Migraine Aura Types (1 of 4) - What a VISUAL AURA Looks Like and Simulations of my Migraine Auras
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- čas přidán 27. 08. 2024
- Did you know there are FOUR types of migraine aura? The most common type of migraine aura is the visual aura. In this video I discuss what migraine auras really look like, what my visual migraine auras look like, and what the other types of migrane aura are. In my next few videos, I will go over sensory aura, language aura, and motor aura, so make sure you subscribe and hit the notification bell so you don't miss those!
The truth about migraine is it's so much more than a headache! I aim to spread awareness of the reality of living with chronic migraine disease by sharing my experiences openly! I have vestibular migraine and complex migraine with basilar aura or brainstem aura.
THE REST OF THE AURA SERIES:
○ Part 2 (sensory): • Migraine Aura Types (2...
○ Part 3 (language): • Migraine Aura Types (3...
○ Part 4 (motor): • Migraine Aura Types (4...
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FOLLOW US ON mommingwithmigraine
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I wish I could have done better with my renderings, but I'm excited I got a couple of them spot-on! Have you had an aura? What does yours look like?!
Thank u sweet heat..for reply.....from India...
@@rajneeshbagvan2176 My pleasure, I'm here to help. Thank you for watching my video!
@@MommingwithMigraine ok thanks u r soo cute....👍👍👍
I experience an unusual visual aura.. I never used to get headaches from it as much but I had more of brain fog. Now, my visual aura consists of it being glossy and shiny (in both eyes) similar to lip gloss. Like you said, you see nothing but I can tell the difference because my eyes are normally blurry.. so when I have the episodes, I can tell the difference. It's very uncomfortable and lasts up to 4 hours sometimes. The least is 30-45 mins. It's rare it occurs in the mornings but it has happened in 2 or 3 mornings in my life. The sunlight and when its gloomy outside really effects my eyes. But I could still feel the effects in the dark. It's very uncomfortable and I have to lay down and close my eyes until it's gone. I purchased a cefaly device.. so hopefully it works for my situation.
Mine looked more like sideways fireworks. No headache.
Had to look this up for people at work because nobody believed me at work about an hour ago that I just needed to sit down for about 30 minutes.
Oof, it's frustrating needing to prove ourselves. I had a similar thing happen at work once. My boss said "you gonna do your data?" I went... "I can't see the middle of my vision right now, and doing it with just peripheral would just take forever. I should be okay to start within an hour. Sorry 😞"
Oh my god, I am so glad you are trying to explain this, I have the aura migraines and the aura you explained is just what I have
I'm so happy that your channel randomly was recommended to me. Now I finally understand what I've got.
Omg I thought I was the only one experiencing these squiggly arches and I also have had the floaters and heard others talk about the floaters
Now I know about a name for the squiggly arches and that I'm not alone I've had migraines since I was young and am now in my 60s the squigglys have only been happening since my 40s.
Thank you for sharing.
I wish that I could capture the look on my face when you described floaters. I've never considered those could be connected to my migraines and I get them so frequently. I am so excited to start tracking them and see if that helps me know when an attack is coming. seeing stars is one I connected as to being a migraine aura, but I never would have considered floaters even being a possibility. I just found your channel today and I haven't felt this seen and understood in years. It's giving me hope that I at least might be able to figure out my migraines better, even if they never actually get better. I'm 19 years old and I've only been struggling with chronic migraines for a few years, but I had already given hope on doctors when they wouldn't listen to me for what information I was giving them, now I want to fight for it again. Thank you, thank you, thank you. Your videos are so helpful, I subscribed instantly. Thank you.
The visual aura I have is such a strange experience. It was a bit like tunnel vision where all around my periferal was like blurry zig zag line and the only clear thing I could see was a small area where I was focusing my vision. It was very disconcerting the first time it happened
Just stumbled on your channel and I feel like I've finally found someone that speaks my language. I've never heard of a service dog for people with migraines. How freaking awesome it would be to know that today's going to be rough - or not! - ahead of the actual onset of the migraine! I don't think I'd be able to be disciplined enough to do the scent training, but just knowing there are dog/people teams out there that are so in sync that they can make something like that work... I'm just amazed and happy for you and buddy. Your channel is good for my soul. Thanks for taking the time to put it together.
Your string of comments has been good for my soul 😁 SO happy you found me.
visual auras were a clue to my vestibular migraine
The sparks! I've had them my whole life so they've never freaked me out.
