My Multiple Sclerosis Story: Symptoms and Diagnosis | Life of an MS Patient & Explaining Symptoms
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- čas přidán 1. 06. 2024
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Hi there! In this video, I shared my multiple sclerosis story symptoms and diagnosis. Also, I explain all about the life of an ms patient. So if you want to know more details about my multiple sclerosis story: the prelude, the diagnosis, the treatment, the symptoms. Watch the video till the end. This is my story of how ms became a part of my life and how the multiple symptoms had been around before I was diagnosed. Hear me talk about how I made it to the current day and what ms treatment I am on today.
⌛ Timestamp
0:00 ➔ My MS (Multiple Sclerosis) Story, Prelude
1:20 ➔ the Diagnosis
4:20 ➔ the Treatment
6:13 ➔ My Symptoms Today
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★ MS Yoga: Ease your MS symptoms - Pamper Your Neck
• MS Yoga: Ease your MS ...
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" CZcams channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Thank you for sharing your journey. You (and Selma Blair) have given me the courage to share mine as well. The more I learn, the more I realize MS has been a major part of my life for an extremely long time. But we are warriors! We will adapt and continue to live life to the best of our ability.
Thank you for your comment! And indeed, I want to show the world that our lives still carry on however difficult we may have it!
Yes I have had Ms for almost twenty years now
As a psychologist, I understand all of your pain.., the depth of disease. I pray to God to give courage & strength to all of them who are suffering. You are strong enough dear people.
Shruti, you don’t understand unless you have multiple sclerosis. I think you want attention. You aren’t powerful and special.
Saying "I understand" is really unprofessional for a psychologist. Word it better, "I can only imagine" since you don't have MS yourself. I wouldn't want to sit with a psychologist with that type of mentality or reckless wording.
I'm glad the two previous replies see through the bullshit of your comment.
You can be familiar with the pain, perhaps through observing/working with other clients, but you cannot truly understand individual pain from their point of view.
Seriously, wtf were you thinking by flexing you were a psychologist. "I understand all of your pain".
Wtf??
A psychologist who chats wishes to an invisible sky fairy who gives cancer to kids is not someone who'd I'd let anywhere neat my ailment lol
100% @krux I agree. As a person who suffers from these symptoms AND goes to therapy with a real professional, her words that she “understands” deeply is insulting to me, given she has no experiential lived reality. Thank you for speaking the truth. It is unhealthy when people misrepresent themselves this way - it makes creating safe spaces for others even more difficult
I also have MS. Stay strong 💪
TaijuannaJaye I am also a CZcamsr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
How are you feeling taijuanna? You're on any medication?
Hi taijuanna hope you are well and doing better?
i do to
@@BMax-no9mg 😍
I didn't know the exact symptoms of MS till I saw Selma Blair talking about them. I am a huge fan of hers and seeing her go through such a debilitating disease and fighting it, just impacted me hugely. My heart goes to everyone suffering from this disease. I admire also all the people coming out and posting these videos and sharing their stories to create awareness and more understanding on this. I hope one day there will be a cure. Blessings to all
Hello everyone best of luck fighting against ms I got diagnosed when I was 19 I had complete paralyzes on the left side of my body I couldn't speak either and I had optic neurits all in one attack I'm 22 now starting treatment soon relapses have been on and off affecting walking speech and vision . However I'M currently studying two degrees and working part time , we are all in this together and I believe that by sharing our stories we are encouraging each other to keep going . Healthy diets everyone without saturated fats and excerise . Keep positive 😉
I got diagnosed with a ridiculous amound of lesions yesterday because of the exact same reason; double vision and loss of speech and walking. it is very nice to listen to other people right now to get through the initial shock. In the hospital now. I very much hope you are doing good and well. thank you for uploading this video.
Omg stay strong sister!! 💪🏻🧡
Hope you're well. I've had MS for 22 years now. How are you coping 1 year later?
how are you doing now if I may ask?? I was diagnosed almost 6 months ago...
@@adamslilith-art do you have some symptoms?
@@anubala6421 of course I do... how would I have been diagnosed if I didn't have symptoms?😅
My mom was diagnosed when I was in the 6th grade.. I’m 32 yrs old now and still blessed to have my mom in our lives. I do not wish this on my worst enemy, hate this disease
MS does not cause death... your mum will be fine. We need to stop this Stigma of MS being this horrible deadly disease. It is not. The treatments available now are amazing.
