IVIG Aftermath and Recovery 😷 (10/14/17)
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- čas přidán 26. 07. 2024
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I've been receiving ivig 60 grams (Gammaguard) since 2004 and it's for life. Wanted to let you know you did great. Here are some helpful tips that could also help you....drink lots of water before and during infusion, sleep during infusion, ask for more benadryl at your bump ups to hopefully help prevent migraines, drink caffeine after infusion ,and go home and sleep. Benedryl and Tylenol can be taken 24 hours after infusions to help with migraines. You can unfortunately feel sluggish and tired for up to 3 days after infusion. Sometimes i have no side effects from the infusions too. Glad you never give up!
Yes we increased my hydration this time which seemed to help a lot. I cannot drink much due to my GP but I do IV hydration. No caffeine for me but the Benadryl does help as well (: I hope I get to a point where I no longer have side effects. People say that can happen as time goes on.
Glad I scrolled through comments!.. I just started ivig and got 160 grams over 2 days.. I feel just simply awful! 😭
I am glad your mom could make an appearance on your channel. Your viewers adore her. :-) God is good. I am glad that you didn't have to go to hospital. Rest up. Hugs.
Husband goals. I’m so happy ur having better luck this time. I hope it continues and and you have more good days than bad days. Between Harlow, Judd & your mom, you have the best regimen for success
I can see your quality of life getting better each day. I'm so happy for you. I will keep you in my prayers.
jaquie, i am 16 years old. i am currently at the Mayo Clinic in hopes to get some answers. I have Dysautonomia (POTS) but there is more going on, which we dont know what it is, hence why im here at Mayo. i just wanted to say thank you for your daily vlogs! they keep me calm and in the right mindset. best wishes!! much love and blessings ❤️
sydthekid22 Goodluck!
Best of luck!
Chronically Jaquie thank you!!!!
Jaquie I hope and pray that IVIG keeps doing you good. Bless your heart. Judd is becoming a very good nurse lol. Harlow is such a sweetheart.
GOT gets even better at season 7. I will not spoil it for y'all. You and your momma are so beautiful. Hug her for me please. What would we do without our mommas when we're chronically ill. Judd is the man. He takes such great care of you. Hugs, prayers, God Bless. Sending all my good thoughts and for y'all.💗💗♿🐾🐾💪🙏🙏🙏😼💜💜📹💕💖😇🌴🐊🙏
Judd is my hero, he knows how to do everything for me when I cannot do so myself (:
Chronically Jaquie his a good hearted man. I wish my husband was more careing. When I first got sick I was 21 with my Chronically ill for 2 year's I had to suffer. He still doesn't understand. Judd's a Goodman and a keeper.y'all are in my thoughts and prayers💗💗💗🐾🐾🐾💖🙏🙏🙏💜
I hope you don’t get those bad side effects... Judd is a pro by the way! I’m impressed.
Claire Elizabeth Blake I think we're good...... 🙏
You seem to be doing really well lately. ❤ I'm happy to see you getting better! Sending prayers and love from canada! ❤❤❤
Aww💟 The way Harlow lays her head in your lap when you don't feel well is so precious. We really are blessed when we find SD's that are tuned in to us so well. My SDiT has been doing the same for me. It lifts the spirit.
I'm so glad this was a better recovery for you. It's really cool to see the relationship between Harlow and Judd. They are VERY ADORABLE! You are BLESSED to have them in your life! God bless you and your family. Continuing to pray for you and your family!💜💜💜🐶🐶🐶
Judd would be such a good Dad. Just seeing the way he is with Harlow
Jaquie I swear you have the luckiest man in the world Judd is such a good guy he does a lot of things for you and I’m so glad that you’re doing so much better it’s amazing love y’all
I'm so happy that u didn't end up in the hospital! That's a great sign. What a great hubby u have that he did ur banana bag. U always do the banana bag, but judd has a great memory of how to do it.
Ur moms in the vlog!!! Yippi!! Missed her!!
Good to see judd at the camera talking and he got your banana bag ready like a champ.
Jaquie you are a trooper.
