for about $30 here in Australia. Have a great day Nick
I have my CPAP for 6 months never got one phone call from my doctor even though I had some pretty s***** nights of sleep with high aph raging 8-10 per hr Therefore if they're not going to call me to make changes I'm just going unplug my Bluetooth on my device once I'm out of the one-year contract with my insurance.
Thanks for all you do Nick. I have two questions about the 11 maybe you can answer. 1. Can airplane mode be easily activated like it is on the 10? 2. Does it run on the same 24v power that the 10 does? I have a resmed 12v adapter for my 10 that changes 12v to 24v. But I would prefer not having to up convert 12 to 24. Do you have a source for that info or a 12v power supply cord for us RV folks?
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It was the worst thing I ever did was let QLD tmr know I have sleep apnea. I need a medical examination by my sleep specialist every year and submit it to QLD tmr. The Min requirement is average of 4 1/2 hrs sleep therapy per night. Otherwise I will have my heavy vehicle licence temporarily suspended on medical grounds. I don't think they suspended car C class. But yes in the event of accident the insurance company can demand to see any sleep apnea data. My machine does not transmit it anywhere. But I still need to download the data and email it to my specialist. I guess the good news is when your in control of your own data let's just say my machine malfunctioned and I could only retrieve one week of data showing above average use đ then that's what has to be accepted. I think everyone should have an option to opt in or out of supplying data to a company like resmed.
I'm quite grateful that my AS10 doesn't have a modem and only has a SDcard. Granted I should probably upload my data to Sleep HQ before the card fills up too much so that way I will be able to save an offline page to share with my sleep medicine specialist to let him see how I'm doing.
In Resmed 11, you can put machine on airline mode. Should do when travelling with it. In Canada I was told the data is encrypted and sent to my sleep docs. However they don't upfront tell you this. I asked because I work in IT field. I asked about getting my data and they said no. However I have a Fitbit premium which gives very detailed sleep data. That spurred me to look into sleep apnea in the first place! My insurance only covered 1 time purchase.
Glad you enjoyed it mate. What's really interesting is that they have all this data and know exactly who has what machine however i bet they don't use their dream mapper app to notify people using the philips gear. I think millions of users will never know that there's even a recall to begin with. Cheers
Hey, my trucking company has not sent out a notice yet to the drivers. Most drivers are still using the recalled Phillips CPAP. I put a Airlife filter on mine. Hopefully that will help. Iâve been on this CPAP for 8 years and itâs time to do another sleep test and get off this thing before it kills me.
Thanks for producing this video. Data collection without permission is wrong. I started to signup for the myAir thing but decided it simply was not worth it. I have searched that web trying to find out if the apple health app could somehow read the Resmed data but there is no way. Again thanks for sharing this video.
I was driving across I90 in Southern Michigan on an afternoon, a car ahead started drifting lanes, I blew my car horn, they woke and drove a few more miles, started drifting, I blew horn until they pulled off the road.
Just got CPAP machine #3 (Res Med 10). I asked the staff member about compliance checking. He told me here in the USA, it's 4 hours per night, for at least 22 times a month for 3 months, Then the insurance will cover the cost. What I didn't know is insurance will cover supplies. I was covering them out of pocket previously. Also concerning the data harvesting location has to be included, I'm sure. I wonder if Michael Faraday could be of help here?
Thanks for the heads up not that it affects me at the moment because i use a older machine from fisher & paykel. But i agree you should have the choice to opt in or out i am guessing our laws in OZ haven't caught up with this type of data collection like they did with google now having a choice to opting out of tracking data for google. The down side i can see of disconnecting the modem is getting firmware updates for your machine. If i had one of theses machines this is the options i would probably go for (1) Unplugging the modem rather than going for flight mode with SD card in because the data would still be uploaded the moment you went out of flight mode. (2) With modem unplugged and SD card still in you can still give your doctor the data from the SD card. (3) You could go for stay in flight mode with SD card in but if you need to do a firmware update you can remove the SD card back it up on your PC or another devices then delete the SD card and put it back or just remove SD card while doing a firmware update then go back to flight mode
I was told when I got my CPAP a couple of weeks ago that I need to get 8 hrs on the machine so many nights per month (I'm fuzzy at what that number was now) or my insurance wouldn't cover their portion. I've been wondering ever since how they would KNOW! So, now I know, I guess!
Hi Scotty, yeah mate, they've got all your data streaming in daily to their servers. It's a real shame they don't tell you this or even ask if it's okay. Cheers
Yeah I live in the United States and the same thing was told to me when I got my machine you need to use it for 7 hour a night too so The insurance company would still pay for the machine
I am afraid the boomerang "pardon the punch" will be if you remove the modem the machine will not work. Silicon valley fix for everything is "if you delete me your stuff won't work".
If a doctor's note is required to drive, own a gun, etc... it is in the doctor's interest to not provide approval. Why would a doctor accept the liability? It's already happening in Hawaii.
I pulled the modem out of my DS. The app for DS is Bluetooth. Iâm sure data is captured there. I used that data to make adjustments to my machine. I debated leaving RM in airplane mode. The screen showing the airplane mode was too annoying. The RM app is pointlessly stupid and provides me no data I need. However, new insurance âcomplianceâ needs to be proven for supplies. If I can disconnect the very weak cellular receptor, I would. I donât like cellular next to my head. Nor do I like that the new sleep therapist could change the settings from how I set it.
Interesting points indeed! I do have one question though please? How does your platform handle our data? Apologies if it's been aswered before, I'm only new to the CPAP thing and have a lot to learn.
I wonder how what percentage of CPAP machines are purchased, in whole or in part, by insurance. If insurance helped pay for it, then it does have a claim on that data too. I just wish with all that data they've gathered they'd be able to figure out a better algorithm by now.
Nick, have you done a review of the âSo Cleanâ and So Clean2? I canât find a video from you and I kinda trust your opinion since so many of your videos have helped me. I keep my gear clean but wondering if this would be equal to manual cleaning and much less painful. What is painful is the cost of this thing, if you know what I mean! Great job, love your vids!
Hey Justin, appreciate that mate. No i have yet to do a review on the device but what put me off was the cost and also all the little parts / components you need to buy for the different machines etc. I would just hold off on the ozone cleaners for the time being. There's a bit of news around them that perhaps they could be causing a few issues with some devices. Cheers
@@CPAPReviews Thank you sir! I will take that advice and just keep cleaning my gear with elbow grease and keep my eye on your upcoming vids. Be well and stay safe!
@@justinleveille3200 I tried it. Couldnât live with it. Made my mask, hose and even the water tank stink. Supposedly this is supposed to go away, but nope. A week after cleaning it it still stank of ozone.