My grandma lived with MS for 50 years
My mother had it for about 16 years and died a miserable death from it at the age of 44. The most debilitating thing I have ever seen.
Keldor Miro surprisingly she did great for a long time. She was in a wheel chair and luckily she could afford a nice van and everything to get around. We were very lucky to have her around for all those years. She was the best grandma ever!
Let's hope if it's a correct diagnosis ..its a treatable situation.
@@DStabs720 Such a blessing for many other Grama's and people to hear this. You are loved and special still, and so very important to your loved one's. ❤
Wow 20 lesions, you poor guy! I'm recently diagnosed but only had 3. My attack/relapse was very different from yours. Tingling from the neck down then paralyzed on the right side for just over a week. I see a lot of people arguing in the comments. This disease is individual for every single person. It is not a competition. If anything we need to ban together. Thank you for sharing, it helps hearing peoples stories.
yes def gotta stick together! My first doc said he thought only young girls got MS, i said NEXT! I only had 3 lesions also, my neuro said i cant have MS cuz i only had 3 LOL. I said i know MS confirmed ppl with NO lesions. I try not to get jaded but damn ive had my share of bad docs... After 7 MRIs, 2 LPs I STILL havnt got an official DX, after years of living with it there isnt anything else it could be....recently ive heard very interesting things like ambien (the sleeping
pill) for dramatic improvements in brain injury, stroke patients etc...i
wonder if MS ppl can benefit?! another one is QUALITY coconut oil for
cog fog & fatigue, i like it. I take 1 tablespoon a day with food or
in hot drink, some ppl say the saturated fat isnt good but why not cut
down on other fat (like crisco, lard, butter) when cooking, use better
for you coconut oil instead.... 5K to 10K a day Vit D (infused WITH Vit
K) with biggest meal of the day, make sure you eat calcium rich foods
daily as it helps Vit D absorb. these are just a few things to get you
curious to research for yourself
Sleekcartim .sleekcartim
?????
If you don't mind me asking, were completely paralysed on your left side for a week?
Daniel im assuming your asking me that question... No i wasnt paralyzed on my whole left side. I had left head / face numbness tingly, my left foot is very numb & sensitive to stimulus. I have various degrees of numbness in about 40% of my body btw. time to take coconut oil i feel fatigue coming on... lol
hey, I just wanted to let you know that, after watching your "my MS story video," I finally got off my a#% and posted my own. so thanks for the inspiration! :)
+metaspencer Hey metaspencer! I'm very happy my video incited you to make your own. I think everyone with MS, no matter how different, can find something to relate to in these experiences and that makes us feel less alone. Keep it up!
@@LifeofSebMS thanks, Seb, in my vision, i have also stories. I have a Chanel Sons of Anarchy, with stories about Marilyn Manson, rock singer. 👍👍👍👍Keep on touch
have you tried pine bark?
I will help cure multiple sclerosis! megalayner100@gmail.com
@Storm Media good stuff!
I too have MS. After years of various symptoms I was finally diagnosed in 1998. I don't have any medication but have a vit b12 injection every 3 months. I have a positive attitude, even when I am having a bad time. It's holistic and I will not let it rule me....well, not my mind anyway. Good luck to you my man.....🙂
What r your symptoms do your skin burns
Hi, I was recently diagnosed with secondary progressive ms and I am not sure about medications. Did you follow any specific diet? Are you still without any medications now? Thank you.
