I have psoriatic arthritis. And I’ve had it since my late 30’s. By age 47 I had to give up my career. It took a long time to diagnose it. My journey has been difficult. Very difficult. I’m thinking about doing a CZcams channel to share my journey and hopefully it would help others out there. Leslye
I was in so much pain my unkles, left knee was always swollen and so much pain, toes ,lower back, fingers ..i've tried everything , methotrexate, alot different medicines, most gave me nightmares and excessive sweats at night.. ive tried fasting, for 21 days got better but pain was still there.excercise, Also i've tried strict diet still no relief..i was so depressed... i know how you guys feel right now, i absolutley feel your pain. I consider myself prety tough man but feeling tortured everysingle day almost 24/7 for 2 years almost none stop it will break u down slowlly..i will admit ive cried.
I'm 54 and her description of her symptoms is literally me today - in bed with hip pain after vacuuming the apartment and doing laundry. I have psoriatic arthritis and am on immunosuppressants. I was walking with a cane for 6 years but had a knee replacement, and now walk unassisted. I work full-time, which is hard work and I get to the weekend with very little left, but I am also nearly finished a Master's degree (part-time). The fatigue and pain are tough but I am stronger.
Thanks for sharing. It was a comfort to see that I am not alone. I really get what you mean when you say people can’t see it, but I can feel the pain. I’m a retired math teacher.
Thanks Michelle, I've just been diagnosed with Psoriatic arthritis, which I had never heard off, which I am totally blown away by. I feel like I'm walking like a drunk person,, I feel like I have less muscle and leg control. Thanks for sharing your story.
I'm 28 and was diagnosed with psoriatic arthritis a year and a half ago. I spent 4 years telling my family doctor about my foot pain and discomfort/pain throughout my body and arms. he was reluctant to refer me to a specialist because he said the specialist would say the same thing as him (which was him not knowing why I was in pain, which is dumb because that's what seeing the specialist would be for). He finally referred me to a specialist in 2021. She ran some scans and blood tests, discovering that I had markers for arthritis in my bloodwork. I was finally referred to a rheumatologist who has been so nice and helpful. I'm on a medication now that has been life changing. Before, I couldn't play sports let alone walk a few blocks (I'd take the bus for what should be a normal 10 minute walk). Now, I feel like my age again and can move around comfortably
I’m 48, was diagnosed when I was 33 and worked as a MA in Dermatology alongside a Rheumatologist. I use a cane most days now, have had neck surgery, am on immunosuppressants and no longer am able to work. I get ocular migraines frequently and even went into metabolic syndrome months ago. Two years ago, I was boxing and completing obstacle courses for fun. Now it’s a good day if I can get one load of laundry done. Walking is made difficult because of enthesitis.
I was just diagnosed 2 days ago with it by scalp and pain in wrists and shoulders. Can't wait too...i find my right med and feel better again after 2 years of pain!
I feel like my version is a lot worse, my crutches are with me for months at a time, the pain makes me black out some nights. I am just now getting treatment after 10 years (the VA does the bare minimum and I had to push them and educate them on psoriatic arthritis).Its too bad the tuberculosis I got on deployment is also ravaging my organs, and they tried to blow that off too, the VA does the bare minimum for vets and I am not surprised at all veteran suicide is as high as it is, sometimes it seems like the only option.
Had a terrible side effect from a couple biologic injections and now I'm scared of trying anymore. Currently back on methotrexate and leflunomide but can't say they're doing anything for me.
I am 34 and diagnosed last year with PsA. I’m a land surveyor, even my doctor can’t understand how much this is killing me. Because she does not have empathy. You’re lucky your doctor spent an hour and a half with you. My NP spent 15 min telling me about it. Probably because I have shitty insurance so I will remain in my poor grave with my poor family (deceased) hahahahaha this makes me feel like I’m going CRAZY.
