Juliana, Follicular Lymphoma Survivor | Stories of Hope
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- čas přidán 26. 02. 2020
- "I can see that there's hope. I can see that there's an organization that's making a big impact in a disease that has affected my life."
When Juliana was diagnosed with follicular lymphoma, she was overwhelmed with the thought of having cancer--especially as a young adult. After finding the Lymphoma Research Foundation, she connected with other young adults, received peer support and the knowledge she needed to be her own health advocate.
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The Lymphoma Research Foundation is the nation's largest non-profit organization devoted to funding innovative research and providing people with lymphoma and healthcare professionals with up-to-date information about this type of cancer.
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I'm 66 just recieved this diagnois of Follicular NHL a few months ago. Went thru 20 Radiation treatments a few weeks ago. See Ongologist after scan on Feb 22 2023. I'm very hopeful. It was Stage 1-2. Praying
I hope all is well with you. Did you experience night sweats/sweats prior to your diagnosis? Swollen nodes? What prompted you to go to the doctor? How did they diagnose you, with a PET scan?
How was your scan in February?
How are you now?
@@laurieyoung4445 Doing well thank you. On scan shows it is gone. Will keep eye on it
@@Hamigal yay! Thank you for sharing! It gives me courage- to go through the treatments 😜
@@laurieyoung4445 Prayers for you. You can do this. God bless
I've been fighting Non Hodgkin's Lymphoma for 15 years. I've had chemo, radiation,CHOP, Rotuxamin,Budabistene and gamma globbing treatments. This attacks the lymphatic system and is inoperable. It doesn't stay in remission very long. I'm currently in treatment.
Have you and your doctor discussed Car T Cell Therapy?
High Dose Vitamin C IV, Ozone Therapy, Etc. Do your research! 🙏🏼
Best wishes and good luck to you Patricia
lovely video
Never give up, there are so many treatments out there , i my self have this also , just finished up treatments and will know more in April, we got this !!!
Kevin, can i ask about your treatment? Were the cycles monthly? How many cycles? Were you sick after first treatment or did the side effects increase as you progressed with each chemo session? Were the side effects enough to stop you doing normal things throughout, or just the week after the treatment? Sorry for all the questions, I am on Watchful and Waiting at the moment, but sense it may be progressing and soon have to have Chemo.
@WilshirecityBlues Thanks, Yes, still in holding pattern, the longer I can stay in this phase and not undergo chemo the better. I am hoping they get Immunotherapy sorted and up and running as a replacement for chemo in the near future. Yes they are making great strides forward in this area.
Thanks for the video,
I'm also a patient of Follicular NHL and I have just started chemo, it was troublesome, I was hallucinating, week but I was eating normally, not vomiting, but my blood pressure was going so low after the cycle of chemo, Monday I'm going to the second cycle, I don't know how I will react. Mine is grade 2, stage 3a cancer
Hello,
I am going to my 6 cycle chemo on Thursday.The first one was the worst,as well as you I had really low blood pressure,but on the next cycles it was absolutely fine.
I hope your treatment will be good with no side effects.
Does this cause hair loss?
@@user-oc4od4sv7lIt depends what type of therapy you have.
I had bendamustine and obinotuzumab and I didn't loose my hair.
But on R-Chop or G-Chop people are loosing their hair.
Thank you for sharing... I was just recently diagnosed with follicular lymphoma. Can I ask what stage you had? If you don’t want to share, I understand.I’m looking for testimonies of hope...
Hi there. How are you doing now? Could you pls share to us some symptomps you felt before getting diagnosed?
@WilshirecityBlues i got no other symptomps except swollen lymph nodes. I am scared. I have checked them out actually but all the blood count came normal, and all are small so they say maybe need an observation first. Mine have been there for a long time actually. So i thought it's just normal.
Yeah, i read about follicular too, one thing that scares me that this type of lymphoma actually cant be cured, and treatment shall not be given for some who don't experience other symptoms. So, i am scared to find this out even further :(
@@fakhruddinzam-zam3333 I have multiple swollen lympnodes that are under both arms. I have had them over a year. I had blood work back in 2020 that came back normal. I had just found one swollen node at that time. Now I have multiple in 2021. At times I feel throbbing or a burning sensation. They do not hurt but are tender when you start feeling on them. My dr. yesterday did more blood work and is sending me for an ultrasound on them. But I have no other symptom's. I am not even sure if i should be worried or not since i have no symptoms and blood work is good.
@@biggtoria5031 exactly the same.
@@biggtoria5031 i am not sure whether mine appeared together or one by one. But one thing i remember my swollen lymph nodes around the neck have been there for years, probably 5 years.
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