Sarah was in the hospital..
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- čas přidán 31. 05. 2023
- we just wanted to update you guys on what's been going on...
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I am a licensed mental health provider and it makes me so upset when male "doctors" tell women their physiological symptoms are just "anxiety" and don't even consider a physical medical ailment. Obviously, anxiety can cause physical reactivity but anxiety and physical conditions are not mutually exclusive. I want to scream for you! Thank you for calling him out and advocating for yourself and getting another opinion! Also, I am familiar with POTS, but not Hyper-POTS or the ANA test you mentioned. Thank you for sharing!
Anxiety causes a whole slew of physical symptoms. Those symptoms are just as real as if they had a physical cause.
@@kateri17 That's not the point. The point is...male doctors in particular, tend to blame "stress" or "anxiety" regardless of the cause.
I must say I disagree with your statement. It is not just "male" doctors assuming a female's symptoms are related to stress/anxiety. As a male myself, I went through a period that I was at my primary caregiver's office once a week and at the local emergency room just as much. I was treated by female and male doctors, both could not tell me what was wrong with me and explained it as anxiety. I am also a registered nurse so I knew something was wrong and I'd never had an issue with anxiety. This went on for months until finally, one doctor cared enough to investigate. I don't believe it is a male or female doctor issue instead, it is an issue of the doctor having no idea what is going on and it is easier for them to diagnose anxiety than to tell you they have no idea what is going on. It also seems that once a doctor diagnoses you with anxiety every new issue will be related to anxiety in their eyes. They see anxiety in your chart and they get stuck on the anxiety cycle. BTW it wasn't anxiety in my case. Anxiety was used as a diagnosis so they could push me out the door as a nonemergency and free up a room.
@@xxxxxx-il4pg , thanks for your opinion? Why would you respond to a 3 week old comment anyway. Although honestly, I'm not going to take the time to read in entirety. What may have escaped you was, this my response to a female sharing her medical story. It was not meant to be an all encompassing statement excluding male perspectives on how they may also be treated unfairly. Anyway, I hope sharing your story was therapeutic for you.
Male doctors are the most chauvinistic creatures in the world. Just ask any head nurse with 40 years of experience who has dealt with a kid fresh out of med school trying to boss her around.
I completely identify with you Sarah and all the women who shared their story.
I am a 73yr old woman and 50yrs ago I was in the hospital for severe pain in my
my abdomen. After 1 week of tests I was told that it was psychological and sent home
1 week later I was rushed to surgery because I could not stand the pain.
They found that I had a growth in my abdomen that had ruptured. The diagnosis was
Endometriosis. The “Medical Profession “ did not check for this condition. Why, because
women all had cramps “that time of the month” and some women just were not strong enough
to handle it.
The lesson I learned from this
Keep going till you find a Dr who LISTENS.
Sarah I wish you to find a diagnosis and a cure.❤❤❤
So glad you finally found someone who heard you. My sweet daughter in law has been dealing with the same issue for almost 2 years now. Started 6 months after she had covid. The only difference is she randomly passes out with her. She has been told it is all psychosomatic and she needed a psych eval. Was told that while she was lying there passed out and was tyachacardic. A few months ago, an er nurse gave us the most sound advice of all. She said, you have to be a a strong advocate for yourself because this tends to be a women’s disease and it is a man’s world regarding the medical field. She said until a lot more men begin developing these issues and a lot more women in the medical field and specialize in it that is how it stands. So yeah nurses! They know so much! Finally we have some diagnosis, POTS being one, but still have a long way to go. Good luck to you on your journey.
Absolutely right I went 11 months being told it was neteves one little women doc said no and if your primary doc doesn’t listen tell him to call me finally they did test and found the issues
POTS is no fun. I hope you find the relief, treatment and care you need🙏
OMG, I have been dealing with this for four years- heart rate skyrocketing, low blood pressure, rashes, hives after eating anything, exhaustion, and every doctor is like: anxiety. It's so frustrating. Get well.
I had a lot of those symptoms before I was diagnosed with celiac disease. I had thyroiditis and I would wake up with Adrenaline rushes and my heart would beat so fast, I would break out in those red splotches and I could feel it go all through my body. It was my body attacking itself because of gluten. Once I got diagnosed finally that it all gone and I am doing so much better! I pray they find out what is going on with you.❤️
I also have celiac! I never see people online who have it so seeing your comment made me a little happy❤️
I had thyroiditis and had those adrenaline rushes. Thought I was having a heart attack and drove myself to the hospital at 3am
Me, too!!
@@ida6417 You are not alone!!!
