The Sizes of Shane's Body Parts | Perks of Being Small! [CC] / Squirmy and Grubs
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- čas přidán 6. 02. 2019
- Many people have asked why Shane is so small, or why his head is so big. In this video, we answer those questions! We also ponder the state of Shane's organs, and discuss the various situations in which Shane's small stature has come in handy!
Hannah and I absolutely love making videos for you. If you would like to support our work so that we can continue sharing our life and relationship with you for years to come, you can do so on our Patreon: / squirmyandgrubs
Thank you SO much!
Our Squirmy and Grubs logo was designed by the amazing April "Pinkie" Davis --(instagram @pinkietoons). One of our followers, Savannah, painted it for us! If you want to watch an awesome time lapse of her painting, click this link: • Squirmy and Grubs Pain...
MORE INFO ABOUT US AND OUR CHANNEL:
You can follow us on Instagram at:
Shane: / shaneburcaw
Hannah: / hannahayl
Our address:
Squirmy and Grubs
PO Box 16411
Minneapolis, MN 55416
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SUBSCRIBE for more! 👉 / squirmyandgrubs
Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work: / pinkietoons
Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.
Hannah is a senior at Carleton College, studying sociology and anthropology. She works as a researcher for an educational consulting firm. Her future aspirations include attending law school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.
Shane and Hannah have been dating for over 2.5 years and living together in Minneapolis in recent months. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.
“Am I right? Am I right?”
😂😂😂🙏🏻🙏🏻🙏🏻🙌🏻🙌🏻🙌🏻 you guys are hysterical! Love to you both
🤣🤣🤣🤣
It's so refreshing getting to turn off auto craptions because you guys care enough about your audience to make your videos accessible for everyone! Thank you!!
terri-louise Ó leathlobhair im dyslexic. I couldn’t even imagine making them for my videos. :/
NovaDoll you could hire someone on Fiverr to make them for you or use the automatic CZcams captions to try.
Wtf is on your head.
ITs so nice!!!
SAME
When I had my spinal fusion back in 1976, my parents asked the same question about the organs. The doctors answer was "they will make room for themselves" they also mentioned that the organs will not stop growing Until after the age of 21 Or when national growth of the human body stops. I am 53 right now. They scanned my heart and said that I have the heart of a normal 40-year-old man
Thanks for telling your story. Bodies ate astounding.
thanks for the info! the human machinery is awesome!
Shane: atrophy fingers
Auto-caption: hot chicken tenders
Really? 😂
FUCKING ded
Quote the whole thing
„Dropping cats with my hot chicken tenders“
Autocaption is the shiznit
Lol reminds of today I was in the car having a regular conversation with my mother when Siri pipes up saying “that was not nice” so I looked on the screen to see what Siri thought she heard and it said “dicklips” Lol
He says "am I right? Am I right?"
Dude..I just about died.lmaooo
i laughed too hard xD
RealSapphireLynn me to I had to watch twice so funny
🤣
I died too.
His face was really funny when he said that xD
“Our rats feel so comfortable around me, because they think I’m one of them”😂😂 A MOOD
Nobody:
Shane: well one thing is normal sized.....AM I RIGHT, AM I RIGHT?
This dude 😂 😂
I know, he kills me! "We're talking about my fingers."
A penis is not the only way to derive sexual gratification.
@@Tu77289 not the size, all the motion in that ocean. If you men knew how to give us our "ya-yas", you wouldn't need the pills!
@@carlajohnson9369 what pills? I feel bad for millenials that grew up streaming porn who can't get it up. Thankfully I'm old enough that the only porn I grew up with were the occasional scraps of porno magazines we'd find in the bushes on the way to school. Porn induced erectile dysfunction is ruining lives these days. Never had cause to use pills yet.
Pamela Woolsey
Now youre talking ..lol
People with dwarfism have normal sized organs, they are just “squished” a lot closer together. I would think the same is true for Shane and other people with SMA.