Watch every vlog and love to you all.
Thank you for responding yesterday, I'm so glad that things have been better I'm sorry you had to deal with the reactions you did but so glad they have gotten better than they were last time. One treatment at a time and fingers crossed they fully go away. Even after 10 years of it with my son now and then he still has some rea actions but nothing benadryl doesn't help take away. Please rest and praying each day you feel just a little better. Hugs from Ca,🤗
So relieved to see you're doing better with this IVIG! I love that you allow nothing to stop you from your goals...I probably would have called it quits had I endured what you went through the last time! You've got your eyes on the prize and you're going for it no matter what and it's so inspiring! Thank you so much for sharing your daily battles with all of us! Sending love and good vibes your way!
Hi I've been following you since may. I started watching because of Harlow but I stayed because I "fell in love" with you and your family and I get happy when you're doing well and worry and hurt when you're not doing well. And today for some reason I didn't get a notification when the vlog got updated so had a small panic attack thinking that the IVIG made you really sick again. I'm so happy this time went better and that you're still doing ok at least! Love and prayers from Filippa in Sweden ❤️
Thanks for uploading earlier this time. I was thinking of you three ever since the last video, and was really hoping you didn't end up in the hospital with severe pain again. I can relax now, but more importantly so can you. Stay strong!
Hey Jaquie! SO glad you are doing better this time around in IVIG. I just wanted to bring something to your attention though. My golden retriever was recently diagnosed with Golden Retriever Pigmentary Uveitis -- it's a chronic illness in the eyes where cysts form inside and disturb the vision. It is a very serious condition with no cure and little treatment options. The disease forms in pure bred golden retrievers, and it's best to diagnose early before the condition gets worse. Please take Harlow to get her eyes checked -- and for anyone else who has a pure bred golden. Sadly, my dog was diagnosed at 10, and the doctors say that it starts to appear later in life, but it was always there even if she was young. I just wanted to let you know.
Check out my Harlow video. She has allergies. I took her to a veterinary opthamologist to be evaluated because I was worried about her eyes, but she has nothing wrong with them.
Early squad where you at? I'm here at 230 views. Love you Jackie and Judd and Harlow
I love your mom, so cute. Judd’s mom must be so proud of the young man she has raised 🙂
So Happy it's working for you! Love watching your adventures!!!
I'm so glad this round has gone better than the last! I pray for you guys often and I'm so excited to see things finally moving upward!
I’m so glad IVIG went well! Continuing to send love and prayers to you and your family! ❤️❤️
So glad things were better this time. Love and prayers from the UK 🇬🇧
So happy to see your mom in this video! Have missed her! Glad you are able to recover from home! #prayersandpositivity! 💖
Feel better Jaquie 💕
Feel better soon hunny!!! Praying for you. Judd is great help also Harlow..
I really love hearing judds take and side of things. It adds more dimension to the vlogs. Keep it up 😊💕
I’m so happy for you Jacquie. You totally got this. You have a good support systems, doctors, and family. Your showing the chronically ill patients that they can do anything. I’m taking care of my husband who has a chronic illness and if you can do it so can I. Than you jan
You should dress Harlow up as a carrot for Halloween lol.
I'm so happy that this round is going better than last time, Praying you continue to feel better!
Melissa Hilliker Harlow should definitely be a carrott! Judd would have to like at least one carrot in this world!
Lol she may fight me on this as she liked her tutu from last year ;P
Melissa Hilliker 😂#operationtourtureJudd! 😂👏
Imagine if Jaquie got a giant carrot and put the googly eyes on it 😂.
There are so many opportunities here!
Melissa Hilliker 😱 WE MUST MAKE THIS HAPPEN!😂
wow, i couldn't stop smiling watching this video, Jaquie, so glad to see you smiling even though you're still recovering, but am so relieved that this time round, the IVIG treatment went pretty well and looks certain to be a really good tool for you.
