My Handbag Keeps Me Alive | TRULY
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- čas přidán 7. 09. 2024
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For 24 hours a day, Lauren Spencer has life-saving medication being pumped directly into her heart. The 18-year-old from Lodi, California has a condition known as Pulmonary Hypertension - a form of high blood pressure that affects the arteries of the lungs and heart. The 24-hour treatment is designed to reduce her pulmonary pressure and prolong her life, meaning the teen has to keep a mobile pump on her at all times, which she tucks into a handbag, to ensure the experimental drug Remodulin is continually delivered to her heart.
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"Now's not the time to be scared because I feel like there's going to be a time where I'll need to be scared." Very wise.
indeed
I hope that she can stay safe, maybe the time is now
@@dreamerqueennotunderthemachine what indeed mean
Now's not the time for fear. That comes later!
😍
She’s very intelligent and mature about her condition. It’s a crying shame how much her medicine costs.
she will not have to pay for the medicine anyway. She pass away thursday last week , 25 june 2020. May she rest in peace.
FM Zaim aw she did? That’s so sad :(
@@fmzaim6867 that's so sad🥺🥺🥺🥺and heartbreaking
@@fmzaim6867 she did? She was way to young to die theres no way
@@fmzaim6867 :(((
"I can't control what happens to me, only how I respond to it"
Kyra Zimmerman that melted me
Wise young woman
She pass away thursday last week , 25 june 2020. May she rest in peace.
FM Zaim Me:😭😭😭😭😭😭😭😭😭😭 l
Her:😇
FM Zaim Noooo 🙏🙏RIP😭😭😭😭😭😭
She is 18 but she is wise beyond her years.
Heidi Torres jèßùß
Yes she is. And cares for her device and everything. Very good spirit ❤️
Heidi Torres i agree
And very 🔥
That was exactly the phrase I was looking for
Poor mother lost her husband and has to deal with the fact that her daughter might die too.. she could end up all alone
It would really suck if that ended up happening. But prayers for them so that doesn’t happen. 🙏🙏
Yeah, but please dont comment this. She or her mother might read it and be sad. You know she's trying to stay positive right?
@@tiaraazka7245 you are right
the life and soul of the party I guess....
Tiara Azka what so ur okay with the vid butnot the comment wow just wow
This girl is literally paying to live- this is so sick. No one should have to pay almost 1 mil every year JUST TO BE ALIVE
Omg yes americans are so unlucky how they need to pay for medicine😭
@@Radiohead4life true me and my little brother need a lot of medication too and without the health insurance.. my family doesn't have a lot of money now so I'm kinda blessed
@@Radiohead4life it makes me feel really grateful I live in Australia
I think we should have a world where everything costs 1 - 10 bucks.
@@heavenlydusk i agree but even if that happens u would get payed A LOT less probably like 5 or 10 cents
So sad to see someone so young having to go through something like this, I wish I could just have a fraction of her strong calm attitude, I wish her many years to come.
75,000 a month for drugs. That is so mind blowingly ridiculous, it almost leaves me speechless. 75k a year is bad enough but a month...that's insane.
@Heidi Willard Thats why europe is a better place :P Cant deny that
@@shinjid3705 yea if I was paying that much I'd seriously rather spend less than 75,000 to move to Europe and get it for free.
This is why I'm an advocate for a single-payer option in the US. Possibly something like Medicare for all. We are the richest country in the world yet we can't give our citizens Healthcare as a right. 43 to 45 thousand people a year die in the US because they don't have the money to pay for their health care. This is a political problem not a financial one. Not only can we afford it, it's cheaper for American citizens than the system we currently have and every other developed country has a single pair option in one form or another.
Mind you that’s just the meds. Not counting the costs of her dressing changes, her saline, her supplies and the hospitalizations she’s has probably had. I’m chronically ill. I live with a port thank god so I no longer have to deal with dressing changes or constant flushing. But I still end up in the hospital a lot. I was just there in February and my bill was $125k. Now again in the ICU with septic shock my bill will be astronomical I’m sure. Last year I had it I was charged $347k just for that admission alone. Every 6 weeks I need a biologic like chemo to keep me alive and that thing costs $52k every 4-6 weeks. So imagine what we sick people have to go through just to stay alive. We didn’t ask for these diseases. We weren’t looking to get them. They just happen and we have to pay the price for having them. As if life wasn’t already cruel enough. This world, this country especially, was not designed with the disabled in mind.
