New Data Shows Delay in Anti-CGRP Medication Response for Some
Vložit
- čas přidán 27. 07. 2024
- Episode 129: Have you been failed by the anti-CGRP monoclonal antibody treatments? How long did you trial them before deciding they did not work? Brand new data presented at last month's American Headache Society meeting shows that a certain percentage of migraine patients take longer to respond to these medications than we originally thought. Does this mean we should trial them for a longer period of time before giving up?
Lindsay Weitzel, Ph.D. talks to Tim Smith, MD, headache specialist and migraine clinical trial expert about how this new data and how it affects us as a migraine community.
Follow the National Headache Foundation's podcast HeadWise, as host Lindsay Weitzel, PhD, has informative discussions with headache experts on the latest treatment, research, lifestyle recommendations, and personal stories about living with migraine disease and headache disorders. HeadWise can be found on Apple Podcasts, Spotify, Stitcher, Overcast, or wherever you get your podcasts.
Subscribe for more episodes just like this: / nationalheadachefounda...
====================================================
Visit our website:
headaches.org/
====================================================
Follow us on social media:
Facebook: / nationalheadachefounda...
Instagram: / nationalheadachefounda...
Twitter: / nhf
====================================================
Download our podcast:
Apple Podcast: podcasts.apple.com/us/podcast...
Spotify: open.spotify.com/show/6Ip8umh...
#podcast #migraine #headache #healthcare #cgrp #monoclonalantibodies
I am so glad this information is finally coming out! It took 7 months for mine to really start working for me. I wanted so bad to tell someone that the trial wasn't long enough for some, like myself, but I didn't know how. It is a relief to hear that others are on top of this.
I’ve tried Ajovy, Aimovig, Emgality, and Vyepti, a year each on the last two. Finally I’m on Quilipta and that works since it’s daily medication rather than an injection once a month. And it worked pretty quick, the first month!
That’s great! Did your insurance balk at covering it??
Thank you for sharing. My doctor just recommended this (since Aimovig suddenly stopped working and Emgality has not worked at all). I will give it a try. I hope you continue to get relief!
@@truthprevails7085 It took about a month to get it approved. At that time I was getting Vyepti infusions which were about $20k and that was covered. So no brainer to them to approve something cheaper lol
I’ve been suffering with migraines for almost 30 years and have tried just about everything. The first and only treatment that has ever worked for me was Aimovig (a monocolonal antibody). It took 8 months for it to begin working at all. It then took my migraines from 20+ days per month to just a few days. It was amazing and a dramatic life change that lasted for over a year. But about 1 and a half years into the medicine, it stopped working and now I’m back to almost daily migraines. I began a new monoclonal antibody injection. 5 months in and still no success.
The same for me! I’ve tried all but Vyepti, due to insurance denial- even with doctor appeal. Of course most are given “free” for a year and then over $1,000 a month so IF they worked I would never be able to afford, even if I were working as I am out on long term disability for over 10 yrs. I’ve had migraines my whole life but only of course diagnosed by a neurologist at 19, now 50. Nothing really seems to relieve
I would like to know if his six month trial advice is the same for vyepti patients or if this study looked at those patients since we get an infusion instead, every three months? I am on my second infusion of the highest dose and want to know how long to give it to know it is working at it's best it will work for me.
Etta O.
Tried Vyepti for chronic migraines and a ileostomy take down, this was the worst experience I have ever experienced. It shut down my whole bowl system down for months. The Vyepti only worked for me a month and stopped working for the migraines. If constipation was listed as side effect, I would have never tried this horrible drug. Have tried most everything for the past 40 years. Waiting for the next wonder drug for me.
Thank you, this gives me a lot of hope! Hopefully I can extend my trial period, I'm at month 2 and it's not working yet but many treatments have failed me in the past. Maybe I just need some extra time with this one.
Is there a link to the study you discuss?