When I got m y DS1 back in 2015; my clinic requested that I return the modem to them after a one month slot. With that Philips hasn't seen anything since 2015; ditto with my last clinic when I was prescribed the DS1
i believe to be a truck driver you are generally blacklisted from operating a truck if you have sleep apnea... the sleep doctor i seen told me that it was still possible, but that he would have to give a medical letter stating the OSA is under control etc.. so yes it definitely can and is already used against you, however now they are wanting it to cover more areas then high risk work.... then we have the question of the new tests the police are bringing in - the test for fatigue etc... will anyone with sleep apnea be allowed to drive if their OSA is not controlled fully?... will they see never ending fines etc if they cannot get the best nights sleep ever?
Gathering data is fine and can help produce a great product and better therapy outcomes. However, itâs my data. If I could be compensated toward my next pap unit in the form of a discount would be great for the company and the patient. Cheers!
Dealing with this now in the states , to have my insurance cover my use they need my use the requirement is 20 days using the CPAP at least 4 hours a night.
I'm not opposed to helping the companies gather date. THAT SAID, I want them to ask my permission first, AND offer an opt out if someone doesn't want to contribute!
You could always build a Faraday Cage to go around your CPAP. It would still need airflow so don't wrap the entire thing in tinfoil ! A big metal pasta strainer should do the trick. Also, make sure your Insurance has paid off the machine. Otherwise they could charge you for the machine.
Psychologists suggest that one test of a healthy relationship is the ability to say no. It sounds like this is a toxic relationship. Psychologists also suggest that the best way to cope with a toxic relationship is to go no contact. Too bad we're dependent on them for our life. Maybe we need an independent manufacturer who is more interested in a healthy relationship. Any volunteers?
PPS: I noticed you started collecting data too. Are you trustworthy? Will you respect patient privacy rights? Have you considered creating an app that people can use in the privacy of their own homes on their own computer without sharing it with the world (cloud/server)? Thanks for all you do. Good job.
Some nights I will get a screen display showing more hours than i will get "credit" for on the MyAir. So far I am hitting my minimum number of average hours of use. I notice this is more likely when I start sleeping after midnight especially several hours after midnight.
I dont mind, really I dont. For the job I do I need a report about my sleep each year and this helps. I think collecting the data could help them to update their machines for later patients.
Anything that is personal should not be used without written permission, it is or should be private and personal and should not be used by anyone. They are making a profit from peopleâs personal information.
I don't necessarily care that they can read my data. It's not like it contains any credit card info or things like that. And my doctor does need access to that in order to adjust my therapy. HOWEVER, what I do find annoying at the least, is that they don't give you the same access to your own readings. AND, they lock a ton of settings away from the user. Admittedly, some people wouldn't have a clue what they were doing and might set their own therapy back, but some settings have no reason not to be available.
Hate companies taking my personal information without allowing me an option. Google is hugely ugly to me in how pervasive they intrude into collecting information. I opt out of almost everything I can garner, that companies save and sell, share my info. From my electric company, credit card, and grocery app. What are we to do if not given an option.... is to make our own best decision. I would love to be able to disable my modem. But my insurance and my doctor need me to be held compliant in my health care for now.
I bought my CPAP machine from Resmed in the UK, so it can't connect now I'm in Oz. It also means that the time is wrong and I can't correct it so all reports are wrong as the date rolls over during my sleep cycle. I have declared my apnoea to Service NSW, so I have to get signed off by a doctor every 12 months.
Hey buddy, have you tried to 'erase data' in the clinical settings? I think if you do this and then set the the time / date in the clinical settings it should work. Here's the link - czcams.com/video/qIfHud8ZhDE/video.html
I used your video to reset the time. I didnât need to erase the data to do it. It shows 2G connection but no signal, since it was set for supplier 10 but that would be in the UK. Incidentally, my Airsense 10 has no humidifier. I had to play hardball with them to get it without the humidifier.
I just started using Dreamstation and didnât realize that the tech preset and locked my settings and didnât ask what temp I want the humidity , itâs too hot for me and there is no setting in set up for me to change to a cooler heat setting đ°
Hi there, here's a video i did on it - czcams.com/video/0BhrJPDq_5s/video.html It will enable you to access the clinical menu where there's a lot more options for you :-). Feel free to hit me up if you need any assistance. Take care
I've only been on my CPAP for a couple of weeks, so still getting used to it. I don't recall there being an airplane mode! I definitely need to look into this! Here in the U.S., doesn't our HIPPA laws protect us from this?
Nope. A friend had cpap in the closet for 4 years. Just restarted cpap on his own, in airplane mode. He got an email from the company, stating they didn't receive data.
my data is exactly that.. my data!!! thus it should be my decision to share such data. i think its also wrong that they try to prevent people buying a fixed cpap without first seeing a report to "set the pressure for the patient" and that they try to hide the clinical menu in the first place instead of teaching the patient how it works and some tips on things to change.. thankfully youtube videos show how to access these things
Hi Guys, i need your help. One of the big cpap manufacturers is trying to take down the CPAP Reviews channel. Who knows what the next few days will bring. I know many of you don't like Facebook so here's a link to my newsletter. I will not spam you but will let you know where you can find me. Newsletter - eepurl.com/hz1ffH If you do wish to join the private FB group which is a bit more personable i feel then here's the link to that. FB Group - facebook.com/groups/138127984943408 You are also helping by subscribing to the channel (even though it will probably go under) and liking / sharing the vid on your fb groups / forums / reddit / twitter etc If you are a passionate person and want to stand behind me and our cpap reviews community then you can send them an email. Nothing nasty, just support emails please - reception.sydney@resmed.com.au I have created a shared dropbox folder with modified versions of the original vids and removed any 'copyright'. Here's the link and i will be adding to the folder. www.dropbox.com/sh/oxxyzmdzr9zya98/AACodFbQ1A8mBoagV3omg75ea?dl=0 I'm honestly exhausted. It's a very difficult time here in Melbourne with another lockdown and the whole family is just super flat. I'm not sure what the future holds but hopefully we can continue this journey together. Stay safe and look out for one another as i know you all will. Nick
I am in NSW and had notified then RTA/now Service NSW. So far I've only had to provide a medical from a GP every year. He does however get me to print out my sleep data and keep copies. My specialist only wants to see me if there's a problem. The annual medical is a PITA and you only get around a month's notice. I have done the right thing, but part of me wishes I'd never notified.