They just flash once, like stars. Same colors too. Most of the time white or yellow. Lately blue has been popping up more and red is rare.
At 32 years old I had my first migraine aura and I thought I was going blind. I went to my eye doctor and told her about it and she told me what it was i didn’t know this existed. I had 4 so far since then. I hate them it gives me a panic attack.
My first one was when I was home alone at age like 12. I was doing homework and all of a sudden couldn’t see the bottom of the page. So I call my mom FREAKING OUT and she was at work at the pentagon so it took like an hour ish for her to get home and omg thought I was gonna lose my vision and die simultaneously... I was freaking so hard. Went away once I started getting the migraine and then was diagnosed with migraine with aura but DAMN still freaks me out every time and the first time was absolutely next level terrifying.
You may Get Glaucoma later in you life due to Migraine usually stresses and spams the visual system (Visual Cortex in the brain) and causes Photopsia to persist for days (even sometimes weeks). Ocular Migraines (Retinal Migraines) sometimes causes Visual Snow Syndrome (persist forever / Lifelong ).
I panic the second I start to get an aura. Full. Blown. Panic. I've had them since 13 years old. Now 38. Have developed worsening aura as I get older and I'm so scared I will die or have a massive stroke. I wish I could relax, but they are terrifying.
I’m 18 and am struggling with the exact same thing. Having anxiety makes it even worse.
So glad I found your channel! I’ve been struggling with episodic migraines since my pregnancy with my daughter almost 3 years ago. It’s been one heck of a journey and I love that there’s someone out there advocating and sharing their own experiences that are so similar to my own.
Love to hear it helps! Sorry you're going through so much post-pregnancy. I'm pregnant a daughter now... I was about 6 weeks when I filmed & posted this video 😋
Thank you for posting this series. As a migraine sufferer for 31 years I can well attest to the aura I will present all 4 to greater or lesser degrees with the most prominent being visual. Just to share with viewers another visual mine is multi-colored bursts of light that block a majority of my vision and usually last for 30 minutes before the main attack.
Thank you so much i was just diagnosed with chronic migraine and today was the first day i could do research and uve helped SO MUCH as im also getting a SD so i cannot thank you enough for this
Thanks Jen. Helpful channel. Sometimes I think the migraine community is more helpful than doctors.
My auras are sometimes zzz going down out of the side of the eye. Other times is a clear sparkly and looks like a waterfall out of the side of my eye. The first aura I had I went to the ER. It scared me really bad. Sometimes I get the stars and sometimes a bunch of floaters falling.
Thanks for your descriptions. I have been having Migraine for nearly 50 years. Started when 7, now 52. My Auras are increasing lately. Starting with Floaters as a precursor to an eye-ache in either left or right eye. I now get Painless one too. Floaters (I call them Blobs) are now made of filaments, tiny lines like hills on a contour map. They move around randomly, not only left, right and up and down, but near and far. (I describe them as this, but they could be expanding/ contracting) Only near ones have filaments. What is interesting is they are in my minds eye but not connected to either eye, so I can move my eyeballs left or right and they remain in position. If one moves off "screen", i can swivel my eyes and see it (That bit doesn't make any sense, make your mind up Aura !!!). Even more bizarrely, If i move my head, they also remain in place as if fixed in space externally, but not quite. They are also fixed to my orientation. i can only explain this as like ice in a glass, so they move as my head is to the glass as the ice is the blob. Or a poor quality gyroscope that has a friction problem. I also see them eyes open in the dark.
Same with me
The visual aura is so confusing when you don't know about your own migraine since there are other diseases that share this symptom, but once you realise that, it becomes more convenient.
The way you explained it, I give you a big credit on it because seeing nothing is so hard to explain to others especially for those who didn't feel it before
I was diagnosed with atypical migraine about 7 years ago.
So glad the aura phases vanished when I stopped with my hormonal birth control. Until then nobody made the connection between the pill and those symptoms.
It would always start from the left side with the moving zigzaggy arc, sometimes followed by seeing only every second word when reading, sometimes small flashing lights. And then my vision would fade to white from left to right, leaving me effectively blind for a couple of minutes.
While this got better the headache would strike like a hammer to the back of my head and "slide" through until it hit my forehead, if I hadn't taken my medication in time.
I still get the pain-part from time to time, but without the aura it's sometimes hard to tell if it's the migraine or just a "normal" strong headache. Usually I go by looking for other symptoms like nausea when I have to distinguish.