This actually depends on the type of dwarfism the person has. There are over 200 different types of dwarfism. The more common types affect the limb size more than the torso, thus allowing the organs to have the "normal" amount of space to grow. I have a very rare type of dwarfism that has the opposite issue - my torso is extremely small where my limbs are longer. My organs are not average size. For example, my lungs are very small and misshapen. After a scan, the doctor told me one of my lungs was actually the same size as my heart, which is roughly fist sized. That is much smaller than an average lung should be.
This makes no sense to me as my doctor often measures my organs due to me having an auto immune disease that can effect any organ in the body, making them inflamed and enlarged. I asked him if everyone has the same size organs because I was curious how he knew they are enlarged. He said no and he uses my weight and height and age (I think, I can't remember exactly what he said) to determine what they should be and that's how he knows if they are enlarged. (Bigger than what they should be wich is bad of course because they have to work harder and eventually causes damage that is permanent). I take medicine for inflammation to hopefully stop permanent damage from happening and eventually needed new organs. So I kinda think Shane is right but also his growth was stunted from surgery so maybe it's different in his case. It would be cool if he asked his doctor and let us know because I can't find any info on it and this video made me curious.
I’m so glad I can watch people who share my twisted sense of humor who are also normal. You guys rock!
Oh damn.....me too! I am a sick and twisted soul! 😂😂🖤😂
😂 Same here lmao
Thank you for defending gold fish! They do indeed need big tanks!
I love that she said something about that.
Net Aquascapes You can tell she’s very smart even when she’s not trying to be
Hahaha for defending. This sounds very dear to your heart. Hihih
@@randomspecificity5334 It also makes them live a lot longer.
certain varieties MAY outgrow their tanks, but not all of them... within reason, they will grow bigger in a larger tank, but the above caveat still applies...
Y'all's banter is hilarious! Anytime I need a laugh I watch one of y'all's videos! Thanks for all the smiles!
"when you're parents tell you to drink your milk... and eat your vegetables... do it. And think of me."
I was wheezing before he even got past milk 😭🤣😭
Hayley Mills when?
@@songbird6512 2:17 😂
What? You're your they're their there?
This debate is possibly the best content I've seen from them😂😂😂
I agree. This is showing such a candid moment that all couples do, disagree lol
It might seem weird, but as a person with disabilities, the joke about Shane's "Johnson" is really appreciated. People are often shocked that people with disabilities (1) are sexual too (2) can have gratifying sex lives for them AND their partner. Thanks for helping to normalize this
But how does that work tho?? Like dies she lift him up and stuff?? I'm just curious.
@@kyladarden5174 there are many positions in which to have sex and many involve one of the partners being able to just lay down. I don't see how this is confusing.
Jen Einstein but for real tho, how ls lt even possible for him to have a non 7 year old penis? lf everything below his neck stopped growing at the age of 7, theirs no way he has a fully functioning penis.
Not saying they don’t have sex lives, but lm betting they definitely don’t have penetrative sex...
@@TheTyler701 and I mean if all of his muscles are weak he isn't able to have a boner right? I feel bad saying this shit we shouldn't be talking about shanes penis hahaha i don't mean to be rude love you guys
@@marinafdez9286 ...blood. boners are due to blood
Shane seems like such a cool guy. I love his attitude, personality, and he has an amazing smile. Rock on you two!
You guys are literally so special. I’ve watched a few videos of y’all and I can’t stop lol I don’t even watch because of shanes disability (although I do love to learn more about it) or to see “why your with him” like I feel is the reason some people watch them, which is sad. I literally watch you guys because I genuinely love your relationship and I feel like you guys are 100% meant to be. You guys should keep making videos and never stop I feel like when people get to know y’all the sky is the limit for where you will go as youtubers!!!
