Living with dementia - The long goodbye | DW Documentary

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  • čas přidán 15. 01. 2017
  • 4 million people worldwide are living with dementia, an incurable and progressive disease. Their families face many difficulties - including the decision regarding how long they can care for them at home.
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Komentáře • 64

  • @missmajestic2158
    @missmajestic2158 Před rokem +92

    This is my life completely. I'm going through the exact same thing with my husband. God bless us both.

    • @McRemmyBaby
      @McRemmyBaby Před rokem +8

      Sad, waiting for my batshit mom to become this… she is 68 & has been completely insane her entire life… batshit… good luck tho lady… life is so cruel

  • @katrinarivett5428
    @katrinarivett5428 Před 2 lety +53

    Dementia is such a cruel disease.
    My heart entirely goes out to this woman. ❤

  • @rxteck1228
    @rxteck1228 Před 9 měsíci +15

    I cared for my dad with dementia for 6 years. It was the most heartbreaking experience of my life. I wish someone would have been told about how aggressive the patients can be. I was kicked, bitten, push down and kicked. That was mid stage. When he got to the late to end stage he punched me in the face breaking out my teeth. It’s been 2 years since dad’s passing, I have trouble functioning due to PTSD. I think the dementia patient and the caregiver should be treated as 1 patient. As a caregiver I never got the time to treat my own health.

  • @BLUEGENE13
    @BLUEGENE13 Před 5 lety +54

    this scares the life out of me, people don't realize that what's happening to his mind is terrifying

  • @dorianphilotheates3769
    @dorianphilotheates3769 Před rokem +22

    My wife and I are going through the same thing with her Mom. We lost her Dad three years ago to cancer; he’d been in good health until the diagnosis of his wife’s dementia, the worry, and the constant caregiving finally wore him down just when the pandemic hit. - Strength and Courage, everyone!

  • @Katx-
    @Katx- Před rokem +21

    Imagine accomplishing your life goals, Done everything you wanted just to forget.
    Feeling scared and alone even when you're surrounded by loved ones whom you dont recognize.
    I'm so sorry. ❤

  • @yahooo949
    @yahooo949 Před 3 lety +29

    It's sad to watch this video because it reminds me of my grandmother. I hope the care givers receive the appreciation they deserve for treating the patients with care and attention. I hope there is a cure for such horrible illness.

  • @Cookie-kk9dc
    @Cookie-kk9dc Před rokem +18

    this woman is amazing I was a nurses aide working in nursing homes many years. I understand and I also private sat with people with Alzheimer's and other forms of dementia. she is a lovely woman. I pray for her help & emotional comfort. for anyone going through this being a full time caregiver of a loved one be patient be kind consider if this where you? Don't let yourself be forgotten in the same token there are resources and Also remember you need a break as often as possible. make time for you. it's vital to remember the caregivers. ❤️

  • @phil4977
    @phil4977 Před rokem +10

    That gentleman is very lucky to have such a wonderful partner that cares so much. A dreadful disease. My Nana had it. She was a pianist her whole life and was a very independent full of life person. The disease took all of that away slowly.

  • @user-zz8zv5fm7p
    @user-zz8zv5fm7p Před měsícem +1

    heartbreaking..I am dealing with my husbands dementia, but Thank God he is still talkative and witty. I cannot leave him alone as he has wandered off.

  • @philipjoseph5099
    @philipjoseph5099 Před rokem +23

    So my mother calls me yesterday and tells me my father has dementia. Said they took him to the doctor and he failed so that's miserably. It explains a lot that was going on. So I decided to come and get an idea of what we're faced with. This video was very informative and scary at the same time.

  • @ThisSideGlassbottle651
    @ThisSideGlassbottle651 Před 6 lety +20

    Its not a fun job when your a care giver, I had to take care of my wife until she died

  • @VOMITQUEEN
    @VOMITQUEEN Před rokem +10

    It’s like he’s been reduced back to a child… this is scary

  • @margaritasanchez-cortez4520

    God bless those that care for them at home

  • @gerardp4759
    @gerardp4759 Před 6 měsíci +1

    Thank you. My family is going through this with my elderly mother. It's difficult to see her like this. I emphasize greatly with the wife and daughter.