@@l.a.w.79 I'm so sorry you had to take yourself to the hospital! I don't know you but I would have taken you, even at 3am! I hope you are.feeling better now. ❤
Watched most of the video thinking “this sounds like POTS” and got so mad when they told you “it’s just anxiety”. Glad to hear the cardiologist was more invested in helping you figure things out. It’s so unnerving when doctors dismiss you with the “oh it’s just X” as if you’re supposed to go home and deal with whatever as a chronic vague thing.
Also the government NHLBI site has posted articles on research being done possibly linking COVID to POTS. Might want to look into that.
@@GBORT578 definitely worth looking into, imo
I had cortisone withdrawal and every doctor was dismissing me for 'stress' etc. NO! I literally had severe neurological issues
Doctors don’t say ‘oh, it’s just…’. They’d say something like ‘we can’t find an organic cause, but this is consistent with anxiety. We have many different things we can try to get relief for you. If you develop new symptoms, let us know.’ Just because a patient finds an answer unsatisfactory doesn’t make it incompetent. House was fiction.
@@shamelesshussy well just be happy your experience is different because in my case that is exactly what they did and worse. I had nerve damage from cortisone but they said "your symptoms are just from stress from flying" doc1, "you are just at an age you need to make decisions in life" "you just want to understand things" and then not explain "you cannot get sick leave because you do not have a medical issue" when I was puking all day "you are used to feeling perfect and now you are not" doc2, "I am not going to waste my spit explaining this to you" doc3, "if it was not this you would have had something else" doc4 so they do just say those things. Or the lovely "it is not real, it is all in your head/between your ears" well yeah my brain is there indeed.
York Cardiologist in the UK reports that a significant number of people have developed POTS up to 6-8 months post Covid as part of long Covid. Hope you get some answers quickly from your clinicians because the uncertainty in this situation must be extremely stressful. Good luck and hope you feel better soon.
"long COVID" is bull shit. They call the side effects of a specific medical procedure long COVID to keep on fooling people. Put your thinking mind on!!!
Either long covid or the other one, if you know what I mean. I am literally praying for Sarah because she’s a good person and I hope God will heal her.
lol... never mention the vaccine XD... it's "long covid" of course
Yes! The jab is causing all kinds of emergency medical situations all astound us. I've lost my Grandmother, 2 Aunts & 1 Uncle. (All Covid Vaxxed) 😥 😠 💔 Paying for Sarah!
@@normaortega4654 and unless the gov admits that, that’s what’s causing issues, they won’t begin to treat it.
As soon as you began to explain your symptoms, I thought immediately she has POTS. I'm glad you finally got the proper diagnosis. It took my daughter years of urgent care, emergency rooms, and cardiologists to finally get hers diagnosed and under control. It is so scary to have and to watch someone you love suffer from it.
It's SO annoying how hospitals always tell women they're having panic attacks 😡
Yep it's tragic 😢
Women and our partners need to understand the extent to which we HAVE to advocate for ourselves. Often when we’re already struggling physically. Men who are in relationships with women, please understand this. We ARE treated very differently than you by the healthcare system; you CANNOT interpret things the same way as if it were happening to you, because you are much more likely to be believed, treated appropriately and to have research backing up YOUR care. It’s only been in the last decade or two since women have been accepted into non-OB/GYN research trials. Please be ready to not allow your female partner to be brushed off even if you have to be a jerk about it.
Don’t believe me? Typical. OK, just in case I’m “lying” or “over-reacting” 🙄, ask a few of your female friends and colleagues about their encounters with healthcare.
@@merkinidgit I tend to agree with you that women aren't take seriously or believed, tho I also believe it's a general problem that happend to everyone and that it can also easily happend to men.
My father had Amyotrophic lateral sclerosis (ALS) and before he got diagnosed he used to go to a lot of doctors and he's been told for god know how long that he was just exhausted, that it was depression, psychosomatic, that it was in his head.
Wish everyon could be taken more seriously and believed 🙏
They do it to men as well. I know from experience.
YES!! They did that to my cousin who finally got to a hospital while having an episode, previously they’d ended before a medical professional could check her out, and this time her heart rate was in heart attack territory. Turns out she’d had a congenital defect that went undiagnosed until it began causing these problems. A quick procedure later, she’s fine. But those many misdiagnoses of “panic attacks” could have literally killed her.
Praying for Sarah…and you too Carlo. You’re so lucky to have each other.