1. I think data collection is a good idea, from the point of long-term studies, aggregated data trends, etc. 2. I think most people would be happy to share that data. 3. There really needs to be a manual switch to turn it off. I'm not really sure how it's legal that a manual switch is not included, especially in countries, states, provinces with something like GDPR. 4. I don't like the crappy gamification emails I get telling me I've won a bronze badge every x nights for various reasons. Weak sauce. 4. a. Making it so you get more "points" or better "rating" if you don't get up to pee might cause some people to hold it all night long when they really should get up to pee. Because you should get up and pee if your body tells you to pee. 4. b. Getting up only once or twice in a night means you get one grace nap during the day and one time to get up during the night to pee. Forget that kids need something, or the dog needs to pee at 3am. And some people don't have a single sleep cycle. This forces some people to try to sleep in one long 8-hour swath, which is not a natural cycle in 40% of sleepers. The game indoctrinates a mythical standard -- the 8-hour sleep period -- a standard that is not well founded and possibly encourages unnatural sleep patterns for some sleepers. 4. c. Gamification of your health can go horribly wrong when people using the game aren't well-enough versed in sleep medicine to know that the game rules can't be applied to everyone. ResMed really should abandon gamification beyond making sure you get more than four hours of sleep per night. 5. One positive thing about sleep data records in the cloud is that if you are even in need of an alibi for a time when you're generally asleep, you can always pull up the data showing your sleep apnea data. If you have particularly unique data, it makes it even more genuine. For instance, it's almost impossible to fake all centrals or various other breathing patterns that only you are likely to create. 6. One negative thing is, as you pointed out, accident insurance companies could get hold of the data and use it against you. Even health insurance companies could up your rates because of data from your cpap records. That sucks. Breathe safely out there!
What I object to is that the Resmed data is false. I put on my mask at around 10:00 pm. I take it off at 5:30 am (unless I have a bathroom break in the night) and yet the data says I used it for 3 or 4 hours quite often. It's never totally accurate. I'm on my third resmed loaner that my provider has rented to me while my Phillips is under the recall. My Phillips did not have this problem. I can't wait to get back to the Phillips. If the sleep time is incorrect, how can I trust the AHI data???
Hi Katrina, shoot me an email at cpapreviewsaus@gmail.com and i'll give you beta access to my SleepHQ web app so you can see how the data in more detail. You can probably then also invite me as a member to review your data. Cheers
Hi Bill, here in Australia you can purchase the ResMed software called ResScan which is what the clinicians use to download and print of those extensive reports. It's about $30 from memory. Also there's some other software called OSCAR which use to be called SleepyHead which some people also use :-). Take care. Nick
@@LIBERTYVIEWS sounds like "Data Farming" IMHO. A friend of mine is doing his own experiment on data farming; only he is using FB groups focused on fire fighting apparatus around the globe looking for how many people have the same interests; ie. same people on several groups.
As soon as my insurance pays off the lease for my machine I will disconnect the data. I won't download the app, that gives them so much more data from your phone.
CPAP data being used against you is not different from what modern cars have onboard. The system is similar to a black box,(mmmm black box) it knows a lot about your driving habits, and that information can be accessed after an accident.
Hey Nick, Do you know if the dreamstation 2 has a sd card slot? I heard that the resmed 11 will not. I use Oscar to check my progress and tweak my machine so I hope that they donât do away with the sd card.
Yeah the DS2 does although in a strange sort of spot. It also has like a hidden little usb connector but it's really hard to find (probably on purpose). You really only need your AHI values at the end of the day mate and it's not something you need to check that often (once a month perhaps) and if it's an auto then probably even less. Put it this way, the body can put up with a hell of a lot of abuse (Keith Richards for example) and a few periods of abnormal breathing is not going to have a big impact on your health and well being so don't get to fanatic about the whole thing. Cheers mate. Nick
Unfortunately, the DS2 is not currently compatible with OSCAR, i.e., it will not read the data from the SD card. The OSCAR developers are working on making it work with the DS2, but I haven't heard anything on how long it will take.
CDL drivers as I understand it are already required to report their data to maintain their licensing or something of that nature. In those cases that's a good thing. And I'm very far right and hate the idea of people snooping in other people's business outside their consent. But in the CDL case, they do consent. Condition of employment. I think information like that should be left out of legal evidence and the transmitters should be transmit only, to licensed and federally regulated entities only, and still under privacy act restrictions. I see no reason giving resmed your sleep data would hurt you. I do see it helping. The more they know, the more they can innovate and improve. It's a good thing. But they should absolutely not be able to release that info to anyone else and definitely not be able to send anything to your device.
G'day mates If you use a ResMed AirSense 10 or 11 you can now register for a free www.sleephq.com account. It's super easy to upload, review and share your cpap therapy data. We're adding new CPAP machines to the platform every month so join our mailing list and we will let you know when your CPAP is compatible cpap.review/sleephq-newsletter
No one, including ResMed or Philips, should have access to anybody's medical data without written permission from the patient. If what the companies are doing, collecting your data without permission isn't illegal, it ought to be - in my opinion.
PS: Nice couch. đ
I just submitted a request for Resmed to leave you alone. They donât realize how much free advertising you provide them. Iâm in the USA. My sleep study was set up online. The results went to my MD. Now Iâm waiting on a phone call to see which machine is best for me. You are a treasure. You are the educator that I havenât had. Thank you so much for what you do.
Hi Shelley, wow, thank you so much for your amazing support! So here's the thing...If your MD is a good MD he won't actually tell you which machine is 'best' He will provide you with resources so you can make up your own mind :-). Or you can always ask me hahaha. Cheers. Nick
What machine did ya get?
Hi Everyone, i just want to clarify something. I'm 100% okay with companies collecting / 'safely' storing / using / distributing you health data so long as they ask for your permission to do so or at the very least, give you a heads up that they are in fact doing it. Given the choice, most of you would probably be happy to help the likes of ResMed improve their products and services by providing your sleep health information but when companies just assume they have the right to YOUR PERSONAL HEALTH DATA and collect it without proper informed consent? I don't think it's ethically right. Cheers
Agree âïžitâs definitely not right to NOT ask permission first .
Just to give you an update nick for your CPAP viewers I live in Massachusetts and Medicare just sent me an email that itâs The suppliers responsibility to replace or repair your machine if itâs less than five years old and if you have a machine thatâs five years older Medicare would pay for it
how do i take out the modem in a resmed 10 or 11 if i cant i will not buy one
Interesting how this works in the EU given GDPR regulation⊠that should not be possible. Perhaps when you use the app you agree by default.
Itâs a two sided issue. Opt-in in regards to HIPAA in the USA for patient privacy, insurance companies are already removing benefits from non-compliant patients. Our insurance system is already irretrievably broken and inaccessible to so many people itâs a human rights violation.
On the other hand, data analysis is the cornerstone of cpap therapy. More data means recognizing more previously undetected diseases processes and opens a door to treat those issues. Billions of nights of data is far more than any single sleep lab or doctor has seen in a routine care setting. That is a massive benefit of data collection.
The other option is to buy a machine outright (which I did myself) because dealing with the insurance company and all their red tape is a nightmare. Being able to get one is a privilege most Americans cannot afford financially as we no longer have a middle class. Patients should not ever be forced to share their private health details with any corporate overlord, ever.
If patients want to opt-in for the connectivity, DIY treatment, beta testing new algorithms, that is an incentive worth pursuing. But simply collecting data and never rolling out updates, new tech on existing machines in the field, or releasing a new machine with nothing more than a facelift puts ResMed kind of on my poo list now. Such a let down. Their app sucks too.
