I would love to see dr Worth. I can tell she knows this disease very well. I’m having some problems with Imuran lowering my wbc and if I lower my dose I flare. I also take IVIG too. I’m I. A bad flair now and my dr hasn’t offered anything to do about it. My face burns and Itches. Hurts like nettles Poking and irritating. It even hurts to put on any lotion.Even ones for this and ones without scents.
I get bad peri orbital edema by itself and with Erythema. I can get them either by themselves or together. There is not a lot of information out about the edema itself. So a lot of drs do not recognize it as a symptom of DM without the erythema. So I’d love to get more information out and hopefully get more drs and others to recognize it.
@@denisefigs2367 that’s very interesting. Id love to see pics. I’ll share some of my pictures if you’d like too. I don’t know if this changes anything but I’m now diagnosed with Lupus. It seems more likely to happen with it.
I would love to see dr Worth. I can tell she knows this disease very well. I’m having some problems with Imuran lowering my wbc and if I lower my dose I flare. I also take IVIG too. I’m I. A bad flair now and my dr hasn’t offered anything to do about it. My face burns and Itches. Hurts like nettles Poking and irritating. It even hurts to put on any lotion.Even ones for this and ones without scents.
I get bad peri orbital edema by itself and with Erythema. I can get them either by themselves or together. There is not a lot of information out about the edema itself. So a lot of drs do not recognize it as a symptom of DM without the erythema. So I’d love to get more information out and hopefully get more drs and others to recognize it.
I have this issue as well
@@denisefigs2367 that’s very interesting. Id love to see pics. I’ll share some of my pictures if you’d like too. I don’t know if this changes anything but I’m now diagnosed with Lupus. It seems more likely to happen with it.
I think I have Gottron's papules :(