Thanks for this. I'd never had a migraine before and was confused by the colorful arch I saw at the perifery of my vision. You confirmed my suspicions and described what I was experiencing accurately. I'm not loving the migraine but glad to have answers.
I thought the purple aura was what everyone saw! Mine is purple flashes coming towards me.
My visual aura is just the floaters, stars, and tiny black spots.
Wow. Wow. Wow. I can’t believe it. The way you describe the blind spot starting off a little off-from-center, I’ve never seen any body else talk about this weird thing. I can’t believe I’m hearing someone else explaining this for once. And you got it so right! I don’t have any arcs or floaters, or colors, or stars, but you completely ‘get’ how a lack of vision isn’t a color, or blackness, but it is the actual lack of any sensory information. (Which gradually gets larger, to like the whole side of my vision, in both eyes). I LOVE how you faithfully conveyed that, I can’t believe there are other people who experience this weird little corner of conscious experience too!!!
DID WE JUST BECOME BEST FRIENDS
@@MommingwithMigraine hahaha, i hope so! It’s so interesting the things that bring people together are often the things that cause us pain. I really appreciate that you took this lemon situation, that you have to deal with, and then put in the difficult work of sharing it with others. Making it so that other people don’t feel so alone, you ended up with a bit of lemonade, where people can connect over it instead!
Trying to binge watch and somehow consoled to hear others have these problems. I have been diagnosed. My most common aura starts in my lower right field of vision with a ball of light that goes from fairly small and gets bigger. It starts exploding into sparkles and move to the upper left. The color depends on the severity. White-not so bad, blue purple then red as the worst.
Thank you for these videos! I’ve been searching for what has happened to me since my pregnancy - I started having migraines with auras 1-2x daily in the last trimester. I had my first panic attack during pregnancy. Low blood pressure, racing pulse when resting, etc. It was a scary time. My last aura was the day my son was born.
Then, postpartum hormones. When my milk came in I experienced a grey-out (not sure if that’s what it’s called ?), like my entire vision had a gray fog settle over it. And then (super fun) every time my milk came in I experienced disphoria - intensely negative feelings of dread, gloom, and doom. I was also constantly dizzy and started looking into PPOTS. I had random blue dots that flashed in my vision and they scared me because I thought they may be an aura, but they never progressed to anything so I reframed them as “friends” to stop being freaked out (oh there’s my little blue dot friend today).
It’s been 14 months since I gave birth and most of these symptoms are gone, except for anxiety issues, especially triggered by heat. People think I just have anxiety because I’m a worrier, and it’s hard to make them understand that I feel like something is physically wrong. I can be fine mentally, not worried at all, and feel like I’m in a panic.
I mean - anxiety is a pretty common thing, as are panic attacks. But if you don’t have support and coping mechanisms in place, or you feel like people look down on you for it, it’s really hard to deal with.
All that to say, seeing the way you manage your life through these illnesses helps me feel validated and seen.
This is exactly what my migraines start off as. Rainbow 🌈 bottom right with blind spot. Sometimes starry but floating everywhere
Sort of annoying isn't it?! But I appreciate the warning for the migraine.
Kai does your rainbow expand on all the left of the visual field? Like it grows bigger until its a huge colourful arch? Mine starts tiny but expands during 20 minutes until its so big it leaves through the periphery of my eye
I'm seeing the dust right now, while watching this. Ugh. Good job Jenn!
Oh no! I'm so sorry =( I got some earlier today, too. What a strange beast we are dealing with.
@@MommingwithMigraine I know right.
This was so helpful! I've never known what to call the white floater things that happen so thank you!
Happy to help! You're welcome!
My first one ever happened when I was around 12. Home alone, I was doing homework and all of a sudden I couldn’t see part of my page. Called my mom full on FREAKING and she came home but she worked at the Pentagon which was about an hour to an hour and a half drive home so for that time I was pretty sure I was going to go blind and die simultaneously. Eventually faded as I got my migraine but she asked me to draw it out as we went to the doctor and it is just so hard to explain when you have no idea what’s going on.