It's sad when the houses bills/appartment rent, per month, in California, is lower than the meds you take to stay alive.
I can't stand the thought of someone trying to snatch away her handbag.
I was thinking the same thing-
She has an across the body bag so I would imagine it's not being as bad. But I may wrong.
Now i realize
Oof hell no I can't even think about that
I was thinking of the same thing..
I wish taxes we have to pay would go towards people like Lauren who need certain medications to stay alive and can’t afford to pay $75k a month
Unfortunately our money paying for prisoners, people don't like to work being lazy, people who keep popping out babies and etc... stupid things like that. What a shame!
Well, before she turns 21, it does. She said that the cost of her medication is covered by some child services agency.
Yes it made me very scared, a reality totally different from where I live. Here serious illnesses that need constant maintenance have help from the government and the treatment is almost all "free" (often not satisfactory, but I keep thinking that it must be better than living in fear of not being able to pay for your own life)😔😔
@@ericho6246 Or bailing out corporations, sending it to random countries around the world for them to commit genocide with, and letting the Army get away with asking the government for $32,000 for a coffee mug.
@@ericho6246 more goes toward corporate welfare, war, and other countries. Very little actually goes toward welfare. Research and know the truth.
When she named all the prices of the drugs, i just though “wow... all these people spending their money on gucci, and designer things when some people cant even afford to stay alive” bless her family
BOI everything in the gucci store is worth like one month of the drugs
Ikr it pisses me off so much that celebs buy stupid designer stuff but hesitate to help out other ppl 😐
@@reginageorgetownuni so... are the "rich" people supposed to help her? you have no logic here, and for some reason your comment annoys the heck out of me.
@@ihatethis8337 Yeah, we should not force rich people to donate because it is their own money.
BOI
They have the right to buy Gucci.
Why th are you comparing that here??
People spend money on McDonalds too!
And whats that?? CLOTHES?!?
Weirdos.
I love how she speaks. It's quick, it's exact, it's pleasant to listen to.
Shes very articulate.
I was thinking the same thing!
Yes it is and I am a
Soo sorry
Yeah but when she speaks fast i dont understand a single letter shes saying lol.
The notion that this girl will have to pay $75K a month when she turns 21 is the most disgusting thing I've heard all week.
Its truly disgusting. Price gouging and high interest rates are the work of satan.
That's 1 MILLION DOLLARS A YEAR 😔
Crazy thing is, for Pulmonary Hypertension that’s actually kinda cheap.
She won't. The federal government, the state, the company that provides the meds and other groups will step in and provide the meds, probably for free, but at the very least for an affordable price.
This video is just the family getting out in front of the problem (as they should!) and drawing attention to the disease this family lives with. They know very well that they won't be asked to pay $75K a month for her medications, but they are doing the right thing by putting social pressure on those who are working on a cure and who are working to bring down the prices of these rarely needed medications.
If you can't meme, you can't dream Medicean should be free if you need it to survive it’s just disgusting
I am an organ donor. I don't want to die but it will happen and when it dose I know that every little bit of me from my hair and skin to my bladder and bones will be used to make other people's life more liveable.
That's a really mature choice of you. But I wish it will take a long time to happen.
accually a huge % of ur body is tossed out in the trash as medical waste because there isnt an exact match. Also WHEN you die you have a set amount of time till your ''parts'' arnt useable. So this idea that 100% of your body will be donated is insane. This is why its important to get dna testing and sign up for organ donation to see exactly who you are matched up with so a bigger % can be donated. But keep living in your fantasy world where im wrong!
Wrong when you die your organs will go to satanic elitists like David rockerfeller may he burn in hell who had 4 heart transplants
REMOVE YOUR NAME FROM THE ORGAN DONOR REGISTRY! If you are close to death and still possibly salvageable, they will put no effort into keeping you alive. Trust me, research it. They’ll just let you die for money. Don’t take the chance.
David Robinson are they even allowed to do that?
This poor family, she lost her father, has a fatal condition, and the mom would be all alone if she dies
People were saying she did die. If she has died far to young. Beautiful young lady ❤️
Nooo she would still have the dog 🐶.
