Mom had that. Blessed she didn't get lung cancer. she smoked like a chimney from the age of 19 to 60. Then she quit and I mean quit - no more cigarettes. So grateful I had her 20 more years, but the last 5 years in and out of hospice watching her go downhill was just horrible.
my mother passed away last month from COPD. She did not realize she was in bad shape. She had an episode last year where she was gasping for air and decided to quit smoking. I was so happy she quit. But I think it was the beginning of her decline. She ended up on oxygen every day. But still did not know she was in bad shape. It was until last month that she ended up in the hospital with pneumonia. They sent her home after they thought she was fine. Then she was not responsive to her caretakers. They sent her back to the hospital only to find out she only had hours , days at most to live. She made it 4 days after. This was difficult. everything just happened so fast.
My 90 year old Dad died in January of 2021. He had severe COPD and developed COVID in the very beginning of the pandemic...something we were scared of and did everything to try to avoid. He was adamant that he did not want to go on a ventilator and we honored that. Mom was already gone a few years prior from Alzheimers. My twin brother and his wife lived with Dad to take care of him and had COVID as well, so I was the one to visit Dad in the hospital every day (in full PPE). I made the arrangements for hospice and sat with him, talked to him, called people so he could talk to them and arranged a blessing over the phone from the pastor at their church. The last day, he was unconscious and his skin was nice and warm. Up until that day, it had been cool. I also noticed that he had the pauses in breathing. When I left, I took off my PPE, kissed him on the forehead and told him that it was OK if he went to be with Mom. I told him that we would be OK. Shortly after I got home at 7PM, the nurse called and told me about the changes in his breathing. I said I had seen it too, I asked if I should come back down and she said there was no way to know. She had seen people like that for days. I decided not to go back that night and to go in first thing in the morning. He died shortly after 11PM that night. I am still haunted by my decision not to go back so I could have been there with him.
My father had COPD, he was an ex coal miner actually working at the coal face for many many years. He lived another 2 years after they told us he had a few weeks to live, he was 82 when he died. Towards the end, I was with him day and night. He was close to death many times but would then "come back", it went on for days and days. We would talk, he was more or less aware of everything and remembered many memories we shared. The only night my sister convinced me to go home as she would sleep there with him to give me a break, was the night he died. I felt the same as you did, until my brother, who knew how close we were, said, "Maybe he didn't want to hurt you and go when you were there with him" I think about that a lot ❤
I had a physician friend die with COPD & I do know this can be a tough one. You are an inspirational, smart and great looking woman. Keep up the excellent presentations. Barry Nulph, Phoenix, AZ
Thank you for sharing. Also glad you gave the disclaimer, “You’re here to educate, you’re not a Dr.”. So many times we nurses give our knowledge, love and caring but have to always tell our friends CALL your Dr.
My daddy has recently gone on hospice. He has had Dementia for 8+ years, has COPD, and has Pulmonary Fibrosis. Thank you for mentioning Roxanol! I asked our hospice nurse about it tonight and she said that is exactly what he already is taking! I appreciate knowing I can use the term Roxanol with family members who may be sensitive to the word Morphine! It actually even sounds better to me, too!😉 I appreciate ALL of your information! I, along with many of daddy’s caregivers & my mother, have learned so much from you! Thank you!
You are a awesome soul with a beautiful ❤️...... Thankyou for what you are doing .I am not sick but I am so happy I found you and learning more and more each day of Hospice and dying...all of us are going to die sooner or later. I was a nurse when I was young and you taught me alot I never knew. Never ever to old to learn.... Thanks again out of my heart ❤️ 🤗❤️
I was wondering about hospice coming on and then going or closing a case after opening it. I am a RN disabled back in 2000, Nov 7 Colin cancer surgery was all I needed. I also confirmed it with a second opinion. I have IBD. Ischemic colitis . Now last year cancer again in my anal area. Squamous cell carcinoma internally. Stage1 in remission at this time. Thankyou for educating people about four decades ago I was one of our community's first team of trained hospice nurses. I have learned so much from you.
