"The Spoon Theory": A Tactile Analogy Of The Chronic Illness Experience
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- čas přidán 29. 08. 2024
- In this video, I read "The Spoon Theory", a brilliant written work by Christine Miserandino. The full text version is available here: www.butyoudontl...
As a "Spoonie" myself, this essay is extremely precious to me. It has brought comfort and empowerment in my own battle with disabling, progressive chronic illness (heart failure, chronic pain, arrhythmias, malabsorption, chronic nausea, atypical anorexia, fatigue, dysautonomia, and depression, to name a handful), especially in the earlier years when my illnesses were undiagnosed and not outwardly visible.
Those Living with Invisible Disabilities and/or Illnesses suffer more than most because people cannot SEE their suffering. I have different medical conditions than Christine, who suffers from lupus, but there are many elements which are common to all patients battling disabling chronic illnesses, regardless of specific pathology. Obviously, I'm much sicker now and my illness is visibly apparent, but this was not always the case, and I faced a great deal of stigma and judgment for several years. Even (and especially!) now, I miss outings, events, my university years, being able to work, and a long list of other activities.
Christina is battling lupus, a chronic autoimmune disease which causes significant pain, fatigue, and other systemic problems, and can be Life-threatening. She came up with this brilliant, easily-understood and very effective analogy when her best friend asked how she Lives and copes with her debilitating condition.
This powerful story is unique in that it provides clear and valuable insight into the patient experience for healthy family, friends, colleagues and clinicians alike. "The Spoon Theory" has facilitated greater mutual understanding between countless sufferers and those who know and love them.
I have wanted to make this video for a long time, but as with so many things, I just haven't had enough "spoons" to spare. I recently learned that a friend of mine also battles chronic pain and fatigue, and it was time to pull out my reserve spoon and get this video made. ;) I hope it brings her comfort, as it has for me all these years.
~*Much Love and Be Well, Precious Ones!*~
XOXOX
~A.G.E.
#spoonie #BYDLS #lupus #chronicpain #pain #fatigue #nausea #illness #SpoonTheory #chronicillness #fibro #fibromyalgia #dysautonomia #chf #disabled #love #support #understanding #info #isolation
i hope everything is alright..
I have heard of the spoon theory but never heard it before. Thankyou for sharing it with me and my husband for his understanding of us. You are truely an inspiration and caring person. You have a gift to help others. You calm my soul and give me peace for tonite. Thankyou for touching my heart.
Several years ago, I sent this to all my family and a few good friends. It's a great way to try to our a visual with how chronically ill people feel. Thanks for posting.
I just want to let you know I really love your videos. You seem like such a good soul. It's so refreshing since there are so few compassionate good hearted people left on this earth. (in my opinion) It's good to know that there are still some out there.
very nice to see you posting. Keeping you in my thoughts
Thanks for sharing this with us Hun. So good to see you, I get super worried when I don't hear from you for a while ;) lots of love to you and god bless xx - Helen
It's almost spring :)
I always enjoy hearing you read
wow your voice and how you tell the story is so beautiful.
I will be using this theory. Thanks.. thank God.
Hi! I have been following you for a while and think you are so brave and inspiring to so many. I loved listening to you read the spoon theory. I cried tears of relief knowing finally I could now show family exactly what it felt like to be me. I have systemic scleroderma, pulmonary hypertension & Lung Fibrosis (I.L.D.) I too wear hats, have a PICC and O2. Take care and keep up the posts:) I pray for your peace of soul
Steph Headley hope you're ok. Blessings and peace to you
How are you Leeza? I haven't heard from you in a while and just pray that your keeping strong and hope to see another video from you very soon. Massive hugs Sweetie - Helen xx
And yes, believe it, you are a good soul
i love your great heart....beautiful soul
You stil making videos
Hi gorgeous!! Its been so long since I've heard from you or seen you! I'm having a rough time....on many levels. Anyway, I'm so happy to see you...aww! {{hugs}} xoxoxo
You are so sweet, hon. You are just so, so sweet.
Do we know where this most beloved woman is currently? i used to hang with her here. Then-situations out of my control. McPeeperSpy
Be Blessed
FreeT0Live
Thank you for the information.
FreeT0Live
umm, I'm confused. just found her other channel and she vlogged in 2016?
that's a big relief though.
S McPeeky
Her best friend relayed that to me. I agree with you about being a big relief that she's still alive. I guess her friend duped me. I apologize for causing any stress.
S McPeeky
Would you be so kind as to forward Sarah's new video link from 2016? Thank you.
I can't believe that you actually want to have a child and bring a child into the atmosphere that you're living that is not only selfish it is disgusting.... you just said in your last video you and your husband didn't have enough money and now you're wanting to bring a child into this world in the situation that you're in that's really selfish that's disgusting....