Non-Hodgkin Lymphoma - What you need to know
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- čas přidán 2. 07. 2024
- World-renowned Specialist Bayard L. Powell, M.D., of Wake Forest Baptist Health discusses Non-Hodgkin Lymphoma and the risk factors, diagnosis, staging, treatment and prognosis.
coming up on one year remission. I was diagnosed with nhl was paralyzed. found a tumor around my spinal cord. also had it in my brain. 8 sessions of rchop and 8 impatient sessions of high dose methotrexate. able to walk run and jump now. to everyone fighting. I know it's hard but I was a stage 4 with it in my spine chest and brain and pulled threw. Just keep fighting
Brad Smith wow! I was 3a, front of heart. 3 years out now. so glad you are OK now.
Brad Smith The methotrexate made me really sick.
Sorry to hear. Was it aggressive (DLBCL) or indolent type ?
Brad Smith thank you Brad for that wonderful encouragement. I wish yo7 all the very best for 5he future!
F* Yaaah! God bless you!! I'm starting the diagnostic journey this coming monday (9/16/2019)
May of 2018 I was diagnosed with Plasmablastic Lymphoma stage 4, a rare and very aggressive form of Non-Hodgkin Lymphoma.I've just completed 6 rounds of EPOCH Chemotherapy and there is no sign of the cancer. I'm still awaiting the stem-cell transplant but all looks good now.
OG Gamer may god bless you
Hope you are well now & live a long healthy life..
OG Gamer I’m so happy for you! Good luck in life and I hope you live to be 100 years old.
you have my prayers stay strong and hopeful god bless you
God bless man.
I seem to be between a rock and a hard place as the saying goes. The reason being, I have had a multitude of tests completed and others scheduled and my problems are many. It all started out late last year, 2021, when my symptoms first began. I was diagnosed with Kappa IgM MGUS. Okay I thought, now what? As more and more tests were done, I was thoroughly surprised to find out my MGUS was progressing towards becoming full blown cancer. Since I’m classified as being rare (many rare health issues) it caught me off guard when it was determined that I was headed towards a diagnosis of Waldenstrom Macroglobulemia. Then it was determined that my WM was progressing directly from my IgM MGUS, a very rare occurrence. Okay, now what, I wondered out loud in front of my Oncologist/Hematologist. It didn’t take long for my body to answer the question with a seizure that felt like it was trying to kill me it was so violent(don’t remember it), just the excruciating pain in my head since the episode. That was April 26th. I just saw my Neurologist yesterday and I’m in line for a battery of tests. You name it, my PCP, Neurologist and Oncologist ordered everything since the after effects of the seizure has left my memory a wreck, the pain a level 10, vision bad, confusion, balance, I may as well sleep on the floor. I’m getting 3 different CT Scans, an MRI, and 6 different blood draws to start the festivities. Oh yeah, I almost forgot, my sister had 2 brain tumors, the second one killed her. A nasty rare star fish shaped one called Anaplastic Astrocytoma. It killed her at only 39yo. I’m 78yo, with a heart defect that’s 1 in a million. I just told my Oncologist, cancer isn’t going to kill me because my heart will since it’s so messed up I have an expensive loop heart recorder emplaned in my chest and monitored 24/7. So others who think life sucks, I have this quote on the wall of my bedroom. “I cried because I had no shoes, until I met a man who had no feet!” Remember, things can always be worse.
I have non Hodgkins lymphoma waldenstromes also really y does suck
@@lisavollaro Sorry to hear but I feel it’s better to know, in order to prepare for the outcome. There are many videos on You Tube pertaining to NHL & WM. I highly recommend you check them out because there has been advances in both conditions. As for me, my saga doesn’t seem to have a conclusion other than death. In January 11th, 2023, I had DNA Sequencing done and got the results March 15th. It was an eye opening experience finding out how limited DNA testing is and lacking in knowledge. With the 3 gene defects they found, I was able to track down 10, yep 10 conditions inside me. No wonder I feel like a freak of nature. Out of the 10, 7 can literally kill me, great news huh. But as I said, it’s better to know and my funeral and headstone are paid for. At least now I know why I was born this way and sickly since I was conceived. With all the defects, you’d think my doctors would have discovered them after 80 years. I found out I have Multiple Sclerosis for one thing, I’m also the proud owner of a gene that has a genetic marker for blood cancer. Specifically Leukemia and Lymphomas, I guess that’s a surprise to my Oncologist/ Hematologist. They kept saying I was going to get Multiple Myeloma because my one older brother died from it. I hope the best for you. WM is an indolent cancer, meaning a slow grower, at least that’s in your favor. Good luck.