EXCELLENT video! This guy raises many important points, especially data breaches. There are only TWO TYPES of data: data that HAS been stolen, and data that WILL be stolen. There is NO privacy on the internet. (Be sure to 'like' the video!)
Very kind of you to say! I'm going to do a follow up on it shortly so stay tuned
I sussed this out not long after I bought my airsense 10. Had a leaky mask and started getting emails from the manufacturer providing tips on how to fix it. Sounds really helpful but being in a technical occupation immediately I was concerned about privacy.
Within a week I had pulled the machine apart, disconnected the modem and asked the manufacturer to delete the data. Unfortunately the big companies are getting bolder and bolder with this sort of thing.
Hi Russell, thanks for your great comment. I Agree that it's definitely helpful and it has to be said that it has really improved patient outcomes and compliance but i still don't think that justifies the automatic collection, storage and use of someones sleep health data without asking their permission. It's just ethically poor business practices in my opinion. They would probably find if they informed people in a nice and honest way that most people would probably opt into the service if they knew it was helping make the products better etc. Cheers
Your the best. Very concerning and legitimate questions. Scary world we are living in. đșđž Thanks for all your teaching~ excellent videos.
If my sleep data were to reveal that I require cpap therapy to function effectively, I would be more concerned about how that data could be used. My case is quite mild, though. On the other hand, any data - regardless of how weak it is - can be used as a justification for a denial of an insurance claim, and fighting that determination would add billable hours to a defence attorney's invoice. đ€
Thanks Allen, good point mate. Nick
BTW, with Apple watches, the data that's sent to apple actually has to be turned on by the user. It comes off but the option is to let them have the data to improve the user experience. But, you have a choice in settings.
4.26.21 I just watched this video . I will re watch it, take notes and get back to you! NO, I don't like them knowing more than I agreed to. I will be back. BIG THANKYOU!
Thanks for watching. The truth is, i don't think you agreed to anything and that's the problem that i have. Cheers. Nick
Hay!! From Texas. As a airline pilot I have been monitored for years ( 6:30 a night every night 365 or Uncle Sam says you can't work.) and have enjoyed the ease of use of the ResMed WiFi.. But that stops the day they make it cellular and store it in the cloud. But its not just the Cpap machine. Garage door openers tell the cloud when you came home. Your doorbell tells the cloud whos at your door and everything on all your computers and cellphones is stored in the cloud.
As someone who sees sleep apnea patients regularly, imagine what would happen regularly if people with sleep apnea are not using their devices on the roads. Not too long ago there was a severe accident that involved a celebrity where several people died because the truck driver supposedly had sleep apnea and was not using his cpap machine causing him to fall asleep behind the wheel. Look at the number of trucks on the road and if even half of them have sleep apnea and not using their cpap machine, how safe do you think the roads would be then. Or if even a third of airline pilots were flying planes and unable to stay awake while flying
Resmed Airsense 10; just use âairplaneâ mode. My options, airplane mode, on. Or move to a very rural area like mine where there is no AT&T cell towers. I have Verizon towers nearby but it doesnât like them and wonât transmit on mine. Ticks off my sleep doctor. Oh well. They always ask me to take my machine to the big city and plug it in long enough for them to get the data. I keep forgettingâŠ.probably brain fog from sleep apnea. My last one accepted screen shots of what I wanted her to see from OSCAR. I would never allow a doctor to fool with my pressures online. Thatâs crazy talk.
I wondered what that button meant!!
Iâve been an RT for 13 years and Iâve always asked permission for the modem to be on their machine. Itâs just been standard protocol all of the places Iâve worked.
I have also been using CPAP for many yrs, on and off. I have had 4 or 5 therapy companies I have worked with, and NEVER have I been asked if it was ok to share my data with them, ResMed, or anybody else. If this supposed to be âstandard protocolâ where you live, may or ask what country you are in? Apparently there is nothing to protect the patient in the United States.
@@jojobtrcook1808 I live in the US
Hello from Texas!! I'm Ashley and not only do i have sleep apnea for years UNTREATED. đ but i also work for a major sleep supply Company and i watch all your videos and wanted to say thank you for everything you do. You've given me so much info to do my job and i heard you give the shout out to Texas and wanted to say hello đ đ
Hello from Melbourne
I have a CPAP because I am a train driver and my employer forced me to use it. I must admit though that I hadn't thought about having to tell Service NSW for my car license. There's a lot to take away from this vid. Thanks.
Very easy to respond. I removed the WiFi chip. Now if my Dr. want's to know what is going on, she can simply ask me. I also removed the Resmed app on my cell phone
I LOVE your response to Kelly Levesque âŁïžđđ» perfect , youâre right on đđ». I canât stand ppl like that . I donât want to give them all my info đ€·đŒââïž
Thanks for your support :)
My dreamstation has a modem too. I was told itâs for the supplier to see if Iâm using the machine the number of hours my medical Insurance requires for them to cover the therapy.
I do also and pulled the modem out. Provider said I could give needed info over the phone. Not only are breaches possible but it would give hackers or provider access to your network and connected devices.
Here in Massachusetts USA my resmed 11 didn't cost me one penny so as long as it's anonymous I couldn't care less. Love ur channel been on cpap for about 1 week and except for some irritation around my nose I LOVE IT! I'm sleeping amazingly
Its an invasion of my privacy. Yes, I want to disconnect my modem. Tell me how. My sleep date will show that I need to refill the tiny water tank in the middle of every night because RedMed refuses to make a larger tank that will get me thru the night. 12 oz of water is not enough and they must know that. Their Air Curve 10 is designed not to work properly. I don't know why
Hi Clay, Instead of taking the modem out you can just switch the device to 'flight mode' which will deactivate the cellular connectivity :-). If you want to completely remove it, here's the vid - czcams.com/video/dpI0AVoCG3M/video.html. It's pretty simple
@@CPAPReviews My Res Med machine is made for the USA market called "Aircurve 10". it has a "airplane mode"
My Resmed provider here in US told me to use Airplane mode
ResMed is emulating Apple in involuntary data gathering. I take exception at having no say or offered the option to allow permission in used and storage data. Being a medical worker myself I probably would allow collection of my data for use in improving product and software development. Also I resent the notion that I may be somehow penalised for making self determinations on instrument clinical settings.
I see your comment was 1 yr ago...hope you get this... I never thought about me making personal changes on the clinical settings could be an issue! I have changed a few things on the clinical setting, but not my air pressure. How and where do you see that I would be penalized for doing so?
@@jammiewha5942 Thanks, I am still around. A bit of context might be required for you to understand my assertions regarding penalisation for self management of air pressures. In some jurisdictions this is strictly the prerogative of a clinician and any self management is prohibited and can result in loss of insurance or in cases such as pilots, truck drivers, train drivers etc the loss of employment.