When you started describing your symptoms I immediately thought about POTS. So glad you’re in a place with good doctors. It takes many many years sometimes to get that diagnosis. As for the rash, an allergist/immunologist or other specialist (sometimes hematologist) can look for mast cell activation syndrome which often comes with POTS and hyper-mobility too. Best wishes
Sarah, I am praying that you get answers STAT. I had a similar story to you. I was experiencing this excruciating pain in the mid - semi upper part of the left side of my rib cage. I went to dozens of doctors / hospitals / Emergency Rooms in 3 different states, and each person I saw basically said they had NO clue what the situation was, they ccouldn't find anything wrong with me. I had more x rays than I can count, multiple CT scans, 3+ MRI's, and was still told that there was nothing wrong with me. This went on for 18 YEARS, Sarah. 18 YEARS. Finally, last year (last year was year 18, I am currently in year 19), a doctor at a hospital in rural Northeast Michigan took x rays and did a CT scan, and FINALLY found a hiatal hernia AND a congenital hernia on my diaphragm. I have been going around in circles trying to find a surgeon who would operate on me to correct the hernias. Thankfully, I have an appointment with one that I have a good feeling will actually operate on me. A couple months ago, the pain got worse and the area where I was experiencing the pain got bigger- it covered alot more surface area, and it was so bad that the doctor at the E.R. I went to a couple months ago barely touched me and I started screaming in pain so loudly you could hear me 3/4 of the way down a long hallway. An updated CT scan showed I also have an enlarged spleen. When I spoke to my PCP about THAT, she said that the enlarged spleen was showing up on every CT scan I had had done over the last few years. NOBODY TOLD ME UNTIL MARCH 2023!!!!!!!!! My PCP said it was nothing to worry about, but I am going to ask the surgeon I have an appointment with in a few weeks what HIS opinion is on the situation, and see if HE thinks I should have it removed or not, because I am not sure I really trust my PCP too much at this stage, seeing as that she has kept that crucial piece of info from me for like 3-4 YEARS. The enlarged spleen is the bigger of the reasons behind all the pain I am in, but the 2 hernias are making the pain situation considerably worse.
I tell you all this partly to show that I understand what you, Sarah, are going through, and partly to encourage you and ALL your followers to advocate for themselves medically. And if someone can't advocate for themselves, I encourage you and / or your followers to find someone who can fiercely advocate for you so that you don't suffer, and that you get the CORRECT diagnosis and treatment by the CORRECT doctor(s), who actually knows what they are doing and aren't some hick from nowhere who got his or her medical degree from their child's cereal box as a "prize". I pray you get well soon, Sarah, and all of your followers who are experiencing serious medical issues
I am glad that you are okay Sara. I myself had a double bypass open heart surgery in 2017 and survived. I am glad that you didn’t have to have open heart surgery. You and Carlo inspire me to just be myself. Thank you very much.
It’s so tricky when you’re having all of these symptoms…it could be anxiety, POTS, perimenopause, the list goes on. But, it looks like you’re close to a firmer diagnosis, and I’m happy that you’re out of the hospital!! Praying for your healing!!!
Wow so sorry you went through that. And reading through the comments and seeing how many others struggle with the same undiagnosed scares makes me so sad for everyone. I really wish that hospitals and doctors would focus on making people feel better and live their best life rather than money. Hope everyone is able to find some peace and good health ❤
I hope you get an acurate diagnosis soon and that it is something that wont turn your world up side down. Best wishes for a quick recovery. Much love from Denmark
I’m so sorry you’ve been feeling like this, I hope you’ll be able to figure it out soon now! Just wanted to put it out there that you should check if they tested your vitamin B12 levels when they checked your blood. I presented with similar symptoms (orthostatic tachycardia, extreme fatigue, tingling/tremor in arm and hand, memory problems, brain fog) and went to the doctor for suspected POTS, B12 came back deficient so I started frequent injections and the symptoms have started to clear. It’s possible to get symptoms when your levels are in the grey area (where you’re slightly above deficient) and it can be auto-immune, pernicious anaemia.
Research parasites! Especially if your jabbed!
Glad you are on the road to
Recovery!! Im not kidding when I tell you that since my daughter was born via emergency c-section - I’ve had no less than 30 surgeries including multiple kidney stone surgeries, 2 spinal surgeries, skiers thumb repair, a lipoma removed 3 times, and surprise knee surgery. I have medical PTSD. I woke up last August’ and my glasses just stopped working- and I needed bifocals- overnight.
I have just had a spine surgery 4/19 and within my recovery time I’ve been told I have to have knee surgery. I got that because I knelt down at my 41 year old friend’s funeral.
When I tell you the gaslighting and the attitude of the people in the doctors offices.
Thank god for nurses. I’d be dead without them!
I've had 10 heart surgeries in the last 2 years, my normal heart rate was around 190/200 a minute, and that was sitting or laying down, so when I think that someone has 140 pulse I'm like, I wish I had that pulse :) Anyway, I was passing out so often that I got used to it. Now It's a different thing, it went to bradichardia after I got covid so now I have pacemaker implanted after all the surgeries and covid.
You have to take care of yourself and go to the doctor as soon as you're not feeling well, whatever the problem is.