Another one was super random. I was at the gym and I started feeling way out of breath (more than usual, it was just ab day not cardio) also felt super weak and nauseous. So I went over and drank water and when I put the water down I couldn’t really see. Like I could but every light in the gym was enhanced so much that everything was bright and I could just see the silhouettes of people and machines. Scared the crap out of me... walked over to my dad’s gf (my workout partner since my dad was at work) and told her I didn’t feel good. We left the gym (basically walked out blind bc the lights were messing with me so much I closed my eyes and almost fell down the stairs). Took a quick shower... or tried to. Ended up lying in the bottom of the bathtub letting the water run over me trying to convince myself to stand up and go lie down somewhere while trying not to puke. Then my normal crescent wavy lines messing with me aura started and I knew what it was so it wasn’t AS terrifying... lay down the rest of the day trying not to move bc that would make me throw up. Honestly debated with myself for a good twenty minutes on whether I was cold enough to stand up from the chair, take one step to grab a blanket, and lie back down on the chair. Finally decided it was worth it and grabbed the blanket... almost blacked out and threw up the pain was so bad it prob took me fifteen minutes for the intense stabbing in my skull to subside to my regular migraine. But then I was warm so I curled up and went to sleep on and off for the rest of the day til my migraine chilled out.
My auras are different each time, sometimes I go blind, except for peripheral vision. Sometimes I have pinpoint blindness, meaning holes in my field of vision . Most commonly I have the wavy lights.
Wow! Fascinating & super interesting 👍🏻👍🏻👍🏻Thank you for another great video! I loved your renderings. I don’t experience an aura. See you at Part 2! ❤️
Glad you liked it and found it interesting! See you soon... it gets weirder from here =P
Thank you for this video. Floaters, nice word. I always though I could see the cel of my eye liquid 🙄 if that makes sense.
Never realized it could be something else, beside the blind spots now and then. I think you actually help a lot of people with your videos.
Fantastic! I didn’t used to think I got aura, because it was never the typical “arc”, but I now realise I completely do. Mine present as indigo flashing “blotches”, floaters, and (when I know I’m really going to get it bad) my entire vision goes grey with multicoloured specks of light in the grey. Luckily I’m normally already in a dark room lying down for that last one. I completely feel validated from all the people who used to just say I was just “having a headache”!
My auras - back when I suffered migraines - were rather different. They never appeared during the pain phase, only before. I got spots and brief color flashes, but they didn't last very long. Could be hours before the pain phase or relatively close, time-wise. I also heard noises that weren't there, like a phone ringing or a car door slamming or a thunk. The aural phenomena were often coordinated with a visual flash.
Minor stuff. At the time I didn't think of my migraines as minor! The pain sure didn't feel minor. But my symptoms had a cause I sort of understand now, and they were never anything like as disabling as what you are going through.
I was able to switch my migraines off by eliminating caffeine. It would please me if you could find your own switch, but I have no clue what it might be, or even if there is one.
I wonder if pregnancy and birth will affect your constellation of symptoms? You'll be going through some tremendous hormonal shifts. Potent chemicals, hormones. I also wonder how your menstrual cycle affected your symptoms - more hormonal shifts. But I am too polite to come right out and ask. Please feel free to ignore.
I'm seriously learning more from you than I did from my headache neurologist at Mayo. Thank you so much for this channel!!
My visual auras were definitely blind spots. But I didn't know I was getting them. My brain stitched together both sides of what I was seeing, and I was too confused to realize I was missing information. Things looked wrong, but I couldn't figure out why. Sometimes I would be completely "blind" in one eye for a few hours.
Sometimes my vision was like fun house mirrors. Stretched or warped. Wavy. Or crystal clear, but I couldn't translate it to make sense. I knew I was seeing clearly, but I had no idea what I was looking at.
And I always felt stupid, because even after 2 decades of migraines-- 5 years of them almost daily-- I still didn't realize I had a migraine. Not until it started hurting. I just felt like I was suddenly stupid. And now that I rarely have them (hysterectomy cured my main trigger-- hormone fluctuations), I get even more confused!
I really appreciate your story
OMG NOBODY KNEW WHAT I WAS TALKING ABT BUT YOU DESCRIBED IT JUST LIKE I DID ITS JUST NOTHING ITS NOT THEIR
I agree that, while aura is scary, it’s a warning I’m glad to have. It was actually the thing I was thankful for this Thanksgiving - it let me know to grab meds and a dog and crawl back to bed rather than try to (then fail to) cook and waste Thanksgiving dinner!