  • @TheBrackenheart
    @TheBrackenheart Před 4 lety +13

    What an amazing woman ❤️

  • @grandfathernurgle283
    @grandfathernurgle283 Před 2 lety +7

    I'm sorry but this documentary scares me. I'm so scared of getting this disease

  • @nataliecook5136
    @nataliecook5136 Před rokem +1

    I am so impressed and given more hope from you... that I too can continue to help my mom living with vascular dementia , now in my home

  • @rebeccaphillips9972
    @rebeccaphillips9972 Před rokem +7

    I lost my dad to dementia, on Saturday. Every phone or video call was hard, seeing my dad a frail old man.

    • @williamwestmoreland4069
      @williamwestmoreland4069 Před rokem +1

      **hugs**

    • @hambone100
      @hambone100 Před rokem +1

      I am so sorry for your loss. My father was just diagnosed with dementia. I saw the deterioration in him the past 2 yrs. Now it's official what was going on slowly. It breaks my heart to see my hero in this condition that I know will only get much worse. I pray you find comfort in knowing that your dad is no longer suffering with this illness. 🙏

    • @Jammipants
      @Jammipants Před rokem +1

      We are going through this with my mother now. She was an artist and it’s so difficult to watch this disease destroy her

  • @ompaloompa4970
    @ompaloompa4970 Před rokem +2

    Makes me so sad for the dementia patient and the spouses and family members 😢

  • @feedmelenny1587
    @feedmelenny1587 Před 3 lety +11

    I wonder if anyone is watching this after listening to Everywhere at The End of Time - The Caretaker? Its depressing watching this after giving the albums a listen...

    • @luckyotter623
      @luckyotter623 Před 3 lety +2

      I keep thinking about the stages, and the artwork that goes with each stage, and how horrifying it must be to feel yourself slipping away and your memories becoming more and more confused and shredded until they make no sense at all and finally disappear and nothing is left but an empty, howling void. Poor Helmut is obviously in the post awareness stages, but not Stage 6 yet, as he is still able to walk a little and do a few things for himself, like feed himself. If I were to guess, I'd say he's somewhere in Stage 5, since he no longer talks or really seems to even be comprehending much of anything. I'd imagine Stage 4 to be when the person is very confused and agitated and needs help with most things, but can still carry on a simple conversation.

  • @thenightmomstalker
    @thenightmomstalker Před 3 lety +10

    that woman is a straight G man

  • @IKHANOGRAPHY
    @IKHANOGRAPHY Před 2 lety +5

    4:20 "The best way to cope is to just make sure that you maintain some kind of daily routine,,,"

  • @dalebenton3354
    @dalebenton3354 Před 7 měsíci +2

    My Grandad suffers with dementia a little bit at times,He is 93,Soon be going on 94 years old soon,One day he could not even remember who I was,I said im the oldest Granson,He could not even remember me at all,I knew what he was going through,Next time I saw my Grandad,He remembers me,Must be horrible thing to suffer with,Like being lost,A lot worse,Hate to think what its be like getting old,More of common thing in old people,They all cant help it suffering with dementia

  • @lindsayashworth7815
    @lindsayashworth7815 Před rokem +11

    This woman is a Saint.

  • @marianaangel5489
    @marianaangel5489 Před 10 měsíci +2

    Good that her hubby can walk. My hubby is diagnosed with LBD which comes with muscle rigidity on the right arm and leg and need to learn how to balance and walk again. 😭 😭

  • @JacobSmith-tt7dm
    @JacobSmith-tt7dm Před 3 lety +17

    The fact that there are 2 ads to make money off of this is disgusting. I'm a Care Assistant at a local care home, and I see this regularly as part of my job. I see the pain both the resident and their families go through. The fact that you are trying to make money off of this disgusting.

  • @mtheory85
    @mtheory85 Před 9 měsíci +2

    Everyone is forgotten in the end.

  • @saranoel177
    @saranoel177 Před 3 lety +3

    What an amazing woman!