Wowza- EXCELLENT vid, thanks Nick! Youâve made a compelling case for actively safeguarding a critical aspect of our health data. âDown the rabbit holeâ, is spot on, well said!
I look forward to your Modem âsurgeryâ tutorial - in the meantime, Iâm off to opt out with ResMed. Thanks again - youâre the best, Mate!!
Hi Susan, thanks for the kind words. I'm certainly not trying to alarm anyone but the least they can do is ask you - 'can we have your sleep health data' . It frustrates me that companies just think it belongs to them because they made a fancy airpump. This goes for any company! Just ask, it's not hard. People have the right to make up their own minds. Cheers
P.S - I'm a little embarrassed i didn't think of this for the video but you can just turn on FLIGHT MODE on your device and it will stop communication with ResMed servers / cloud. According to their website anyway -
How does Airplane Mode affect data transmission?
A. Airplane Mode disables the AirSense 10, AirCurve 10 and Lumis machineâs wireless connectivity* and makes data transmission to AirViewâą temporarily unavailable. It will also prevent transmission of data to your myAirâą program. You will need to let your ResMed Authorised Dealer or your physician know you are going overseas, because the data will stop streaming to their AirView account while youâre away.
Ditto from the Mid West
I knew it when I bought it but didn't care if it builds better equipment later.
It's a good point although i think every company would claim that the data is used to make 'better equipment' but i think that's probably the tip of the iceberg.
Thanks Nicko for your brilliant channel, I really appreciate all the help and info you give. This data stuff is really out there and goodness knows what itâs leading to. From a childhood of relative simplicity and calm, in the last 60 yrs people have started running around like blue arsed flies and the mind has boxed up everything just about and especially us, we are just little data boxes to them. But, we are all human beings and thatâs what we as the human race have to find again, I guess itâs up to us ultimately if we want to stay on this beautiful planet. Oh oh, now Iâm rambling, youâre not a Gemini are you ? đđ€đ
I have no problem with my data being saved, shared and stored AS LONG AS the data is used in an anonymous and aggregated fashion - ie personally identifiable information linking the data to me as an individual is removed. At that point the data is just numbers that may well be useful for research (or to better tailor my treatment) but cannot be used against me.
Hi Reuben, such a great comment. I don't believe that's the case unfortunately but like you i would have no problem with that too. I've actually not got a problem with identifiable data also as long as permission has been granted from the person who the data belongs too. I don't like the premise that these companies feel like it's their right to have access to it. It's my property, it's my information and it should be my right to say No to the collection of it. Have a great day. Nick
@@CPAPReviews Very much agree.
On one hand I am ok if they kept it internally and made better cpap machines or better machine algorithms. However not giving me the choice to opt out is crap, sharing it with the government or insurance companies is crap. I removed the modem out of mine because F them and I dont want a constant radio signal right next to my head all night either.
Actually, I remember that, on my first appointment with my doctor, he asked me if I was OK that my data will be sent to Resmed ; I did'not care and said yes đ€„ Next time, I will ask him to delete ; Only him should be the recipient, not even the technician who takes care of my machine. The problem is that it is the technician who collects my data to work them out and send the result to the doctor, so that the doctor can have the view on me to conduct and improve the treatment.
Hi Nick. Great video. In Portugal, we have laws about personal data and companies have to comply with it. So, whenever you buy or engage with companies you would have to allow (in written form) them to have access and manage your data. Nevertheless, my question is: I have the Resmed Airsense 10 and I have the option of "flightmode" - doesn't this prevent data to be sent to the cloud?
Hi Bruno, nice to see the videos are reaching far and wide in this great world of ours. Hello from Melbourne . Yes if you switch the machine to flight mode it will prevent wireless data transmission. I imagine ResMed will promt you to switch it off frequently which can become annoying. They should really provide a menu option to disable the cellular connection. Best wishes. Nick
@@CPAPReviews Yes... I just got off the phone with a medical equipment company since I'm researching which brand to use and you can put the unit into Airplane mode to stop it from sending your data "at will", though the moment you take your SD card to your doctor and he/she enters the data into the "system", it all gets sent to the private company!!! This should be illegal!!! I'm in the US by the way. I hope to find a model that does NOT do this, but stores it locally and keeps it local and private between my doctor and me like it SHOULD be!
If it helps my doctor help me then Iâm fine with it. If it helps the cpap company make better machines that keep me alive then Iâm fine with it.
Hi Kelly. That's great to know and i'm sure many people would probably feel the same way. There are some people who are not fine with it and that's also 100% okay. It's not really about who's okay with it and who's not though, it's that you don't even get a choice to decide and you should have that choice as it's your health data at the end of the day. Cheers
@@CPAPReviews Have dream machine first thing I did was pull the modem out. Hackers could use it to gain access to my devices.
A car owner did have a law suit against a car maker, saying the air in the car made the car owner fall asleep. The car owner drove off a corner, hit a motorcyclist and killed him. The last I knew the car driver was not charged for killing the motorcyclist.
Thank You from Michigan USA!
I'm shooting a letter off to ResMed today!! đđ»
Hi Susan, great! Would love to know what info you receive back :-) Keep me in the loop. All the best from Melbourne, Victoria ;-)
@@CPAPReviews Will do!
I just use it in Airplane mode which dose not send any data and remove the SD card there will be no data storage.
Nice tip mate! Cheers
@@CPAPReviews In my part of Sweden we rent the machine from the public healthcare for a symbolic sum, this is good if it will brake down you will get a new one. I don't think they will appreciate if you took it apart so the Air plane mode sounds much better. But do we know it's not sending any data in that mode?
@@hellaslundblad It may not be sending data but it could be receiving. They hacked into my machine (which was on Airplane mode) and woke me up until I disconnected the modem.
Thanks for the 'heads up," I had no idea. But yes, 'pulling the plug' on the Modem board is easy peasy, if one has a torx10 driver, and is gentle with the front face.
My daughter's father inlaw Flys a commercial air plane and he had to get on cpap therapy I can see how that could help in an accident, but for me I don't really care if it can improve other things! Thanks for this!â€
Thanks, in our litigious world this is indeed food for thought - I'm going to research more as well as listen to video again . It'd be nice to have a mac8ne that prints it out or s3nds it to you but you still might have same problem of privacy. The data does help to know if you need to change parameters.
Hi there, appreciate that. Yes data is of course very important and i agree that you should have the capabilities of downloading and printing your own data. You can purchase the software they use to do the reports and it's not that expensive. It's called ResScan for ResMed and Encore for Philips Respironics. Retails for about $30 here in Australia.
Have a great day
Nick
I have my CPAP for 6 months never got one phone call from my doctor even though I had some pretty s***** nights of sleep with high aph raging 8-10 per hr Therefore if they're not going to call me to make changes I'm just going unplug my Bluetooth on my device once I'm out of the one-year contract with my insurance.
