How much does it cost to be paralyzed?
Vložit
- čas přidán 31. 07. 2024
- FOR SUPPORT TO FIND FUNDING FOR CATHETERS IN ALBERTA PLEASE VISIT THE LINK BELOW:
visit.coloplast.ca/Brittney-AADL
#medicalsupplies #paralysis #ad
There are so many things that I AM SO GRATEFUL for as a paraplegic that make my life easier. There have been so many advances in medical and adaptive technology that allow me to stay healthy and have the kind of freedom and independence that I desire. BUT, none of these technologies are free and very few of them are optional. I require medical supplies to live, I require a wheelchair to move. AND these things are expensive. I wanted to figure out just how much money has been shelled out for the things I need since I was paralyzed at the age of 13 and the the number I came up with even surprised me!
To sign up for my email list and get weekly (mostly!) emails with advice on how to live a healthy, happy, awesome life in a wheelchair just click the link below:
empoweredpara.com/general-ema...
Follow me:
Instagram
/ empoweredpara
Facebook:
/ empoweredpara
My Website:
empoweredpara.com/
Business Inquiries:
empoweredpara@gmail.com
That's a madness!, and should be a testimony of how important it's to have a good and strong public NHS that takes care of what their citizens need to live.
glad almost half of it the cost has been covered. Needs to be more though!
@@EmpoweredParaYeah, I wish we had a stronger voice and that the federal and provincial governments would listen. These medical and related expenses are just basic expenses to allow life to be more on par with A-B Canadians. There are lots of other issues such as pain, paperwork, and accessibility that already have to be dealt with.
Im in England & have had to buy all of my wheelchairs & many other medical costs, so it’s cost me tens of thousands here in the U.K. too! Nhs doesn’t supply everything! (Only been disabled for 9 years & never had a car or van or a lot of this stuff which is why the cost isn’t higher)
Great video, thank you. My brother and I were having this exact conversation the other morning. I’ve only been injured for 18 months (t4/t5 tree cutting accident at work) and we were amazed at the the cost, even just estimating. Thank goodness insurance is covering it. Throw in all the medical costs (life flight, surgeries, hospital stays, inpatient rehab, all the scans and visits) and holy crap!!!
Yeah it's bonkers!!!
The first words out of my wife’s mouth when she saw the $329,000 figure was “lord, love a duck” which is pretty strong language for her! Pleased to see your lift in what looks like might be a previous van. OMG, I forgot about all the lifts you need just to use your home! And the cushion prices! But all that pales in comparison to the cost of your medical supplies. Mind-blowing!! Plus all the other costs. Like what you might pay for vacations because generally needing accessible rooms in an accessible hotel. Some places that may be cheaper, may not work. Always need a hotel with an elevator. And the fact that there are a lot fewer options for vacation locations such as rental cabins.
One personal sample - We know that proper shoes for my wife who is disabled are $2,300 per pair with very limited insurance for them. So she is making do with New Balance Track Shoes for now and we pray we don’t get invited to an event like a wedding. She refuses to pay $2,300 for one pair of rather ugly shoes. I know nobody says that “Life is fair”, but My God, it is so expensive for life with a disability!
Yeah life is expensive with a disability and really frustrating at times.
Love you Britney thank you for your channel
thanks for watching!
Thanks for the very informative video! 😊
You're welcome!
It would be a crazy amount of money if I add up all the cost over 25 years. Injured in 98, T12 Incomplete SCI. None of my home modifications were coverage and still not. Bath benches, grab bars, nope. Thankfully my prescriptions, catheters, wheelchairs, wheelchair parts & repairs are covered. Mind you I have to pay a premium per month for this insurance but the medical costs far out weight what I pay for a premium. Great video!
Oh.. and my cushions and cushion covers are not covered!
@@paralifetv-youreverydaywhe8314 I didn't even include my prescriptions. I missed a few things!
Thank you for the education and I understand. Each year I add up my medical supplies for tax purposes in the U.S. and it’s at least $150,000 per year since I have a caregiver on top of all the things you mentioned. Injured since 2015. This is nuts!! The caregiving is the most expensive part.
Wow, that's crazy! Do you have supports that help with that?
Loved it Brittney that's a lot of money. 😮 hope you are doing well.
My wheelchair accessible van cost $80,000. in 2011. To be fair, the van was new & top of the line & was about $50,000. and the modifications to make it accessible were $30,000. I live in California
Yeah crazy that the modifications cost almost as much as rhe vehicle!
Wow, that's a ton of money. I'm very thankful for my ODSP and ADP coverage here in Ontario as just my catheters alone come at a monthly cost of $534. My power chair, which is just over 2 years old cost about $27,000. It's absolutely nuts what it costs for just the necessities of our lives.
Yeah it's pretty crazy isn't it!
Oh I forgot about the conversion that has to be done to my van,
I live in the states (North Carolina). My daughter has insurance so we dont have to pay anything for her cathers. Which im very grateful for. Her cathers are 5 dollars each, she gets the cathing kits that come with everything. She gets 180 of those a month. Her chair costs 7000 in 2020 which i think is crazy. One thing is i wish we could get another wheelchair but we have to wait i think one more year before insurance will pay for it. This October it will be 3 years since she has been a paraplegic. I lived in Brantford Ontario for 6 months when my daughters were little. There dad is a Canadian and still lives there.
Yeah thank goodness for insurance:)
As a paraplegic of nearly 38 years, I don't even want to think of what it has cost my parents and I, and the house I'm in isn't even wheelchair accessible so we have that giant expense to look forward to....