So sad :(((
You are amazing
lauren would even ok and strong even if she let her mum die. alove you lauren. you can do this 💜
I used to complain about 3 days worth of my epilepsy medicine being $50 when my insurance couldn’t get it covered. I couldn’t imagine $75k a month......
If I had no insurance coverage for my meds it would cost nearly $1,500 a month, but that is nothing compared to her meds, this is ridiculous when it only cost a small fraction of the amount people pay, to make all the meds.
I’ve been on countless medications (hay fever, antidepressants, stuff like that)
My dad has so many medicated creams and inhalers
I live in Britain, so thankfully it’s free but I couldn’t imagine living somewhere where you have to PAY to live healthily
I have insurance coverage on my epilepsy medication yet it's still hella pricey
How and where does she get that much money?
Same
$75,000 a month , $900,000 a year to stay alive💉😔 .. $9 MILLION DOLLARS for ten years... That is proof we are already in HELL.
So true & sad
I blame the socialists on this one. If you want to raise the tax percentage on successful businesses and corporations, they will raise the price of their product. This leaves California in a financial hellhole, where all of the poor people complain about the high prices of items. However they caused it due to demanding higher taxes for the companies. California needs desperate help.
um what? researching medications costs money
@@MrKEMills really dude you defining big pharma here? Their is no socialism here in America. If what you said is true how do Europeans have a much better health care systems then us. Did you know Americans spend more on health care and pay more for the same medicine.
MegaBlade Americans spend more money on health care because there are more Americans to support and they don’t spend t the right way. Look at Obamacare. Obamacare is terrible. It causes a higher tax rate due to their belief that more government spending equals free healthcare. The only way I would accept free healthcare is if we had the same, or lower taxation rate and everyone’s taxes put towards healthcare would be the same tax percentage towards healthcare reflective towards their salary. Socialism only makes the poor happy, but it makes the middle class and wealthy in a terrible place in our society.
I don't want to be all, "Oh, she's so inspiring," because that can be reductive and belittling to people with disabilities and chronic illness. However, her energy coming through the video was just so amazing. She had so much calm and such a healthy attitude towards dealing with such a scary disease. Even her grief about her dad, she seemed to carry that pain with so much grace. I really admire that.
Why do I suddenly have a strong urge to find out who’s charging this much for drugs and possibly slap them to the next universe
Martin Shkreli
what if they're using the moeny though to fund finding a cure?
Alexis Doubt it but even if they were, the government wouldn’t use it for finding a cure. As long as they have money, they don’t care who gets sick or hurt.
Because ur gud
u also have the urge to slap the person keeping her alive so think twice.
Is no one gonna talk about how beautiful she is ?
God bless her
I Guess noone cares about this fact including me. Has nothing to do with the video
Gizzmose2002 well everything happens for a reason even when it’s not fair..
No because it is irrelevant
@Gizzmose2002 LOL Everything DOES happen for a Reason or is my Family a pack of Complete Liars plus I thought Lying for ANY Reason is just wrong even apparently if you Lie for a "good cause"
I feel bad for her😢
Lets start a go fund me for her so she can save up money for when she turns 21
@Hey Ha what how do you know can you send a link
Your gonna find it ..trust in yourself
Shes already dead-
@@ztoollzl the way you said that is horrible and I hate it when people put the - at the end of their sentence, you could've just said she passed away
@Janet Draws What do you expect from a person with an ii username and stolen pfp?
Karma will reach all the people who charge that insane amount for such vital medication.
I agree. That kinda crap is pulled all over the globe. Sad world we live in
Yep its 500 alone for my one med corlonor
Question What You Fear it is not. In Europe the healthcare is free
They just don't charge high amount , they can develope cure for almost everything, but they don't so the can sell medication...
I can only hope 😯
it should be illegal for them to charge so much for medication. 75k a month just to stay alive. she deserves to live and have access to all of her medications.
To first make it illegal for them to charge so much, you would have to lower the taxes on insurance companies so they wouldn’t just have lowered costs, but a benefit for both sides. Lousy liberals have to think about this problem on the insurance’s side also.