Wow thank you so much for the info. I had my first experience today with and Aura Migraine and I have to admit it was a little scary not knowing what was going on I thought I was losing vision on one side. But everything you explained happened on top of losing sensation in my left hand which was scary also. Now I'm just stuck with the Migraine:(
It's so scary when it's new and scary when it changes! 😳 The arm thing could also be aura, but make sure you talk to your doctor to verify it really is migraine, not something more serious! Get well soon 💜
My visual aura has been the flash bulb effect or irrational rage (you know its over the top over little things). Like being in front of the paparazzi. It is so hard to concentrate but I know if I get one I know the migraine will be one of the worst of the worst.
My visual auras are primarily all light sources especially reflected light sources give off a purple hue. If it wasn't scary and came with a lot of pain it would be pretty. I too love purple....
HI, just came across your channel. I had migraines, very severe and painfully debilitating, in my mid 20's for about 10 yrs. they were associated with my periods. I would get a migraine several days right before I started. I never had abdominal cramps with my period, but I had migraine "cramps" in my head and neck. When I got pregnant, I asked the doctor if i could take migraine meds (fiorinal) that i had been taking when I got the migraines. she said I probably would not get migraines while pregnant until the 3rd trimester. It was ok if I took the fiorinal then. Which is what happened. I kept having migraines for years but not as often as in my 20's. When I was about 36 years old, i had to go in for a cervical biopsy and while waiting in the examining room I started having a pure white bright blind spot in my left eye. I could not see anything directly in front of it. Had to move my head from side to side to read a word. I was very anxious about having the biopsy and had to wait a very long time for the doctor to come in. Then I started having the zigzag in white only on the left hand side starting at the top left and growing to the bottom . I didn't tell the doctor when he finally came in, as I was afraid it was worse than the biopsy! Once they finished and I was leaving, it disappeared. there was no migraine pain with it. I never told anyone about the aura, as i thought it was some weird thing only I had. 10 years later I read a web article about a man in England who had aura migraines for 12 years. First thing i ever heard about it! I was so glad it wasn't just me being strange, i called my Mom and told her. she said, Oh I've had them for years!!! She sent a drawing of it and an article that called it Scintillating Scotoma or shimmering blind spot or hole. Mine since that first anxiety attack one, are brought on by bright lights. then seem to last about 20 minutes. I found that when I went outside to get the mail, the sunlight started one immediately. so I started wearing sunglasses to get the mail. Occasionally I get nauseaus feeling, but never pain, thank God! I've had what I call regular painful migraines on occassion over the past few years still. FYI, my father, daughter and her son when he was pre-school age have gotten migraines. My niece has then almost daily , very painful and debilitating. she now gets botox injections periodically for them and it helps her function as a teacher. I hope many of your viewers get help and comfort from your channel and your viewers experiences and we all can get relief. God bless all of you!
This video has been very helpful. You've just explained some of the aura symptoms that one doctor I saw dismissed as imagination! Thanks 👍☺
Wow! It feels great to finally know what that black shimmering spot is! After 15 years of occational events of this happenning to me I finally know what it is. Never even thought I could be having migrains...Luckily, I get them very rarely, my last one was like 2 years ago, but it's so good to know that when I get it at work, I can say I'm having a migraine instead of trying to explain I'm seeing some kind of spot and have a bad headache....Thank you so much for making these videos, Jen! :)
Girl... Same.... We have the same thing going on, both pots and migraines.
Take care ❤️
I get electric purple ghosts in my peripheral. The reason my doc just diagnosed migraines.
Found this really interesting because I get mild migraines but i don't get any of those visual auras either...It's just I suddenly realise when I'm looking at something (a screen, my phone, my dinner) that I can't focus on anything and then I notice I have a bunch of spots in my vision. Maybe closer to the floaters than anything else but they don't move...then I realise I have to take my pills quickly lol. Thank you for sharing this informative video
Ok this helps me discern that my visual problems even when they get worse due to migraine, and migraine gets worse because of them too, they are not visual aura, they just are the other problem that gets worse (I'm diagnose and working on them with an optometrist)
I've had a few different visual auras. The majority have been the zig zaggy arcing patterns but mine are usually like zebra stripes alternating black and white instead of rainbow. They start in the right eye and usually move into the left field of vision then disappear. Sometimes taking up a large portion of visual space, effectively making me temporarily blind. Only once did I get the rainbows instead. I've had a sort of dyslexia from it, where I could see but couldn't seem to make out letters, they just look like garbage. I've also had the stars up high, they appeared like shooting stars then kind of faded in. I saw a flash of light coming at my from the ceiling, I actually ducked. My coworker thought I was crazy.