Thank you for sharing this information ❤ I really needed to hear that.and when and if I have to go on hospice, I hope I have some one as wonderful as you 👍🙏♥️😎
My brother never smoked but used inhalers, steroids, etc. most of his adult life to breathe. He passed at the age of 57 and seeing him in ICU struggling to catch his breath was so hard for us all. The Dr. finally called the family into a room and suggested we 'help' him along. I will never forget how his head was 'jerking' from side to side as he struggled to breath. I so wish I would have known about the possibility of him passing in the comfort of his home with hospice. I would have offered this information even though it wasn't my place to make this decision.
And the hospital had access to the same medications Julie speaks about; makes me wonder why your brother didn’t get those instead of struggling so hard and you having to witness it. I’m sorry you had to experience that.
Dear Julie I found your channel just recently. Though I'm not a native english speaker I truly love your videos and the information you share. My dad had COPD and died two years ago. Although he died because of heart coplications due to COPD. I wish we have had a nurse like you. It would have made it all a bit more bearable for him and us. The staff of the nursing home didn't seem to truly understand his state and needs. Do you have any hints how we as relatives can communicate with the staff if something doesn't seem to be right. I don't want to come of as rude or so. And I don't want to make the nurses feel bad as they mostly overworked and sadly often underpayed. Thank you for all your videos.
My Granny passed away 13 years ago and she had smoked as long as I can remember only to quit only a few years before she passed away at 80. During her last months, she had been struggling with Dementia and COPD and she started going in and out of Hospital when she has episodes of Air Hunger which causes her to panic and calls an ambulance.
Thanks for this Julie for I have just been Dx'd with COPD. At the end I don't want to drag this out and was wondering if you had experience with End of Life Assistance and maybe do a vid on it? Thanks for all you do!
@@stevestarr6395 yup I'm in nj too! I'm studying to be a death doula/midwife so I'm very supportive of end of life medical assistance and am getting into all the nooks of the laws here because I aim to work specifically with this population
Hi just started watching your videos I'm stage ,4 inphazema copd my Dr calls it both But like the way you explain what's going to happen cause it's really is scary for me but thank you so very much
Hi Julie! I love your videos. You have helped me so much. My 85 yr old Mother, has COPD, Emphysema. She has gotten worse lately with her symptoms. She at stage 3-4. Difficult breathing. Wheezing. Decreased food and liquids. Trying to keep her as comfortable as possible. My question is she recently had a bad flare up with low breathing and wheezing. Yesterday her cheeks turned red/purple in color. Is this normal? And her speech is slurred. Thank you. 🙏🏽 Blessings to you. 💜
My dad died of COPD 9 yrs ago and now my mom is end stage. Her hospice nurses, CNA's, social workers have been wonderful! It was very difficult for me to approach her about Hospice. I didn't want her to think I was giving up. It took her a couple of days of talking about it and of course we wanted her to make the decision. Now she looks forward to their visits and she knows she is safe, clean and comfortable! ❤️🙏❤️🩹
My friend had copd. He got to the point where he could not eat or speak, because he got shortness of breath. Eventually, he treated it as a fungus, and it went away.
My husband has ipf. Im assuming they are about equal in the end. Hardly no info from a journey of ipf. Only finding the ipf diagnosed then never hear anymore. Yes this sound desperate. But any1 who has a loved one with a horrible diagnosis understands the fear. 😞 palitive care coming in 2 weeks we are hopeful that this will help us on this journey. I appreciate you. The way you speak it doesn’t seem so terrifying ❤️
Can you explain the transition from ventilator to in patient hospice. My mother doesn’t want to have a tracheostomy and she has been re vented the second time in over 2 weeks. She didn’t stay off the vent more than 12 hours. I am meeting with a team of doctors today and I’m really nervous. I have already talked to the hospice nurse and she didn’t answer any of my questions.
