Boy... I'd do anything to be able to to try this. My base line is at an 8 right now and it's wearing me out. I don't sleep untill my body can't take it anymore. My life is hell. It's crule how we are treated. I've been in +10 pain and have been turned away from hospital. Getting a ketamine from my insurance is not possible! I'll never give up and I know I'm in this alone. I just feel so very alone in all this. Lifetimes worth of pain in a day sometimes. No one believes you how bad it gets!
@@Lexilea68 I've tried the cream, it did almost nothing and applying it was super painful. I have tried to get the nasal spray but the pharmacy I'd have to go to to get it is far away and I can't drive. I live in the mountains to make things a little more difficult. It would be almost 200 bucks out of pocket everytime. I'm dirt poor, almost literally. I've lost almost everything. I do appreciate the information though. You have to have money to get help in this country.
Did you intend to mean catherization? As in a penal urethral bladder access tube? I believe from my study Sierra PS can develop at any body part after any injury or invasive procedure. I've even read that it can come up suddenly out of the blue years after a benign injury say a food can fell on your toe. I've heard it can happen with someone hitting the Achilles tendon while shopping with a buggy. If the catheterization was uncomfortable to a sufficient degree the brain may have perceived it as an inciting event and it is in my opinion and autonomic central nervous stimulation sensitation could occur.
I am sorry for my English. I mean a catheter penetrating an artery. In my case femoral artery-ingle, and 5 years later without any diagnose, radial artery-wrist
@@cristobalmanuelmoreno.llan2215 In order to be diagnosed with CRPS you must demonstrate or present with I believe it's five of the Budapest criteria. My CRPS was very obvious as the leg was blue, swollen, hot and cold. I suffered sharp stabbing pains and vice grips torture. All I did was strike my ankle thus the inciting event did not match the resulting injury. But CRPS can develop from any injury even a lab draw or someone hit in the back of your leg with a buggy. It can also develop years later out of the blue in related to nothing but you had a previous injury there. Yes. You can develop complex regional pain syndrome from any sort of needle stick. Are you simply having pain or are you having other symptoms as well?
My doctor said they are looking to implement ketamine infusions into CRPS treatment options. This video is perfect timing. The best my pain level has been in over 4 years has been an 8....the best. I'm trying to learn everything I can about ketamine infusions. I'm wondering though -- if an break in the skin can cause CRPS to spread, how do they keep the infusion site from causing it to spread there? I still need to find out if insurance will cover costs and how much I will have to come up with. There are so many things I would try if I could afford to! I'm willing to try almost anything, it's the cost involved that limits me. The human body is not meant to withstand this level of constant pain.
I suffered torture in Stage 1. I believe a healthy diet, anti inflammatory foods, little to no sugar, probiotics, weight management, Vitamin C, oxytocin, Alpha Lipoic acid, DSMO cream, and the use of BEMER and red light therapy as well as prayer and lowering stress has helped my pain. I still have burning. My affectesd leg is weaker than my right leg. My knee also got contracted as I couldn't walk for almost seven months! But is now slowly going straight with the use of an extensinator. I, like you, was very excited about Ketamine when I learned it may reset my brain as many theories feel extreme stress can cause CRPS. My first ketamine infusion was my last. I went into what is notoriously known as the ketamine hole. My brain was folding in on itself and telling me if I didn't have them shut off the infusion I would surely die. It was absolutely the most scary experience in my brain in my life. Ketamine is now listed on my allergy list in the event they try to give it to me for a broken bone or an accident in the ER which I hear Ketamine is commonly used. If I were you, I'd keep an open mind and wouldn't get too excited about it. You can Google the reviews and at least half of them were people going into the Ketamine hole of death. I believe it's worse for people who have underlying anxiety and more so right before the infusion starts. May God heal you.
I wish I could get this treatment. Unfortunately, all the physicians I've seen are a million percent against the use of ketamine for CRPS and I couldn't even get them to approve of a compound ketamine ointment for the fear of my ability to potentially abuse it and overdose. They won't even allow me to educate them on the subject. Maybe, one day!
I wrote in a comment to another sufferer hoping to receive ketamine. It can certainly help some people but it's not for everyone. There is topical and nasal which may be less potential for hallucinations. May God heal you.
@@RSDSA Thank you for the help but the nearest clinic is over 8 hours away from me and their cost is extremely astronomical. It's truly unfortunate that it's priced so high and located so far away. It'd just not possible to be done for me as we're a single family income and I have little ones who's needs must be met first. Some day though. Some day.