Usually if I get the visual aura its a mild or moderate migraine. If I wake up with it instead... hold on tight its going to be a wild ride. I used to get 3 or 4 a month. For the last year now I've only had 2... I changed careers a year ago, might have helped!
When that happens that’s my indication to take a imitrex or two and by the time the the migraine comes on the medication will beginning to taken effect.
Several times the top half of my visual field filled with "glitter" (tiny specks of light) It so thoroughly filled my sight so that I could hardly see through it. At the same time I felt dizzy and I felt pressure on my temples. The other time it happened the glitter filled my WHOLE field of vision. Last week I called my doctor's office and was told to come in. They said it might be an "ocular migraine" I knew about migraine auras but had never understood that there could be retinal migraines. I will let you know what the doctor says.
i get visual aura migraines! not very often, i think i’ve had three that i can remember , but it’s always black and white static in an arc or a spot in the vision ! very cool looking (in my opinion) no pain or actual headaches ever came with them either
This is exactly like me I get no migraines and no pain
I have had auras before but never really knew what they were. I did visit the eye dr the first time it happened. That was probably 16+ years ago. I’ve had only 4-5 since then. They start with floaters in one eye. Then, it turns into what a static TV screen looks like. It slowly grows larger and moves across one eye to the other. Then moves across that eye and usually my vision will disappear for less than a minute. Then I get the headache. I haven’t had one for a long time and thought that I was getting them from eating too much whole wheat. But I eat a lot of whole wheat now and am not bothered by it. And I don’t have them often enough to really figure out what causes them. Thanks for the info. I have learned a ton from watching your videos!
So happy to help! I suspected wheat at a point as well. Common trigger. It's great you can eat it (I can too) 😋
My aura never goes away it’s been over a month now. I get small headaches occasionally
Me too
Mine starts off with like a clear rainbow spot and expands and at some point it turns black then I can't see anything for a couple of minutes
Enjoying all your content, I watch your videos every morning while eating 😁
I was at work the first time I got an aura before a migraine, and i remember it because i was mid-sentence looking at a bathroom sign and all of a sudden it was like something was in front of my eyes making it super blurry in a zigzagged line across my vision. I could see above and below it and in my peripheral although i also had some black spotting. I explained it to my coworkers, luckily they believed me. It lasted about 10 minutes. Then I had to go teach a class of 8th graders with the worst migraine of my life (up to that point.. they've gotten worse in the last 6 months since this event)
Mine is a zig zag oval. Trying to explain: it looks like an oval but not completely closed, more like the letter C. However, the C is not a straight line, it is a zig-zag. Not colourful, and it does hit like a flash sometimes. It also affects my speech. It’s like I talk with potatoes in my mouth. You have opened my eyes as to what my issue is. Exactly what I’ve been living with for many years. Thanks.
My auras are like the stars too! Mostly those stars are wherever light is originating and progressively go toward that "negative" imprint like nothingness. Eventually if bad enough I lose the ability to be in normal lighting because its "to bright". Anyway my migraines are just so much easier now that I know my triggers and that light is my biggest enemy during a migraine.
Thank you! I think I have stars! I honestly had no idea what auras were until my neurologist wrote un the report that I had no auras... lol I normalize most of my symptoms so I had no clue this wasn't normal 😅. Thought this happened to everyone. Happens literally evertime I step outside during the day... hence why I'm purchasing sunglasses to try to stop it.
My aura's are usually the same aura. white or silver zig zagging lightning bolts. It builds up until my whole field of vision is zig zagging lightning bolts and I can't see. I usually head to bed and pull my blanket over my head so I'm in the dark.
Batwing shirt. You're so adorable. Keep rockin'! 👍
This is so interesting! I don't know if it qualifies as an aura, but I know that whenever I try to read during one of my migraines or if I have to sit through band/orchestra with a migraine (im a music major) I either get little black dots or I can't see what I'm looking at. I can kinda see black and white, but all semblance of words or notes goes away. I can't see them or make sense of them. It's almost like im looking at a blank page. I have been diagnosed with migraines, but they aren't chronic (thank goodness) so I don't usually have to discuss a whole lot with my doctor. And my doctor never really explained auras to me.
This is definitely an aura.