Roxanol - concentrated morphine … a very low dose relaxes a patient and usually allows them to breath more effectively and relax a bit thus feeling more comfortable.
Thank you! I went into transcripts and comments specifically looking for this. I knew it wasn't "rocks and all", another time cc and transcript called it, ",roxanna", haha I knew it wasn't that either. Anyways, thank you!
I believe you can bring it up with your doctor and they can refer you if you qualify. I would set a doc appt up and write down what you want to tell him. Symptoms and diagnoses should be discussed
everything you said here is exactly what we just experienced with my mother in law. of course she was tired of it all and chose no treatment and went into hospice. Of course we thought that might buy us some more time with her, we did not get that time. she died on the second day of entering hospice to which we were all shocked. But in her paperwork i found a paper that was instructions for her to adminster morphine herself. So am i to assume she took her own life? it showed the bottle and the syring and instructions on how to do it. Also that day she died it was late afternoon. Shouldn't hospice have called us to let us know she was on her way out? so we could all get there? They didn't call anyone till after she passed. We were all shocked.
Hey julie ive had copd now for many years and on oxygen for several years ,even had covid i felt fine no temp even, i was in hospital couple days, even around then not from covid my lungs froze up 2 or3 times i was intrabated twice they revived me ,since then ive gone more and more oxygen i need 7to10 lit. Just to go to kithen or bathroom ,much oxygen starvation ,well i prayed to my savior if i should get on hospice and watched some vidieo on it and yours came up, now i know i can come on and off it im going to do it ,thanks for your vidieos😅
My mom had COPD and asthma and was dying with lung cancer that had metastasized through out her body. During her last few minutes her O2 was removed. It was said it was causing her body to “hang on”. Does that sound correct?
I have copd, heart failure, ibs, ulcerative colitis, and long covid. great, right? I also have a problem with my spine caused by passing out and hitting my head on my desk hard enough to move it several feet and causing a gash in my head (I could become like Christopher Reeve, so my surgeon says, if not fixed). most recently, I awoke having lost the sight in my right eye and right side numbness. And all this was since January. I think I give up! I have had nothing but problems with my insurance, and you know what? I did my job, I raised my kids right, and so...done. I don't want to do this anymore, to be really honest. I can't even drive now. And to all of this? I say, stand in f'ing line!
COPD hospive patient and having lots of tremors and is starting to sleep more. I understand the sleeping but why the trembling i have not seen this and have done hospice for over a decade.
I've heard you use the term "air hunger" a few times, if someone were to say they can breathe in enough air, but it feels like there wasn't enough oxygen inside, would that match up with air hunger?
From my personal experience yes It’s also breathing fast while just sitting. Feeling like you just can’t get enough in At times. Even when you breathe deep, or not.
QUESTION: My 81YO mother has Stage 3 COPD, persistent cough, dyspnea, still smoking 1 pack/day. Do you think she will ever receive oxygen or does her smoking disqualify her as a candidate. She lives alone right now, but receives daily visits from her sisters, because I do not live nearby.
I'm at 23 percent lung capacity and am 45. My average My spo2 is average at 82. My age is the reason I don't qualify for oxygen. The trip 2 days ago to urgent care they wanted to put me in an ambulance and head to the hospital to just be put on a bed to have oxygen. I'm not hungry or thirsty. Haven't been for about a week. I haven't slept for more than an hour in the past 5 days. My body just won't. My spo2 dips low (mid 50s) when I start to fall asleep. I know I'm done. I don't want to leave my husband in debt for something that's inevitable. I'm all don't fear the reaper and ready to go. My husband is forcing me to eat. I just throw it up when I start coughing. Why is this so prolonged? Is it going to be like this much longer? How do I get on hospice? My original pulmonary specialist told me point blank he wants to me to have a second opinion. I felt so bad for him but I waited for 3 years to see him. They wasted 3 years! I scared for my husband to have to deal with this. He's not handling it well. My kids are not handling it all, I have no idea where to start. Where do I start? No medical advice just paperwork advice.