Shane's head: normal
Shane's body: a size too small
Shane's heart: 2 sizes too big
D'aaaawwwww
Shane's Johnson: "normal size"
acrophobe his head is fucking huge what are you talking about? It’s bigger than Hannah’s head
Octobers his head is normal for his age. But because his body is smaller it looks disproportionate. Personally I think he looks cute
Octobers that’s because males have different biology and are generally larger in size.
What about his wang
The debate. I started crying laughing.
I snort laughed!
You two have quickly become my favorite couple!! You’re amazing together, keep the videos up!
Shane and Hannah y’all are so funny! I just watch perks on being small. I was laughing so hard I woke my husband up. I have an illness and my nights can be long, so I go to CZcams and see what y’all are up to because you always make me smile and this time laugh till I cried. Y’all would keep people at a comedy club in stitches!
Since I've started watching these videos (less than 10K subs) Hannah's "Yep" "Nope" and her 'that's-enough'-style "OK" 's with a Samurai-like control have been my favorite part. I love the way she seems absolutely bulletproof to drama and conflict. Someone should do a study on her. I want to be more like that. 💙
It's in the name! 😊
Shane: "I mean, one thing is normal sized."
"Am I right?
*Hannah trying to ignore him*
"Am I right?"
Hannah: "Well, that is a good example!"
*Shanes face: Oh shit, wait. What?* 😂
🤣🤣
From a doctor’s stand point. If you use a part it will grow. You use your hands constantly so the grow.
“Our rats feel comfortable around me cause they think I’m one of them”😂OMG I love this couple
Found your channel yesterday and as of today, I have found 2 of some of my favorite people ever. You two are incredibly inspiring. The definition of humanity 💚
Love your guys channel! Learning a lot about SMA that I didn’t know! ❤️ also, I absolutely love all the positivity from everyone surrounding your relationship!
It seems u r a doctor...are his organs normal size mam? Lol
Come on doc...what's the answer
Hey Dr Crystal! I love your channel too!!
Ashley May haha ahhh putting me on the spot!! I actually have no idea... I’ve never taken care of a patient with this condition! With what I do know about it, there’s not a reason I can think of that his organs wouldn’t be a normal size 🤔 maybe we should start a gofundme to get an MRI and find out
@@DoctorCrystalMD yes mam!! A GoFundMe is a great idea lol! Thank u Doctor! Subbed to ur channel btw! Already learned about a quad tendon rupture 😁
Me at first: Wow how did Shane land a girl like that?
Me now: Wow how did Hannah land a guy like that?
;) Love you both
I love them toooooo
I absolutely love this comment
Totally!!!!
Alex Kess because Hannah is using him for his disability checks to pay off her college and things she wants , and is most definitely cheating on him
@@MegaJohn334 yep. Definitely. (Shane doesn't get disability checks and Hannah must be very patient to have waited for 3 years)
I've been down in the dumps lately, and the mood you guys set has really lifted my spirits. Your chemistry great. Thank you for sharing.
:D
I love that durning Shane’s unrealistic scenarios, Hannah is able to just nod with a straight face 😂
I'd suspect that Shane had organs that are probably proportional to his body. I think he's got a point regarding no room.
Nope your wrong, I’m 33 years old and 25 inches (2 feet 1 inch) and 48 pounds and my organs are the size of a average 33 year old 😘
@@TheBookOfRoo It is impossible to be both 25 inches AND 2'5" - 25 inches is equal to 2 feet 1 inch.
Michelle Baker well if you would like me to get a ruler I can, all I know is im 25 inches tall, my state ID says 2 feet 5 inches and the only reason my state iD says that is because we gave them my measurements in inches as the amount we gave was 25 inches. I really shouldn't have to explain myself but whatever that's what happens I guess when people make remarks about something just because their bored and have no life
pip jam why are you rude lol
@@TheBookOfRoo I promise I have plenty of life, just pointing out you cannot physically be both. If you know there's an error, instead of claiming the impossible, just state whichever is correct - nobody cares about a mistake in paperwork. I looked at your profile to make sure you weren't a troll and I can tell you have something going on (I think I've seen it before but the name escapes me) but from one chronically different person to another, I wish you well. I have a disease which involves brain swelling & my body reacting to what amounts to "tumors" made of CSF and all the symptoms are identical to any brain tumor. So far I've had 8 brain surgeries and will require them for life so I know about challenges!