Thanks for all you do Nick. I have two questions about the 11 maybe you can answer. 1. Can airplane mode be easily activated like it is on the 10? 2. Does it run on the same 24v power that the 10 does? I have a resmed 12v adapter for my 10 that changes 12v to 24v. But I would prefer not having to up convert 12 to 24. Do you have a source for that info or a 12v power supply cord for us RV folks?
ResMed sends me emails about how bad my leaks are (like I donât know). Too bad any of their suggestions to solve it are totally worthless.
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It was the worst thing I ever did was let QLD tmr know I have sleep apnea. I need a medical examination by my sleep specialist every year and submit it to QLD tmr. The Min requirement is average of 4 1/2 hrs sleep therapy per night. Otherwise I will have my heavy vehicle licence temporarily suspended on medical grounds. I don't think they suspended car C class. But yes in the event of accident the insurance company can demand to see any sleep apnea data. My machine does not transmit it anywhere. But I still need to download the data and email it to my specialist. I guess the good news is when your in control of your own data let's just say my machine malfunctioned and I could only retrieve one week of data showing above average use đ then that's what has to be accepted. I think everyone should have an option to opt in or out of supplying data to a company like resmed.
Thanks for sharing your experience. Have a good one. Nick
I'm quite grateful that my AS10 doesn't have a modem and only has a SDcard. Granted I should probably upload my data to Sleep HQ before the card fills up too much so that way I will be able to save an offline page to share with my sleep medicine specialist to let him see how I'm doing.
In Resmed 11, you can put machine on airline mode. Should do when travelling with it. In Canada I was told the data is encrypted and sent to my sleep docs. However they don't upfront tell you this. I asked because I work in IT field.
I asked about getting my data and they said no. However I have a Fitbit premium which gives very detailed sleep data. That spurred me to look into sleep apnea in the first place!
My insurance only covered 1 time purchase.
that is ridiculous. There should be informed consent. At least if they want to use data and you consent, this they should give u something back.
Very eye opening as a truck driver on a Phillips CPAP machine that has been recalled. I know they have lots of info about me. Yes they do control me.
Glad you enjoyed it mate. What's really interesting is that they have all this data and know exactly who has what machine however i bet they don't use their dream mapper app to notify people using the philips gear. I think millions of users will never know that there's even a recall to begin with. Cheers
Hey, my trucking company has not sent out a notice yet to the drivers. Most drivers are still using the recalled Phillips CPAP. I put a Airlife filter on mine. Hopefully that will help. Iâve been on this CPAP for 8 years and itâs time to do another sleep test and get off this thing before it kills me.
Thanks for producing this video. Data collection without permission is wrong. I started to signup for the myAir thing but decided it simply was not worth it. I have searched that web trying to find out if the apple health app could somehow read the Resmed data but there is no way. Again thanks for sharing this video.
I was driving across I90 in Southern Michigan on an afternoon, a car ahead started drifting lanes, I blew my car horn, they woke and drove a few more miles, started drifting, I blew horn until they pulled off the road.
Just got CPAP machine #3 (Res Med 10). I asked the staff member about compliance checking. He told me here in the USA, it's 4 hours per night, for at least 22 times a month for 3 months, Then the insurance will cover the cost. What I didn't know is insurance will cover supplies. I was covering them out of pocket previously.
Also concerning the data harvesting location has to be included, I'm sure. I wonder if Michael Faraday could be of help here?
Thanks for the heads up not that it affects me at the moment because i use a older machine from fisher & paykel.
But i agree you should have the choice to opt in or out i am guessing our laws in OZ haven't caught up with this type of data collection like they did with google now having a choice to opting out of tracking data for google.
The down side i can see of disconnecting the modem is getting firmware updates for your machine.
If i had one of theses machines this is the options i would probably go for
(1) Unplugging the modem rather than going for flight mode with SD card in because the data would still be uploaded the moment you went out of flight mode.
(2) With modem unplugged and SD card still in you can still give your doctor the data from the SD card.
(3) You could go for stay in flight mode with SD card in but if you need to do a firmware update you can remove the SD card back it up on your PC or another devices then delete the SD card and put it back or just remove SD card while doing a firmware update then go back to flight mode
Since I started using a cpap I definitely notice longer more detailed dreams way more often
Yes.
It's probably because the cpap is allowing a more balanced rhythm between deep, light and rem
I was told when I got my CPAP a couple of weeks ago that I need to get 8 hrs on the machine so many nights per month (I'm fuzzy at what that number was now) or my insurance wouldn't cover their portion. I've been wondering ever since how they would KNOW! So, now I know, I guess!
Hi Scotty, yeah mate, they've got all your data streaming in daily to their servers. It's a real shame they don't tell you this or even ask if it's okay. Cheers
Yeah I live in the United States and the same thing was told to me when I got my machine you need to use it for 7 hour a night too so The insurance company would still pay for the machine
I am afraid the boomerang "pardon the punch" will be if you remove the modem the machine will not work. Silicon valley fix for everything is "if you delete me your stuff won't work".
Hey mate, got an easier solution which is just switch on the 'flight mode' which will disable the cellular modem. Cheers mate. Nicko
If a doctor's note is required to drive, own a gun, etc... it is in the doctor's interest to not provide approval. Why would a doctor accept the liability?
It's already happening in Hawaii.
How did we not know! I had no idea. Not impressed. I upload, scan etc as I want it for my specialist and NDIS
Hi Bev, it's not in every machine and it would still need to go from the provider then to your specialist / NDIS etc :-)
Thankyou for sharing Nick, very insightful. By chance do you have a link to the Resmed interview in which Mick F made there lovely comments?
I pulled the modem out of my DS. The app for DS is Bluetooth. Iâm sure data is captured there. I used that data to make adjustments to my machine.
I debated leaving RM in airplane mode. The screen showing the airplane mode was too annoying. The RM app is pointlessly stupid and provides me no data I need.
However, new insurance âcomplianceâ needs to be proven for supplies. If I can disconnect the very weak cellular receptor, I would. I donât like cellular next to my head. Nor do I like that the new sleep therapist could change the settings from how I set it.
Thanks for sharing your great insights. Best wishes. Nick
Interesting points indeed! I do have one question though please? How does your platform handle our data? Apologies if it's been aswered before, I'm only new to the CPAP thing and have a lot to learn.
The European Community has very serious restrictions on citizens' personal data. For this reason Resmed only distributes C-paps there without a modem.
I wonder how what percentage of CPAP machines are purchased, in whole or in part, by insurance. If insurance helped pay for it, then it does have a claim on that data too. I just wish with all that data they've gathered they'd be able to figure out a better algorithm by now.
Nick, have you done a review of the âSo Cleanâ and So Clean2? I canât find a video from you and I kinda trust your opinion since so many of your videos have helped me. I keep my gear clean but wondering if this would be equal to manual cleaning and much less painful. What is painful is the cost of this thing, if you know what I mean! Great job, love your vids!