@Alex Mack you do know the government spends money on medical research. Why do you think flu shots and other drugs are free in other states. Drug stores are no different from grocery stores, heck some grocery stores have them inside.
If you go to Canada or Mexico, you will find cheaper alternatives
.
@@cody1212143 Much of those cheaper alternatives are researched and produced right here in the US and are generics! When a pharmaceutical company takes on a new medication, it spends hundreds of millions on research and development, but for a drug that only a few will use, those costs go up exponentially, meaning one drug could cost billions to bring to production. If the medication is not in high demand, that cost is going to be spread among very few users. In order to help pay for the research and development costs, pharmaceutical companies are allowed to have exclusive use of the product for a period of usually 10 years. Then other companies can produce and sell generics of those medication. There is simply not enough interest or money to be made to support producing a generic of a drug that only a very few will need, so generics are seldom produced for drugs that only a few will need. THAT is why these drugs remain so costly! The choice is either pay a lot for the medication and have one pharmaceutical company produce it at great expense to themselves or have no drug at all for those with rare illnesses. In fact, the reason there are so very few drugs under going research and development for drugs that are only used by a few is because even at $75,000 a month, the drug company that developed it is never going to recoup the billions it spent on development...other drugs must be sold at higher cost in order for them to continue work on drugs for rare conditions. The numbers seem unreal to us, but that is just what it costs to bring these drugs to those with rare conditions. Some of that is due to the government requirements for drug production in the US. In many countries, drugs are produced and tested on humans without undergoing nearly the same trials that must be done here in the US. In order to have that happen, these other countries place caps on the amount someone who is made sick by less tested medications cannot sue for the massive sums of money they might receive in the US.
@Alex Mack I believe that America has one of the most decent medical tech in the world. But your government is abusing the power. that's why us outsiders think that you're acting...ignorant.
@Alex Mack well I mean it in a way that how they do not make it efficient to all its people seems quite abnormal to me. Even tho you could see some other countries where the medical system is rarer or less advanced (not too much) can have cheap but the same effective treatments.
She's a lovely girl, I hope she finds comfort and a peaceful life
Absolutely sickening that the price is so high. Such a bright girl
Harper,I made a similar comment. These drug companies should be ashamed to charge these ridiculous prices. I can see making a profit, but they are very greedy. Karma will come to them. I know someone who has to take a medication for bipolar disorder and they charge $400.00 a month. It is a newer drug and she has no insurance. Totally ridiculous, now she’s taking another drug that doesn’t work as well. Appalling!
She inspired me, let’s all be strong just like her.
She just wanna be live.
... without strong and pain.
not to be rude or anything but this is me during corona
Michael Jackson inspires me not her
She died
My heart breaks for the mother. She lost her husband and knowing that she might loose your child suddenly one day. She is definitely a strong woman.
Thank you!
*My determination to finish my biochemistry degree and pursue medicine and drug research intensifies*
We'll find it, girl! WE'LL FIND IT!
Please develop technology to regrow male forskins for victims of genital mutilation.
you or other people might find it, the thing how much it will cost... goodluck
Make it cheap please!!!!!
You have great dreams! Don’t give up
I'm Rooting for you. You can do it!
It amazes me that America and Americans declare to be so wonderful and be land of the free when you can't even provide decent health care
@Alex Mack no your right ( not ) Australia dosnt develope fantastic cheap drugs unlike American pharmaceutical company's charge stupid amounts for something that cost cents in the dollar to make you keep in your self absorbed bubble
@Alex Mack wow your arrogance is off the charts it's not your fault you where born in America oh and by the way americans with particular medical conditions should thank Australia for inventing the pacemaker,cochlear implant oh and the biggest one of all time your probably using now WIFI yes wireless internet
@Alex Mack how's about this END OF COMMENT !!! Lovely chatting to you
lmao the whole point isnt how good the health care is the point is you gotta pay an arm and a leg for decent healthcare. my dad is disabled and his disability check hardly covers anything. Its no wonder growing up why my parents lived paycheck to paycheck. we are only lucky because we have health insurance from my mom working at a doctors office as a secretary.