Judd, you and Harlow, i kept laughing out loud watching you two, the love you have for Harlow and indeed she has for you is fantastic to watch. Harlow may be a service dog but she is such a integral part of your family, it's a blessing to watch :)
Especially love watching those little wrestling matches you two have, I swear, I can see Harlow laughing and smiling at you LOL :)
So happy you're doing better Jaquie!
You have such a supportive husband and family. And honestly it's so sweet that Judd was helping you all day while you recovered. Sending all of my love to you from Texas!
So glad you are getting better and I'm so glad you have such great support from your wonderful husband and mother. Good for you!
jud is so sweet to you! im glad this round of ivig side effects arent awful! rest up and take care of yourself.
judd,jaquie is very lucky to have you,not very many men out there will accept a woman that is disabled and take care of her.i don,t know maybe alot of men are intimated by women who are disabled and are scared to take care of a disabled woman.janice is also very lucky to have paul.
No ER this go around! I believe with all my heart you are going to see great improvements in your overall health from the IG. Keep going forward!
So glad you made it through this time at Home!!! And I love it that judd vlogs more!! He is such an amazing husband, hope to found the right one for me someday, now 29 years and 7 years single and it is so hard to date when you are chronicly ill. Most men run away and I understand it but it also hurts. But I have two amazing pugs (dogs) with me who made my life so much more fun and happy. I also get my wheelchair soon and that makes me happy after fighting for years to get one!! Jaquie, I also see that you feel better with your new feeds!! You have more color in your face and your eyes look more like you feel better and that is so great!! I love you guys and so happy that I found your channel!!! Hope the ivig Will do more good to you!!
I'm praying for you today. Please say Hi to your mom. I love it when she is in the vlog. I love to listen to her talk.
Wish you felt better..i know it can be so hard to stay positive but you got this..one of the strong chronic warriors xoxo
Aww I love that Judd did the prep for your infusion!
I may be a late subscriber but just watching all your videos and vlogs it warms my heart and u are doing so awesome you are a strong and a amazing women and I'm glad you have Harlow and your loved ones there for extra help and support.
Just yesterday I was thinking we hadn't seen your mum for a while. I was wondering if she was still living with you. Nice to see she's still helping out and supporting you though xx
I’m so happy you’re doing better than last time Jaquie!!! You got this! And to answer your question “does hippo know you love her” yes... she knows you love her so much. You can tell the way she looks at you :) ♥️♥️♥️
You are so lucky to have someone like Judd in your life ❤️ get well
Judd is such a dream. Love him
Glad to see you in a good mood and on the way to feeling better and in feeling better to benefit from the benefits from IVIG.
Get well soon jacquie. Love you guys!👍👍👍
I hope you get better. I don't have any chronic illnesses but I have learned a lot from you. Thank you
I finished IVIG Friday I do it five days in a row every 4 weeks. Glad you are feeling better!
Keep fighting! ❤️ Don’t lose hope
Jaquie, i'm so glad things worked out! Your body is probably just like "What are you trying to do to me WOMAN"!😂 But THANKYOU JESUS!🙌 The first part of the vlog warmed my heart! ❤️ Hi mom!
Hi! I don't know if you remember me, but I'm the one with issues liking the videos. I HATE 6s, and today I was the 67th like! I got to like the video, and "fixed" the number! I'm so happy!
Polar Bear ofcourse I remember 😊 i'm glad it worked out! If you see I commented just ask and i will like again to help you!👊👍
Thank you so, so much!
Polar Bear You're welcome, happy to do it😊💜
Erm.. help, the number of likes I'll be is a bad number on the new video...help please?
I hope you feel better!! Ive been waiting all day for the vlog😂😂😂
I love that Judd is so helpful and understanding about all your illness' and so loving..💗💗
So glad things went better this time!
Hey Jaquie I love your videos and I hope you feel better❤️❤️❤️
I had infusions for anemia until i had an anaphylactic reaction. Now my rbc counts are secondary polycythemia. I think anytime you take medicine or an infusion is a shock to your body. Wishing you a speedy recovery.
When you were talking to your mom, your face appeared to already have more color. ❤️
Judd, you are so good. A lot of guys these days wouldn't do stuff like that for long.