Ok my mum has this. Please it’s very important to me that I get the right info. She has had no information regarding this so does this means all people with COPD are likely to die soon ? What’s the life expectancy ? My mum struggles a lot do you think she needs hospice ? She’s 59 and has a lot of health problems so I’m rather concerned she almost died two years ago she got pneumonia then meningitis in her pain and it went septic but she survived poor mum has never smoked a day in her life and somehow got it. I hope I don’t have it !! I didn’t know people went on hospice with it
Hospice care is for people with life expectancy of 6 months or less. Find out what stage COPD she has (stage 4 COPD is considered end stage) and talk with her doctor(s) about hospice or palliative care if it feels right for her. We are in the process of getting my mom with stage 4 COPD on palliative care. Good luck!
End stage for mom was...always sleeping..not eating..incoherent.low pulse ox,and brain fog.... then last hours were hours I want to erase from memory..If you smoke...STOP!!!!
I‘m not s native speaker. Please can you explain what the word “rocks“ means. Is there a medical term for it? For me rocks are large stones from a mountain. I think these kind of rocks can’t help a COPD- patient. 😆
A friend of mine is at end stage. I'm not sure how long he has left but he refuses hospital care and struggles at home on his own. He has a nurse visit him. He is on morphine and they told him to take out through the day, but he doesn't. He takes out all night! He has alot of exacerbations daily, he's skin and bone. Struggling to eat as no appetite and back make himself anything. I keto thinking he invisible and he will keep going.. he fed up and as much as he doesn't want to die, he had enough sitting in his house suffering dad in day out. He's getting weaker day by day but still manages to get upstairs to bed although it finishes him! I wanted to ask if you think he is at the stage of dying. How will he die? Will he have a heart attack or will he get weaker and weaker to the point of not being able to get out of bed. He would hate to end like that... he says he would end his life cut cant do it to his children. Very sad situation
She is smiling because that's what Nurse Julie does. She is a warm, giving and knowledgeable human being with a heart of gold. To Nurse Julie, death and dying is the one of the most natural things a person will do. Seems her mission is to educate people, so not to be scared of when the time comes for you or your loved ones. I'm sorry about your Mom, I just lost mine too.
Mom had that. Blessed she didn't get lung cancer. she smoked like a chimney from the age of 19 to 60. Then she quit and I mean quit - no more cigarettes. So grateful I had her 20 more years, but the last 5 years in and out of hospice watching her go downhill was just horrible.
Thank you Julie... This helps me understand how the end might to for me too... 😢😊
I just graduated after 2 yrs :) !!
Thank you for being you.
Excellent presentation!
Thank you!!!
my mother passed away last month from COPD. She did not realize she was in bad shape. She had an episode last year where she was gasping for air and decided to quit smoking. I was so happy she quit. But I think it was the beginning of her decline. She ended up on oxygen every day. But still did not know she was in bad shape. It was until last month that she ended up in the hospital with pneumonia. They sent her home after they thought she was fine. Then she was not responsive to her caretakers. They sent her back to the hospital only to find out she only had hours , days at most to live. She made it 4 days after. This was difficult. everything just happened so fast.