My mum had ms for about 25 years had the b12 injections every 3 months went into nursing home January 2020 because all mobility had gone but happy in there she was getting the best care for her.then COVID took her on 1st November 2020 she was only diagnosed with Covid on the 24th of October so quickly.but my point is some people can live a long time after being diagnosed with ms 💕
Hi, I was recently diagnosed with MS and I did some research on alot of things , and when I did my research on the list of medications I could try , I am very nervous to start on a medication because of some of the harsh side effects, and when my blood tests came back everything was fine except my vitamin D3 was very low and I also had gotten covid 19 which sparked a trigger in my immune system, and then I did some more research and it saids that having low vitamin D3 can trigger an Ms attack and getting a unknown virus can trigger an Ms attack and stress can be a trigger and eating unhealthy can trigger for an Ms attack , so I decided that for a year im going to eat really healthy and get as much sunlight and eat alot of rich foods in vitamin D3 and exercise because exercise is really good for the body to avoid an Ms attack and naturally you body wants to heal itself but if you have alot of toxins and other issues your body has to fight off first then the body cant heal what you want it to heal, and in that year if doing my very best of staying healthy doesn't work and in my MRI tests shows that I developed more lesions then I will consider taking an medication, alot of those medications have liver side effects and possibly brain infection side effects that can cause death and I seen alot of things that saids that the medications could be used for chemo for cancer which is very strong to take and the medications make your immune system very weak which can be scary and some of the medications that you can take can make your Ms worse if you got off of it so that's another concern and the doctors want to say that you'll be fine but my doctor wanted me to do a medication that can cause an brain infection and he didn't tell me that side effect the pharmacy had told me about it so I would say make sure you do your research as well , and the doctors want to say that they don't know what causes Ms but I have a very strong feeling that it's from not being healthy , having alot of inflammation in your body can cause Ms triggers and can cause other diseases as well , alot of the process foods that people eat have alot of chemicals in the food that your liver and body have to detox from it and if you eat constant process food your liver and body can go on overload and act out of wack , your hormones act out of wack and your immune system will act out of wack as well, vitamin D3 is probably the most important vitamin to have and make sure it's not low ever , I understand that I could put myself in risk for a year by doing the holistic porch but I would like to at least try that way first and if I know that I tryed my very best to be healthy and if it still doesn't work then I guess I will try a medication.
Take the medication as early as possible. Healthy eating won’t stop the progression. Hope you make the right choice 🙏🏻🧡
I'm 16 and was diagnosed with MS just a month ago, after experiencing 3 months of symptoms. It's very unnerving knowing that you have to live with a chronic disease, but I'm staying strong! Hopes and prayers for everybody else out there suffering with this - you are not alone!
Did u try vitamin B1
Check out DR Berg on vitamin B1
Try dr wehls diet, wim hof cold therapy include vitamin + minerals like B1,6,12 magnesium, zink & vitamin D over 3,000
@@leximohamed9532 have you tried not to follow an advise from someone who is not a real doctor .
Dr. Berg is better than a REAL doctor. You know real doctors get more business with sick people
There is a girl who said her moms MS went away she went vegan it helped her
Wow, your bravery gives me chills. I’m still learning to accept MS and the way it will affect my life, and yet, I persist on living my best life! I hope you will too!
I will help cure multiple sclerosis! megalayner100@gmail.com
I haven’t been diagnosed yet but I’m waiting to get answers from my neurologist. I plan on doing the same
I'm here watching this video after falling in love with someone living with MS.... Thanks for sharing 😘
I’m 16 and I have MS too
Let’s fight it together
白龍布萊克 how are you going with it? I am turning 17 and have had symptoms for years and am getting tested after this covid crap is over... I am terrified.
@@shayrose7705 what symptoms do u feel? Im also 17 and my legs have been feeling weak for 2 days. Im terrified too
taytastrophe ou god I have a whole list. Mainly, major hip and back pain, like I can’t lay down. Extreme fatigue, I can sleep 17 hours and still need to lay down for a bit. Really bad heat intolerance- especially during summer and warmer weather I can’t go out. I also lose a lot of feeling when typing on my phone and my hands tingle a lot. My legs are also really restless and I get these major spasms on my right leg always under my knee, where I feel if I move I will start seizing ( they’re bad haha ). I pull muscles 24/7 and always am in some sort of pain. I also have a lot of little symptoms like rapid eye movement and vision loss sometimes, aswell as slurred speech etc etc. frankly I don’t think there is a single symptom of MS I don’t have.
taytastrophe and agh I’m sorry to hear that
@@shayrose7705 omgg I'm so sorry to hear that too. I hope u you will get tested after this quarantine. There are also other people on CZcams who share their experiences and struggles with MS. Some of them said that they had early and subtle symptoms before but they ignored it. Then, 5 years or 3 years after the symptoms will come back and become more palpable according to them. Haysss
Hope you're doing well now. I've had MS for over 25 years, no disease modifying drugs in the past ten years. Stay strong and keep a positive mental attitude. x
Hi, what made you stop taking the medication? I was diagnosed 6 years ago but think I've had MS for longer. I refused all treatment, I'm just a very holistic person, I prefer a good diet and yoga. What have you found helps?