My friend had POTS and EDS too and your videos have really helped me get a better understanding of what she’s going through. I’m a paramedic in the UK and hopefully it’ll help me understand patients with chronic illnesses better to so thank you for that. I love your videos and really look forward to them. I’m so glad you’ve found some treatments that are helping to reduce some of the life my term challenges you’re facing and hope that you continue to do well. Judd is so sweet, and you two are both so suited to each other and it’s lovely to see how much he obviously loves and wants to protect you. And ‘Hippo’ is the cutest dog I’ve ever seen. I just wanted to say hi from across the pond and wish you continued improvements. Keep moving forward xx (ps, I’m afraid I agree, Harlow definitely needs to be a carrot for Halloween 😂 🥕)
Sierra Bdawn thank you 😊
You look so good Jaquie!! Harlow and Judd love to play!! Hi mom!!
Aww Judd is such a great husband 💕 Get well soon Jaquie!
Blow raspberries on Harlow's tummy and see if she goes crazy. My dog does.
Caryn Schwengel mine does too lol!He is a traditional boxer,and his name is Buddy
Caryn Schwengel My girl goes crazy with face kisses and playing alligator.
I have cats. Probably not a good idea for me.
Every med comes with its on risk. Mine Iv Infusion can case a fatal brain infection but when you think about the risk compared to the benefits is worth it. Hoping that it improves my chronic fatigue. I sleeep a lot and don't have energy to do anything and when I do it take a long time to recover.
Moms back! Feel better!
Yay can't wait for tomorrows vlog
I love when Judd takes over the vlogs 😂
I'm glad IVIG went well this time & that the recovery is also going well. I hope this trend continues. When are you going to switch to day feeds? Are you currently in the process of doing so? If so, how's it going?
Ps. I love watching Judd and Harlow play together! It's super adorable!
Hey Jacqui, Mary Frey from thefreylife on CZcams does ivig and talks about the same symptoms as you.
Although Mary has cystic fibrosis, she does ivig, feeding tube (stomach parenthesis).
Glad you're doing well with this ivig.
get better soon ❤️
I love you Jackie ,Judd ,and Harlow I just discovered you yesterday and I am already in love. I hope you feel better and I’m sorry for what you have to go through. I love you sooo much. 😘😍😍😍😘😘😘😘😘😀😀😀😢👍🏾👍🏾👍🏾👍🏾👍🏾 Stay awesome and healthy
Its good to see your are well after your IVIG, you are very lucky to have your mum around , i miss my mum very mum. But i can feel her around me . God pless you and your loverly family.
I think I can...I think I can...I think I can...I think I can... You got this.
Fun fact! the little engine that could was a girl!!!
#GirlPower
God is good. So thankful IVIG went better this go-round!!
I was at my sisters wedding all day and I was close to passing out but I didn’t! She was mad that I had to sit down but I was losing by vision and you need to do what you need to do 💖
Glad it was better this time!
Hi hippo your being so helpful
Loving some Judd vlogs lol
This is awesome news love..
You're an awesome husband Judd..AMEN
I love to see your Faith in God and your knowledge of knowing he is there for you!
I lave systemic Lupus, common variable immune deficiency,
I am not sure how folks deal with any kind of illness with out. Have The Lord!
Hope you have a beautiful Sunday!❤️
Shelby Greenwood first hello and hoping you are coping well and asymptomatic☺ Im a Canadian with Crohns disease and a superstitious atheist/possibly agnostic.
I come from a mixed family and do practice some aspect of Cree (Nehiwaywin) spirituality...but that doesn't require a belief in a god just a general thankfulness for all of life. As a non religious person I get through the trauma and hospital stays with support from friends, family, my partner...pretty much same as you all (I imagine?). Afterwards at home I see a counselor to cope and spend time walking my dog and snuggling my cat.
I'm honestly not sure how I cope differently except for the prayer aspect? I do pray but it's just general thankfulness and asking that all the people I love will be ok. I usually don't pray about myself ever.