Hey Justin, appreciate that mate. No i have yet to do a review on the device but what put me off was the cost and also all the little parts / components you need to buy for the different machines etc. I would just hold off on the ozone cleaners for the time being. There's a bit of news around them that perhaps they could be causing a few issues with some devices. Cheers
@@CPAPReviews Thank you sir! I will take that advice and just keep cleaning my gear with elbow grease and keep my eye on your upcoming vids. Be well and stay safe!
@@justinleveille3200 I tried it. Couldnât live with it. Made my mask, hose and even the water tank stink. Supposedly this is supposed to go away, but nope. A week after cleaning it it still stank of ozone.
When I got m y DS1 back in 2015; my clinic requested that I return the modem to them after a one month slot. With that Philips hasn't seen anything since 2015; ditto with my last clinic when I was prescribed the DS1
We should be able to opt out of this data gathering...
Amen!
i believe to be a truck driver you are generally blacklisted from operating a truck if you have sleep apnea... the sleep doctor i seen told me that it was still possible, but that he would have to give a medical letter stating the OSA is under control etc.. so yes it definitely can and is already used against you, however now they are wanting it to cover more areas then high risk work.... then we have the question of the new tests the police are bringing in - the test for fatigue etc... will anyone with sleep apnea be allowed to drive if their OSA is not controlled fully?... will they see never ending fines etc if they cannot get the best nights sleep ever?
Gathering data is fine and can help produce a great product and better therapy outcomes. However, itâs my data.
If I could be compensated toward my next pap unit in the form of a discount would be great for the company and the patient. Cheers!
Dealing with this now in the states , to have my insurance cover my use they need my use the requirement is 20 days using the CPAP at least 4 hours a night.
And it can't wear it more than 3 hours a night . I caint turn off the data since it's through my phone.
I'm not opposed to helping the companies gather date. THAT SAID, I want them to ask my permission first, AND offer an opt out if someone doesn't want to contribute!
Me too mate
You could always build a Faraday Cage to go around your CPAP. It would still need airflow so don't wrap the entire thing in tinfoil ! A big metal pasta strainer should do the trick. Also, make sure your Insurance has paid off the machine. Otherwise they could charge you for the machine.
I opted out by keeping my ResMed AirSense 10 in Airplane mode.
Nice one mate, that will work also. Cheers
Psychologists suggest that one test of a healthy relationship is the ability to say no. It sounds like this is a toxic relationship. Psychologists also suggest that the best way to cope with a toxic relationship is to go no contact. Too bad we're dependent on them for our life. Maybe we need an independent manufacturer who is more interested in a healthy relationship. Any volunteers?
PPS: I noticed you started collecting data too. Are you trustworthy? Will you respect patient privacy rights? Have you considered creating an app that people can use in the privacy of their own homes on their own computer without sharing it with the world (cloud/server)? Thanks for all you do. Good job.
Some nights I will get a screen display showing more hours than i will get "credit" for on the MyAir. So far I am hitting my minimum number of average hours of use. I notice this is more likely when I start sleeping after midnight especially several hours after midnight.
I dont mind, really I dont. For the job I do I need a report about my sleep each year and this helps. I think collecting the data could help them to update their machines for later patients.
Anything that is personal should not be used without written permission, it is or should be private and personal and should not be used by anyone. They are making a profit from peopleâs personal information.
I agree mate. Cheers
Thanks for this info! And Hi from Canada!
Thanks Valerie! Hi to you too ;-)
I don't necessarily care that they can read my data. It's not like it contains any credit card info or things like that. And my doctor does need access to that in order to adjust my therapy. HOWEVER, what I do find annoying at the least, is that they don't give you the same access to your own readings. AND, they lock a ton of settings away from the user. Admittedly, some people wouldn't have a clue what they were doing and might set their own therapy back, but some settings have no reason not to be available.
I feel ok with the data collection. I'm useing the beneficts of data collected from others
Hate companies taking my personal information without allowing me an option.
Google is hugely ugly to me in how pervasive they intrude into collecting information.
I opt out of almost everything I can garner, that companies save and sell, share my info. From my electric company, credit card, and grocery app.
What are we to do if not given an option.... is to make our own best decision.
I would love to be able to disable my modem. But my insurance and my doctor need me to be held compliant in my health care for now.
YOU ARE REALLY GREAT . LOVE U!
I bought my CPAP machine from Resmed in the UK, so it can't connect now I'm in Oz. It also means that the time is wrong and I can't correct it so all reports are wrong as the date rolls over during my sleep cycle. I have declared my apnoea to Service NSW, so I have to get signed off by a doctor every 12 months.
Hey buddy, have you tried to 'erase data' in the clinical settings? I think if you do this and then set the the time / date in the clinical settings it should work. Here's the link - czcams.com/video/qIfHud8ZhDE/video.html
@@CPAPReviews Iâll give that a try...
I used your video to reset the time. I didnât need to erase the data to do it. It shows 2G connection but no signal, since it was set for supplier 10 but that would be in the UK. Incidentally, my Airsense 10 has no humidifier. I had to play hardball with them to get it without the humidifier.
Thank you for your transparency
Welcome James. Take care
I just started using Dreamstation and didnât realize that the tech preset and locked my settings and didnât ask what temp I want the humidity , itâs too hot for me and there is no setting in set up for me to change to a cooler heat setting đ°
Hi there, here's a video i did on it - czcams.com/video/0BhrJPDq_5s/video.html
It will enable you to access the clinical menu where there's a lot more options for you :-).
Feel free to hit me up if you need any assistance. Take care
I just turn on Airline mode, which I understand turns off the cellular transmitter...
Hi Chris, yes that's 100% right. Good option :-)
I've only been on my CPAP for a couple of weeks, so still getting used to it. I don't recall there being an airplane mode! I definitely need to look into this! Here in the U.S., doesn't our HIPPA laws protect us from this?
That works until you connect it accidentally months later and it uploads everything.
Nope. A friend had cpap in the closet for 4 years.
Just restarted cpap on his own, in airplane mode.
He got an email from the company, stating they didn't receive data.
@@joeshmoe7899 How did they know he started it?
my data is exactly that.. my data!!! thus it should be my decision to share such data. i think its also wrong that they try to prevent people buying a fixed cpap without first seeing a report to "set the pressure for the patient" and that they try to hide the clinical menu in the first place instead of teaching the patient how it works and some tips on things to change.. thankfully youtube videos show how to access these things
Yes please do a video how to remove that part of the resmed
Lol I think we should all get together and make our own CPAP company
Hahahaha YES! One giant GO FUND ME bahahaha. Love it!
Hi Guys, i need your help. One of the big cpap manufacturers is trying to take down the CPAP Reviews channel. Who knows what the next few days will bring. I know many of you don't like Facebook so here's a link to my newsletter. I will not spam you but will let you know where you can find me.