Great
@@27TaLisa What are the symptomps of MS ?
@@BevRother do you have some disability without any medication or treatment? Please reply
@Anu bala hi, my balance is off but I'm working on it with tai chi, my legs get tired when walking uphill, I have a neurogenic bladder but seem to manage 90% of the time.
This is the 2nd spinal tap scare story I've encountered in these videos. I had one when I was 6, and it was nothing. That was 60 years ago. Now, I can be grateful.
🙏🏻🧡
Thank You...I'm starting my journey, I noticed symptoms about a years ago. The constant pain, especially my back, legs, arms and neck, headaches, vision changes, my balance, and this uncontrollable sleepiness and walking slowly with a cane now...It's shameful 2 doctors thought I was faking! Going to see specialist in major city next week.
it’s bad really bad when ppl does that. sorry to hear this hope you’d found the better doctors and got better. I know this I went through the same situations.
My mom had MS!! The most beautiful human in the world...she has past but will forever be my hero 💜💜💜
Wow! I can so relate to your story and symptoms. I hope you are managing well with this disease. Don't lose hope. I was diagnosed with relapsing-remitting 27 years ago and I am currently very active.
Mam do you have some disability during the span of 27 years? Please reply
You’re an example of strength! 💪🏻🧡
My Daughter got diagnosed with MS today, She had double vision. Continuous hiccups, pain in legs. We r treating her. Thnx for sharing your story. Stay Strong. Miracles happen you will be fine in one day.
So sorry about your daughter! Hope you two are staying strong 💪🏻🧡
"The head doctor - a very, very handsome man." LOL
Delana Johnson that’s gay
Delana Johnson “shall we stick him in the back” lolllll
Lol - The gaze and smile after the “handsome” doctor comment. Lol
Yeah, he already assumed in other vids he's gay, so what?
My daughter has MS now for 29 years and she is very frail and bed ridden. Just keep strong and take it Day by Day.
I'm glad were all sharing! My first attack was December 2012 i was working for a Watch Company it was very busy. I noticed my right side of my body was slowly going numb started in my feet & worked its way all the way up and lasted for two weeks, Keep in mind am working like crazy! I was 24 years old at the time i was diagnosis in early 2013. The doctor told me you have Stage one MS after going though a lot of tests now i'm 30 and feel alright i take one pill everyday for my MS.
Hi. What Med are you taking?
Hey sweetheart, I am 46 and have lived with lupus all my life . I now have ms because lupus attacked my Milan sheath . It's hard some days and I struggle walking these days and my eye sight is very poor . Never give up hope and faith because that is what gets us through the hard days. Stay strong and keep blogging I am listening xoxoxo molly from Sydney Australia
Kudos for the video content! Sorry for chiming in, I would appreciate your initial thoughts. Have you heard the talk about - Liyaraah Sclerosis Redemption (should be on google have a look)? It is an awesome one off product for overcoming the symptoms of multiple sclerosis minus the normal expense. Ive heard some pretty good things about it and my best friend Jordan after a lifetime of fighting got astronomical success with it.
I hope you get better..
Hi molly I'm percocet from US
Molly Mayor I have the same thing
look up Dr terry wahls
What kinda of a person puts a dislike?. You are extremely strong and brave. I have a brain disorder. It's not MS but very similar. You are amazing to have carried on functioning. Inspirational x
I'm struggling with MS for almost 15 years mainly my attacks related to my vision, thank you for sharing your story 💐 ps. You're so handsome 😎
Sara Andersen I am also a CZcamsr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
My mom got diagnosed today, she has blurred vision in one eye. Does every one with MS loose their ability to walk?
im a bad youtuber No, MS is different for everyone & about two thirds of people with is never lose their ability to walk without assistance
Bullsh*t
Sara Andersen ❤️
You guys are all brave. I have a cousin with progressive MS. May god give you all strength 🙏🏻🙏🏻
My grandfather has had MS since before I was born (I'm 21), and he's still going strong even though he has his struggles. Now, they are thinking I might have MS, which is a bit scary, but I know I can get through whatever life throws at me!