So I'm not christian or new age or anything but I feel like my culture's spirituality is a personal thing. There are no priests and growth happens by sharing with others and listening to the elders stories. I'm not required to feel guilty or like I need to be forgiven...im only required to do my best, be kind honest and to share what I have and learn from my mistakes.
The other side of my family practices a really racist classist version of evangelical Christianity that I rejected as unhealthy (for me...not bashing any other christians..just my birth father) so I have had a hard time over the years being respectful of Christianity. As an adult however I have many people I care for who are religious so I am always supportive of whatever helps people. Just because it isn't for me doesnt mean I don't hope it makes your life easier and happier.
I feel like if I believed in god I would have a harder time because I would always be asking why? As if there were a reason other than sucky genetics and environmental triggers. But I wonder how it makes it easier for you?
I sincerely hope I haven't been offensive because religion is hard for people to talk about but I wanted to answer your question☺ consensual cyberhugs
No you were not offensive, I am not religious I just serve God,
I don't ask God why, because he didn't question why when he died on the cross for me!
I hope you have a beautiful week!
Nice talking with you!😉
Positive vibes✌🐶❤
I hope u get better I love u for evee
I just wanna say, I think your mum is awesome 😅
It's quite apparent that Judd paid attention in the CLS course lol. My husband aced his and tries to get me to let him start IVs on me. Umm no! My veins are too fragile. The medic in me always notices a persons veins and I secretly wonder if it would be fun to take their blood. I was a good medic but I can barely get into the ambulance as a patient anymore let alone a medic. My career and my kids childhood are two things I lost being sick. I sure hope this ivig helps you because no one deserves to be sick.
Im glad the ivig is working for you with no hospitalizing side effects this time!! Do you think at some point you won't have your port accessed 24/7 since you're having less angeodema attacks? Or either way would you still keep it accessed for your infusions? I kinda wonder about that when you use your port because I remember you saying once that you were keeping it accessed for those attacks and that it can be a risk to have it accessed all the time, but it was worth the risk b/c of the attacks.
I use it every day mostly for IV meds and my frequent infusions so for now it is accessed 24/7. Highest point of infection risk is when accessing/deaccessing. So the less you do it, the better. Since I use it so much right now it is best to keep it accessed 24/7.
HE'S SUCH A GOOD HUSBAND
So glad you didn’t have to go to hospital. Does that bag fit your banana bag and tube feeding?
i made some pumpkin cookies to have as my breakfast with coffee in the mornings.
You move your hands when you talk, like my Dad, aunt and uncle. They are Italian. 🙂
Kimberlee_Tucker thats the autism, but its so nice I think that you can think of it like that!
Disney Gamer oh ok I didn’t know that.
Where is your headband from? I love your hair - it makes me miss when mine was longer. It just takes so so long to dry that going through the process was utterly exhausting. I don’t like my hair short though so I always grow it out anyways!
I hope you are doing well 😇😊😊😇😇😇😇💖💖💖💖💖💖💖
SCIG wears me out for a couple of days. I assume it will do the same with IVIG.
I’m so glad you are doing better with the treatment. I was wondering if you know any psychiatric service dog team?
Yes I know some and my friend is getting a SD soon who will provide some PSD tasks
Hey, I've been following your vids for a little while now, and I was noticing that you don't seem to have had any angiodema attacks for awhile. Have those died down some, or have you just not shown those on camera?
I just had my first ivig treatment Friday and Saturday (February 9th and 10th) and I feel so incredibly awful I just want to cry! I don’t have all the medicine you have to help with nausea and pain and all that.. I don’t have a fever but a bad headache I’m sure it’s not meningitis.. I am wondering how long I’m going to feel so bad after because it’s so awful 😭
You should read/listen to what it’s like to be a dog it’s very interesting and is about doggy neurological state.
Your a strong fighter. :D I wanna talk to someone I'm bored. I wish I could get your shirt but I cant order things. I'm 11. lol Keep up the good work.
You should still mention your side effects to your doctor. Glad you could handle it at home. Rest up and feel better!
Of course, we are in frequent communication.
Jaquie may I ask do you suppress your menstrual cycle? How do you cope with it?