A Simple Sunday - Trying to Pace Myself & Embrace Chronic Illness Life

Hi friends,
The reality of this vlog made me absolutely not want to upload it. There isn’t a single inch of it that is neat or tidy or tells a cohesive story, and therefore, I thought it probably wasn’t worth uploading. But I want to remember the days I felt like this, like ‘pacing’ was new before I got it entirely down. Because I will.
I hope you’re all having a wonderful day, wherever you are.
Until next time,
Jen x
Instagram: jenniferpoyntz_
Website & Blog: www.jenniferpoyntz.com
Neurodivergent Thoughts and Writing: neuro_narratives

[@hilc6777]

I’ve just found your videos regarding Addison’s. I finally have a doctor listening to me. Five years ago I had a CT scan revealing tumors on both adrenals. Nothing was done nor was I told it could be why I was feeling so sick. They all said it was my long ago diagnosed Hashimoto Thyroiditis. But finally a doctor heard me as I’ve been literally debilitated since February. I can’t get out of bed some days due to the heavy feeling in my limbs, brain fog, muscle and joint pain, hair loss, and so much more. I’m waiting on an appointment with an endocrinologist. My doctor said that she was going to ask for an appointment within the next week as she’s concerned about my wellbeing. Yet, I still fear I’ll hear it’s only my thyroid or it’s all in my head. I’ve been told that regarding my symptoms for nearly 30 years. Thank you for your content.

[@jenniferpoyntz]

Thank you so much for using some of your energy to watch but also to write a comment - I know that rationing energy is a nightmare, so I really appreciate it. I am SO sorry to hear that this is what you are experiencing/going through at present. I hope they listen to you, and think outside the box and that you are given the space to advocate for yourself.

[@David-ft6kn]

God bless you Jenn...i woke up with a bit of golden glow to my skin with vililigo on my cheeks i also have Asperger's and am on the spectrum which can be a double edged sword im 42 and lije yourself i lived with this and my body found ways to cope and adjust but still leaves yo in bad shape despite relaxation in life...take care my fellow adesonian

[@jenniferpoyntz]

Thank you so much! It's certainly not easy, but at least we know that others like us exist!

[@vocalsbymohsin]

Love and prayers you wayyy..❤

[@jenniferpoyntz]

Thank you so much!

[@David-ft6kn]

Im trying to get a diagnosis wven though I have hyperpigmentation and every other illness associated with this sickness