love your attitude!!!! 😁
Do you have some issues ?? Reply please
@@anubala6421 you could have just checked out my channel.. I have many videos about this
I have Ms as well couldn't walk for 6 months. I was ready to overdose and die. My oldest daughter who was in college asked me to get rid of all pharmaceutical drugs and try natural medicine. I went to my grandmother who is 110 today. She's Oneida Indian she was able to help educate me on plants n herbs. 7 years later and I've haven't had any more problems with m.s. Thanks for sharing your journey. I wish you the best and stay healthy.
If you wouldn't mind sharing some of the more common plants and herbs that you used? Thanks
I loved the part when you talked about the handsome doctor 😂. I had a similar experience. I have Crohn’s disease and had 2 surgeries in the past... The first one was the worst and I had to be hospitalized for 5 weeks. Prior to the surgery, I had lost 12 kilos, felt so powerless and looked terrible. One day, while I was recovering, this super handsome doctor came into my room and just seeing him made my day, but at the same time I started thinking “shit, why am I meeting such a gorgeous guy now that I look like shit?!” 😂.
Hahahaha 😆🧡
Same here however I got diagnosed with my MS at eleven years old & I’m twenty one years old so for ten years I’ve been battling it!👌🏼
weird,11, unheard of 20 years ago
Jesus Octavio Miramontes May I ask what you felt that made you go to the doctor? And how has your life been since being diagnosed?
I will help cure multiple sclerosis! megalayner100@gmail.com
You're a beautiful man...I've just been diagnosed in the hospital in the last few days. Woke up to a dragging foot and needing to use a walking stick. MS is not fun. Hang in there and stay prayed up, Doll!
Im too afraid to trust pharmaceuticals due to side effects. I'm going to try a plant based diet and pray to God for healing. Bless you, Seb
I am really sorry you were treated like a specimen not a person,then spinal uuuweee and more tests!!!!I have messed up immune system,No spinal but tests and Drs.&tests,ugh.finally after yrs.got lupus dianosis,Rheum.arth.osteodegenerative arth.thyroid issues,now after being not believed I thot had Parkinson's disease ,My.rheum.sending me back to neurologist cause thinks I do!!My dad died in 2000 from it.i got symptoms shortly after that,but not believed,tests don't always show,but was ruled out what u have frm.mri.i have had 4 @20yrs.then&suddenly I can't get up good walk good sleep good memory leaving me or can't say correct words.and can't take steroids like prednisone so I take plaquenil. Now I'm 62,so told my daughter no more tests&prob.no more added meds.but I'd let them officially diagnosed me to help with care&disability. I live with her.i have strong faith& days are sometimes long.hope you the same.....faith&hope.♥️
Anonymous Girl plant based diet and low sat fat kept people in a Canadian study symptom free for over 30years!!! I was dx’ed 12 tears ago - I have no symptoms. Look up the study!!!
@@jakethedog4397 Plant based/vegan diet is what caused MS. Stay away from plants and wake up!
@@1life857 Disgusting. You should crawl back under whatever rock you've been living under. Plants are the most nutritious and healing foods on the planet. Let me guess, you think keto is conducive to health. It's not like Atkins died of a heart attack, or that Baker's bloodtests are disastrous. I'm afraid the only way you've woken up is by waking in another dream. You're in deep, deep sleep.
@@1life857 I’ve been plant based for over 40 years it’s the most healthy way and no I don’t have MS I’m listening for a friend who may have it
Gorgeous man I'm so sorry to hear of your health struggles and just want to wish you love n happiness.
Thank you for sharing! I wish you recovery and all the best!
Gosh you so brave - I will remember your story for the rest of my life as I have just heard that one of my oldest and dearest friends has MS
Thank you for sharing your journey. As Molly from Sydney said, we are listening. ❣❣🤗
Thank you for posting your story. My heart & blessings are with you. Keep fighting.
Thanks for sharing your story! Things you said have helped a lot.
Thank you for sharing. I pray for continued success in treatment for you. May you be blessed every day!