My son heard the milk and broccoli part and he said "well he's looks pretty cool so I'm fine with that" lol 😂
As for your organs, I'd say they are probably the average size for your age, I googled it and couldn't find any real info on it but I agree with the goldfish analogy, they usually continue to grow regardless of their confinement.
So I'm sure your organs are right on track with your brain and your Johnson 😂
Hahaha
I do not agree with pushing dairy on to children, the dairy industry is horribly evil and it is unnatural for humans to consume cows milk. 😝
@@deannawheeler2365 There are better sources for calcium just like Hannah mentioned. :)
@@ESWilliams09 you said...🙄
Fresh, organic cow milk is ok. 🐄 We give our kids milk from our few cows we have. We raise our own animals for consumption on our small farm. It's when cows get pumped with hormones and kids drink milk from those cows that you can run into problems. But it's not going to kill kids to drink that milk, it's not that big of a deal. But I do think it's best to have as natural and organic as you're personally able to get. 🐄
I just discovered your CZcams channel last night, and I haven't stopped laughing and admiring your compatibility ever since. You're blessed beyond belief with your relationship!
it is clear that a shared wonderful sense of humour sustains you too, you are just the most lovely and inspiring couple, disability or no disability....big BRAVO!
"I can get into any day care"
"Why is that a benefit"
"....dont worry about it"
😂😂😂😂😂😂
🤣🤣yeah that killed me
Exclusive fancy daycares with facial steams and hot stone massages
What did that mean?
@DaemonFaeri666 now i feel bad cuz the first thing i thought about was kidnapping. I really have to stop watching documentaries about serial killers..... 😂😂😂
@@Crystal-vp7wr my mind went there too lol. But i don't think that is what he ment 😂
This video was hilarious. You two are truly the epitome of love and compassion.
I love that you went into a debate in the middle of the video...so authentic!
I love yalls videos I love how you just dont care about the disablement and just laugh like its nothing! You guys are so cute together and truly show that you love each other 😘
I let out the loudest, most unattractive laugh when Shane said "Johnson". Y'all are the best
I thought i was alone lol😂😂
SAME HAHAHA
OMG me too! Hahaha!
@oh no Wow you are really such a ray of sunshine aren't ya? As Stephanie Tanner would say "HOW RUDE!"
I don’t get it.
It took me a while to figure out that somehere along the way the video turned into a joke
Lol they sneakily threw it in there
Same! Lol. I have to admit I thought they were serious at first about going down the drain to retrieve her earring! 🤦♀️🤦♀️🤦♀️
jordan Leigh yeah I was like " wait...what?" Haha
I knew it was a joke when she said they were playing frisbee & she threw him up on roof to fetch it. 😂 I love them because they have the same sense of humor as I do
Up late at night binge watching these videos and I'm trying so hard to not burst out laughing and wake up the entire house.
You two are two of the most remarkable people I have ever seen. Such s joy to watch & listen to... so smart!!!
You guys have a perfectly matched great sense of humor. Thanks for the laughs!
So, I usually never comment but I feel this is actually quite intersting. I am doing a medical sciences degree right now, and have done a course that includes topics such as organ development. In it, they described the concept that usually the body does not follow a "human blueprint", rather factors such as signalling molecules or mechanical stress establish how body parts developed. I would expect that, due to the fact that the chest cavity of Shane is smaller, there might be some limitations to how big his organs can grow!
I have sent an email to one of the lecturers asking what he thinks about this. I tried to do some independent research and there was no clear answer. I'll update if I find something out!
