POTS: How I Found Out I Have Postural Orthostatic Tachycardia Syndrome - It Took WAY Too Long

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  • čas přidán 7. 03. 2024

Komentáře • 9

  • @RebekahFOnlineTeaching
    @RebekahFOnlineTeaching Před 3 měsíci +1

    So glad you have the diagnosis. Now you can hopefully do something about it. Sorry, it took so long.

    • @LifeOnTheSpectrumYT
      @LifeOnTheSpectrumYT  Před 3 měsíci +1

      I’m hoping some sort of treatment helps. Most people take even longer than me which is so sad

  • @DiariesofaDisabledmom
    @DiariesofaDisabledmom Před 3 měsíci +1

    Sorry for multiple comments but omg the gaslighting is horrible. During my heds diagnosis I was gaslighted so hard man. Within 3 months I learned I had fibromyalgia heds and dysautanomia lol was a lot to take in and it took forever before the fibromyalgia diagnosis then when other stuff started happening I’m like it’s not just fibromyalgia. Drs looked at me like a freaking alien for the longest time. Now I can say heds for what’s happening now and they don’t look at me like I have two heads as much now. So sorry u went thru that! I use an Apple Watch but should get one of those finger things

    • @LifeOnTheSpectrumYT
      @LifeOnTheSpectrumYT  Před 3 měsíci +2

      It’s wild isn’t it?!? At least we know we aren’t crazy now.

    • @DiariesofaDisabledmom
      @DiariesofaDisabledmom Před 3 měsíci

      @@LifeOnTheSpectrumYTsorry for another comment lol but I was on the amitrypaline one. I started getting vertigo so the nuero( don’t have him anymore cuz he gaslit me on my epilepsy) took me off it. However vertigo didn’t go away so wasn’t the med. I was put on it for migraines at the time too. Sorry I just really relate to this video 😂

  • @DiariesofaDisabledmom
    @DiariesofaDisabledmom Před 3 měsíci

    I was just told I have cardiac dysautanomia and can’t be diagnosed with pots or ist yet but have me treating it like pots plus on a beta blocker now thank god. Hope u can get some help for it now

  • @Meemagolding
    @Meemagolding Před 3 měsíci +1

    FINALLY ❤