Thank you for putting your story out. It's eerie but also comforting to hear such a similar story
Thank you for sharing ... this is heart breaking to hear hope to know how are you doing recently since I know it’s been 3 years so far ... stay strong! Your life is worth living and you have purpose with or without MS
P.S. you have the most biggest beautiful eyes! (Hope that made you smile)
Thank you for sharing your story. Your strength and positivity is inspiring. I sincerely hope all the best for you.
Thank you for sharing your story! Hope you’re doing well!
Love and strength to all that suffer.♥️
This came on my feed and I was drawn to this .. you are beautiful and I wish you luck
I’m 4 minutes in and can sooooo relate to your story so far... keep strong brother
Your story made my cry man. Stay strong.
Thank you for sharing your story. 😇👍 Hope that all is well.
Being tested right now. Bless you and thanks so much for sharing.
Thank you for being brave and posting your story.
Thank you so much for sharing your story w us. I appreciate the Openess and Honesty.
My mother has MS too, thank you for sharing your story and getting awareness out! You are so handsome, keep up the good videos!
Hi, thank you for sharing your story. I was diagnosed with MS four years ago and I completely understand when the symptoms become so aggressive you can not ignore them anymore. I pray your journey gets better and manageable.
Ditto for everything you said!!! You are not alone! Stay strong!
Thanks for sharing🙏🙏
We are not alone and I am also an MS patient going through the same spasms and relapses, but stay strong and once again thank you for laying it all out on such a short video clip.
I suffer from MS too :)
Thank you for sharing with us your story Seb! :)
It's been 10 years that i live with MS and everything was fine till i started suffering from unbelievable headaches, migraines and ear pain 1 year ago. I quitted my job, my social life, my personal life but not because I was depressed. I'm really in much pain so i can't do anything. But i do believe that everything is going to be alright for all of us. We have to be patient and strong physically n mostly psychologically :)
Greetings from Greece :)
🙏❤
hey how are you now if I may ask??
OMG!! I suffer from this debilitating disease as well! I understand your pain and frustration. It’s awful! But all we can do is TRY and be strong. Take care❤️
You are COURAGEOUS, and a beautiful example of MS success. Hope it goes well for you. Gods peace
What a brave young man you are. God bless you always 🙏🙏
Our family is also affected by MS. Hope you are doing well and continuing to inspire others.
My dad did a special diet called The Swank Diet. Low fat with fish, chicken and not much for animal fat. He stayed healthy well into his 80s and just passed away at 89. You are an inspiration to me with your positive attitude! Keep it up :)
Was he diagnosed with MS, could u please me details of diet,,thanks in advance
I do hear wonders about that diet! 🙏🏻🧡
You are really brave. My mom has ms, and you help me understand her a lot. Thank you 💛
Your a strong man, God will continue giving u strength . Thank u for sharing your story
Wow what a story... always learning something new.... thanks man!! My thoughts with u..
I was diagnosed at 15, my MS was so extreme they put me on Prednisone(6 months) and ran tests for about a week. My spinal tap was the single worst experience of my life. I was immediately put on Tysabri and I have had a semi normal life for the past 7 years.
Thank you for sharing your story it has helped to stay strong for my nephew who is in hospital and the Dr diagnosed him with ms .
Thank you for sharing your story, it has helped educate me on the condition. All the best to you.
I know that you posted this year's ago, I identify with many of your symptoms and can empathize. MS is a thief that steals pieces of us, you seem like such a genuine sincerely sweet young man. I'm really hoping you go into remission, and have peace. *Big Hugs* to you, your Canadian sister 💕
Dear God, I pray for you and others that Are faced with MS. I thank you 🙏 for sharing your story; please hang in there as I pray for a cure.
Thank you for sharing your story. I really appreciate it. I am undergoing testing for MS and other possible neuro' problems. Your story really helped me.
Thank you for sharing, i watched this to understand better what a friend is going through, and i am grateful for the thorough explanation of how you have overcome this adversity. Hope you go from strength to strength as you manage this condition
New healing solutions are found daily, I hope one surfaces for you, soon. 'Always hope' ,keeps me going (I have CRPS and PTSD) .
God bless you! ❤️ Stay strong
I’m so sorry love , your so young , be strong sweetheart, sending a big hug 🤗
Thank you for sharing!! You are a hero by helping so many people!!