  • @shelbythebest2312
    @shelbythebest2312 Před rokem +4

    My grandpa has dementia and life isn’t easy for him because can’t rember anything and he’s in a memory care and I’m just really worried about him because he might die soon

  • @waynejus4092
    @waynejus4092 Před měsícem

    Kudos to you.

  • @TheLcjohnson
    @TheLcjohnson Před 18 dny

    I've come to the end of my capacity to cope with dad at home,we had help with a live in carer as well. I'm absolutely heartbroken and stressed in a different way to put him in a nursing home 2 weeks ago😭

  • @dominiknye6803
    @dominiknye6803 Před rokem +2

    This is heartbreaking to watch 😭

  • @ajil3824
    @ajil3824 Před rokem +3

    if you are a person that in love with honour, dignity and such, this disease is your worst nightmare.....

  • @___beyondhorizon4664
    @___beyondhorizon4664 Před rokem +1

    When I interviewed for Medicare for 2 months, I talked to few with diamentia. The family said the patient forgot things from yesterday but member things years ago. Like her brain just stopped functioning, forget to eat unless the family takes turn to cook/ feed her . All I could think of is the cycle of life, adult care for aging parents, just like a bag.
    That short term contract job reminds me of my favorite quote
    Seize the day, don't take things for granted, just go out and achieve your goal. For me is travel the world 🌎

  • @henriettahenson
    @henriettahenson Před 5 lety +14

    Noooooooo sorry this is what killed my father 6 years ago .........He was my mother's caregiver ............ My mother is still alive in a nursing home she is In last stage Dementia now 90 years old ....be ware you can easily run yourself into the ground and loose your own life🙏
    .

  • @odettehokemeir4425
    @odettehokemeir4425 Před rokem

    Be Blessed Martina 🙏🙏🙏

  • @jamesradskijr.9745
    @jamesradskijr.9745 Před 4 měsíci +1

    How do you help someone who definitely has it and will not get help, it's getting way to hard on one person.

  • @agentmusk2842
    @agentmusk2842 Před 3 lety +19

    I think death is better than living in this state, it's like the person that you most love is turning into an animal

  • @JamSparing
    @JamSparing Před 5 měsíci +2

    As a German, it's strange to have my native tongue dubbed over in English rather than German dubbing over English.

  • @calliopivogiatzis2235
    @calliopivogiatzis2235 Před 2 lety +3

    Does anyone know who made the 70s documentary about a young mans father who slowly deteriorated? I think it was Ross Mc Elwee but I may be wrong

  • @dontlook8748
    @dontlook8748 Před 8 měsíci

    She is a very good and loving wife, God bless her

  • @user-nw4kk1hx6c
    @user-nw4kk1hx6c Před dnem

    Yes I used to take care of people like this

  • @dalebenton3354
    @dalebenton3354 Před 7 měsíci +1

    Many families will face the heartbreak of dementia this Christmas. But no family should have to face this alone.
    If you agree we urgently need more specialist dementia support, add your name now. Thats what I read on News post on Social media,dementia,Can happen to any one at any time,Mostly far more common in older people who 80+ years or older,Nothing can stop it,We all get this when we get to older age,Hate to think how bad it is,Like being lost and confused,A lot worse that lost and confused,It not their fault they have dementia

  • @lucev7497
    @lucev7497 Před 3 měsíci

    She says, he used to have many friends, where are they now?

  • @suzannerobinson6086
    @suzannerobinson6086 Před rokem +1

    🙏🙏🙏

  • @bellabiesel4560
    @bellabiesel4560 Před rokem +1

    😢

  • @gr6666a
    @gr6666a Před 3 měsíci

    Where are the kids ? No help for her or just spending time with their mom

  • @deathkitten7635
    @deathkitten7635 Před 5 měsíci

    The daughter kind of looks like Jennifer Lawrence.

  • @jacksonblackson4892
    @jacksonblackson4892 Před 3 lety +2

    FIRST

  • @lauraalmasan3930
    @lauraalmasan3930 Před 10 měsíci

    Bredesen protocol!

  • @McRemmyBaby
    @McRemmyBaby Před rokem

    The long goodbye 😂

  • @Ironbattlemace
    @Ironbattlemace Před 2 lety +2

    0:11 Think he forgor... 💀