@robertmiller3810 my younger brother die at 21 now I have ty for that very good advice
@@robertmiller3810 ty so very much Robert God bless u
I had mgus I found out from endo doctor never knew I had it !! Now non Hodgkins lymphoma so so good waiting watching that's about blood blood
Thank you. You explained so much. Not great, but better than I thought. Bless you.
Sir .. Excellent Expllnation.. Salute to you ... I am sufferring with this problem .. The way you explained I got real picture of my problem ..
Bow to you Sir .. you are doing real service to your Proffesion. 😚👍👌👌👏
This is what my former neighbour had. She had her lump removed then radiotherapy and I think she’s been clear since.
I have watched a lot of videos on lymphomas and this is a nice clear summary of the basics - thanks! (And it has not essentially dated even though ten years old!).
Thank you Doctor Bayard
Thank you, I now know what to expect . My journey has just begun and I have a clearer understanding of this disease. You have alleviated some of my fears. Bless
Hope you are doing OK x
Thank you so much for explaining this. I was really confused about this issue as someone who is very likely to have it. So you made me a lot less scared now. None of the other things I read made sense for me. I was so scared before I watched this and got a greater understanding. Thank you.
You are the best..this video explained everything I need to know ....thanks
thanks for explaining things
Now that i see this video thanks for all the person who make this video.my brother have a non hodgkins lymphoma anout 2 haft years weve been fighting. we leaving here in italy but most of the time we do not understand how we learn exactly we want to know about this cancer cause most of the lauguegs is all in italian i hope my brother will be ok tommorow he been for liver examanation i hope and i pray that he will be fine.
How is he doing..
Thank you!very informative!
Thank you for sharing your expertise 😌
Am an OFW working in overseas Malaysia am 65 when i had this Lympoma deseas my Boss help me to bring his Doctor Cousin then check in have ultra sound and i have one and my right abdomen and am operated yo make sure its not a canser they bring the things to check to scanning ,the result is not a canser My boss brings me again to another Doctor to make sure am safe but the same result with the first Doctor say ,but since am back to my Country i notice i had again in many part of my Body but i never feel anything bad to myself. I dont want to see a doctor again especially in our Country because i dont to hear and saying its a Cansrr and i dont have much money to spend and pay for another operation because am older now and very expensive the cost of treatment and operation in our Country .and i never felt anything bad so just keep praying and be possitive and enjoy my days to live .Thank you so much for sharing and most of all prayers is all i need for now ❤ Merry Christmas to all 🎄
thank you, thank you, this will help in my interview :-)
Thank you excellent advice.
Thank you for these support groups . It's hard to be at stage 2 and then now stage 4
Hope you are OK x
All I can say is thank you Dr knowing that am drying is very hard for me
VERY WELL DONE VIDEO!!!!! I TRIED 30 OTHERS. MADE NO SENSE!
Thank God for all Doctors.Keep up the good work.
Thank You, very good
This gives me hope.. I am currently battling NonHodgkin Large B-Cells, stage 2 leukemia, cause by working with benzen and such solutions.
Same here because of Extreme exposure of benzen and other solvents. I have Extreme night sweats
Ned Stark Are you ok ?
Ned Stark How Joe TIPPINS beat terminal lung cancer with 8$ dog dewormer medicine. James Templeton Wellness Center interview.
FENDBENDAZOLE/ Pancura C .
I 800- pet meds .
Tumor tales takes it . He has brain tumour. ❤️❤️❤️🇨🇦
Thank you. Great information.
Thank you!
Very good lecture xoxo
Thanks.
I had done 8heavy chemo and a stem cell transplant
Thank you. 🤍
What a lovely man :)
Recieved this diagnosis yesterday. I was on Azathioprine for 25 yrs for Autoimmune Hepatitis. They stopped that med 6 months ago after 65 Squameous Cell skin cancers removed. I believe this drug is why I have NHL. Unsure of where to go from here. Waiting to hear from Oncologist/Hematologist office.
