#93: Coping with Parkinson's Arm Pain and Masked Face
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- čas přidán 3. 07. 2024
- In this episode, we talk about Jessica's approach to her new Parkinson's symptom (shoulder and elbow pain/tension) and tips on how Brian can exercise his masked face. We cover a few other random topics...not sure why, but this episode just made us laugh. Always good when have fun with your PD friends ;)
B: for masked face, my wife taped a big picture of me smiling (the way I USED to smile) on our bathroom mirror so I can try to practice smiling every night. Amazing what PD does to us! I need to keep practicing my facial expressions
Thanks for cracking me up.
Its really cute your both like close brother and sister ❤
Love love you guys… I so appreciate your open conversation it’s extremely helpful. 😊 Thanks
Brian getting this episode started properly lol!! Jessica, definitely get massages when you can, even better if you go to a place like Massage Envy which has stretching available, they’ve done wonders for my shoulders!!
Great show, guys!
Great segment. Thanks & hats off for diving into the symptoms. I was diagnosed in Nov 2020. I'm always second guessing. Is the pain real, or just Parkinson's being an ass.
Keep up the awesome work
My wife uses the term "wonky" for my dyskensia. Love the show; 15+years of living with PD.
We Love Brian ❤
Brian ... you should blink at will ... use some eye drops but don't forget to blink ... love you guys !!!
Enjoyed this podcast had a good laugh ,
I love you both ❤. Jessica, I get it !! Hold onto your voice. Laughter is the best medicine. And I blank on names too !! YOPD club
My face looks sad or mad alot. I dont realize it. When i do finally actually smile my kids get excited, momma smiled...
I love this show - thank you both x
J: you may want to try a compression sleeve on your arm/elbow.
Did you hear the new Abbvie pump was approved in Europe in January? Looks very promising and hopefully will be approved in the US soon. Do you know anyone that has tried it?
Not yet!
Hello Jessica, My MDS put me on Entacapone 4XDAY which I didn’t tolerate. Now I’m on Rasagiline 1XDay
Any thoughts on this? I’m fearful on new meds bcb my MDS didn’t explain me before prescribe me Entacapone.
Any comments from anyone.
Please share
I don't have any personal experience with those medications.
Ok thanks Jessica
Which meds are you taking now. Please share with me. I truly appreciate your podcast, continue the good work ❤
My consultant is querying PD and when I mention I don’t blink much nothing is noted there?? Am I wrong to tell her this? My face looks worried or mad a lot too my hubby said once my face looked dead 😮that was awful actually but he didn’t mean it nasty I think he was shocked at the time. It was just a split second glance he must have gotten
When I have masked face, it generally lasts the whole day, not just a split second. I call it my zombie look. 0:05
@@ziontours5893 yeah I know what you mean. 😢 I only meant the split second on his side not mine. I’m confused about how to speak to my neurologist about this
@jenniferpatterson7058 They say that the one common feature to everyone who suffers from PD is Bradykinesia, i.e., slowness of walk and arm movement, generally noticeable in a change in your writing. I hope you find out that you don't have PD. It turned my life into a nightmare.
@@ziontours5893 I received my diagnosis three weeks ago and don’t know how I feel about that. I begin meds in June after I return from a trip to Australia from uk to visit my new granddaughter
@@ziontours5893I got the diagnosis a month ago but not starting meds until June as I’m off to Australia for a few weeks to see our new granddaughter. I’ve no idea how I’ll manage the 28 hour journey 😢 and the meds terrify me… but I’m hopeful that it will help
What are the chances I will get mask face in the future with this disease?
I think with every symptom, we can't predict what we will get or when it will come.
Fun and Delightful! How great to have a PD exercise facility. You must live close to a movement disorder in a big city?? Am I right?
Whoops and sorry. That comment is out of place! (Sorta like me!) I was writing a comment on your Valentines Day post but it was a short so by time I hit send the video switched. Brian is precious...