My Chiari Malformation Story ~ BracedandFused

Chiari Malformation is something I had never heard of prior to being diagnosed this year. I wanted to share a bit about my diagnosis experience and some Chiari information with anyone else who may be walking this path.
What is Chiari Malformation? 1:15
My Chiari Symptoms (not an exhaustive list) 2:45
Where does Chiari come from? 4:11
Chiari Treatment pt. 1: 4:29
My Chiari Diagnosis: 4:58
Chiari Treatment pt. 2: 12:45
*I am not a medical professional. All medical decisions should be made in consultation with a medical practitioner.
#eds #csfleak #spinalfluidleak #pots #cci #craniocervicalinstability #aai #tachycardia #ehlersdanlossyndrome #ehlersdanlos #disability #chronicillness #invisibleillness #spinalfusion #dysautonomia #decompressionsurgery #chiarimalformation #chiariwarrior #aspenvistaTX #neckbrace #disabilityawareness #spoonie #spoonielife #zebra #hEDS #mobilityaid #accommodation #inclusion #potsie #hypermobility

[@theseventh5204]

The symptoms sound the same as a csf leak. You can also get a pseudo chiari because of a csf leak so the Drs need to be really sure of the diagnosis. Thank you for posting.

[@donnacorder3911]

I would like to know of support groups for Chiari

[@hellodaydesigns]

Thank you for posting this!!

[@talishacrawford1405]

Hope you are well. I am one year post-surgery. #uconnhealth

[@richhunt7662]

I hope you’re doing well! Did you have your surgery yet?

[@janeausten7411]

Do you have an email for questions? I am recently diagnosed and would like the name of your specialist

[@heatherhughes8180]

Could you please share his name?