MS is a horrible thing to have. My brother had it for 20 years before passing away. I watched his decline by inches all those years. My prayer is that someday they will find a real cure. Stay strong.
I'm sorry to hear that. My brother passed with MS, having it only for 9 years. Agressive cases are rare thankfully.
I take my hat off to the many people who have MS and other illlnesses, they are true Warriors of life 🙏
You don't fucking die from MS stop spreading such depressing messages to other people. Ms has nothing to do with life expectancy. My mum and brother have it and so do i.
@@jamesemerson4102 There are MANY different Types categories some have both lesions brain and spine some lesser yes some unfortunate pass please dont be RUDE Do your HOMEWORK I Pray your family and yourself a recovery GOD help You
@@DavidSmith3750 please don't be rude? Piss off. I have MS myself. Don't tell me to do my homework.
@@DavidSmith3750 People who make general statements about MS being horrible should be told to shut up. They are contributing to the stigma that I and others have to be a part of now every day. I know there are many types. I HAVE the disease, and I am fortunate to have one of the best neurologists in my country. I am here trying to tell young people who have been newly diagnosed not to fear, and there are people on here telling them otherwise. What good is that going to do? You don't tell a young newly diagnosed person about your terrible, awful experience with MS. It's common sense. Wake up.
Just got diagnosed with this today. I’m nervous on What to expect, I’m only 16
do u have it
Know you're not alone even though it feels like it sometimes. I was born with chronic illness and things really started going downhill at 14. I'm 24 now and still struggle with progressive symptoms and what it means for my life, but we have to play to our strengths and know it's totally okay so be sad and angry sometimes. Life with chronic illness is different, so is youth, and though it's closed some doors for me, I've found things I love that I may never have discovered without it. I know you didn't ask for my comment and it's been a year, but I was really helped by others in the chronic illness community who reached out so... spoonie solidarity 🥄
@@Eloise_Please hey, thanks so much for the comment. May I ask which kind of MS you have?
@@zach9930 hi :) I'm not yet diagnosed with MS and may have something different, but I started getting neurological motor function and cognitive issues 6 years ago and in the past year paralysis (among loads of other stuff) and am on a waiting list, so I don't claim to have any personal experience with MS, just progressive neurological illness and chronic illness. I was born with EDS, VSS and have CFS and Fibromyalgia, and honestly a long list of diagnoses, mostly neurological conditions! I've been watching lots of MS videos to learn more, even if it isn't the answer to what I have I still want to be more aware and knowledgeable :) sorry that's long 😅
@@Eloise_Please I had a migraine for 2 months which was very abnormal for me and that made me get an MRI which showed that i have 5-6 lesions in my head, most likely it's MS. I'm 20 yo and i never noticed any of these MS symptoms in the past, i always thought that any never pain i had was related to my kyphosis, but i'm not so sure anymore. I don't even have any walking or balancing problems.. yet.. the future seems gloomy.. i was supposed to start studying in a really hard program this fall but now i'm questioning if i should even do it, i guess i'll try
I just watched this video of of curiosity but I am glad that you have shared your story, you’re very sweet
God bless you bro, in my prayers. Keep fighting. Thanks for sharing, I know it isn't easy.
you are an amazing person im 17 and have ms it is verry hard living with it but it was good to hear your story becouse ms has taken me out of school and made me very depressed thanks for sharing its verry helpful
Haven Cook do you have trembling in ur hands and all over ur body??
Haven Cook I am also a CZcamsr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
Hi I'm 25 and have had multiple sclerosis for 10 years. Thank you for sharing your story
@@toeders1 but everyone has specific signs patients of ms are not the same
@@lunaestrella531 I know
I too have MULTIPLE SCLEROSIS hope things go ok for you.
Thanks for sharing your story, you are a strong person. I have recently been diagnosed with MS at 22 and it is nice there is information and support out there. I hope you continue to live a good healthy life
Thank you so much for sharing! I was recently diagnosed with MS also. Your video was inspiring!
I will help cure multiple sclerosis! megalayner100@gmail.com
My mom has had MS since I was little and I worry that I may have it as well because there are some concerning symptoms that I have... I’m happy to see more people online talking about it and living normal-ish lives :)
did you get diagnosed if I may ask?