@@SuperMissblueeyes I wasn't sure because I normally get it once the headache part has already started
@@lizzylambardo8103 It can be confusing, but you can get them at different points in the migraine.
i never thought i would be able to understand what seeing nothing is like, until i started having migraines.
I'm wondering if anyone else just has blurred vision. I tend to get blurred or softened vision in one eye.
I get sometimes blurred vision during migraine
I have visual aura with zigzag but also tunnel Vission with black comming in. Recently ive been getting numb heavy arms during migraines and its terrifying
I had this happen to me once, years ago. I saw zig zagged lines and didn’t know why. Then the worst headache I’ve ever had in my life hit me. Thankfully, my husband prayed for me and it went away after about 30 minutes! God healed me! I’ve not had another one since.
I've been loving your videos. I don't have chronic migraines or a disability but I am a dental student and I'm learning so much. I'd love to see a video on how you navigate through dental, doctors, other health care appointments. Are there things you wish your providers did better? Are there things that work really well? Does buddy come with you? I've seen dental offices hire or care for therapy dogs that sit with patients during procedures (I know this is different than service dogs but still pretty cool).
Another awesome video!
Appreciate it! Cheers!
My first aura was a ball of skinny spiky thingys in the middle of my eyes
I have these once a year or two.
The one i had today was very intense and lights became very intense and it was almost like i was watching a tv screen of my feild of vision with a tunnel vision thing going on
My zigzaggy auras are the classic aura. However, I usually get them on the right side & on the rare occasion I get them on the left, the migraine is 100x worse! I also sometimes get an olfactory aura where I get a spicy taste unlike any familiar spices at the back of my mouth. The only way I can help that it by sucking on mints. I would still say my visual auras are worse though, they cause more disruption.
mine goes (1) blurry (2) peripheral light-strobing (3) the casual colourful visual snow intensifies (4) purplish light blotches (5) darker and longer afterimages (6) overlap with imagined and observed
Loved 💚💚💚💚 so much!
So glad!
Im super hypocondriac and used to have like heat waves migraine auras since my teens. Now they gave turned into crescent moon colourful shapes tiny that quickly invade my left field of vision. First time I went to hospital thinking I has a braiin lesion but got MRI and everything ok but I panic a lot when I have them. How are your visual symptoms then darling?? Thank you for your testimony
I have all the auras, which sucks hahaha. Although it’s indeed nice to have a little warning
Commenting for engagements sake.
Thank you for sharing!
Interesting. Ive had them for 40 years...Scary to start with and pain so bad 24 hours most weeks . Thank god for imigran after a 20 year wait.
I’ve had migraines since I was 11 years old I’m now 25. I’ve been free from migraines for almost 7 years until last week when I had a bad attack. I also get visual auras but I also feel as if my arms are really long/not attached to my body. Not sure if anyone else has experienced it before? This normally is my first warning sign of an attack then I get the visual auras. It’s so scary and migraines have ruined so much of my life 😩
Same befor the aura start my arm became heavy .
Oooh! I've experienced the green thing once as a small child. I was told it was due to an ear infection, it scared me so bad. There was no warning, I was playing with some kids and suddenly everything was green.
As a child...I can't imagine how scary that must have been
@@MommingwithMigraine Pretty scary! It only happened once though, so it was quite interesting that you experienced something similar.
so accurate
My auras start as the kaleidoscope vision but once the pain hits it's just black. Most migraines I can't leave bed for the pure fact that I can't see out of my left eye (always the left eye) because i tend to walk into stuff and it give me horrible motion sickness.
This happened to me for the first time when I was 18 and I was scared. I had no idea what was happening and it hit me at school. They are periodical but every time it starts with a small bright spot and then slowly gets bigger and then it's a big C shape. It's always really colorful too. And it lasts roughly half an hour. My sister and mom get them too so I guess it's genetic. Sometimes I have a headache afterwards and it seems different things trigger them.
I've had aura's for the last 40 years... usually left eye, starts lower left and expands slowly, typically 25-30 minutes, sometimes across my entire field of vision in my left eye... and never, not once have I had a headache with it. I get the crescent shaped aura with sparkly lights. Honestly, it's more annoying than anything. If the aura is particularly severe, it can, on occasion, leave me feeling a little nauseated. NO idea what triggers them. I can go months without one, then have 5 in a week.
