Fibromyalgia- my story of living with Fibromyalgia

#fibromyalgia #chronicillness #mentalhealth
Hello and welcome to the channel. In this video I share with you my experiences of living with Fibromyalgia.
I also have Crohns Disease and a permanent colostomy.

[@thewisepowerchair2369]

Hello Chris/ sydney stoma. I am being treated terribly by the medical profession.
I am not suitable for an ileostomy and they will not do a colostomy, so I am left to suffer. I cannot poo, which makes it impossible to eat, and I have been near death as I don't absorb potassium.
I have just clicked on this video and not watched it yet. I am sorry if you are going through a lot of pain.
It feels a relief being able to talk with you.
Right now I am in bed, my heating pad wrapped round my shoulder.

[@RonsonDalby]

I hope all is well with you, Chris. Cheers from Down Under. 😊

[@geeg7202]

Oh my gosh it’s so good to hear from you

[@sydneystoma385]

Thank you

[@N2daBraves1]

I just came across your video. My wife just had surgery and had to have a colostomy. She also has fibromyalga and suffers from all of the symptoms. The surgery is less than 2 months old, and we are still learning to deal with it. Thanks for sharing your experiences, they are helping alot of people.

[@sydneystoma385]

Thank you and much love to you both

[@andrewbradbury8527]

❤ I remember coming out of hospital feeling down nearly 3 years ago, saw your videos and realised I wasn't alone, such a good explainer, I felt much better so you were part of my recovery, I ll always remember that 😊

[@RonsonDalby]

I second that! 😊

[@sydneystoma385]

Thank you

[@sydneystoma385]

Thats lovely to hear I was part of your recovery and my videos have helped. This is exactly why I do it. Many thanks and wishing you the best.

[@geeg7202]

Could you talk about like all the things that you eat in a day because I’m really having a hard time with food and I know it’s different for everybody but it’s here good to hear what everybody can or cannot do the food

[@sydneystoma385]

Yes i can do a video about that.

[@geeg7202]

My favorite was the car changing a bag because that can happen and camping and all that because I am planning on being in a bit of a nomad if I ever get healed how is that irrigation working for you?

[@sydneystoma385]

Irrigation works really well, no issues there. I do lots of camping and no issues with bag changes , hope you have some great adventures

[@sandboxaccountz.zy.7012]

i said this so often to my wife, i cant remember this or that
this is the first time i learned about the name fibromylagia

[@sydneystoma385]

I hope it helped! Thanks for watching.