I’m so sorry your going through this. I have recently been through the same thing and am working towards an official POTS diagnosis. I am also a nurse so I completely understand where you are coming from. I live in CT and my doctor recommended that I go to Brigham and Women hospital in Boston and contact their autonomic neurology department. I hope you get some answers soon and start to feel better ❤
Lots of people that had the Covid vaccine are getting diagnosed with POTS. My previously healthy friend now has myocarditis. Please look at the stats for increase in heart problems post vax
Untreated POTS is incapacitating
Covid vaccine contraindications stated it could cause autoimmune diseases, and any pre-existing ones would be made worse. I’ve got vitiligo, which is why I refused to be vaccinated.
I would look at vaccine detoxing
Even the WHO are now admitting the vaccine may cause MS
Yes, detox protocoles! All the best💓✨
@@babymammoth6254 many many more (orders of magnitude) get it from COVID.
My thoughts and prayers are with you Sarah and Carlo as you travel down this path of uncertainty. Diffidently, if you have symptoms like what you had/have Sarah go to the ER and get it checked out and don't take that "easy" way out. Follow your instincts, there is a reason your "instincts" kick in. When you feel like you're going to die that's a Very Good Clue to Something is going on, not anxiety. Blessing to you both and please keep us updated. I hope to the beach for fun. Amen 🙏
Get well soon Sarah. Sending love and healing. I hope you find out soon what you have. Bless Carlo for taking such good care of you. Thank you for letting us know.
I didn't know you were both fellow RNs! I'm a Registered Mental Health Nurse (UK).
Sarah, that sounds like a frightening experience. I experienced something similar with a gastric ulcer (It's just anxiety, night duty, stress... OMG! I can't climb the stairs!!!).
I honestly believed I was going to die, whilst waiting for the ambulance I sat in my porch because the slightest activity made my muscles burn.
I can truly empathise with that panic that 'this is it!' - I wish you a speedy and fulfilling recovery!
Hey sorry hear, hope feel better Sarah
These longer format videos is 1000 times better than the reels, keep it up !
So glad that you're ok. Please prioritize your self care. As women, we tend to think about everyone else, and neglect ourselves. Love your channel! You two are such a fun couple! Take care❤
So happy you're getting better, my husband went through those same exact symptoms but he took an antibiotic and had an adverse reaction which basically poisoned him . He has what's called flouroquinolone toxicity so If you took any antibiotics like Cipro, levaquin etc before those things happened it doesn't hurt to check .
So many things in common with this story including being a nurse. But it turns out I have MS for which there are a lot of good treatment options these days. Honestly knowing it was MS was a huge relief believe it or not! Autoimmune things can be so tricky and take so long to figure out.
Blanket statements aren’t helpful. My MS was diagnosed in five weeks. It was disorienting and out of the blue. It wasn’t a battle I fought, it was brutally clear cut.
I am so sorry to hear that you are suffering Sarah. I personally had a struggle where dealing with the ER doctors for an accurate diagnosis led to developing of a panic disorder that persisted for a year and a half. I only deal with generalized anxiety disorder now with occasional anxiety and panic attacks but it is not debilitating anymore and I am doing well. But hearing you go through what I went through made me feel so bad for you. I hope you are able to get some form of treatment (if available) and that you feel better soon. Until then, do what you need to to make it through the day. Love you both 💙
Thanks for the update! Glad you are doing better now and hope all turns out well for you! Love your videos 😊
Never heard of POTS but it is interesting to see what I can learn about it. My daughter has this same issue and gets the same diagnosis as panic attacks or anxiety attacks and the brush offs. Thanks for sharing❣️happens you get good care and final diagnosis and great treatment options❤
I've had similar symptoms, they ended up diagnosing me with hyperthyroidism. It may be worth your while to get your thyroid checked. I hope you get the answers you need to start getting this under control. 💞
So very happy you are feeling better. Hope you find out what exactly is happening but so glad both of you are nurses and aware when something is very wrong. Please keep us updated. Take care yourself and take a rest. Just relax and work on your help. Carlo you are a great husband. Make sure she relaxes and rest.
Sarah, I'm so glad you are doing well. You and Carlo are perfect for one another. God bless you. I'm glad the Lord healed you. Have a great vacation guys! Love your channel. !
Prayers for both of you.🙏🙏🙏🙏🙏🙏🙏. So glad you posted this.
Oh wow! Thank God both Carlo and Sarah are both nurses! I cannot imagine what Carlo was feeling during that! I am relieved that Sarah is feeling better!