@Steven H I absolutely agree 😔 I've heard of some people being able to have their treatments covered by their insurance in whole or part if it's done for depression/PTSD but never for CRPS. I even thought about trying to have a clinic bill under those codes but they said they couldn't because the amounts of ketamine needed for CRPS is too high and they'd be charged with fraud. I can't even get the clinics to accept some type of payment plan and the one that would, requires a huge deposit and the approval from the diagnosing physician. All my physicians are dead set against ketamine, period. It's truly frustrating having to go through such lengths just to find some relief, even temporary. On top of being a wife and mother of three children, two with special needs and a two year old, it's exhausting to say the least. As you know, every day is such a battle and yet, there's no surrender. I've become so desperate to find the answers that I'm now taking part in a clinical drug trial just to hopefully make some sort of difference and help better the lives of others. Here's hoping!
@Steven H Wow! My insurance straight up denied the ability to even attempt at getting reimbursed for treatment. The trial is to see if a new drug combo, tariquidar-ondansetron (tariquidar-new drug and Zofran) can help alleviate the neuropathic pain from CRPS and for those who suffer from other neuropathy problems. It's a double-blind study that requires a few different hospital stays with lots of blood work and a couple spinal taps. Hoping this helps!
Dr. Richeimer and panel, thank you for such valuable information. I do wish I could have better tolerated the hallucinations. I feel Ketamine could have offered some pain and burning relief.
I have a beautiful 1yr old son. Will I be able to function, while taking this?.. I've been living with this demon going on 18yrs now.. I'm unfortunately full body now, and I've been on every medication possible. I'm stuck in a severe flare right now, and have been going to the ER for a pain shot and steroid.. they work, but only for a short time. I feel as though this may help me, but I need to make sure I can function. Take care, and ty for the info! PS: We are Angels 😇 and Warriors! 💙✌,🍕grease!
I need to see a dentist but I'm afraid of recurrence of RSD also where is a dentist in Ill.
Boy... I'd do anything to be able to to try this. My base line is at an 8 right now and it's wearing me out. I don't sleep untill my body can't take it anymore. My life is hell. It's crule how we are treated. I've been in +10 pain and have been turned away from hospital. Getting a ketamine from my insurance is not possible! I'll never give up and I know I'm in this alone. I just feel so very alone in all this. Lifetimes worth of pain in a day sometimes. No one believes you how bad it gets!
I posted a comment above. Perhaps take a look at my input. Maybe you could try ketamine topical cream. Or even intranasal spray. May God heal you.
@@Lexilea68 I've tried the cream, it did almost nothing and applying it was super painful. I have tried to get the nasal spray but the pharmacy I'd have to go to to get it is far away and I can't drive. I live in the mountains to make things a little more difficult. It would be almost 200 bucks out of pocket everytime. I'm dirt poor, almost literally. I've lost almost everything. I do appreciate the information though. You have to have money to get help in this country.
@@luke144 May you heal in time.
@@luke144 Send us an email at info@rsds.org as we have an emergency fund that may be able to assist.
Does anyone knows someone with CRPS caused by cathetefitation?
Did you intend to mean catherization? As in a penal urethral bladder access tube? I believe from my study Sierra PS can develop at any body part after any injury or invasive procedure. I've even read that it can come up suddenly out of the blue years after a benign injury say a food can fell on your toe. I've heard it can happen with someone hitting the Achilles tendon while shopping with a buggy. If the catheterization was uncomfortable to a sufficient degree the brain may have perceived it as an inciting event and it is in my opinion and autonomic central nervous stimulation sensitation could occur.
I am sorry for my English. I mean a catheter penetrating an artery. In my case femoral artery-ingle, and 5 years later without any diagnose, radial artery-wrist
@@cristobalmanuelmoreno.llan2215 In order to be diagnosed with CRPS you must demonstrate or present with I believe it's five of the Budapest criteria. My CRPS was very obvious as the leg was blue, swollen, hot and cold. I suffered sharp stabbing pains and vice grips torture. All I did was strike my ankle thus the inciting event did not match the resulting injury. But CRPS can develop from any injury even a lab draw or someone hit in the back of your leg with a buggy. It can also develop years later out of the blue in related to nothing but you had a previous injury there. Yes. You can develop complex regional pain syndrome from any sort of needle stick. Are you simply having pain or are you having other symptoms as well?
Happy Easter where is the rsdsa family
We hope you had a great weekend, Lora!