Your an inspiration to many people Julie! My mother died from COPD. Thanx! @
My 90 year old Dad died in January of 2021. He had severe COPD and developed COVID in the very beginning of the pandemic...something we were scared of and did everything to try to avoid. He was adamant that he did not want to go on a ventilator and we honored that. Mom was already gone a few years prior from Alzheimers. My twin brother and his wife lived with Dad to take care of him and had COVID as well, so I was the one to visit Dad in the hospital every day (in full PPE). I made the arrangements for hospice and sat with him, talked to him, called people so he could talk to them and arranged a blessing over the phone from the pastor at their church. The last day, he was unconscious and his skin was nice and warm. Up until that day, it had been cool. I also noticed that he had the pauses in breathing. When I left, I took off my PPE, kissed him on the forehead and told him that it was OK if he went to be with Mom. I told him that we would be OK. Shortly after I got home at 7PM, the nurse called and told me about the changes in his breathing. I said I had seen it too, I asked if I should come back down and she said there was no way to know. She had seen people like that for days. I decided not to go back that night and to go in first thing in the morning. He died shortly after 11PM that night. I am still haunted by my decision not to go back so I could have been there with him.
My father had COPD, he was an ex coal miner actually working at the coal face for many many years. He lived another 2 years after they told us he had a few weeks to live, he was 82 when he died. Towards the end, I was with him day and night. He was close to death many times but would then "come back", it went on for days and days. We would talk, he was more or less aware of everything and remembered many memories we shared. The only night my sister convinced me to go home as she would sleep there with him to give me a break, was the night he died. I felt the same as you did, until my brother, who knew how close we were, said, "Maybe he didn't want to hurt you and go when you were there with him"
I think about that a lot ❤
@@STRANGERINMOSCOW1 5
Thank you both for sharing
I had a physician friend die with COPD & I do know this can be a tough one. You are an inspirational, smart and great looking woman. Keep up the excellent presentations. Barry Nulph, Phoenix, AZ
Thank you for your informative talks. I have COPD and shared this with my daughter/caretaker.
Thank you for sharing. Also glad you gave the disclaimer, “You’re here to educate, you’re not a Dr.”. So many times we nurses give our knowledge, love and caring but have to always tell our friends CALL your Dr.
My daddy has recently gone on hospice. He has had Dementia for 8+ years, has COPD, and has Pulmonary Fibrosis. Thank you for mentioning Roxanol! I asked our hospice nurse about it tonight and she said that is exactly what he already is taking! I appreciate knowing I can use the term Roxanol with family members who may be sensitive to the word Morphine! It actually even sounds better to me, too!😉
I appreciate ALL of your information!
I, along with many of daddy’s caregivers & my mother, have learned so much from you! Thank you!
You are a awesome soul with a beautiful ❤️...... Thankyou for what you are doing .I am not sick but I am so happy I found you and learning more and more each day of Hospice and dying...all of us are going to die sooner or later. I was a nurse when I was young and you taught me alot I never knew. Never ever to old to learn.... Thanks again out of my heart ❤️ 🤗❤️
Would you do an episode on cirrhosis of the liver? I think I'm still in denial. On the cusp of stage 3 & 4 of actual cirrhosis.
I was wondering about hospice coming on and then going or closing a case after opening it. I am a RN disabled back in 2000, Nov 7 Colin cancer surgery was all I needed. I also confirmed it with a second opinion. I have IBD. Ischemic colitis . Now last year cancer again in my anal area. Squamous cell carcinoma internally. Stage1 in remission at this time. Thankyou for educating people about four decades ago I was one of our community's first team of trained hospice nurses. I have learned so much from you.
🙏 I hope and pray everything will be in your favor.
Thank you for sharing this information ❤ I really needed to hear that.and when and if I have to go on hospice, I hope I have some one as wonderful as you 👍🙏♥️😎
My brother never smoked but used inhalers, steroids, etc. most of his adult life to breathe. He passed at the age of 57 and seeing him in ICU struggling to catch his breath was so hard for us all. The Dr. finally called the family into a room and suggested we 'help' him along. I will never forget how his head was 'jerking' from side to side as he struggled to breath. I so wish I would have known about the possibility of him passing in the comfort of his home with hospice. I would have offered this information even though it wasn't my place to make this decision.
And the hospital had access to the same medications Julie speaks about; makes me wonder why your brother didn’t get those instead of struggling so hard and you having to witness it. I’m sorry you had to experience that.