Newsletter - eepurl.com/hz1ffH
If you do wish to join the private FB group which is a bit more personable i feel then here's the link to that.
FB Group - facebook.com/groups/138127984943408
You are also helping by subscribing to the channel (even though it will probably go under) and liking / sharing the vid on your fb groups / forums / reddit / twitter etc
If you are a passionate person and want to stand behind me and our cpap reviews community then you can send them an email. Nothing nasty, just support emails please - reception.sydney@resmed.com.au
I have created a shared dropbox folder with modified versions of the original vids and removed any 'copyright'. Here's the link and i will be adding to the folder.
www.dropbox.com/sh/oxxyzmdzr9zya98/AACodFbQ1A8mBoagV3omg75ea?dl=0
I'm honestly exhausted. It's a very difficult time here in Melbourne with another lockdown and the whole family is just super flat.
I'm not sure what the future holds but hopefully we can continue this journey together.
Stay safe and look out for one another as i know you all will.
Nick
I am in NSW and had notified then RTA/now Service NSW. So far I've only had to provide a medical from a GP every year. He does however get me to print out my sleep data and keep copies. My specialist only wants to see me if there's a problem. The annual medical is a PITA and you only get around a month's notice. I have done the right thing, but part of me wishes I'd never notified.
I'm going to have a member of my family sort it so that it WONT send my data.
When these AH's PAY me, then I will think about letting them have it
I think that's a fair call mate! Or at least ask you for it
1. I think data collection is a good idea, from the point of long-term studies, aggregated data trends, etc.
2. I think most people would be happy to share that data.
3. There really needs to be a manual switch to turn it off. I'm not really sure how it's legal that a manual switch is not included, especially in countries, states, provinces with something like GDPR.
4. I don't like the crappy gamification emails I get telling me I've won a bronze badge every x nights for various reasons. Weak sauce.
4. a. Making it so you get more "points" or better "rating" if you don't get up to pee might cause some people to hold it all night long when they really should get up to pee. Because you should get up and pee if your body tells you to pee.
4. b. Getting up only once or twice in a night means you get one grace nap during the day and one time to get up during the night to pee. Forget that kids need something, or the dog needs to pee at 3am. And some people don't have a single sleep cycle. This forces some people to try to sleep in one long 8-hour swath, which is not a natural cycle in 40% of sleepers. The game indoctrinates a mythical standard -- the 8-hour sleep period -- a standard that is not well founded and possibly encourages unnatural sleep patterns for some sleepers.
4. c. Gamification of your health can go horribly wrong when people using the game aren't well-enough versed in sleep medicine to know that the game rules can't be applied to everyone. ResMed really should abandon gamification beyond making sure you get more than four hours of sleep per night.
5. One positive thing about sleep data records in the cloud is that if you are even in need of an alibi for a time when you're generally asleep, you can always pull up the data showing your sleep apnea data. If you have particularly unique data, it makes it even more genuine. For instance, it's almost impossible to fake all centrals or various other breathing patterns that only you are likely to create.
6. One negative thing is, as you pointed out, accident insurance companies could get hold of the data and use it against you. Even health insurance companies could up your rates because of data from your cpap records. That sucks.
Breathe safely out there!
What I object to is that the Resmed data is false. I put on my mask at around 10:00 pm. I take it off at 5:30 am (unless I have a bathroom break in the night) and yet the data says I used it for 3 or 4 hours quite often. It's never totally accurate. I'm on my third resmed loaner that my provider has rented to me while my Phillips is under the recall. My Phillips did not have this problem. I can't wait to get back to the Phillips. If the sleep time is incorrect, how can I trust the AHI data???
Hi Katrina, shoot me an email at cpapreviewsaus@gmail.com and i'll give you beta access to my SleepHQ web app so you can see how the data in more detail. You can probably then also invite me as a member to review your data. Cheers
Love your videos , this is really good one đđ»
Thanks for letting me know :-). Glad to hear you liked it. Have a lovely day
The VA uses it check up on my sleep habit.
Yeah it's certainly a handy feature in that regards however there are certainly some drawbacks with this also. Cheers
Thanks you, eye opener are always needed and welcome. đ
Can the clinical data be printed or sent to my pc/iPhone?
Hi Bill, here in Australia you can purchase the ResMed software called ResScan which is what the clinicians use to download and print of those extensive reports. It's about $30 from memory. Also there's some other software called OSCAR which use to be called SleepyHead which some people also use :-). Take care. Nick
I really appreciate you!!!!!!!!
You are a wealth of information!!!!!!
Sounds like a rabbit hole to me & here in the U.S. we have the HIPPA Laws they couldn't use the data.
They work around HIPPA all the time. Esp. if we give permission - even though we have no choice if we want to use their products.
@@LIBERTYVIEWS sounds like "Data Farming" IMHO. A friend of mine is doing his own experiment on data farming; only he is using FB groups focused on fire fighting apparatus around the globe looking for how many people have the same interests; ie. same people on several groups.
That modem allows ResMed to also wreck your software if they find out that you are using a second-hand machine. Happened to me.
Please tell me more! This is right up my alley đđ»ââïž
Are you serious?
As soon as my insurance pays off the lease for my machine I will disconnect the data. I won't download the app, that gives them so much more data from your phone.
CPAP data being used against you is not different from what modern cars have onboard. The system is similar to a black box,(mmmm black box) it knows a lot about your driving habits, and that information can be accessed after an accident.
Wow I had no idea,thanks for the info đđ»
Thanks Robert, glad you enjoyed it. Nick
Hey Nick,
Do you know if the dreamstation 2 has a sd card slot? I heard that the resmed 11 will not. I use Oscar to check my progress and tweak my machine so I hope that they donât do away with the sd card.
Yeah the DS2 does although in a strange sort of spot. It also has like a hidden little usb connector but it's really hard to find (probably on purpose). You really only need your AHI values at the end of the day mate and it's not something you need to check that often (once a month perhaps) and if it's an auto then probably even less. Put it this way, the body can put up with a hell of a lot of abuse (Keith Richards for example) and a few periods of abnormal breathing is not going to have a big impact on your health and well being so don't get to fanatic about the whole thing. Cheers mate. Nick
Unfortunately, the DS2 is not currently compatible with OSCAR, i.e., it will not read the data from the SD card. The OSCAR developers are working on making it work with the DS2, but I haven't heard anything on how long it will take.
CDL drivers as I understand it are already required to report their data to maintain their licensing or something of that nature. In those cases that's a good thing. And I'm very far right and hate the idea of people snooping in other people's business outside their consent. But in the CDL case, they do consent. Condition of employment. I think information like that should be left out of legal evidence and the transmitters should be transmit only, to licensed and federally regulated entities only, and still under privacy act restrictions. I see no reason giving resmed your sleep data would hurt you. I do see it helping. The more they know, the more they can innovate and improve. It's a good thing. But they should absolutely not be able to release that info to anyone else and definitely not be able to send anything to your device.