Thank you.
Would anyone know of differences between therapies practised in EU vs USA clinics?
Thankyou
Please spread the word to help our family raise funds for Kiki's urgent Non-Hodgkin's Lymphoma (NHL) treatments, travel to/from, meds, etc. Thank you!
God bless all us with this cancer
He didn't mention the product called Roundup.
hi may help i got pain under my ribs and pain in my lower amdming and i fill sick but i had cancer be4
This is one of the best Video about NHL i found on CZcams you have covered everything .. My father is diagnosed with Stage 3 DLBCL Non Hodgkin's Lymphoma and he is 70 years old and had his 1st session of Chemo and went really very well...
Anyone knows how many session of chemo on stage 3 needs and what's the survival rate of Stage 3 DLCL Lymphoma ?
How is he
@@sheloshelo4884 He is very well....Thank you for asking
@@faisaltanoli83 chemo is fnished ? Any relaps? And take r chop ? Can u give some details and your advice please. I have dlbcl too. And will take 3rd chemo rchop. I have a tumor at my torax(mediasten)
@@sheloshelo4884 Hi no Replase Yet Thanks to God..Chemo finished 9 months Ago and he is living Life ..He got treatment in USA...I wish you all the best and Pray for your quick recovery 🙏
Apparently 6 cycle… just had my first cycle of R-EPOCH
the music is to loud we cant hear and focus on thje speech
I was diagnosed with Lymphoplasmacytic Lymphoma and Anemia. Is Lymphoplasmacytic Lymphoma the same thing as Waldenstrom Macroglobulinemia? Thank you for your time.
It's a very tricky cancer to diagnose.I developed skin problems in about 2005 and was diagnosed with ezecma but as it got worse I was referred to the hospital dermatology department and they patch tested me and I didn't react so they decide that I had psoriasis.However about a year after that several strange tumours came causing the amputation of my finger and only then did they get to the bottom of it....a very rare t cell Lymphoma called Mycosis Fungoides which had progressed to stage 2b by discovery.
You are also at a greater risk for melanoma. Most doctors won’t tell you this. Be very vigilant about watching changes - my father in law had CTCL for 30 years but died from melanoma on his face. I don’t understand why he didn’t see or his wife - my dad told him about it at church and he had it check and sure enough it was melanoma. The surgeon begged him to have radiation but he refused and it came back very quickly and he died at age 80.
@@ncbluegrassevents1984 Sorry to hear that.Yes melanoma is a risk but the main secondary cancers those with Mycosis Fungoides get are Hodgkin's Lymphoma,other CTCL's , Leukemia and myeloma.The Mycosis Fungoides itself can transform into a more aggressive version of itself called Transformed Mycosis Fungoides which is very aggressive.Mycosis Fungoides also can head for the internal organs either in it's classic or transformed forms and it generally results, sadly,in the demise of the person in a year or so.
Kevan- my moms been diagnosed with mantle cell lymphoma and has severe eczema- we are awaiting chemo treatment. Was there anything that helped you reduce the irritations associated with the eczema /rashes. I’m Looking for leads
@@jisnajose7072 no sadly not just the creams that a used for eczema and psoriasis which keep the skin moist at least.It is possible that she has eczema or psoriasis on top of the Mantle Cell Lymphoma very unlikely that she has Mycosis Fungoides as well but a skin biopsy would hopefully reveal if that is so hopefully it wouldn't be!
about staging, i see the same staging in Hodgkin Lymphoma. Is it similar???
the music is loud we cant hear
I have biopsy Monday and MRI and gastro specialist after cat scan showed growth in left neck hope it's not I'm so scared
on the chest only not in heart
excellent video. my dad has stage 3 large B cell diffused and they did a bone marrow. reason, they wanted to see if its in his bone and if cells are strong enough for chemo, yet they want him to do chemo right away. He cancelled it and will do holistic treatment instead. his tumor is very large on the left side of rib that protrudes out. drs. freaked him out.
Get him chemo. They check bone to check spread and condition of cells.