I’m so sorry you’re going through this! I think doctors are full of shit when they tell women they’re having a panic attack. As a medical assistant and a woman with common sense, I knew right away what this was. Always listen to your body and what it is telling you and find a doctor that listens. Blowing off a patient with medical gaslighting is not okay. I’m glad that you and Carlo have each other and sending lots of love and prayers to you both. Also sending love and prayers to whoever is reading this comment. ❤🙏❤️
Thank you for sharing your story Sarah. What a jarring experience that must’ve been for both of you. I understand the symptoms you experienced. Continued prayers for you. Thank you. 🙏
Oh boy !! Sarah!! Feel better bella!! and thank you both for being nurses. I didn’t realize that you were that’s the first I’ve heard of that from any of your videos. That’s awesome take care and I hope you had fun at the beach and got your vitamin D.🎉🎉
Oh wow Sarah...I'm sorry to hear you're going through this. I experienced the same symptoms right before being diagnosed with lupus. I had severe tachycardia in my sleep where I would be jolted awake as well; I had rashes on my neck, midriff, legs, etc. I eventually had fevers too, and experienced alopecia one or two years after diagnosis although I don't know if that was due to stress or lupus. For me, food triggers my flares, so whenever I eat junk or anything with high saturated fats, I get rashes and arthritic pain. Mine is genetic because my younger sister was diagnosed first. Her symptoms showed up in different order though - she experienced hair loss and edema first.
I hope you find the information you need! Thanks for sharing your personal experience. You're super strong for being able to talk about it.
Omg! That must have been so scary! Can’t imagine this. So sorry to hear this Sarah! Hope you get to figure out the right diagnosis so you can prevent or manage your symptoms. Sending prayers your way from one fellow nurse to another ❤
Check T3, T4, THS and also Vitamin D and Magnesium levels. Hope you get answers for improved health!
Thank you for sharing your story! You can deff bring more awareness and help those who need to hear their not alone. I also suffer very similar symptoms till this day I don’t know for sure if it’s POTS.
Sending you much love and may you feel better soon! 🙂
That's scary AF. Thanks for sharing. Sending positive vibes your way, you guys. Hope you had fun at the beach.
i felt those sensations exactly as you were describing them… i was diagnosed with POTS two months ago and have shown consistent symptoms for years upon years. my symptoms got so much worse after covid bc of the steroids i was put on to help my lungs, which was wrecking my heart. 🫣 a lot of my POTS friends have recommended getting in contact with any nearby support group to connect with others who know to a T what you’re going through! (there are lots of support groups in large population areas) dysautonomia is no joke, especially when it comes to keeping up with daily life. it’s definitely made me take a step back from things, but the slow pace and gratitude this lifestyle brings is so sweet. 🫶🫶
i was cleared from MS since symptoms with both are similar. so please keep us updated on other things they rule out!! hoping you meet the most approachable, understanding, and wise healthcare staff on this journey that will make it a lil easier
May God bless you with a true diagnosis soon and a miraculous healing! Thank you for sharing you probably have helped thousands of others.❤❤❤
Been waiting on an update sorry to hear prayers for Sarah and hope things settle down soon and get better 🙏
I’ve had all of your symptoms and recently seen a neuromuscular Dr in FL. He diagnosed me with POTS and I started on Propranolol. It’s helped significantly. Also increasing water and salt.
I also have autoimmune issues AS and RA. Which autoimmune issues come in pairs a lot of the times.
Wishing you the best. I hope you start feeling better really soon and find answers. Hopefully they can help you.
The first symptoms you were talking about made me think Lupus. I really hope you check for it so you can rule it out. My brother lost a girlfriend to it because she ignored symptoms and it wasn't diagnosed soon enough. I hope you get it figured out and get feeling better, and please don't wait so long to get help. ❤
Thinking of you both. My wife and I are sending you both prayers that everything will be ok. So lucky you both have each other. Please keep us updated. ❤🙏
Sarah, I am so sorry to hear what you have been going through. I pray that you are able to get the right answers and treatment. Love to you both. Ann x
Love you guys! Praying for you, Sarah and Carlo. Your love for each other will overcome any obstacles and God will be with you all the way. ❤
Hi Carlo& Sarah!! I’m so sorry you haven’t been feeling well,Sarah!! This is why I find it so frustrating when doctors dismiss patient’s symptoms!! I’m glad you’re both nurses and know what protocols you need to follow for your care!! Please take care of yourselves!! Sending prayers and love to you both!!!😍😍😍😍🙏🙏🙏🙏
Yes anxiety is what they put a lot down too without doing proper home work so glad you went to the hospital and followed up. Be well I am a new subscriber and you are such a beautiful couple. God bless you both every day.
I hope you feel better Sarah ❤️🫶🏻 sending love to you guys
Sending you good energy and healthy vibes. I’m glad you’re feeling better!❤🙏🏼
So glad you are well! ❤
That’s the important thing. So grateful that you are still here with us. Tante baci! 😘
Sorry you are dealing with this too. So many people (esp. young women) have POTS and they still tell them they're having a panic attack or it's anxiety. Makes me so mad!