The U.S. has EXCELLENT healthcare, but sadly it's just not completely available to everyone at a reasonable cost
I can't believe that she is only 18, like i know grown adults twice her age that don't speak as eloquently, as intelligently, as humanely as she does, it's crazy and wonderful and lovely and if there is a cure coming no one deserves this more than her, i think she could benefit the world.
there's a saying some people have an "old soul"...one my brothers and one of my nephews seemed to give off those maturity vibes...even in their younger years...just walking around like little old men😂
But what if someone tryna snatch her bag? And they rip her tubing out?
I thought about that too
😔
Someone should make her a light fabric bag that can be worn under her clothes
God is the only one who knows
There have been people that have ran into her bag and pulled on it. It does hurt, but that is why she creates a loop on her chest so that there is extra length in case the bag gets snagged. She also sometime wears a fanny pack instead.
I feel bad for her mom because she will see both her husband and child go before she does.
The debt she will be in my god that is ridiculous imagine lonely with medical bills that never end
@@elisamoreno92 Insurance company are covering the bills for the moment
Let's hope not
It's not necessary???dude😂
A cure could happen. She has such a positive attitude😁
Celebrities and the wealthy can't sponsor this girl? Her story needs the get out there. Share this video!
75,000 per month is actually more than some celebrities can even afford. Many celebs are worth like 5-7m. This would eat their entire career in years. It's a mind-boggling amount of money. It's honestly messed up.
Hi lily, how are you doing?
@@onesimpletrick3448 Bezos. Musk. Brenson. just few names, all the idiots paying for floating like the air baloons they already are. Mark Wahlberg the "christian" who is a crap actor is worth 300 millions, if he payed just for one of her drugs for the rest of her life he would still be a dirty millionaire.
@@fenecofeneco19 she’s dead 😢 😭
@@rosieposie8300 WHAT!? How did you know? I hope her mom is okay.
My daddy went in for a liver transplant and the surgery ended finding out he had Portopulmonary Hypertension, and like you said, no cure and all they can do is make you feel better. Because of that he couldn't get his MUCH needed liver transplant and it ended up taking his life in the long run due to the fact that he couldn't have surgery. He passed away young but still made it to 62 years old. Rest in Peace Daddy...Best of luck Lauren....
I know what your going through my dad made it to 50 years old R.I.P
I’m so sorry that’s awful. Praying for you and your family
My dad had heart problems and a heart attack took his life at 62. . Miss you, Dad😢💔
Rip.I hope he's in a peaceful place now
I almost choked on my drink when I saw how much her medicine costs per month.
I nearly had a heart attack! $75,000.00 WHAT?
I love how her mother describing her was actually specific and unique, you never hear something like that in basically any documentary
This is really made me cry!
Such a fighter.
And we sometimes complain for the most stupid things!!!
Honey your are very mature for your age, bless your heart i will remember you in prayer. You are a very sweet girl and i pray God will heal you, i do believe in miracles dont you?
That is a shame about the cost of her meds , dont they understand everybody cannot afford the cost maybe when you turn 21 they will having something cost much less, you should not have to worry about that, i know some people will have to answer to God one day, pharmaceutical companies is out for the money, that is terrible.
So she pays 75,000 a month PLUS college PLUS the service dog ?? Omfg how much in debt are they in??
Did u watch the video? She is covered until she turns 21. Thankfully they are paying for her medication. @7:07
@@andisan4864 I wonder what she's going to do when she's 21
@Zeth Bloom she needs to vacate to europe, like a nordic country, or germany, netherlands etc.
@@jonjon3829 do they offer free healthcare or extremely cheap?
@@trevorphil5814 Many countries in Europe have free, public healthcare. Everything is covered, because they pay so much more in taxes. Everyone pays into the system and everyone gets covered.
I just know how to feel right now. I can't imagine how she's feeling, she watched her dad die because of the same disease and she knows that there's no cure. I really really wish she find the rarest and purest peace and happiness in the years that she lives.
My mother in law had this EXACT THING. Everything about what this girl is doing my mother in law had to do. Same medicine, same routine. She randomly got this and had to do this routine every other day. Unfortunately Vicky got air into her catheter that was leading into her chest just like this girl, and passed away. We had her 5 years after her diagnosis. I’m praying for this girl.
Yes, it can easily happen.. we can see this girl try to avoid putting an air bubble in her syringe.
i had no idea that an air bubble could be so serious! prayers to you and your family!