I have psoriatic arthritis. And I’ve had it since my late 30’s. By age 47 I had to give up my career. It took a long time to diagnose it. My journey has been difficult. Very difficult. I’m thinking about doing a CZcams channel to share my journey and hopefully it would help others out there. Leslye
I was in so much pain my unkles, left knee was always swollen and so much pain, toes ,lower back, fingers ..i've tried everything , methotrexate, alot different medicines, most gave me nightmares and excessive sweats at night.. ive tried fasting, for 21 days got better but pain was still there.excercise, Also i've tried strict diet still no relief..i was so depressed... i know how you guys feel right now, i absolutley feel your pain. I consider myself prety tough man but feeling tortured everysingle day almost 24/7 for 2 years almost none stop it will break u down slowlly..i will admit ive cried.
I'm 54 and her description of her symptoms is literally me today - in bed with hip pain after vacuuming the apartment and doing laundry. I have psoriatic arthritis and am on immunosuppressants. I was walking with a cane for 6 years but had a knee replacement, and now walk unassisted. I work full-time, which is hard work and I get to the weekend with very little left, but I am also nearly finished a Master's degree (part-time). The fatigue and pain are tough but I am stronger.
Thanks for sharing. It was a comfort to see that I am not alone. I really get what you mean when you say people can’t see it, but I can feel the pain. I’m a retired math teacher.
This was the best teacher I’ve ever been with for 4 years at Melzer. Her story is amazing.
Yeah! People think I'm always lying about how bad the pain is. Jerks!
Thanks Michelle, I've just been diagnosed with Psoriatic arthritis, which I had never heard off, which I am totally blown away by. I feel like I'm walking like a drunk person,, I feel like I have less muscle and leg control. Thanks for sharing your story.
I have PsA & am having the debilitating pain in my hip today. She described it really well.
I'm 28 and was diagnosed with psoriatic arthritis a year and a half ago. I spent 4 years telling my family doctor about my foot pain and discomfort/pain throughout my body and arms. he was reluctant to refer me to a specialist because he said the specialist would say the same thing as him (which was him not knowing why I was in pain, which is dumb because that's what seeing the specialist would be for). He finally referred me to a specialist in 2021. She ran some scans and blood tests, discovering that I had markers for arthritis in my bloodwork. I was finally referred to a rheumatologist who has been so nice and helpful. I'm on a medication now that has been life changing. Before, I couldn't play sports let alone walk a few blocks (I'd take the bus for what should be a normal 10 minute walk). Now, I feel like my age again and can move around comfortably
I’m 48, was diagnosed when I was 33 and worked as a MA in Dermatology alongside a Rheumatologist. I use a cane most days now, have had neck surgery, am on immunosuppressants and no longer am able to work. I get ocular migraines frequently and even went into metabolic syndrome months ago. Two years ago, I was boxing and completing obstacle courses for fun. Now it’s a good day if I can get one load of laundry done. Walking is made difficult because of enthesitis.
This was my beautiful teacher for 3 years and last year was my last with her
I was just diagnosed 2 days ago with it by scalp and pain in wrists and shoulders. Can't wait too...i find my right med and feel better again after 2 years of pain!
Humira has helped me alot!
Thank you for sharing. I know your pain!
I have psoriatic arthritis. Was diagnosed with psoriasis at 29, psoriatic arthritis at 39 and it got worst at 54.
I feel like my version is a lot worse, my crutches are with me for months at a time, the pain makes me black out some nights. I am just now getting treatment after 10 years (the VA does the bare minimum and I had to push them and educate them on psoriatic arthritis).Its too bad the tuberculosis I got on deployment is also ravaging my organs, and they tried to blow that off too, the VA does the bare minimum for vets and I am not surprised at all veteran suicide is as high as it is, sometimes it seems like the only option.
Had a terrible side effect from a couple biologic injections and now I'm scared of trying anymore. Currently back on methotrexate and leflunomide but can't say they're doing anything for me.
I am 34 and diagnosed last year with PsA. I’m a land surveyor, even my doctor can’t understand how much this is killing me. Because she does not have empathy. You’re lucky your doctor spent an hour and a half with you. My NP spent 15 min telling me about it. Probably because I have shitty insurance so I will remain in my poor grave with my poor family (deceased) hahahahaha this makes me feel like I’m going CRAZY.
Hi, Is there anywhere I could contact Michelle and ask some questions regarding? I have been suffering for years and need some guidance
Hi I have lower back pain and knee pain I am very upset not getting better