Alejandro Esteves I agree! It would be interesting to hear what your lecturer’s thoughts are on this. I found this article www.sciencedirect.com/science/article/pii/S0925477316300697 although the reliability of Science Direct is questionable. Their conclusion was that “it has been shown that mechanical forces have the potential to regulate growth and size of tissues” (like you stated) but the mechanism is not fully understood. Please update with any info you find!
(commenting so i can come back for any updates heh)
Following so I can be updated when you find out more information. How very interesting.
I'm with those people. ^^^
I would love to know what the answer is, so please keep us posted 🤞🏻🤞🏻
I saw you guys on Special Books by Special Kids and I've been watching so many of your videos. You both are truly wonderful people and I am so grateful knowing such kind people still exist in this world. Please keep being yourselves and inspiring others.
you guys crack me up, a sense of humour is top of my list before anything, you two certainly have that,
I lost it at the earring down the drain story...OMG...I haven’t laughed that hard in so long. Thank you!! You are a beautiful couple!!
That was too funny. And perfect deadpan delivery.
Do you guys have sex
Shane and Hannah. You two are just hands down the perfect couple! So unbelievably amazing and adorable when you are together! I’ve loved every video made thus far and can’t wait to get home to see what u both have in store for all you fans. I laugh hysterically every time I watch. Both of you so witty. Warms my heart seeing a couple who is just so perfect for one another. Wishing you both a wonderful day! Love you both and keep loving one another!!!!
You guys give great energy. I love Shane's laugh. You two really give my day a lift. You have wonderful chemistry banter. You both are fun positive and make each other and all of us laugh. Thanks so much for that.I am a critical care nurse and worked 20 plus years at a major trauma center near me. I got a chronic illness as did my two youngest kids. Had some dark days. I have changed the way I think and learned how to find joy where ever and when ever I can. You inspire me. Thanks again for that. Sending you two beautiful people love.
Shane is freaking hilarious! lmfao, you have me cracking up. please don't stop making videos!
My 15 year old daughter has a rare form of skeletal dysplasia. She is 4'2 and has the same size organs as an average sized 15 year old.
Laughed so hard when Shane said,"Johnson!" Hahahaha!!
People ask the dumbest things sometimes!
While yes, your daughters organs should be of average size as only her total height is stunted. In people with SMA, such as Shane, his mid section is literally the size of a 7 year old...his organs will stunt growth to fit into the allowed space he has. His kidneys may be normal size. His heart, lungs and even possibly his liver would be much smaller than the average person his age.
He will work that into any conversation, won't he! :)
Shala Carter - and that’s why we love him❤️😂😂
L
Mandy Berry I love how people think we can't be intimate just because we are disabled. I have cerebral palsy
OMG y'all are hilarious!!! Your videos really are very informative, and provide an insight into the life of a person with a disability. Thank you!!
But, seriously, y'all are SO CUTE. I love your sense of humor and how the two of you tease and make fun of each other. What a great love story you have!
I LOVE YOU BOTH!! You guys are awesome! (Shane, you should do stand-up comedy.... well, sit down comedy....whatever, you are hilarious and have such a quick wit brother!!). Hannah, you are a jewel!
also for people that might think they are NOT a real couple, THIS IS HOW REAL COUPLES ACT WITH EACH OTHER. "I'm right", "No I'm right"..... LET's GOOGLE!
right? i love the chemistry between them, you can really see their bond. if you're best friends that's all that matters!
i hope i'm lucky enough to experience this kind of love 😍
Are there actually ppl out there that think they're not a real couple???
Cutest comment! And true💞
So true!
@@notwhoyouthinkitis2428 You'd be amazed at how many idiots insist that she is only with him for the fame and money..it's completely ridiculous. I suspect most of the ones who verbally blast them are dudes who can't get a woman..let alone one like Hannah!! They've addressed it in a few videos.
"Baby, hearts don't get that much bigger". Not true you both have huge hearts
ChevyNova Scotia I melted when I heard that. Mmmm cuties!