We really hope that research moves faster now as covid has increased the numbers of people affected.
Also, please look up MECFS. Doesn't mean you have it, but if you did, it would be important to not overexert yourself. It's tricky to realize you have it, because worsening of symptoms usually comes with a delay of about 1 day.
Sending love ❤
My dr told me to do this as well, but on top of POTS, another symptom I have is constant internal heat from my neck up. Ears, scalp, face and back of neck. There is no outward fever registered, but inside it feels 105 and I never know when it will come and go because it’s nearly constant.
I have an accelerated heart rate from time to time and it can be a tricky thing. I can imagine how that can freak you out, especially since you actually have the nursing background to back it up. Hope all goes well!
Hope you get a right diagnostic soon Sarah. Love you both!
Thanks for that: my daughter’s been having these episodes so your vid has been useful especially about the ANA test. ❤
I had those symptoms and it was panic attacks real bad and still do. Mine was always at 2am. All you do is focus on your heart beat and your breathing. Multiple times I had to call 911. Test after test, cat scans blood work. Everything your saying is exactly what I have. The shaking is bad I can’t be in cold environments because it triggers it.
My heart goes up to 160-180 bpm, and I have PSVT. I hope you are doing ok. Sarah, I'm praying for your health. ❤❤❤❤❤
Please keep us posted! This sounds a lot like what I’ve been going through and everyone including doctors have been saying it’s stress or long covid symptoms so it might be that. I’ve never been the same since. I could be cleaning or sitting randomly and have sharp chest pain out of no where that isn’t anxiety related. It’s just so random. My simple workouts have never felt harder or simple tasks like you said. I hope the doctors figure out what it is and how to help those suffering from it.
It’s the vaccine
Are you vaccinated??
@@babymammoth6254 I think the vaccine is causing a lot of illnesses, I know many including myself that are suffering with extreme tiredness and other symptoms since having the jab, also know way too many who currently have cancer, had HA or clots
Wow, thanks for sharing. So sorry you had to go through that experience. Sounds scary. I hope you find an answer, and get the proper care.
I have POTS and my cardiologist recommended increasing my water and salt intake. I take LMNT electrolytes daily they are high in sodium so great for people with POTS and have really helped reduce how often i pass out. Working out your triggers definitely helps. Hot showers are the worst 💜
Same here!
My dr told me to do this as well, but on top of POTS, another symptom I have is constant internal heat from my neck up. Ears, scalp, face and back of neck. There is no outward fever registered, but inside it feels 105 and I never know when it will come and go because it’s nearly constant.
On top of POTS, another symptom I have is constant internal heat from my neck up. Ears, scalp, face and back of neck. There is no outward fever registered, but inside it feels 105 and I never know when it will come and go because it’s nearly constant.
THE MINUTE.... THE MINUTE you started talking about your symptoms, I knew exactly what you had! Or at least I suspected it. I was diagnosed with Long Covid and tons of us have also been diagnosed with POTS. This a very common illness for us folks. I am so sorry you are going through this. You have the BEST husband by your side. If you ever need any advice or you have questions about this, please feel free to ask anytime. I hope with a diagnosis, you are able to find peace moving forward. You are not alone Sarah! 🤗❤
You've helped me immensely. Thank y'all so much. I hope you enjoyed your beach day! ❤
I hope you get the answers you need soon. In the meantime try to remember that a positive mindset is powerful medicine. I say this as someone who has been living with cancer for 20 years. I'll be saying a prayer for you and your doctors.
I’m so sorry for what you’re going through!! It was hard for me to even listen to your symptoms because I have suffered these exact symptoms for almost 25 yrs now. I’m sure you’re probably getting a lot of people commenting different things, but I promise, I have those exact symptoms. Dragging myself out of bed, the constant heart racing, and being so short of breath..etc. mine started in my mid 20’s, 26. I wasn’t diagnosed until I was 30, because firstly I was diagnosed with horrible anxiety disorder! I heard you mention an autoimmune disorder and MS as a possibility, well I was diagnosed with MD, which is Myotonic Muscular Dystrophy. You cannot tell by looking at me, and it comes on adults in their mid to late 20’s, with a 50 year progression period. Not saying that’s what you have at all. I just hate to see another person go through literal years to figure it out. If nothing else, a good Neurologist can at least rule some of these autoimmune diseases out for you. Good luck and God Bless!! 🙏🏼✨🍀
Saying prayers for you Sarah! You guys are my fav CZcams couple.😊❤
Wow! I'm shocked it was not svt. I work in an emergency room and your described symptoms presented as svt. (I'm also glad it was not anxiety 😅). I'm glad you are OK. Sending prayers 🙏 ❤
I'm so glad you're alright! ♥️ Two years of what MD's said were panic attacks. Heartbeat was no less than 250 bpm, no lie! Finally, I blacked out, heart rate very high, three times I was hospitalized for stress. Turns out it was Super-ventricular tachycardia. My last one occurred at a well-known department store. I bent over to pick up a pair of gloves that had fallen on the floor. I couldn't stand all the way up, so I laid down on the floor. I honestly felt like I was having a heart attack. Paramedics came and I've been fine ever since. You just never know! I'll be praying for you guys!
