Better ways to utilize opioids for fibromyalgia pain: FibroManual Book Talk #4
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- čas přidán 18. 08. 2023
- New ways to prescribe opioids can improve safety and effectiveness. A refresher and update based on Chapter 20 in The FibroManual: A Complete Fibromyalgia Treatment Guide for You and Your Doctor amzn.to/3Uql7wg
About me: I graduated from Tufts University School of Medicine and am board-certified in internal medicine. After developing fibromyalgia in medical school I was able to find integrative treatments that helped me feel much better. In my videos I hope to inspire everyone dealing with #fibromyalgia to remember they are #fibrofierce!
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I was looking at your hands! Do you have Dupuytrens or at least the tendency? I have fibromyalgia and Dupuytrens, and I think they are definitely related as part of an autoimmune disorder! I have cords in both hands, frozen shoulder and Ledderhosen! It is even harder to get help with! I have decided that because of my dna showing that my ancestors survived the plagues and ultra filthy conditions of crowded and filthy low income London, that plus my red wasp attack brought about this condition! I heal super super fast, and keloid! My body is on super speed! It’s terrified I will hurt myself so is always in hyperdrive. My pain specialist laughed at my statement about this theory…….but I think I’m onto something! Now I have to find someone who understands that knowledge of this problem is half the solution! Most of them just want to give you their specific treatment instead of just talking with me instead of at me! This is so frustrating!
I am in Canada and cannot access opioids. I have used oxy, morphine and tramadol over the last 13 years. They worked amazing at first but became dependant and stopped(withdrew over months) They want to give me cymbalta, lyrica, gabapentin, amytriptiline. Nothing helped me. The side effects were worse than the pain control. So many years trialling different things. I am off everything and in horrible pain daily. I would love to have access to to tramadol again but not using it daily. Just to have it to stop the cycle. And it does stop the cycle.
Speaking of pain...when I was in the hospital for my broken ankle, the demoral they gave me made it it hurt ten times more. That was a nightmare.
I halucinated like crazy on the stuff when I was bitten by a cotton mouth snake.
I had both knees replaced, Two years ago. My knees and my calves still hurt everyday. Any suggestions . My dr says it’s from my fibromyalgia that moves around. What is your opinion? thank you I have read and follow your book.
Does tramadol have same characteristics as opiates?
It’s been a different experience for me with tramadol. There is only specific situations I take it.
Yes tramadol is labelled as a ‘safer’ opioid but they all end up having the same impact of dependence and poor efficacy after some time. Don’t be fooled though…..they are an opioid and just as hard to withdraw from.
Ive had sever FM for 42 years. I take 1 or 2 max Percocet 5/325 daily. Not every day only on the absolute worst days. I also have Bupenorphine 5mm patches however I find that there are to many side effects with the patch that make my skin dry and burn. Also there are sone days I do not have 8/10 pain level days of pain and I do not require the patch or Percocet.
I have self-regulated for years...I allow myself two a week...and rarely do any, lol, because they are SO effective for a kind of a "pain reboot" that I don't ever want to become tolerant, or even mess with the idea of addiction. I can go for months. It is SOOO good...like being let out of jail. When I do one, I put it in my calendar, but don't worry about doing the second...because if the time ever came when I really needed that second, I would have already taken it..so I just don't, lol.
It did help that when I tried to kill myself (the second time, and luckily survived) I was stuck in an addiction group and learned a lot about it. Ironically, I tried to go with the narcotics...if I had been an addict, there would not have been so many around, lol. But seeing innocent people who had fallen into that rabbit hole, and yet at the same time understanding how important it is to me to have that option for pain has been enough to keep me going all these years.
I have often looked to try to see what the suicide rate is...not easy to find. I know the divorce rate is like 85%, and yes, am glad on my second try I got an absolute gem of a human. Hoping I don't outlive him. I stay alive by doing everything I can to be spending my life doing things I passionately care about...and live in a place where a lot of nature still exists. I am glad I get massive pleasure out of things like moon and sun rises and sets...and I know when I am frustrated I need to take time to be creative.
And I long since gave up caring what anyone thinks...I live in my bathrobe because clothes hurt...and I get more energy for things I care about by listening for pain and minimizing it mainly by physically changing the world around me to be more comfortable. I move any and every time I have the energy and work the earth. They can write me off for being a bum, and will never know just how hard I work for the things I have done that are important and relevant to me...because I don't care what they think...I need to survive.
I live in Italy and here it’s common to get prescribed codein with paracetamol but it never helped me so my doctor changed it to slow releasing tapentadol which helped the first times abd didn’t make me feel high like codeine did at times. The only thing is that it didn’t take long until I stopped feeling it work, is it possible that I built resistance in only ten days or so? And another question I have is, if you build resistance but you stay off for a few weeks or months, will you ever go back to how it was before?
It usually takes longer than that to build tolerance to an opioid, but everyone responds differently to medications
I started on LDN first and it's not really cutting it anymore. I'm hoping for some guidance on how to introduce possible opioids into that scenario..I also have EDS and AS 😢
I can’t give specific medical advice but check out my video about combining LDN with opioids for general guidance. Sending you best wishes for your healing.
I am a nurse who at fibromyalgia and got better I had my TMJ treated my airway treated and my malocclusion fixed and my fibro got better please read my book or watch my interview on my book
What are best ways to manage fibro pain meds
I go into detail in my book!
Where can I get a fibro fierce necklace?!?
Great question! I am working on trying to make them available for folks. Stay tuned 💜
Few questions and even fewer replies from the person who made the videos. I don’t understand how this “Dr.” who has plenty of time to post videos can’t take a few moments to answer some questions. I’m outta here! Not to mention the distasteful artwork that can be triggering for some.
I apologize that I am not always able to get to comments in a timely fashion. The artwork is fibromyalgia-related, Frida Kahlo's visual depiction of living with chronic pain, but I definitely have heard from some viewers that they find it disturbing so have changed my background for the last few videos.
@@DrGinevra I appreciate your response and I just watched another one of you videos on myofascial ? release and it looks promising.