Dear Julie I found your channel just recently. Though I'm not a native english speaker I truly love your videos and the information you share. My dad had COPD and died two years ago. Although he died because of heart coplications due to COPD.
I wish we have had a nurse like you. It would have made it all a bit more bearable for him and us. The staff of the nursing home didn't seem to truly understand his state and needs. Do you have any hints how we as relatives can communicate with the staff if something doesn't seem to be right. I don't want to come of as rude or so. And I don't want to make the nurses feel bad as they mostly overworked and sadly often underpayed. Thank you for all your videos.
Julie thank you, ❤ I am privileged to follow u both on u tube and tiktok. I suffer from COPD and Anaphylaxis attacks. Oxygen 83
Thank you.
Great information.
Worry more about you.
My Granny passed away 13 years ago and she had smoked as long as I can remember only to quit only a few years before she passed away at 80. During her last months, she had been struggling with Dementia and COPD and she started going in and out of Hospital when she has episodes of Air Hunger which causes her to panic and calls an ambulance.
Thanks for this Julie for I have just been Dx'd with COPD. At the end I don't want to drag this out and was wondering if you had experience with End of Life Assistance and maybe do a vid on it? Thanks for all you do!
what state do u live in? That's going to play a lot into what your options are
@@missyrivas8623 NJ and they have it!
@@stevestarr6395 yup I'm in nj too! I'm studying to be a death doula/midwife so I'm very supportive of end of life medical assistance and am getting into all the nooks of the laws here because I aim to work specifically with this population
@@missyrivas8623 That’s great Missy and wish you the best of luck on this much needed field!
Could you do a segment on what to expect with pulmonary fibrosis. Thank you
Great information, I just spent 3 days in the hospital for COPD flare. I'm returning to "normal" for me, quite a wakeup.
Hi just started watching your videos I'm stage ,4 inphazema copd my Dr calls it both
But like the way you explain what's going to happen cause it's really is scary for me but thank you so very much
Thank you
Hi Julie! I love your videos. You have helped me so much. My 85 yr old Mother, has COPD, Emphysema. She has gotten worse lately with her symptoms. She at stage 3-4. Difficult breathing. Wheezing. Decreased food and liquids. Trying to keep her as comfortable as possible.
My question is she recently had a bad flare up with low breathing and wheezing. Yesterday her cheeks turned red/purple in color. Is this normal? And her speech is slurred.
Thank you. 🙏🏽 Blessings to you. 💜
please do one on congestive heart failure, I suffer from it and have fro4 years, thsnks
My dad died of COPD 9 yrs ago and now my mom is end stage. Her hospice nurses, CNA's, social workers have been wonderful! It was very difficult for me to approach her about Hospice. I didn't want her to think I was giving up. It took her a couple of days of talking about it and of course we wanted her to make the decision. Now she looks forward to their visits and she knows she is safe, clean and comfortable! ❤️🙏❤️🩹
My friend had copd. He got to the point where he could not eat or speak, because he got shortness of breath. Eventually, he treated it as a fungus, and it went away.
copd does not go away - chronic
My husband has ipf. Im assuming they are about equal in the end. Hardly no info from a journey of ipf. Only finding the ipf diagnosed then never hear anymore. Yes this sound desperate. But any1 who has a loved one with a horrible diagnosis understands the fear. 😞 palitive care coming in 2 weeks we are hopeful that this will help us on this journey. I appreciate you. The way you speak it doesn’t seem so terrifying ❤️
Can you explain the transition from ventilator to in patient hospice. My mother doesn’t want to have a tracheostomy and she has been re vented the second time in over 2 weeks. She didn’t stay off the vent more than 12 hours. I am meeting with a team of doctors today and I’m really nervous. I have already talked to the hospice nurse and she didn’t answer any of my questions.
Roxanol not rocks and all. The cc didn’t get it right. It’s morphine.