Praying for you, Carlo, and your family ❤ sending much love and hope your way
Sarah I hope they find out what's wrong and they take care of it asap!! Wishing you bunches of great good health! ❤ you both are beautiful 💞
I know someone who had this post covid earlier this year. It lasted a good 2 months. He's in his mid-20s.
My son has been struggling with similar symptoms. Thank you for sharing. Hope you feel better soon.
Thanks for sharing what's been going on. Hope you get to feeling better, Sarah.
Heyo, hope you are keeping getting better Sarah. glad your doing better today!!
Thank you for posting this. I suffered from almost all of the symptoms listed. Will be emailing my doctor to get tested for POTS.
Oh Sarah, I'm sorry! I may not have experienced what you are, but i do get having to go to the hospital, going to tons of doctors, doing every test, etc. just to figure out what the cause of not being 100% is . Im glad you have such a great family and Carlo to be there to support you. I hope you find out whats going on soon. Sending you love! ❤😊
My 19 year old daughter had these symptoms and was diagnosed with Wolff Parkison White Syndrome. She had an ablation and has been better since. She had to see an electrocardiologist for true diagnosis. I hope you are doing better now. Best wishes!
I'm so sorry to hear of you having health concerns! I've said prayers for you. You're gonna be fine🙂. Just be patient and keep looking to Jesus. HE'S got this😉👍🏼
I'm so sorry you're going through this. Not knowing what's going on is often as hard as the symptoms themselves--when our self-preservation instincts kick in, the mind can go crazy looking for answers, and it can fill in the blanks with that feeling that we're gonna die. Then if you didn't have an anxiety attack before, you can have one on top of it all. (Happened to me, and even after things were properly diagnosed and resolved, it took a while for me to unlearn that response.)
I wish you the best, both of you, and hope you have a quick recovery! ❤
Šta ako Sara umre , Karlo bi se sigurno ubio bilo bi to kao Romeo i Julija
Same here, out of control tachycardia several times before I had care other than myself bc I am an RN. Tried all protocols to no avail until I hit 225 sustained over 4 hours-scary with a terminally ill husband at home requiring 24/7 care-and got a DX of SVT’s after a 30 day Holter test. Now all is good without any symptoms or complications. Hope you’re doing good Sarah!
My niece has been diagnosed with POTS and I have suffered through years of these same symptoms without a diagnosis. I really hope that you get a solid answer, Sarah, I know it's frustrating and difficult.
POTS has been connected to the v accine. Along with bells palsy and now MS
@@onmywayto8083 huh.. so how do you explain it being decades for me and 12 years for my niece? Retroactive?
@@cyn4476 I don't know in your case. I was referring to the vaers reports that have been connected to different vaccines injuries
@@onmywayto8083 Same with covid itself
Not true, vaccine caused far more dangerous problems for middle agers and young people...
We sure love you guys! Sarah, I pray this all pass and you can go back to living a normal life. I can’t imagine what you might have been going through! I mean every one of those signs sound like a capital T for trouble..so glad to hear your on top of it!! Just hang in there, you take it easy! I’m so happy you have a good man who will be right there with ya!
Please just hang in, listen to your body, rest when it tells ya. XO
So sorry you are going thru this Love.
I hope and Pray🙏❤️ you will get the Correct Diagnosis and Treatment very soon
🙏❤️
Omg i found you guys again you are literally my favorite people doing reels you guys make my day i always get a good laugh out of Carlo😂 !!! I hope you feel better everyday and that you dont have a autoimmune disease !! I have fibromyalgia and the pain is such a struggle i pray you dont have one sweety !! I love you guys so much keep on keeping on !!!❤❤❤
I hope you will get the answers you're seeking and that soon you'll be back to perfect health. ❤
Oh WoW Sarah, what a saga to be going through. I find it amazing how health care workers can be so dismissive without even making a proper assessment. I’m glad you are on a clearer path to finding out what this is. Carlo is so supportive and both being nurses you know when something isn’t right! Stick to that gut instinct.