@@ellief4277 not that it had anything to do with the video... But I drive with special needs kids and I watch a lot of videos with special needs people; to learn...I absolutely love this couple. They have the best videos. They get to what people really want to know and that is the personal questions. It actually helps knowing these things. When I meet someone I already have some knowledge. I'm not talking about how they cuddle... But the day to day things they go through.
Niceee
Aww
That’s so sweet
I'm binge watching your vids because I just subscribed after seeing you on SBSK. I snorted I was laughing so hard. I have severe OCD and Generalized anxiety and when I'm having a really bad day, like today, laughing feels so good. Thank you!!
Chrissy Copeland Guys we have to help Chris@sbsK!! I wrote into the Ellen show to hopefully somehow raise awareness about who they are. I was disgusted when I saw that all of their comments have been disabled. I don’t have to tell you guys how amazing SBSK is. I am such a small fish but if you guys help maybe something can be done.., please go sign his petitionAnd do anything else you can think of to Restore their dream
We got this. This community is 💪
Ash Bee that’s such a great idea contacting Ellen! I’ve signed the petition and written to you tube personally.
You can write to her too! Their website and app is really easy to use
I have OCD and anxiety among other things and I feel the same way! Such a nice distraction from my thoughts that doesn’t cause me more anxiety like some youtubers do lol
I like yalls since of humor. My husband has the same type of humor. Thank you for opening up to let people realize you're life is normal for you two it works and makes you two happy.
You too are so funny. I am so glad I found your channel. The last four years have been very rough and you are a bright spot.
Heres a question..what does shanes parents think of hannah and what does hannas parents think of shane ?
They’ve talked about this before, parents love them both 😊
They love him. I think it was Hannah's mom that took them to Paris once.
Or was it Shane's mom? Oh I forget! Lol
@@tragictransformerelectra3319 It was Hannah's
@@MsBhappy oh ok.
i love these videos and this couple so so much. both are such beautiful people with such fun/smart personalities
This totally cracked me up! You two are so perfect together!
OMG Shane saying he could get into any daycare he wanted and Hanna asking why that was a benefit... when Shane said don’t worry about it I laughed so hard. His humor is so quick it kinda surprises you and makes things even funnier. I love this couple so much.
Maybe ask your doctor they should know about your organ size 😂
Sarah Camley.....Best Advice 👍🏻
Or his mom
You are both excellent! Shane, your humor reminds me of my Dad. I think this is why I enjoy your videos so much.
I especially like the everyday events. The ”watching the rice boil” video. Heartwarming
I just started watching your video tonight and I can’t stop. You guys are awesome and you are example of what unconditional love is!!! God bless you both!!!
I enjoy watching and learning from you both, I love your humor, you make me laugh!
Don’t worry she put a rope around me to pull me out !!!!! 😂😂😂😂😂😂
Is the funniest line I’ve ever heard! ❤️
I liked the part about Shane being tossed onto the roof to roll around to chin the frisbee...too funny. I was like, wow, this thing took a fast turn.
I love u guys sooooo much. I dont think u guys understand how much happiness u guys bring to ur fans when u post. I hope u guys continue having an amazing happy relationship. Lovvvvvvv uuuuuuu!!!❤❤❤
Omg again! I can’t tell when you are being serious or facetious...lol. Then the obvious dryness of your humor and facial movements hit me and the topic ah ha moment, and I’m left adoring y’all more, and I’m cracking up! I can’t wait to grow old along with you as you entertain me. Lol. Y’all rock!💕💕💕💕💕
Hey, I've just recently found your channel, have been binge watching and I just wanted to say what a gorgeous couple you are, you compliment each other perfectly, and I'm loving your videos- funny, entertaining, informative- keep doing what you're doing, it's so great to see and to learn more about what a happy healthy (interabled or not) relationship looks like!
Best wishes to you both 💞💞💞
Have you guys had previous relationships before meeting one another? Just curious and wanted to add to the question options!
