Just wanted to let you know my wife was diagnosed last May and has been on the same medication you have indicated in all of your previous videos. I am very pleased you have taken the steps to share your journey...We too have researched a great deal as you have online at the ASH conferences and such and also completely agree with your journey by delaying the transplant. Her recent bone marrow biopsy is now down to 5-9 % from high of around 70-80% last year...no bone damage was indicated, her kidneys and liver and heart are in great shape. I will continue to follow your reports...
Guy Vincent..I hope your are continuing to do well in 2016 and you are still finding great success with your course of treatment. My wife is doing well..her M Spike is now .6 We are now two years out from Stem Cell Autologus Transplant. We decided to go ahead with transplant after she mentioned or asked, "If I don't move forward with a Stem Cell Transplant, who will be my caregiver should you not be here when it's time if needed to have to have a transplant?" We decided to have the transplant. Enough Stem Cells remain frozen at Emory for two more transplant should that be needed... We are posting here to find out how you are doing these days? Tom L
Hang in there buddy..Greetings from Greece ...Good to see ya again :) Hope the next summer you ll be strong enough for another long vacation.. Come to Greece if you can and see what paradise looks alike.. KEEP STRONG
I sure hope to be around in 100 years. But, there is a saying: "in a hundred years, it'll be all new people around". Except a few. Best wishes to you too Boki. Guy
Admirable. Your attitude definitely contributed to your survival. Just curious, what was your plasma cell % at BM biopsy when diagnosed and now with maintenance therapy?
Bonjour SuperSantaClown, le docteur Richard Le Blanc du CHUS n'est plus mon médecin depuis quelques années. En fait, depuis avril 2012. On l'a forcé de prendre un congé de maladie et une fois sorti, on l'a jamais ré-intégré. L'excuse: trop dérangeant dans leur système. Les systèmes de Santé publiques partout au monde n'aiment pas lorsque qu'on démontre que les fonctionnaires sont incompétents. Ils ont trouvés toutes sortes de façon pour lui rendre le retour le plus difficile possible en prétextant toutes sortes de raisons qu'ils n'avaient plus les moyens et la volonté de continuer à se battre contre un système qui ne voulait plus de lui. Alors, aux dernières nouvelles, je crois qu'il est déménagé en Ontario ou aux USA. :(
Hello Cagwa, I feel great still, thanks ! Soon to be 6 years since the diagnostic. Still on Revlimid 25mg + Dexa 20mg. No autologeous stemcell transplant yet. Just met my new doctor at the beginning of Sept. 2014 and he seems to be very open and understanding to the treatment regime I am on. We'll be discussing the removing or reduction of my dexa in January/February 2015. For now, nothing is broken and we're not trying to fix anything. Continuing on the same med for now and we'll see later this winter if we are going to make changes. My monoclonol pic is stil at 5g (IG monoclonal protein). Not in remission but controled.
Just wanted to let you know my wife was diagnosed last May and has been on the same medication you have indicated in all of your previous videos. I am very pleased you have taken the steps to share your journey...We too have researched a great deal as you have online at the ASH conferences and such and also completely agree with your journey by delaying the transplant. Her recent bone marrow biopsy is now down to 5-9 % from high of around 70-80% last year...no bone damage was indicated, her kidneys and liver and heart are in great shape.
I will continue to follow your reports...
Your comment is greatly appreciated and is very conforting. Guy
Guy Vincent..I hope your are continuing to do well in 2016 and you are still finding great success with your course of treatment. My wife is doing well..her M Spike is now .6 We are now two years out from Stem Cell Autologus Transplant.
We decided to go ahead with transplant after she mentioned or asked, "If I don't move forward with a Stem Cell Transplant, who will be my caregiver should you not be here when it's time if needed to have to have a transplant?" We decided to have the transplant. Enough Stem Cells remain frozen at Emory for two more transplant should that be needed...
We are posting here to find out how you are doing these days? Tom L
Hang in there buddy..Greetings from Greece ...Good to see ya again :) Hope the next summer you ll be strong enough for another long vacation.. Come to Greece if you can and see what paradise looks alike.. KEEP STRONG
Thanks so much for your talks about MM. You're an inspiration!
I'm glad to see you are well. I haven't watched this latest video but will as soon as I'm able. Merry Christmas Guy.
Mr Guy Vincent.Happy for you. hope to see your videos in another 100 years.:)
I sure hope to be around in 100 years. But, there is a saying: "in a hundred years, it'll be all new people around". Except a few.
Best wishes to you too Boki.
Guy
Admirable. Your attitude definitely contributed to your survival. Just curious, what was your plasma cell % at BM biopsy when diagnosed and now with maintenance therapy?
Salut Bien!!!
Dr Leblanc est-il toujours ton médecin ?
Bonjour SuperSantaClown, le docteur Richard Le Blanc du CHUS n'est plus mon médecin depuis quelques années. En fait, depuis avril 2012. On l'a forcé de prendre un congé de maladie et une fois sorti, on l'a jamais ré-intégré.
L'excuse: trop dérangeant dans leur système. Les systèmes de Santé publiques partout au monde n'aiment pas lorsque qu'on démontre que les fonctionnaires sont incompétents.
Ils ont trouvés toutes sortes de façon pour lui rendre le retour le plus difficile possible en prétextant toutes sortes de raisons qu'ils n'avaient plus les moyens et la volonté de continuer à se battre contre un système qui ne voulait plus de lui.
Alors, aux dernières nouvelles, je crois qu'il est déménagé en Ontario ou aux USA. :(
How are you now in 2014?
Hello Cagwa,
I feel great still, thanks !
Soon to be 6 years since the diagnostic. Still on Revlimid 25mg + Dexa 20mg. No autologeous stemcell transplant yet. Just met my new doctor at the beginning of Sept. 2014 and he seems to be very open and understanding to the treatment regime I am on. We'll be discussing the removing or reduction of my dexa in January/February 2015.
For now, nothing is broken and we're not trying to fix anything.
Continuing on the same med for now and we'll see later this winter if we are going to make changes. My monoclonol pic is stil at 5g (IG monoclonal protein). Not in remission but controled.