I am an adult that was diagnosed with JoHD

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  • čas přidán 3. 08. 2024
  • Please tune in to hear Ashely speak about her diagnosis of JoHD. She talks about dating, diagnosis, loss of independence, faith, and more.
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Komentáře • 5

  • @jlabdsm
    @jlabdsm Před rokem +2

    You are so amazing. Ashley, I wish we could take a piece of your pain and struggle. You are bringing so much attention to HD.

  • @Oopsiedaisy861
    @Oopsiedaisy861 Před rokem +3

    I’m so sorry Ashley. This disease is so cruel and nobody deserves this terrible affliction. Your future you envisioned for yourself was robbed from you. Please keep sharing your story. I am gene positive for HD myself and it is so scary.

    • @Oopsiedaisy861
      @Oopsiedaisy861 Před rokem

      Does Ashley have her own social media I can follow her directly?

  • @arlenebrouillette7604
    @arlenebrouillette7604 Před rokem +1

    I work on a unit specific for HD. We just got our first resident with JoHD ... 27y.o. thank you for sharing your story. It will help me to help our resident.

    • @help4hdtv
      @help4hdtv  Před rokem +1

      It’s wonderful to hear that you work at an HD specific unit! This is so necessary and such important work. Thank you for doing what you do and for sharing your story, too. Please let your residents and their families know that we are here to support them! ❤️💜💙