That's why since I've moved out on my own I make due with minimally accessible houses. Thr cost to build or modify is crazy!
@@EmpoweredParayou keep a positive attitude as well as inspiring
The cost of being paralyzed as explained in this video is freaking me out so much that I’ve had to watch it numerous times. The cost is soooo high! And this is only for bare-existence; none of these things are fun or frivolous or optional. These items only allow someone to live close to how a non-paralyzed person lives! You are so correct when you say this is disheartening and that it will probably break the Million Dollar Mark over your lifetime. Thank you for tabulating all these costs and hopefully lots of A-B people will watch this and learn. I’m certainly telling all my able-bodied friends to watch this. Thank you Brittney!
A high-level quadriplegic will usually incur over $1 million in medical expenses just in the first year.
@@redacted_8229 OMG! But I think I can see that. I guess I was only thinking of this in terms of a paraplegic who is largely independent.
With inflation this year being out of control on so many things - especially food and gas - has it also been a problem for medical supplies? For some of them at least, they already seem awfully expensive. I particularly am concerned for those who pay out-of-pocket for some of the items that are critical and necessary just for living.
Come to Britain. The cost including the car would be £0
So I'm hearing! That's amazing!
Whilst some cars are free on the motability scheme, for a van such as the one seen in the video, it could still cost over £20,000, and that's for a 5 year lease.
Omg that is shocking!! I live in England and you can get subsidised prescription costs at set prices and free medication for long term conditions and mostly free (they may be a tank to drive mobility aids and subsided transport) completely shocked with USA and Canada medical services and bills xx
Yeah I thought Canada had such good medical care and now I am finding out we suck compared to a lot of countries!
I haven't got the final hospital bills. I had to rent a crapy wheelchair at 146.00 dollars a month I could have bought the chair for $1600 outright Time I paid over the cost with none going towards that chair. I now have a powerchair that was $30,000. that's what they tell me. Cath and stuff my insurance is paying for so I am not sure about the cost, but it's not cheap. still doing PT and OT 3 times a week. And I have only just started this new life, It's been seven months.
Crazy how expensive this life is. Thank goodness for insurance!
@@EmpoweredPara don't know what I would do without it.
Hi Brittany, I'm not sure if the costs of any of the supplements you take because you have a SCI are covered by a program in Canada. In the US, they are not. Along with a lot of other medical expenses. I'm 38+ years post injury C5-C7 incomplete. I worked full-time for over 30 years but then had to give it up. Sure miss that income but at least I was able to keep my insurance. The general public have no idea what a tremendous strain an injury of this magnitude is not just to those who are injured but also for their loved ones and caregivers.
Why are the prices high? The basic reasons. Pharmaceutical companies can charge a premium as we're a captive market and know we need this stuff. Anything else is "bespoke", you can't exactly buy a wheelchair off the shelf it has to be tailor made, and in most cases tech either needs adaptations or custom fitting.
Yep, we are caught right where they want us! I bet their profit margins are enormous.
Yes ... Being disabled is very expensive.
Wow, yeah I hadn't thought about the cost to much now that I do think about it, yikes. I'm a going to try and figure out how much for me since 1985. I know the hospital was around 220K..
My calculations so far are around 500K over 38 year period. Could be more. 😢
omg that's nuts 😳. So my estimation of a million bucks over my lifetime was not over the top!
@EmpoweredPara I would say it's not out of line to be that much. You could say a lot, or some if the things we get aren't necessary, but it's life as we live it.
Very interesting. How about wheelchair maintenance? What do you do to take care of your chair?
I forgot that too! I didn't think to include that cost! I get maintenance done about once every 4 months and my hubby also fixes things on as as needed basis.
Would you share the maintenance he performs, frequency, and any tips/tricks?
@@EmpoweredParaHaving a talented husband is a great advantage!
Was there anything unique about the last wheelchair that made it costs $13000. That's so expensive.
In Canada all titanium wheelchairs cost that much! We are one of the highest cost for wheelchairs around the world I think. Our companies just rape us and take the profits. The same wheelchair in other countries is a fraction of the cost.
👏💜👍🙏🤗♿️
#ForeverPromotingPositiveDisabilityAwareness
Enough to live high of the hog. I can’t even start to think about it, because it’s depressing.
It's pretty depressing for sure lol
holy dangdiggely.....so beautiful....
Being paralyzed is an expensive sport .
That it is!
why your latest wheelchair so expensive??
good question lol
In Holland, you can’t life anymore.. lots of things will be payed but you pay you own risk
200 pm insurers
385 own risk
300 CAK
20 for wheelchair
20 for scooter
20 for bike
Your car had be new for help or lift for wheelchair (minimum 40.000 for the car and 20.000 for the help supplies )
Therapie 50
40 for medicines…………………..
------------
1055 euro total
Accept the car the rest I pay monthly from my 1700 pro month and than I have to live, eat, etc
And I life in climat idiot Holland and the land of lots of taxes…
When can I buy that car, I lift by my own the wheelchair in the trunk and have to crawl to my steringwheel “sick”
I can’t take the chair behind the wheel, that hurt so much that I can directly go home again..
Definitely can't call you a cheap date. 😋
lol nope. My hubby has definitely shelled out $ for my junk
@@EmpoweredPara But obviously, you are worth it!
First , let me say how much I admire your spirit. Now could you scoot onto a toilet to pee? Why do you need catheters ?
I need catheters because I'm paralyzed and you lose bowel and bladder control (most of the time anyway) when you're paralyzed.