@@halnic3386 maybe it can cause air embolism wherein the the air bubble cant be absorb by the blood causing it to be dislodge to any part of the body. It may potentially cause heart attack or stroke.
So sad and so sorry for your guy's loss!
Haley Devers her tube is straight into her heart. So fatal. Unlike a syringe with air into a vein- which is actually not that big of a deal unless it is in certain arteries or jugular etc.
Wow 75,000 a month for drugs!?
Money can literally buy your life..
So sad😓
But sometimes it's worth it. My dad had chemo 5 times a transplant and is still messed up and need drugs.
money keeps you alive even without a life threatening condition.. no job means no house/food/water
I know right? My friends causin died cuz they couldn't afford all the needed treatment
Research Doctors get payed the big bucks to research and develop new drugs or improve old ones. The drug companies charge an exuberant amount of cash to test the drugs for 7 years and then sell them on the market. There needs to be a better way to bring down the cost
she was 18 when this was taken and I looked down at when this was posted and I saw 2018 and immediately began to tear up. She's now 21. I hope she got that grant the medical industry can be life-giving but it can also be evil.
She is so incredibly well spoken, smart, and just wise beyond her years.
I wish her the best in life. ♥️
"You can't put a price on a life". It is absolutely disgusting that she and her family can't be sure about her future all because some people do put a price on a life.
Unfortunately she passed away
@@summersworld1120 how do you know? Where are your sources.
i hate how you have to pay immense amounts of money or else you die.
screw people who aren't rolling in money, i guess.
Insurance companies constantly put prices on lives, and quality of life. I would know. If I had the money for two separate treatments I might be able to study, work, have kids, go to concerts.... I would be able to live. Instead, I'm on super expensive medicine to keep me alive. So yeah. Insurance companies can't do mathematics and humans put a price on life. To add: with covid, people were asked how much money they were willing to spend to save a human. If I am correct it was a quarter a day or something.
The Kardashians be like: My Gucci keeps me alive.
I wanna say that’s not a joking matter but
It is funny xD
Lol
Me too
Samantha's Tea yes
I knew They're would be a comment like this 😂
We need an update on this wonderful young lady..
She passed away😭
Zia G she isn’t dead, she is literally on twitter tweeting rn
@@badposture4968 I said I heard it from someone else, I wasn't sure, sorry
_Spinel.Is.Baby_ what’s her @?
@@ziagochenaur2980 FR?!
Rich ppl buy expensive items for a “fashion statement” and people like Lauren’s mom find ways to make money for Lauren’s medications
I have costly meds myself even with great insurance, it sucks and is wrong ! I couldn't live without it either !
Jaz Rano 10 mil a year
I wish I was rich so I could help people
Can someone confirm with me if she's still alive or not? Ppl are saying she died in June of this year and I haven't been able to find anything like that so I'm skeptical...
She's alive
@@pallavijadhav2665 Thank god
@@pallavijadhav2665 Thank GODDDDDD
Can someone tells me what is her twitter username??
@@pallavijadhav2665 how do u know
What the heck
Why are the drugs *SO* expensive ?!
This is *MEDICATION*
*MONEY IS LITERALLY BUYING A LIFE*
@Alex Mack But for her it's ridiculous, she pays ALOT
@Cheryl What? Why would I cry about myself?
I'm "crying" over the fact that she pays so much just to stay alive, that's all. Nothing to be so triggered about.
@Cheryl I guess that's how America works huh.
Living to work instead of working to live.
Everyone buys food, but not everyone pays so much because they have a health condition.
@Cheryl I sure as heck don't spend 75,000 a month for food, I doupt anyone spends that much money in just a month in general
in amernot in other countries
Wow! I commend this young women. What bravery and strength at such a young age!! Good luck to you and god bless you, Lauren!
When her mom started crying , I started crying
Me too...
i fell bad to tell this , but she pass away thursday last week , 25 june 2020. May she rest in peace.
FM Zaim how do you know?
@@zurisadaiarroyomunoz9705 I do research
@@zurisadaiarroyomunoz9705 she’s alive. She’s still active on social media. I have no idea where people have gotten that information from.
These medicines should be free..
And i oop-
Absolutely not.
People are fighting to even make it.
But 75k is a bit too much.