Auras are so annoying when they block your vision!! It's strange that yours cluster like that. Maybe weather? Hormonal (if you're a woman)? But I'm sooooo happy you don't get the headache 💜
@@MommingwithMigraine I'm not a woman, but DO sometimes get teary at kitten videos, so maybe it's hormonal anyway, lol... Thank you, sweetheart, yes I'm so glad I don't get the headaches. I have a couple of friends that suffer appallingly with full on migraine headaches. I can't even imagine what it must be like. But I haven't aura'd for a couple of months now, but I know... just when I least expect it... they'll be back.
@@MommingwithMigraine They are very annoying! I used to get them daily years ago black and white sqaures on all my field of vision that really shimmered like crazy. Now it has changed to the crescent moon colourful arch. First time I had a panick attack, but relieved to find your video :)
@@laurafont2959 Squares?! Wow! Also, weird coincidence... mine were never the colorful arch either, and then randomly I started getting them too. Glad my video helped
@arupian666 You got me giggling at the kitten video comment 😅
I have trailing lights
I got my first in 8th grade and i was scared. Mine are little C shape jagged lines both eyes. They get progressively worse then i can't read then i l get tunnel vision. I'm very lucky i get the aura before the migraine comes on. I just got imitrex so hopefully it'll work well as soon as i get the aura. I only get one every few months.
My visual aura is usually tiny transparent rainbow worms moving in front of my eyes
Did anyone take propranolol or Magnesium supplements for this visual aura? How effective was it, what was your dosage?
Sounds similar to my ocular migraines.
I usually get “black” spots all over my vision. Like you say, there is nothing there. Such a mind fuck to look at your hand and only have three fingers..! Imagine that with sensory aura and not be able to feel your fingers..
"Typically an aura lasts between 5 to 60 minutes" Well, I'm at 4.5 years, and counting... but I already knew there was nothing typical about my condition. And my visual aura is waaaay more hardcore than this, although the other types of aura not so much :)
tell me more
How long have you been living with migraine ??
My mom has only had visual migraine auras - she hasn't ever had the attack part of the migraine.
Interesting! 10/10 highly recommend not getting the attack phase 😅
Hey! i have some questions about what im seeing, so i get these kind of auras or idk if its migraine auras, but after i walk or run for minimal 2 minutes, my whole vision becomes dizzy, not that kind of dizzy, but wherever i look, it just moves, like when you put water in a sink, and it surrounds it to the centre. Oh and if i stare long enough while being "dizzy" i see smoke coming in my eyes, i know it sounds crazy but its true, and after the "smoke" my whole vision becomes white, and i see white dots everywhere, its really scary, do you know what it is, and if i have migraine aura? Its not eye problem.
TY. GBY. I have many auto immune disorders and others...cfs,fms,hypothyroidism,migraine,endometriosis,IBS-D,so manyothers...am on ss disability because am ill from multiple cuts...am confined tobed most days of my life. It's been this way my entire adult life and getting worse, except finally NO endometriosis as am post menopausal. When I tried to take HRT to stay younger,(yeah right) longer the painand swelling came back just like pre-menopause so I stopped that and immediately it ceased, so now am left with only 100 illnesses not 101...lol bad joke, I know but IDC. Sorry, honey, but I hate to say this, butbarring medical miracles and i sights you are stuck with them all and sometimes as we age they get worse or you get new ones...life is so fun...haha. Well at least you have your hubby and dog. My dog is a lap dog and esa but that's all she does. My 3 cats just rule the kingdom, the dog and me, but they also give much needed emotional support because my husband of over 50 years has abandoned me because I have become a burden as now I faint almost daily so cannot even leave house. Thank God walmart delivers my groceries to my front door and I bring them in. Frozen lean cuisine,frozen stouffers, and frozen healthy choice have really good food and I bring them up to my nest and nuke them i. bathroom where a microwave now resides and food lives in closets (like microwave mac and cheese). Thank God for WM and door dash and everything so easy now I can probably live at home alone for a few more years unless I get covid again which almost killed me in 2022. However God said No, not yet and made me stay here for awhile longer. I actually have auicide ideations and pray He takes me home, but unless He does that then here I will stay. TY so much for all your efforts to share with us. The migraine auras vids helped me so much as I found out what my auras are as I thought I had nada but no, of course that wasn't true. Anyway, stop with about me stuff and back to you and how appreciative I am for your work for us. TY TY TY TY❤❤❤
I have those ones also literally get the kaleidoscope =\
So I better understand is it kind of like staring at a light for too long and then looking away? You know how you get that little pulsing purplish spot?