There is nothing called are the bones strong enough for chemo. Plz get him treated
No chemo, get the node out with a surgical doctor, then clear with diet etc
im scared was told i had swollen lymph node in neck in emergency room 7 months ago its much better then it was but has not completely gone away pretty scared only have medicaid wish someone was here
dynacoA25 I'm sorry to read this, I hope your health improves as well as your healthcare situation. I lost my mum to cancer. She was so brave. Maybe you could talk to somebody on a cancer helpline. Even if they cannot help you financially they can still talk to you and at least help you voice your feelings. I wish you all the best and hope you recover quickly
I was suffering from non hondkingson lymphoma in 2007 . Surgery was done
On left shoulder joint to remove cancer tissue. Then I refused to chemotherapy & radiation. So I started anti hiv drugs efenavir , didanosine, lamivudine with
My son's 5ml iv blood transfusion to me with ayurvedic medicines arogyavardhini vati, kanchanar guggul
Jwarnashak vati , ras manikya bhasm
Udaramrut vati giloy ghan vati , hirak bhasm still nows I am alive
With o
B cell no bone marrow problem
True my is swollen it stops and go
Had granuloma annulare on my right inner thigh for about two years. I thought it was just a small rash and thought it would go. I haven’t been diagnosed yet I am 90% sure that’s what is it tho from google. Also have a red smooth lump on the same thigh, and on my right leg I have another weird red oval rash with small red dots in. None of them itch or hurt. I’m 19 years of age. I keep getting swollen lymph nodes ( I think that’s what they are) in my under arms usually my left but today my right one is playing up. They are usually painful, I find it hard to feel lumps though. I’ve been having swollen lymph nodes for years but not as frequent as recently. They go away in a few days. I have been fatigued nearly all through my late teenage years so I don’t really notice anything because it’s normal to me. Also developed fungal toenail when I was really young and I didn’t realise it was one until a few years ago and have struggled to get rid of it ever since since I’m too embarrassed to tell anybody. I keep myself clean but it seems like it’s a dirty thing to have. My skin has always been relatively good but I have Psoris (I think) on my upper arms and face (my sister does too) and on my upper thighs and my buttocks (red bumps). Please help
Hi. How have you been? Have you consulted a doctor?
Dr Berg yt channel is very helpful for all sorts of symptoms.
Omg hope your now OK x
Hope all is well x
My little cousin Ellen died of non Hodgkin's lymphoma 2 years ago today. The only thing I can do is try to stay happy. That's what she's want. But if you have questions, watch this video. It helped my family a lot.
Caitlin Lott Best to you!
Sorry about your cousin Caitlin ⚘
Today I've been diagnosed with anaplastic large cell lymphoma, alk positive. I'm starting my chemo in two weeks. I feel very scary and uncertain.
Prayers for you stay strong it will get better
how r u did it goo
Hope you are OK x
Hi JD how are you doing now?
I have same exactly same on yours. Ca you please kindly advise me what steps you going thrue? Thanks
what are all the negative outcomes with non hodgkin’s lymphoma
As he just stated there are many types of NHL it depends on the type and whether it’s an aggressive type such as Diffused Large B Cell (DLBC) or an indolent form such as Follicular.
Hello is the indolent lymphoma more dangerous than the aggressive one?
Dear docter , i dont now if will read this .
Butt my name is paul mekes . From holland .
I saw in youre video on utube that , that bezeen could couse lymphoma cancer .
I had lymphoma cancer stage 3 in march 2016 . And declared clean in september 2016 after 8 chemo's.
I workt with filthy bezeen soil or sand , 20 years ago .
On a chemical plant .
Could there be a connnection , after 20 years of incubation .
Yes. Carcinogen exposure can have a loooong period of latency
Can one work (occupation) during the chemotherapy?
Sadly no
Prayers for needed
My father is daignosed with nh low grade lymphoma . He is not able to develop blood from 1 year. But he is not having any nodes swelling. Doctors said to wait and watch and refusing to give chemo suddenly. But his iron deficiency is making him sick. I dont know what to do now ?
funny kids . Hope your father is ok. I refused to give chemo to my mom for colon cancer. She is fine. We did like home remedies, very good nutrients, trying to make her inmune system strong. After 3 year she is fine!!! Buena suerte.
Hi...how is he now?
Did you father have an iron deficiency before diagnosis?