Sure, buy those medicines that are over 75k and give it to her for free.
@cream In the UK it is 🙄
I agree. They're basically paying a fee of 75k a month to live
Or at least cheaper
I would be so scared for a kid to go “HAHA WHATS IN YOUR BAG LET ME SEE“ *tears it away* like in movies when someone gets bullied
that kid would be scared for her/his life if that happens. I hope people will understand her condition and not joke about it like that
My grandma suffered from cancer for 43 years and she defied the odds! I have faith that she will defy the odds for a long time
she needs to make a yt and a patreon! get some money rolling in for those unfair costs of medicine!
Yes she does !
To bad the patreon would only keep her alive for a month with how expensive that godamn medicine is
@@ianellicuellar16 please what’s her channel’s name 🙏🙏
She’s so brave and wise. She brings tears to my eyes.
My mom was diagnosticated with this when I was around 7, we lieve in a country were we dont have this sort of drugs and treatments availble and she never felt like the pills help her at all so she just stop taking them, her life expectancy was around 5 to 7 years and she would have to be on a ventilator from for the last three, its now been more than 10 years as she still going strong, she whent for a cheeck up a few years ago and they said the disease had reverse itself with no explanation, its a miracle that my mom is still with me and in good health and I pray that God can bless this girl just like he bless my mom
That a positive girl who never gives up
meds have no right to be that expensive. healthy people don't have a tax on living like sick people do. it's horrid that people benefit off of suffering like that
That is such a good way of putting it! A tax on living! My medications cost a couple thousand a month. I can't imagine anything more! It's insane.
We all are part of a genetic lottery and those with congenital illnesses, such as myself, just drew the short straw. It isn't a tax on living, it is just that due to our misfortune we use up for more in of our countries health care dollar than someone who is healthy. It makes sense for us to have to pay for part of our own need. This young girl will pay nothing until she is 21 and then she will still only pay a small portion of the total it will cost to cover her medical care. The pharmaceutical companies will provide this experimental drug to her for as long as she needs it, because basically she entered into a medical trial and they are going to want to watch her as long as possible to see how the drug plays out in the long run. In the US we don't have nationalized healthcare, but we do have specialized programs and doctors who donate time and efforts in helping those who cannot afford to help themselves. My younger sister received nearly a million dollars worth of surgery, testing, chemo and radiation for Melanoma 15 years ago. She had no insurance, but her treatment cost her nothing because of the way our programs worked BEFORE Obamacare. Unfortunately, that program has made it nearly impossible for the free clinics and hospital donor programs to function. They are now required to meet everything in Obamacare or shut down. Far too many have shut down! My older sister, who also has no insurance because of the rising costs due to Obamacare, just happened to see a mobile mammogram van going through her neighborhood and decided to get one taken since she hadn't had one since her local clinic shut down. They found a cancerous spot and she was able to have a lumpectomy, with no additional treatment needed. The van is paid for with donations and goes through poor neighborhoods offering free mammograms and because that is all they do they have managed to avoid the punishments inflicted on free clinics by the Obamacare laws.
They need it that expensive. If you don’t pay a lot of money, they obviously cannot research correctly or try and find a cure. Also, if it wasn’t expensive she wouldn’t get good drugs and she would die 😑🤦🏽♀️
@@sortathesame8701 I feel lucky I only need one medication which is affordable!
she’s really mature and very very smart. God bless her, i seriously hope they finds a cure.
SO happy that this is being shared. I also suffer from Pulmonary Hypertension and have the exact same pump/line. Though I use Veletri instead of Romadulin. Keep being strong girl! Also good luck in Nursing school! I’m in my third year of Nursing school and I absolutely love it❤️
JulieMarie, I also use the same pump/line and I use Veletri. My specialist said I'm a good candidate to switch over to Remodulin when the implantable pump becomes available in our hospital.
Julie, I hope you are doing good!!!
Julie Brock hope you’re doing fine ❤️❤️❤️❤️❤️😭🙌🏻
God bless her & her family . I can’t imagine how hard this must be for this young lady .
“I can’t control what happens to me only respond to it” - so wise
“I can’t control what happens to me. Only how I respond to it.”