Hahahaha…. 🙈🙈🙈. Oops! Didn’t catch that. 🥰❤️- yes- roxanol 😎
I think the CC had been partaking in a little 'rocks and all' themselves 😂
Roxanol - concentrated morphine … a very low dose relaxes a patient and usually allows them to breath more effectively and relax a bit thus feeling more comfortable.
Thank you! I went into transcripts and comments specifically looking for this.
I knew it wasn't "rocks and all", another time cc and transcript called it, ",roxanna", haha I knew it wasn't that either.
Anyways, thank you!
I can not that you enough for your information. I think I need Hospice, how do I go about talking to my doctor about this?
I believe you can bring it up with your doctor and they can refer you if you qualify. I would set a doc appt up and write down what you want to tell him. Symptoms and diagnoses should be discussed
Can you do a video regarding multiple myeloma?
what criteria do people meet to be put on hospice?
everything you said here is exactly what we just experienced with my mother in law. of course she was tired of it all and chose no treatment and went into hospice. Of course we thought that might buy us some more time with her, we did not get that time. she died on the second day of entering hospice to which we were all shocked. But in her paperwork i found a paper that was instructions for her to adminster morphine herself. So am i to assume she took her own life? it showed the bottle and the syring and instructions on how to do it. Also that day she died it was late afternoon. Shouldn't hospice have called us to let us know she was on her way out? so we could all get there? They didn't call anyone till after she passed. We were all shocked.
Hey julie ive had copd now for many years and on oxygen for several years ,even had covid i felt fine no temp even, i was in hospital couple days, even around then not from covid my lungs froze up 2 or3 times i was intrabated twice they revived me ,since then ive gone more and more oxygen i need 7to10 lit. Just to go to kithen or bathroom ,much oxygen starvation ,well i prayed to my savior if i should get on hospice and watched some vidieo on it and yours came up, now i know i can come on and off it im going to do it ,thanks for your vidieos😅
My mom had COPD and asthma and was dying with lung cancer that had metastasized through out her body. During her last few minutes her O2 was removed. It was said it was causing her body to “hang on”. Does that sound correct?
Hi I've had COPD for 25 yrs, I'm 65 and it's been a challenge to say the least. Often wonder how long this will take .
I have copd, heart failure, ibs, ulcerative colitis, and long covid. great, right? I also have a problem with my spine caused by passing out and hitting my head on my desk hard enough to move it several feet and causing a gash in my head (I could become like Christopher Reeve, so my surgeon says, if not fixed). most recently, I awoke having lost the sight in my right eye and right side numbness. And all this was since January. I think I give up! I have had nothing but problems with my insurance, and you know what? I did my job, I raised my kids right, and so...done. I don't want to do this anymore, to be really honest. I can't even drive now. And to all of this? I say, stand in f'ing line!
COPD hospive patient and having lots of tremors and is starting to sleep more. I understand the sleeping but why the trembling i have not seen this and have done hospice for over a decade.
I've heard you use the term "air hunger" a few times, if someone were to say they can breathe in enough air, but it feels like there wasn't enough oxygen inside, would that match up with air hunger?
From my personal experience yes
It’s also breathing fast while just sitting.
Feeling like you just can’t get enough in At times. Even when you breathe deep, or not.
Who is watching because Julie is incredibly beautiful and charismatic ?
QUESTION: My 81YO mother has Stage 3 COPD, persistent cough, dyspnea, still smoking 1 pack/day. Do you think she will ever receive oxygen or does her smoking disqualify her as a candidate. She lives alone right now, but receives daily visits from her sisters, because I do not live nearby.
