EDS Vlog - Skull Sugar Spoon [29.03.18]

Hi there, and welcome. On this rainy day I varnish my upcycled zebra table, open some parcels, and re-organise my bedroom. I also talk about my mum cleverly trying to paint me as a bad person.
These are short, daily video journals showing my chronic illnesses and how I live with them as a disabled woman in her 20s. I'm a wheelchair user with Ehlers Danlos Syndrome (hEDS), digestive problems, hypoglycaemia, gluten intolerance and Postural Orthostatic Tachycardia Syndrome (PoTS).

[@lndnbiker]

Hi I'm Alan I have just subscribed to it channel and this is the only blog I have watched of yours where it not smiling even after all u go thru u still put a smile on that pretty face u are a superwoman and anything I can do to help I will xx

[@camelcamelz8835]

Hi,I'm known as Camel,I've just subscribed to your channel.
I too have a skull spoon !
That isn't why I am interested in what you're talking about and want to message you,lol, but is why I'm commenting on this particular video.
I'm in my early fifties now, and I have been in extreme pain and fatigue since my mid twenties.
There's nothing wrong with my bones or muscles , but my central nervous system is cattle-trucked. I was misdiagnosed and not taken seriously by the NHS ,not believed by the benefits agencies and I totally get how frustrated and down you get at times, and I also appreciate how determined you are to maximize what you're able to achieve.
I'm a biker living in Portsmouth uk, our conditions are very different, but we're both going through similar struggles in the same world.
Respectful hugs enclosed. 🐪

[@leejaynes5918]

Hi sweetie pie my name is Leanne I'm disabled lost my legs in wheelchair full time I totally understand how you feel hun, I believe your mum has never excepted what's happened to you. She is the one that needs help she should see a councillor to get her head in right place. Your a beautiful girl keep smiling hun . Hope you got your new power wheelchair lots love xxx Leanne x

[@ekasejoak3953]

yuo is my hearts

[@pissedoffmarine7908]

I'm sorry you have to go through that. I left my house when I was 15 because my dad was even worse. You have a great attitude keep it up young lady. 😘

[@jasonhardy1664]

You are doing the right thing, its best to talk to someone, instead of holding things that bother you to yourself its a wat to vent.

[@jasonhardy1664]

way

[@carlstroud113]

Your Mom seems to an angry person and lashes out at you. Continue to paint and do the things that make you hsppy!!

[@Winterjas]

honestly, I think your mom just has a whole bunch 'o problems. I hope your own will be solved soon(ish)