I remember seeing a documentary on his life on YT with an ex able girlfriend.
Well, Shane certainly has! You should get his book "Laughing At My Nightmare". There are no holes barred!
@@marieevelyndunlap Obviously, you could go to the bottom of said hole, set up some tables and chairs, stock it with a bunch of alcohol, maybe some TV's so folks can watch sports. Done and done...hole barred. Boom!
(Duh)
😉
@@marieevelyndunlap 😉
@@shalacarter6658 the actual saying is "no holds barred", meaning anything goes. Just saying
I agree with Shane. Normal organs wouldn't fit in his body. There might be enough "wiggle room" in the abdominal cavity for those organs to be normal size, but not the chest cavity. Lungs must be like mythical goldfish - it can't be any other way. Hearts are like any muscle and grow based on how much they are used, so if your heart only ever needs to pump blood around a small body it won't grow very large.
I watched a clip on a small child whose organs grew outside her body. Very interesting. Anyway. Even a baby has a mind boggling amount in them. Amazing how it fitted back in.
The way hannah looks at him !!!
Its beautiful.
I have a granddaughter with CP and you two give me so much hope for her future. I hope she finds the love that you have. Thank you for sharing your story with us.
Love your videos! I haven't been around many disabled people and thus didn't know I had an internal bias to pity. Watching your videos and laughing at jokes helps me internalize the concept that physically disabled people are normal fun and funny people just like everyone who don't need pity or to be regarded as anything less than having a normal personality.
Disability?? Getting a girl like that, this dude has an ability!
As a girl with a boyfriend with same thing and type, I can definitely say that that grows normally. Haha
True. Props to Shane!
@@macmac19 uh....wrong! Actually, people with SMA can live to a natural old age. My boyfriend is projected to live until 60 without treatment/Spinraza. With treatment, he will die of old age. Especially since Shane is on Spinraza, I do not see him passing away any time soon.
@@macmac19 So, you are implying that Hannah and I can't possibly love two guys with SMA, because they are great guys? That we love them despite a genetic condition they have no control over? I will do ANYTHING for my boyfriend. I mean Hannah takes care of hers 24/7. Helping him go to the bathroom, shower, get dressed, brush his teeth, eat, EVERYTHING. That is love. No amount of money will ever get her to choose it over love.
@@macmac19 Wow. You are one big heap of trash. I love my boyfriend, because he is kind, considerate, cute as a button, and a brilliant writer. If my boyfriend were to pass, I would get nothing from his death. Nothing. All I would get is a broken heart and his devastated family. Why is it so hard for you to believe that disabled men are actually dateable? I'm planning on hopefully spending my life with my boyfriend. He is perfect to me and for me.
You guys crack me up so much, your connection together is beautiful. Subbed and liked!
Your energy and spirits are incredibly beautiful!!! I'm glad there is real love living somewhere in this world. 💕
*I was not expecting them to mention dick size* not even subtly 😂 lucky for Hannah its normal 😂 *also im 99% sure Shane is right about his organs, they tend to know when to stop growing*
@@coolaisiankid do you want a medal or something?
Mo r 😂😂😂 got em
Rat Snackerson yeah like I believe that you wanna get a girl don’t creepily tell them there hot and you bet they want your junk get a life perv
Rat Snackerson how old even are you
Rat Snackerson dude leave this girl alone
DUUUDE. I tried to google to find out about organ size and stumbled upon an r/IAmA post that you wrote 5 years ago, directing people to your blog...I used to read religiously when you were single and in college. I remember you getting stuck upstairs and the elevator broke and you had just gotten a new chair and suddenly people wanted to carry it down stairs. Lol.
I know it had to be before 2011 because that’s when I got an SCI and became much more knowledgeable of chairs.
Anyway, just thought I’d tell you it’s great to re-find you...and Hannah!