I had the same symptoms for months and months, SOB, paresthesias, dizziness, heart rate switched from tachy to brady and back, extreme weakness/lethargy. I would turn purplish red. I also had POTS symptoms though not the typical POTS. My neurologist finally drew a slew of labs and discovered my B12, Vit D, Iron and ferritin were all critically low. Especially the B12 which they started on injections immediately every other day. It took a neurologist to finally get to the bottom of this. It’s still ongoing but finally doctors are taking me seriously. I also have 3 autoimmune diseases that can affect how I feel. I’m praying you’re feeling better Sarah. I also am a nurse and yes, a bit of knowledge can be a bad thing 😂 Our brains immediately turn to worst case scenarios. I’m praying for your healing.
Hi Sarah, I'm sorry you were not feeling well. I had similar symptoms and my therapist advice me to get my thyroid and hormones checked, I went to an endocrinologist with my blood tests they diagnosed me with hypothyroidism, also my vitamin D was so low I finally understood my lack of energy and depression. I'm now on treatment and very greatful for my therapist because without her I would't have taken that path!
I’ve had the same the past two years. I’m on thyroid med and vitamin D which helped. I had Covid, then pneumonia combined with Epstein bar which has trashed my lungs. Getting out of bed and taking a shower is a workout for sure. I know it’s frustrating. Hope you feel better soon.
Awe wishing you both well! ❤❤❤❤❤❤
I have several people that I know and after they were vaccinated after a few months they also had fatigue or heart problems always flu cough or fainting or whatever strange diseases.Also an eye inflammation on one side.
You are without doubt the cutest couple on earth. When I hear Carlo trying to pronounce some words and gets them half right, it reminds my of my late Italian Mother-in-law. As for those Doctor's with their dismissive attitude, I had the same problem, one flat out told me it was all in my imagination. I could be sitting still and my heart rate would go so fast I felt like my heart was going to jump right out of my body. It took a woman Doctor who sat and patiently listened to what I was saying that found out my problem and steered me in the right direction and specialist that was able to treat me. I am quite old, but thanks be to God for the Doctor who did listen, I now have a better quality of life. Just remember that the squeaky wheel always gets the most attention, keep asking questions. Good health to you both, and God Bless.
I'm so sorry you were feeling bad and hope you get better soon! I've had similar episodes and was told the same thing, oh it's just anxiety or a panic attack. Some doctors are so quick to say it's anxiety. I had labs and all that, and they couldn't find anything wrong with me. It just gradually went away on it's own.
Girl, I feel ya. 😓 This is everyday of my life. Before you even said it, I was like that's Dysautonomia, 100✓. Can't tell you how many times I was told you have anxiety...it's so frustrating. Even when I have my worst attacks I don't go to the hospital anymore, cause they never do anything overall, and have no idea how POTS works...sadly it just causes more trauma for me. I've had to become my own doctor. I have EDS, HyperPOTS, MCAS, PCOS, Hypothyroidism, and major GI issues. It hit the worst in my 30s out of nowhere...more than likely hormone changes influenced it greatly. Sending all the love and encouragement to you. Hope you can find a good Autonomic Specialist if you're able. ❤❤ Stay hydrated, electrolyte up, compression socks, pickles, coconut water, ice packs often help the temperature regulation issues and help stop blackouts, lying down with feet and legs elevated, small meals with protein (less blood rushing to the gut to digest), shower stools and cool not hot water, room fan...those are just some of the tips and tricks of the POTSy world. Welcome to the Spoonie 🥄 and Zebra tribes. 🖤🦓🤍 Wishing you all the best as you navigate this journey. 🙏🏻🫂💪🏻
Dude, that is so scary!! I'm sorry you are going through all this. I'm so glad that you are both nurses so that you have a better idea of things that are going on with your body. Because some people can go in with those symptoms and just be brushed aside by a doctor that's telling them it's anxiety or panic attack and they just take it at face value and leave because they don't know any better. How was your potassium level when they did your blood work? When I got diagnosed with diabetes my potassium was so low that I couldn't move my legs and I was having heart problems and I for real was paralyzed for a couple of days from it. I'm praying that you get better results and that whatever it is that you're going through is not life-threatening and that you can persevere through it! I'm praying for you both!! Hang in there and keep your heads up!!! 🤍
My favorite Couple Always 🇺🇬🇺🇬🇺🇬❤❤❤❤
Another RN here. I have dysautonomia too (just not POTS type) and EMS told me it was anxiety too. Autonomic testing confirmed the dysautonomia and treatment has helped a lot.
When you were explaining things, POTS came into my mind because my daughter has had it since high school but was not properly diagnosed until she was 24. Her service dog, we got for her when she was in HS, helped a lot!!
I really hope you get better. Hang in there! 😊😊🙏
Hey sweetheart… 4 years ago I was diagnosed with POTS Syndrome, and this REALLY sounds like a lot of those symptoms… I would definitely research it and ask your Doctors about it. Much love to you and Carlo
Plain Old Telephone Service is a syndrome now?
@@tmf866 Postural orthostatic tachycardia syndrome