My doctor said they are looking to implement ketamine infusions into CRPS treatment options. This video is perfect timing. The best my pain level has been in over 4 years has been an 8....the best. I'm trying to learn everything I can about ketamine infusions. I'm wondering though -- if an break in the skin can cause CRPS to spread, how do they keep the infusion site from causing it to spread there? I still need to find out if insurance will cover costs and how much I will have to come up with. There are so many things I would try if I could afford to! I'm willing to try almost anything, it's the cost involved that limits me. The human body is not meant to withstand this level of constant pain.
I suffered torture in Stage 1. I believe a healthy diet, anti inflammatory foods, little to no sugar, probiotics, weight management, Vitamin C, oxytocin, Alpha Lipoic acid, DSMO cream, and the use of BEMER and red light therapy as well as prayer and lowering stress has helped my pain. I still have burning. My affectesd leg is weaker than my right leg. My knee also got contracted as I couldn't walk for almost seven months! But is now slowly going straight with the use of an extensinator. I, like you, was very excited about Ketamine when I learned it may reset my brain as many theories feel extreme stress can cause CRPS. My first ketamine infusion was my last. I went into what is notoriously known as the ketamine hole. My brain was folding in on itself and telling me if I didn't have them shut off the infusion I would surely die. It was absolutely the most scary experience in my brain in my life. Ketamine is now listed on my allergy list in the event they try to give it to me for a broken bone or an accident in the ER which I hear Ketamine is commonly used. If I were you, I'd keep an open mind and wouldn't get too excited about it. You can Google the reviews and at least half of them were people going into the Ketamine hole of death. I believe it's worse for people who have underlying anxiety and more so right before the infusion starts. May God heal you.
I wish I could get this treatment. Unfortunately, all the physicians I've seen are a million percent against the use of ketamine for CRPS and I couldn't even get them to approve of a compound ketamine ointment for the fear of my ability to potentially abuse it and overdose. They won't even allow me to educate them on the subject. Maybe, one day!
I wrote in a comment to another sufferer hoping to receive ketamine. It can certainly help some people but it's not for everyone. There is topical and nasal which may be less potential for hallucinations. May God heal you.
Have you contacted the physicians found on this list? askp.org/directory
@@RSDSA Thank you for the help but the nearest clinic is over 8 hours away from me and their cost is extremely astronomical. It's truly unfortunate that it's priced so high and located so far away. It'd just not possible to be done for me as we're a single family income and I have little ones who's needs must be met first. Some day though. Some day.
@Steven H I absolutely agree 😔 I've heard of some people being able to have their treatments covered by their insurance in whole or part if it's done for depression/PTSD but never for CRPS. I even thought about trying to have a clinic bill under those codes but they said they couldn't because the amounts of ketamine needed for CRPS is too high and they'd be charged with fraud. I can't even get the clinics to accept some type of payment plan and the one that would, requires a huge deposit and the approval from the diagnosing physician. All my physicians are dead set against ketamine, period. It's truly frustrating having to go through such lengths just to find some relief, even temporary. On top of being a wife and mother of three children, two with special needs and a two year old, it's exhausting to say the least. As you know, every day is such a battle and yet, there's no surrender. I've become so desperate to find the answers that I'm now taking part in a clinical drug trial just to hopefully make some sort of difference and help better the lives of others. Here's hoping!
@Steven H Wow! My insurance straight up denied the ability to even attempt at getting reimbursed for treatment. The trial is to see if a new drug combo, tariquidar-ondansetron (tariquidar-new drug and Zofran) can help alleviate the neuropathic pain from CRPS and for those who suffer from other neuropathy problems. It's a double-blind study that requires a few different hospital stays with lots of blood work and a couple spinal taps. Hoping this helps!
It's safe for me to get the covid 19 .I've CRPS in my hand
It is. Many Warriors have had the vaccine.
Dr. Richeimer and panel, thank you for such valuable information. I do wish I could have better tolerated the hallucinations. I feel Ketamine could have offered some pain and burning relief.
I have a beautiful 1yr old son. Will I be able to function, while taking this?.. I've been living with this demon going on 18yrs now.. I'm unfortunately full body now, and I've been on every medication possible. I'm stuck in a severe flare right now, and have been going to the ER for a pain shot and steroid.. they work, but only for a short time. I feel as though this may help me, but I need to make sure I can function. Take care, and ty for the info!
PS: We are Angels 😇 and Warriors! 💙✌,🍕grease!