Six-year-old Jacob Geer takes 12 pills every day to control his seizures, is fed by a tube and regularly visits a variety of doctors. He will be lucky to celebrate his 12th birthday.
I have a little boy Bryce, (8) with Batten Disease. He was diagnosed at 4 years old. We live in South Australia. The BDSRA have been a God send for us as well. We have held fundraisers to raise money and the much needed awareness. We will continue to do so even after our son passes away. Our best wishes for this family living with this terrible disease.
I have a little boy Bryce, (8) with Batten Disease. He was diagnosed at 4 years old. We live in South Australia. The BDSRA have been a God send for us as well. We have held fundraisers to raise money and the much needed awareness. We will continue to do so even after our son passes away. Our best wishes for this family living with this terrible disease.