I loved watching this. You have a wonderful disposition. God bless you! Thank you for your honesty.
I hope you're doing ok and living your life to the fullest. You're a very bright and handsome man. Stay strong!
You got a good doctor when I reported my symtoms the doctor checked my temp and heart rate and said i was fine
First off - God bless you.
You’re very brave to make a video describing your ordeals with MS. Very brave. You should be commended.
You’re doing the world a lot of good in showing people that a handsome young man such as yourself can be afflicted with MS.
You’re a very courageous man and your upbeat attitude and humor shine quite bright.
It sounds like you had Trigeminal nerve involvement (specifically v2 and v3 branches). If you ever come down with Trigeminal Neuralgia (TN), I highly recommend you contact Dr. Ronald Brisman, a New York City based doctor. Brisman is one of the world’s foremost experts on the disease and has arguably the highest success rate in treating it.
God bless you my friend.
Given your indomitable spirit, I predict a life filled with success and happiness for you. :)
Electric Eye Slide I am also a CZcamsr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
thank you for sharing your story. You'll probably never know just how many people you've helped. Wishing you all the best......
I’m so sorry you had to endure the stress of all those years of not knowing. Blessings to you ❤️
Thank you for this video. I'm 17 and was recently diagnosed, however, I experienced symptoms years before around the age of 13 that I just brushed off out of fear. It wasn't until around six months ago when I had an attack that numbed and weakened the left side of my body that I was finally diagnosed.
Caroline B I am also a CZcamsr who has MS. I am just now starting a channel! Come follow me for some humor... it’s my greatest form of therapy!
I had such a similar experience. I hope you are well. X
Just watching your story. It’s so helpful to hear you speak your story. I started with vision loss, having optic neuritis. I had blood work done, home heath nurse giving me steroids, and yes a spinal tap with also was the most horrendous experience. That and my MRI came back normal. Then I had episodes of random muscle spasms that would last days, seizure like episodes, fatigue where I can’t keep my eyes open no matter how hard I try and it feels like I’m in a haze. I’ve also had several numbness episodes in one leg. I’ve also developed migraines so bad that I can’t move and most recently, memory loss and trouble with multitasking and now I stutter in my speech when trying to say a word. After a year and a half I had a new MRI done where they found T2 flair hyperintensities in the periventricular region of my brain, which was not there prior and is one of the more common areas that MS attacks. And yet my doctor says I’m fine.... hopefully I get some answers soon. ❤️
Hope you got some answers by now! 🙏🏻🧡
You don't know how much that foot drop share helped me!
Thank you so much for sharing your story. You are a stronger person.
my spinal tap was completely painless.. im so blessed I had a good experience with it
ur very lucky!
kay w. you are very lucky !! my spinal tap was horrible. the Dr couldn't get the needle in the right spot so they sent me to x-ray and another Dr did it. my right leg started flopping around. the pain was excruciating. never again...
Lucky! For me they didnt get it right and my foot kicked by it self, and it came blood out of the spinal test.. i asked for something so i could relax because i had to take a new one.. but they didnt give me anything (they are very strict in norway when it comes to valium ecs, so the simply didnt have it where i was).. so they just had to take a new test right afterwards. I was 24 and so scared. Felt the same as when i gave birth without medication.
My first was painless followed by headaches. My second, they were trying to find why I lost muscle on my right arm, hurt like hell but hardly any headaches.
My spinal tap was virtually painless. They gave me a mild sedation and anesthesia. I couldn't feel a thing and was surprised it took only around 15 minutes.
Everything you said exactly is my M.S. story also! Relapsing/Remitting M.S.! I felt such a kinship listening to your story. :-)))
I will help cure multiple sclerosis! megalayner100@gmail.com
Just been diagnosed with ms.....thank you for your video helped me to get my head around it all and notice very similar symptoms
Thank you for sharing your story. It's not easy to go public but, it can help others who may have just been diagnosed that there are people who can help and understand what you may be feeling. Bless.
Thank you so much for taking the time out to make this video for us. I'm so afraid I'm starting symptoms of MS myself. I hope you are doing ok. Again thanks.
Penny Baroody me too Penny very frightening isn’t it? Other illness has similar symptoms though so don’t overly worry xxx