The level maturity this 18 year old girl is honestly just mind blowing, it’s AMAZING
“i guess i should give it a name or something” what a sweet girl wow so smart and perceptive
She is beautiful and has such a wise soul, my heart goes out to her and her mother.
She’s so beautiful. What a strong woman. ❤️ I hope she finds a cure during her lifetime.
She’s so intelligent. I love listening to her mature attitude
I can't stop thinking about when she said some people are immune to this drug... So you can't use it forever. To live with the fact that someday the one thing keeping you alive just won't, it's scary man. May God give her and her mother all the strength in the world❤️
What happens to those people who can’t afford that? I know my family wouldn’t be able too. Money doesn’t just grow on trees
Her parents probably would of moved to a country that has Medicare like Australia they would of covered a huge amount of the costs
Or then you just need to move to scandinavia, free health care..
yeah Malta has free health care
@@vischs6184 United Kingdom, Sweden, the Netherlands, Finland, Norway, Malta, Italy, Belgium, the Republic of Ireland and New Zealand and some more have, Medicare which is free but it's not exactly free they don't just give it to you, you pay a monthly bill depending on how much you earn.
@@magpie6376 well not in sweden or finland. We just pay about 10-20 euro and we gett all we need for that.
she kind of looks like Chloe Grace- Moretz
Kinda
A little bit, defently kinda sounds like her.
I was looking for this comment!
I was justing thing that too
She looks more like Joey King
Shame on you guys who said she passed away!! She is living and thriving and beautiful than ever!! 💖
I can’t get over her personality. She’s so well spoken and has so much confidence in her voice. That’s weird to comment on but it’s true. She’s going to go places
This is labeled my handbag keeps me alive SHE TALKS ABOUT HER PURSE LIKE ONE TIME
umm ok?
Y are u shouting
@@yina6816 idk why she’s yelling
@@yina6816 1. Because I can 2. Because that's how I release anger 3. I don't call it shouting or yelling I call it loudly talking or saying something strongly U_U
@@ImanAlienDealwithitXP why were you angry😭
This mother has gone through so much as well. What strong women these two are💗
This just made me realise how many things I take for granted. BLESS THIS FAMILY’S HEART!
She has a young heart ,but a wise soul❤️
I can see the pain in this moms eyes, and the sorrow in her voice. Stay strong!!
“I know there will be a time to be scared. Now is not the time to be scared “ damn. 🙏🏼❤️
What a lovely innocent angel
God bless you and your mother for each other.
This girl is so young I feel so bad for her but it seems like she's handling it well
$75,000 a month, that’s ridiculous....our health care system is absolutely ridiculous. Some diseases I feel there are cured for but as always money and greed gets in the way.
it is 24/7
Shes so strong 🥺
But the thought that someone got just snatch away her handbag scares me :(.
I can't think about she becomes a victim of a purse-snatching incident.
When I feel my life is full of problems I look at this video so much power to this girl 🥺❤️
Rightly said Maitri... 🙏🙏❤️
She is a beautiful girl , god bless her , it made me cry .. keep on going strong wee woman
😶
The fact that she’s still alive is bootiful, Stay strong everyone!
She has the most beautiful uplifting personality. This young women taught me something about life today. I am so upsett about those prices...its price gouging,how is that legal.
I love how in-tune your mother is with you. 😍
$10,000 for a bottle of pills??? That's CRIMINAL
I hope they find a cure. Your positive attitude is amazing. God bless you.
Her healthcare must be so expensive especially because she lives in America. Who is paying for this? Whats the point?
Did u watch the video? She explains @7:07
Wow...what's the point? The point is that she gets to live her life!
I am astounded by this mom. This mom is extremely strong!!
God bless them
She’s such an amazing young lady! Stay positive & in prayer...God can do all things beautiful😊
She’s spent $18 million dollars just living... 😔
She is such a positive and brave women, so strong!
She's so enthusiastic when she talks but you can tell that in real life she is really sad
This is so heartbreaking and sickening how much her medical bills are. 😩 this poor family and my heart goes out to her mom the most... I can’t imagine what her mother is going through!
My heart goes out to her but she's such a beautiful soul and so strong
*The doctores can say 1 thing but, God will say another. My dad was diagnosed with cancer and they told us he would only have 3 months left to live but look he’s a survivor and it’s been 5 years and he’s better than ever !*