My nan died 6 weeks diagnosed 9 years ago with this, I’m getting check in case I have it l! I’m 33 and she was in her 70s
I’m worried
how r u
I have both sides of the neck swollen since 2016 when EBV reactivated and I developed Hashimoto's and Fibromyalgia. A CT scan did not show anything concerning at that time but now, three years later I still have symptoms, fatigue and swollen above the collarbones that feels uncomfortable. What doctor should I go to?
I too had hasimoto and left side neck pain
Same symptoms here
I am taking LDN (Low Dose Naltrexone) and has changed my life, no fatigue and pain under control. The fat pad over my collarbones I have read it is related to adrenal fatigue, adrenal glands issues. I haven't found a doctor to check on my adrenals.
@@Marfilla wow really? Yeah same thing here about the collar bones. I've always thought I've had adrenal fatigue to
Sir I am now suffer non HL lymphoma but I want to know future of lymphoma patient.
Are you alright
Does the amount of any of the blood cells increase or decrease in nhl????
The white blood cells decrease.. and the read ones a little bit. But most the white blood cells
I am really worried. The lymph node on my neck has been swelling for at least 4 months now, and I also had mononucleosis two years ago.
My doctor did an ultrasound and a blood test. And according to him it is not lymphoma. The ultrasound shows that my lymph node is only 6mm. But I would like to point out that I am less than 5 ft, so I think that 6mm is relatively big for my body size.
I was wondering if a blood test and an ultrasound is enough to go by to be sure that I have no lymphoma, or should I get a second opinion from another doctor?
Have you done LDH blood test?
Nodes typically don’t work off of “large for my body size” at 6mm you are within normal sizing.
how r u
Never trust only one doctor! I runned from clinic to clinic during 3 years. Diagnosis came up by making a lot, and I mean really a lot of pressure to get a biopsy. I was feeling.more and more tired, neck very swallowed and still... running.....
Did you get a biopsy on that lymph nod?, if not get it. If you are not comfortable with doctor, go get a second opinion.
my son had it. its terrible deases
I lost my father for the reason off non haldgeking lymphoma...
@ Saleh Ahmed .. Sorry to hear that Brother .. Which stage he was on ? and which Lymphoma he had and where did you do his Treatment ?
Question
I have gone from 86kg to 72kg in 6 weeks, I have chills inside my body, my armpits hurt like a bitch, top of the chest hurts again like a bitch, the lower back into my groin kills and to finish I have small amounts of blood in my urine. I have been to the hospital, they say I have no infections, kidney, liver ect is fine. How do I go about someone checking my nodes iam worried as I have all the symptoms. Dose this show in blood test like low red/white cells or it requires other tests. I will ask my gp to check my nodes. Iam see a urologist when they send my appointment. To finish I sweat super bad under my armpits, really clammy on my hands any advice would be lovely.
Are you fine what happened to you
You can have a biopsy of the lymph nodes and they are then tested. Also lymes disease is a progressive disease if not treated. Insist to your GP youd like to have a biopsy to look into possible lymphomas or if there is a preliminary images that would possibly show any indication of needing a biopsy of the lymph.
Hope u get thru this mate
I suffered through all the exact symptoms for 2 years. Until I Had my lymph node biopsy. Finally diagnosed NHL.
Keep insisting on a biopsy. At least you 'll be able to answer that burning question, and understand the underlying cause of your pain. Whether or not you have NHL. Good luck
At first my husband was diagnosed with Follicular Lymphoma . Four cycles of R-Chop and turned out his Lymph Nodes are bigger and are all over his body. Another biopsy and we found out he has DLBCL double expresser !! He is too week to receive a very aggressive chemotherapy. There is no help for him and right now I am at his bed side watching him dying
Iza Gra hugs
Godbless him and you xoxo
I'm so sorry for your loss. My grandfather has a very rare and agressive type of non-hodgkins called aburcit. It had spread into his hip, lung, bowel and liver and the tumours were the size of a tennis ball. When he went into hospital and started having chemotherapy for his cancer, everything seemed to be aiming into a positive path and the tumours started shrinking; the one on his lung and liver had also completely gone.
However, the chemotherapy seem to have stopped working and the cancer started growing again. The only way my grandad had any hope was to remain on the chemo until the new stem cell treatment arrived from America to which he would stay on that chemo for 7 weeks. But just last week, doctors informed that my grandad was getting infections and showed signs of kidney failure. They told us that he was so frail and incredibly sick, he could die that day. So they ceased the treatment from him. It's only a matter of weeks-months and I'm dreading when the time comes.