Yes ,oxigen 3L Min
I'm at 23 percent lung capacity and am 45. My average My spo2 is average at 82. My age is the reason I don't qualify for oxygen. The trip 2 days ago to urgent care they wanted to put me in an ambulance and head to the hospital to just be put on a bed to have oxygen. I'm not hungry or thirsty. Haven't been for about a week. I haven't slept for more than an hour in the past 5 days. My body just won't. My spo2 dips low (mid 50s) when I start to fall asleep. I know I'm done. I don't want to leave my husband in debt for something that's inevitable. I'm all don't fear the reaper and ready to go. My husband is forcing me to eat. I just throw it up when I start coughing. Why is this so prolonged? Is it going to be like this much longer? How do I get on hospice? My original pulmonary specialist told me point blank he wants to me to have a second opinion. I felt so bad for him but I waited for 3 years to see him. They wasted 3 years! I scared for my husband to have to deal with this. He's not handling it well. My kids are not handling it all, I have no idea where to start. Where do I start? No medical advice just paperwork advice.
Ok my mum has this. Please it’s very important to me that I get the right info. She has had no information regarding this so does this means all people with COPD are likely to die soon ? What’s the life expectancy ? My mum struggles a lot do you think she needs hospice ? She’s 59 and has a lot of health problems so I’m rather concerned she almost died two years ago she got pneumonia then meningitis in her pain and it went septic but she survived poor mum has never smoked a day in her life and somehow got it. I hope I don’t have it !! I didn’t know people went on hospice with it
Hospice care is for people with life expectancy of 6 months or less. Find out what stage COPD she has (stage 4 COPD is considered end stage) and talk with her doctor(s) about hospice or palliative care if it feels right for her. We are in the process of getting my mom with stage 4 COPD on palliative care. Good luck!
My cousin just passed away of copd 2 days ago
Is hospice the same in every state
I think in a livestream she said hospice is federally regulated
whats rocks? am in the uk..my dad has copd so looking for information that I can find to help him.x
It's called Roxanol, it's liquid morphine
@@xjessicacx thanks.
End stage for mom was...always sleeping..not eating..incoherent.low pulse ox,and brain fog.... then last hours were hours I want to erase from memory..If you smoke...STOP!!!!
I‘m not s native speaker. Please can you explain what the word “rocks“ means. Is there a medical term for it? For me rocks are large stones from a mountain. I think these kind of rocks can’t help a COPD- patient. 😆
Roxanol is the word she’s using. Auto captioning really didn’t do well with that word lol.
@@SophiaTellman Thank you. Roxanol sounds better as rocks for COOD-patients. 😂
A friend of mine is at end stage. I'm not sure how long he has left but he refuses hospital care and struggles at home on his own. He has a nurse visit him. He is on morphine and they told him to take out through the day, but he doesn't. He takes out all night! He has alot of exacerbations daily, he's skin and bone. Struggling to eat as no appetite and back make himself anything. I keto thinking he invisible and he will keep going.. he fed up and as much as he doesn't want to die, he had enough sitting in his house suffering dad in day out. He's getting weaker day by day but still manages to get upstairs to bed although it finishes him! I wanted to ask if you think he is at the stage of dying. How will he die? Will he have a heart attack or will he get weaker and weaker to the point of not being able to get out of bed. He would hate to end like that... he says he would end his life cut cant do it to his children. Very sad situation
He died last week
What's, Rocks and All?
Roxanol
Can you talk about Parkinson's?
Rocks???
No. Roxanol. It’s morphine
ROXANOL*- it’s liquid morphine
@@hospicenursejulie thank you for replying😊
what is rocks an all .
Define interment infection
Intermittent infection means infections that happen randomly, off and on. Hope that helps.
I'm told oxygen is dangerous and a ventilator is better
Why are you smiling and talking about death. I came here for info on my moms last days and I just feel like your smiling. It’s weird.
I have severe COPD and we all die. I appreciate that I have options and im not scared because of her approach.
She is smiling because that's what Nurse Julie does. She is a warm, giving and knowledgeable human being with a heart of gold. To Nurse Julie, death and dying is the one of the most natural things a person will do. Seems her mission is to educate people, so not to be scared of when the time comes for you or your loved ones. I'm sorry about your Mom, I just lost mine too.