I have seen a few of your videos and let me tell you.. every single one I have seen just makes me laugh so much.. I love the approach y'all have to life in general.. regardless of disability. Like Shane's ability to laugh at himself, and Hannah's ability to laugh at herself. Taking life one day at a time, and not taking everything so seriously .. is just so wonderful, because it's hard for people (no matter what their situations) in general to just... let go.. I love how comfortable y'all are with not only yourselves but each other as individuals and as a couple.. It's refreshing.. and I thank you for allowing us (society in general) a look at what life can be like.. Ya'll bring a smile to my face, and lighten my heart.. and I thank you personally..
You Guys are officially my favorite CZcamsrs. love you guys...
The answer is, you're both kind of right... some organs do grow to closer match your body size (like your heart, spleen, and liver) while other organs grow to the same size regardless of a person's physical size (such as Mr. Johnson for example)
Thanks for the funny vid!😁
I really love you guys. I have been going through a lot of hard times with my health .. and somehow ended up watching your videos when looking for health tips.. You guys are so funny and bright and radiant.. Maybe joy is the medicine I need most cause I feel incredible happy after laughing with you both.. Youre such a blessing. Thank you ..
You guys are awesome and adorable! You both have a great attitude and sense of humor. Thanks for sharing your story!
I've been binge watching you two tonight and I just love you both, and love your love
I've been "different" for 11 years and going and I gotta give you guys props for using humour 😅
Laughing at things and having a sense of humor makes life that much better 😁
I love you guys so much!!!! I crack up so much watching!!!!
you being so positive with your disability is really inspiring and you found love i guess everyone really does have a chance
Love you guys! Hannah was raised the CORRECT WAY!
I don’t know if I was more entertained by the Johnson joke or the day care joke. “Don’t worry ‘bout it.” 😂
LMAO same!! that and his expressions are amazing!
Listened to your book on Audible. When I realized it wasn't read by you, I won't lie, I was disappointed, but then I got to the part about your presentation in class and it all made sense. :) So glad I was able to learn that much more about you! Highly recommend to anyone that likes this channel!
What is the name of the book???
Laughing at My Nightmare is the name of the book. I really enjoyed reading it. Shane is such a good communicator. There is a new book coming out in the spring too.
His humor kills me. So individualized🤣 so glad I found this channel!
So glad I found this channel. You guys are a breath of fresh air. I laughed so hard at him following you around for crumbs. "Its so much food" 😂 Already OBSESSED with your personalities and bond.
"One thing is normal sized"
Adults in a 7yo sized body say the darndest things ;)
I’m in Nursing and I’m 100% sure that his organs are smaller than an average 26 year old man, Shane will also have less blood volume than and average 26 year old man, there for his smaller heart, liver, and kidneys function at the proper rate
I'm a nurse as well and I'm with you, Belinda! Can you imagine trying to cram average sized organs into his tiny thoracic and abdominal cavities? No way. I hope they do a follow-up.
they teach you about atypical organ development situations in nursing school? o.0 Most non-specialist doctors wouldn't even know about this.
I have learned so much from watching you guys. Thank you for opening my eyes.
You two are hilarious!
Humor is so important and you both have me rolling!
Shane’s sense of humor is my fav thing ever! And I like your hat 👍🏼
Hannah’s too! She doesn’t break character when delivering an awesome joke, no pause, no hesitation to the next one.... comedy gold.
I also have muscular dystrophy but I weigh about 140 pounds more , I guess I need to find me a larger woman that can pick me up and toss me around too. Y'all make me smile keep up the good content
🤪🤣. I was having a vision of Peter Griffin being held up and giggling away
He doesn't have muscular dystrophy.
@@Stopinthenameoflove Yes he does. Are u knew here?? Just curious.
Just started following not too long ago. You guys are hilarious. I’m enjoying these vids!
I came across one of your videos the other day and I just wanted to say that I've absolutely fallen in love with you two, I love your sense of humor. I just subbed so I look forward to keeping up with you guys!