I have really bad news| CT came back| I’m sorry guys

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  • čas přidán 23. 05. 2020
  • My CT results are in and they woke me up explaining what the results mean, how they are going to effect me, plan for treatment and what this means in terms of the change in paths I’ll be taking as well as some challenges that are to be expected down the road
    Hi, my name is Olivia!
    I was born with a rare genetic condition known as Ehlers Danlos Syndrome (EDS for short). Living a normal life with this condition while receiving proper treatment and support is just about as rare as the condition. EDS causes a multitude of secondary conditions and with each secondary condition comes complications. In return this causes many medical professionals to reject patients that live with EDS out of fear from the unknown. This causes strain on ones mental health.
    My goal in life is to help those that struggle with mental health by becoming a motivational speaker as well as raise awareness for EDS. I came to know of my life purpose through a miraculous experience that brought me faith. The struggles of this world are big and try to tear me down but my God is much greater and beyond the dirt of any planet.
    What is EDS?- www.ehlers-danlos.com/what-is...
    My experience with EDS- • My Rare 🧬Genetic Condi...
    My secondary conditions- • P.O.T.S ❤️| THE TRIFEC... , • My Progressive Disease...
    Link to Purchase Merch:
    Channel T-shirts- www.bonfire.com/oli-keeping-t...
    Born Rare Merch: www.bonfire.com/born-rare/
    Just want to donate? Click on this link-
    www.gofundme.com/f/21bw1arho0...
    E-Mail Me @- olikeepingthefaith@gmail.com
    Follow Me on Instagram @- oli_keepingthefaith

Komentáře • 3

  • @ericschmidt6
    @ericschmidt6 Před 4 lety

    💙💙💙💙💙
    You’re an amazing person, it will all be over eventually! The update are really good to see! You’re the best, keep battling!

  • @clairerobbins694
    @clairerobbins694 Před 2 lety

    I know how it feels when they have to suck stuff out of your stomach . After a few of my surgeries on my stomach they had to use a NG tube to suck out the extra fluid. I think in my case it was just for normal post surgical drainage because of the natural microscopic openings in my stomach caused by surgery. I know that in your case it sounds much more complex. I am very sorry that you went through this and I know it was not easy and you are so much stronger now because of it ❤️but I know it was not pleasant and it was very painful at the time. Praying for you 🙏💕

  • @user-ef5br1lu2y
    @user-ef5br1lu2y Před 10 měsíci

    JESUS LOVES YOU SO MUCH AND ALWAYS KEEP YOU'RE FATH AND GET WELL SOON 3:11