But just remember, you're not alone on this and I'm sure you're a very strong lady. Godbless you ♥️
I’m sorry you are going through this Izabela. How are you now and your husband? I lost my beloved husband who was only 38 yrs. old to a rare type of NHL (PTCL-NOS) just 5 months ago. 7 cycles of chemo ( 2 CHOEP, 2 GEM-OX, 3 Dhap) none of them
was effective. His cancer was very aggressive. He died right infront of my eyes. He squeezed my hand seconds before his last breath. 😔😣 I miss him so much.
Could this be a bump and swelling behind ear ??
Lymph nodes anywhere can be affected. Get checked by a doctor asap
Yes.
In my my HOME THEY TELL ME ITS EXCUSES WHEN I CANT BREATH LYMP SWOLLING
Hi, I am Rubina akter from Bangladesh.. my age 23 yrs old. I am suffering spleen non Hodgkin lymphoma stage 4,, bt no symptoms,, so doctors confused,, can u help me? please,,,
If you haven't yet, you can consult with Indian doctors..
Get a visa go to TMC kolkata.
May allah help you sister......
Any updates on this rubina??!
4
We all know why we clicked this video.
Praying 🙏 this swollen lymph nodes isn't lymphoma.. I will be having biopsies week after next. Step 1..
i had non hodgkin's lymphoma
Messi Thevan I see you put 'had'. You are clear now? I hope you the very best!
Idkif I could accept being sterile at a young age
'Treat' - perhaps he really means palliate.
bear powell for the win!!!!
I am stilling in the diagnostics phase. The doctor found out 3 nodes are enlarged, but no idea if this is lymphoma. I hope this is not. But I got fever, tired, and itchy skin. I am a lonely guy with no friend. I don’t know how I can handle it without support. I have so many issue in my life. Almost never happy. I am only 38. And just got a better salary. And now... may be god hate me. I feel so tired. If I really get lymphoma, I may just give up and hide.
JULIE DELATORRE thanks a lot for your support. I really need that. I will pray for you and your husband too. I hope ur family will be good too
JULIE DELATORRE thanks so much. Tomorrow will be my day. Three years ago I got pituitary tumor. And now I may get this. My life is so bumpy. I will pray for you and our husband and myself tonight before sleep. I hope we all will be ok
man lung lee are u ok?
FallenOut Diverge I got the most result from the doctor. And it seems I got something else which alike lymphoma. Next week I will meet with the surgery doctor and talk about the treatment. Thanks for asking
@@lung21 so it isnt somethign really reallly serious?god be with you mate, i have 1 or 2 enlarged and im kinda anxious but no symptoms..sometimes itchy skin but i had it nevertheless
I have too non hodgink lyphoma and after this is Found out i have aids too
Oh!! Mine God, Jesus our fAther in Heaven . help use all, regardless spare our lives, in your name Amen.
Ms. Gwendolyn Pittman Tharpe,
@@ms.gwendolynpittmantharpe9817 all my prayers are for Dick people
@@justcharmed1st I am sorry I don’t understand prayers are for dick people, praying and believing in the man above the highest priest king of kings . is who I answer too and believe in . However be careful how you speaks to another.
Ms . Gwendolyn Pittman Tharpe,
Two words: Dr. Sebi.
my sister is 75 og age itd just find out last week but according them . for imfo i far thosan kilometer away from here imniland of mondanao but she in luzon hard situation coz covid 19 just why im asking
This doesn’t surprise me. Doctors or scientists don’t know what causes the majority of diseases very sad and very upsetting!! We need cures not just a bandage!!!!!
Se a we from evil
It is a fact that 75% of doctors would refuse chemotherapy.
Show a link of statistics please! The doctors I knew which had cancer did chemo and survived. Don’t understand what your point of stating such a negative comment with no valid informational back up.
This is probably the most depressing video I've seen in a long time.
I’m quite sure this is great content,but tinkly Liberace piano music in the background is so horrifying …this ain’t ed Sullivan on Sunday night….I’m out….
fuck me. cancer is complicated as fuck.
I had done 8heavy chemo and a stem cell transplant
celina lord how are you now
are you doing ok?
Celina lord, please update how are you doing now? Hope you’re cured.